Re: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed before?

[Guest guest]

You should give you son the strongest probiotics you can get. He definitely

needs them. My son has been taking the following probiotics for the past 2

years and will continue to take them for a really long time.

http://www.customprobiotics.com/custom-probiotics-d-lactate.htm. It is

dairy, preservative, sugar and gluten free.

Take care,

JR

From: [mailto: ] On Behalf Of

pineappleheadmama

Sent: Monday, March 15, 2010 4:38 AM

Subject: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed

before?

I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from

tummy pain, and would poop every 5 days! Poop was foul, with pepper like

flecks in it. He stopped sleeping, would wake 3 times a night, and would

either wake crying or laughing hysterically. I started treating with

probiotics, and within 3 days he started sleeping again, and his odd

laughter went down. During this time his virals went up to 320, and his iron

dropped from a healthy 80 to a scary 12.

So, now he has been holding his ear, and head and is miserable again. Loads

of tantrums for no reason, less verbal, and not learning at the pace he was.

Took him to ENT and he is clear. ENT did full exam including tympranogram

and nothing.

Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates

more pain, more behavior, and less words. I explained this, as well as the

fact that my family has all reacted with severe stomach pain on Septa, but

he didn't really 'hear'me.

There is no infection. Plus, bactrim is the same as septra and he did

terrible on it. He insists it is not the antibiotic but the fillers that

bothered him. He says I need to do this to keep him clear, and move forward

to other parts of the plan.

Has anyone ever disgreed with the rx? Has anyone seen good from longterm use

of anitbiotic? everything Ive read, and everything I have seen with my son,

and myself, says this is not a good idea.

If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will

kick myself! I trust him with everything else, and I know he is a

knowledgable Dr. Who am I to question?

Ahhhhhh!

[Guest guest]

*I* would not put my kid on Bactrim for 2.5 months. No way.

Fluid, in the absence of infection, is caused from the eustachian tube being

blocked off in the throat. If you want to try med's then try Flonase or

cortisone instead.

Just my opinion (that is what we do), but I am just a nurse (not a doctor) and a

mom who has had many great strides of success in the past using what I know.

Many people do not understand how the ear system works and how the ear, nose,

and throat are all connected. (I used to not understand, but now I do.)

BTW, giving Bactrim in the absence of infection will cause yeast to grow and

give your child diarrhea. (But then the doctor can swoop in and prescribe

something for that?)

My apologies if this is straightforward, but I call it as I see it.

>

> I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

>

> Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from tummy

pain, and would poop every 5 days! Poop was foul, with pepper like flecks in

it. He stopped sleeping, would wake 3 times a night, and would either wake

crying or laughing hysterically. I started treating with probiotics, and within

3 days he started sleeping again, and his odd laughter went down. During this

time his virals went up to 320, and his iron dropped from a healthy 80 to a

scary 12.

>

> So, now he has been holding his ear, and head and is miserable again. Loads

of tantrums for no reason, less verbal, and not learning at the pace he was.

Took him to ENT and he is clear. ENT did full exam including tympranogram and

nothing.

>

> Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates more

pain, more behavior, and less words. I explained this, as well as the fact that

my family has all reacted with severe stomach pain on Septa, but he didn't

really 'hear'me.

>

> There is no infection. Plus, bactrim is the same as septra and he did

terrible on it. He insists it is not the antibiotic but the fillers that

bothered him. He says I need to do this to keep him clear, and move forward to

other parts of the plan.

>

> Has anyone ever disgreed with the rx? Has anyone seen good from longterm use

of anitbiotic? everything Ive read, and everything I have seen with my son, and

myself, says this is not a good idea.

>

> If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will kick

myself! I trust him with everything else, and I know he is a knowledgable Dr.

Who am I to question?

>

> Ahhhhhh!

>

[Guest guest]

Yes, he and I butted heads several times while my son was seeing Dr. G.

While Dr. G can be very hard-headed, he usually has a clear reason for going

a certain way -- just doesn't always communicate it very clearly. He also

sometimes jumps to conclusions and doesn't always " hear " what a parent is

saying unless you insist that he listens. Given your concerns, I think it

would be a good idea to request more discussion about this recommendation

with him so you can better understand the reasoning.

The illness/fluid cycle your son is experiencing sounds very similar to

what my son went through for a few years when much younger. After carefully

keeping a food and exposure diary, we were able to find two things that

caused allergy-like reactions. When those were removed, the problem was gone.

Good luck.

Gaylen

[Guest guest]

How are his ASO titers? I've been with Dr. G for a little over a year and have

been on Ery-Tab the whole time. I have chronic strep, which causes lots of

anxiety, OCD behaviors, etc. If I back off the antibiotics, the strep flares. I

can tell when my titers go up...again lots of anxiety, irritability and OCD-type

behaviors. I, too, hate antibiotics and really hesitate to put my kids on them;

however, they can't kick upper respiratory infections without them.

I know it's hard to see your son so miserable. I know you'll make the best

decision for him.

All the best,

Robyn

________________________________

From: pineappleheadmama <robindriver@...>

Sent: Mon, March 15, 2010 2:37:37 AM

Subject: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed

before?

I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from tummy

pain, and would poop every 5 days! Poop was foul, with pepper like flecks in

it. He stopped sleeping, would wake 3 times a night, and would either wake

crying or laughing hysterically. I started treating with probiotics, and within

3 days he started sleeping again, and his odd laughter went down. During this

time his virals went up to 320, and his iron dropped from a healthy 80 to a

scary 12.

So, now he has been holding his ear, and head and is miserable again. Loads of

tantrums for no reason, less verbal, and not learning at the pace he was. Took

him to ENT and he is clear. ENT did full exam including tympranogram and

nothing.

Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates more

pain, more behavior, and less words. I explained this, as well as the fact that

my family has all reacted with severe stomach pain on Septa, but he didn't

really 'hear'me.

There is no infection. Plus, bactrim is the same as septra and he did terrible

on it. He insists it is not the antibiotic but the fillers that bothered him.

He says I need to do this to keep him clear, and move forward to other parts of

the plan.

Has anyone ever disgreed with the rx? Has anyone seen good from longterm use of

anitbiotic? everything Ive read, and everything I have seen with my son, and

myself, says this is not a good idea.

If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will kick

myself! I trust him with everything else, and I know he is a knowledgable Dr.

Who am I to question?

Ahhhhhh!

[Guest guest]

The use of antibiotics--whether there is infection or not--can cause yeast

overgrowth. That's why it's important to use good quality probiotics.

All the best,

Robyn

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Tue, March 16, 2010 8:09:55 AM

Subject: Re: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed

before?

How are his ASO titers? I've been with Dr. G for a little over a year and have

been on Ery-Tab the whole time. I have chronic strep, which causes lots of

anxiety, OCD behaviors, etc. If I back off the antibiotics, the strep flares. I

can tell when my titers go up...again lots of anxiety, irritability and OCD-type

behaviors. I, too, hate antibiotics and really hesitate to put my kids on them;

however, they can't kick upper respiratory infections without them.

I know it's hard to see your son so miserable. I know you'll make the best

decision for him.

All the best,

Robyn

____________ _________ _________ __

From: pineappleheadmama <robindriver@ rocketmail. com>

groups (DOT) com

Sent: Mon, March 15, 2010 2:37:37 AM

Subject: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed

before?

I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from tummy

pain, and would poop every 5 days! Poop was foul, with pepper like flecks in

it. He stopped sleeping, would wake 3 times a night, and would either wake

crying or laughing hysterically. I started treating with probiotics, and within

3 days he started sleeping again, and his odd laughter went down. During this

time his virals went up to 320, and his iron dropped from a healthy 80 to a

scary 12.

So, now he has been holding his ear, and head and is miserable again. Loads of

tantrums for no reason, less verbal, and not learning at the pace he was. Took

him to ENT and he is clear. ENT did full exam including tympranogram and

nothing.

Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates more

pain, more behavior, and less words. I explained this, as well as the fact that

my family has all reacted with severe stomach pain on Septa, but he didn't

really 'hear'me.

There is no infection. Plus, bactrim is the same as septra and he did terrible

on it. He insists it is not the antibiotic but the fillers that bothered him.

He says I need to do this to keep him clear, and move forward to other parts of

the plan.

Has anyone ever disgreed with the rx? Has anyone seen good from longterm use of

anitbiotic? everything Ive read, and everything I have seen with my son, and

myself, says this is not a good idea.

If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will kick

myself! I trust him with everything else, and I know he is a knowledgable Dr.

Who am I to question?

Ahhhhhh!

[Guest guest]

Hey,

That's a tough one.  First, I used to be very anti-antibiotics, but now I've

been on doxycycline 4+ years and can't function without it.  My kids don't do

well on some antibiotics, but others bring out wonderful things.

I had the hardest times w/Dr G when addressing antibiotics, probiotics (my kids

react to them like having a bacterial infection), and biggest of all, allergy

meds.  Allergy meds wreck our lives (w/the exception of benedryl).

First, the most important thing is to find an antibiotic that you can do a trial

on that doesn't end up hurting.

** When you have had so much trouble with septra (yeah - I did too - it was

horrible), were these people on antifungals?  When your child had the problem

with it before, was he especially on antifungals?  This has been the key for a

lot of people as to whether an antibiotic was good or bad.  I will not take

them if I don't have diflucan too, no matter what.

My son recently did a bactrum trial, and I was freaked out,  because I had bad

bad problems with it myself and I couldn't remember if he had problems before

either.  But lo and behold, he did great.  Absolutely great.  He was bright,

he did really well on it.  It was very effective.  I really wouldn't have

believed it if I hadn't seen it.  Even the 'good' antibiotics can bring a

little negative (usually outweighed by the positives so we do them anyway), 

but the only one I saw was one episode of runny stool, just one time in the

whole 10 days, and that was probably more from something he ate.

I would suggest that if your child was not on antifungals the last time he took

this med, that you try it once with Dr G helping to weed out the fillers that

can cause problems, and add probiotics that you know he already tolerates while

giving the med (give them 2 hrs before or after antibiotics for best effect). 

If he was previously on antifungals, then I don't know, but I tend to try things

at least twice but usually 3 times before ruling something out completely,

because I often find that there was another factor in a problem.  Sulfa is one

of the 'safe' meds for longer use, so to not be able to utilize it is a loss. 

But I don't know how anyone ever tolerated it without antifungals! 

I also discovered that while antibiotics without antifungals can cause some

horrible tummy problems, the combo of antifungals and antibiotics could actually

resolve them too.

If you decide to try it hurts, you stop immediately, and say never again, label

it an allergy.  But you can try it Dr G's way, find out about the fillers -

because if it really was about fillers, then that might matter in some other

situations.  

What concerns me most is that it seems like the regressions you mentioned

happened after starting the antibiotics, right?  Not as a result of the illness

that required them?  Would you want to list the specific ones that were

connected to the problems and see if there is a link?  Different classes have

different effects on the immune system, and there could be an answer somewhere

in there...

Good luck - I feel for you!

 

________________________________

From: pineappleheadmama <robindriver@...>

Sent: Mon, March 15, 2010 4:37:37 AM

Subject: Help, I disagree with Dr,'s Rx! Has anyone ever disagreed

before?

 

I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from tummy

pain, and would poop every 5 days! Poop was foul, with pepper like flecks in it.

He stopped sleeping, would wake 3 times a night, and would either wake crying or

laughing hysterically. I started treating with probiotics, and within 3 days he

started sleeping again, and his odd laughter went down. During this time his

virals went up to 320, and his iron dropped from a healthy 80 to a scary 12.

So, now he has been holding his ear, and head and is miserable again. Loads of

tantrums for no reason, less verbal, and not learning at the pace he was. Took

him to ENT and he is clear. ENT did full exam including tympranogram and

nothing.

Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates more

pain, more behavior, and less words. I explained this, as well as the fact that

my family has all reacted with severe stomach pain on Septa, but he didn't

really 'hear'me.

There is no infection. Plus, bactrim is the same as septra and he did terrible

on it. He insists it is not the antibiotic but the fillers that bothered him. He

says I need to do this to keep him clear, and move forward to other parts of the

plan.

Has anyone ever disgreed with the rx? Has anyone seen good from longterm use of

anitbiotic? everything Ive read, and everything I have seen with my son, and

myself, says this is not a good idea.

If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will kick

myself! I trust him with everything else, and I know he is a knowledgable Dr.

Who am I to question?

Ahhhhhh!

[Guest guest]

I would trust your gut mom.

If there is no infection and fluid is the issue some massage therapy (lymph

drainage) and craniosacral therapy can be very helpful. It is afterall a

mechanical problem with the drainage of the complex eustachian tube system in

the ear.

Night time warm mist humidifier, steamy baths, lots of hydration with water all

can help too and time.

I am an FP doc with DAN! training and mother of a 4 year old with autism and

although I am here as a mom and try not to give medical advice, I echo the last

poster, long term antibiotics are best avoided if possible. Maybe voice your

concerns to your Dr again and ask if you could try " watchful waiting " for one

month prior to making a decision on antibiotics.

Good luck.

> >

> > I am so stressed! We have been seeing Dr.G for a year, and have made good

progress. I love Dr. G and find him unique that his passion truly is for our

kids. We were actually at our highest point until recently. From Aug-Nov my

son's virals were down to 20,and he was talking more, happy,and all the

teachers,etc were taking notice.

> >

> > Then, he had several bouts with ear fluid, and a couple ear infections and

everything went down hill. He has been on 4 antibiotics this season and is

regressing. I HATE antibiotics! It makes me miserable, and I see it does the

same for my guy. Septra in particular, was the most harsh. He cried from tummy

pain, and would poop every 5 days! Poop was foul, with pepper like flecks in

it. He stopped sleeping, would wake 3 times a night, and would either wake

crying or laughing hysterically. I started treating with probiotics, and within

3 days he started sleeping again, and his odd laughter went down. During this

time his virals went up to 320, and his iron dropped from a healthy 80 to a

scary 12.

> >

> > So, now he has been holding his ear, and head and is miserable again. Loads

of tantrums for no reason, less verbal, and not learning at the pace he was.

Took him to ENT and he is clear. ENT did full exam including tympranogram and

nothing.

> >

> > Last week had a visit with Dr., and he noted that he was miserable due to

illness. His ears were still clear, but Dr. wants him on Bactrim for 2 1/2

months, to boost his immune system and keep him clear. (he had slight runny

nose) I trust the Dr., and feel like he is great at what he does, but I am

having a really hard time doing this. Every batch of antibiotics, creates more

pain, more behavior, and less words. I explained this, as well as the fact that

my family has all reacted with severe stomach pain on Septa, but he didn't

really 'hear'me.

> >

> > There is no infection. Plus, bactrim is the same as septra and he did

terrible on it. He insists it is not the antibiotic but the fillers that

bothered him. He says I need to do this to keep him clear, and move forward to

other parts of the plan.

> >

> > Has anyone ever disgreed with the rx? Has anyone seen good from longterm

use of anitbiotic? everything Ive read, and everything I have seen with my son,

and myself, says this is not a good idea.

> >

> > If I do this, and he goes through hell again, it will be my fault for not

listening to me gut. If I don't, and our wise Dr. was right, than I will kick

myself! I trust him with everything else, and I know he is a knowledgable Dr.

Who am I to question?

> >

> > Ahhhhhh!

> >

>