Re: Diet/and other frustrations

[Guest guest]

I could use some similar encouragement. I am just SO SICK of eliminating,

eliminating, and ELIMINATING things from my son's diet and not seeing any

difference, in functioning and behavior, or in the redness of his cheeks Dr. G

says are a sign of food allergies and means inflammation in the brain. It

actually has always seemed to me that his cheeks more often get like that when

he plays exciting video games, not when he has eaten a " bad " food. On the

other hand, (ds) used to get red EARS after eating certain foods, but after

eliminating the main offenders, the red ears stopped.

Here's another thing I've been feeling discouraged and frustrated about. My son

just seems...stalled. He was doing so well, improving so much, until just

before Christmas. Then we switched antifungals (from Nizarol to Diflucan) and

he just sort of went backwards. Diflucan has always been kind of dicey for him,

so we stopped now switched again -- this time to Lamisil. That was a little

under three weeks ago, and he's still pretty spacey and disconnected and hasn't

brightened up at all. I'm just not sure if he could have gone through die-off

on the Lamisil since he had JUST switched to Diflucan a few weeks prior and

probably went through die-off with that, or if he is still just adjusting to the

Lamisil chemically. OR, is it a food thing, as Dr. G has been adamant that it

is? There is virtually no difference between his diet before Christmas, when he

was doing just great, and his diet now. In fact, we have since taken out a

couple of things that Dr. G thought be offenders, and NO. DIFFERENCE.

Dr. G has also been telling me that if can focus on the things that

interest him, he should be also able to focus on the things that he doesn't like

(i.e., it is a behavioral issue and not a symptom of his illness), and that

instead of " redirection, " he should be disciplined in some way if he won't focus

on the things he is less interested in. My contention is that the reason he can

focus on the things he is interested in is that he can tune out sensory

interference that bothers him, but can't if his interest can't be held. I know

he still has sensory issues because he still covers his ears during parts of

movies that aren't necessarily loud, has been walking in circles a lot lately,

and he scripts and is often completely oblivious when he is outside. Yesterday

his school aide told me that he walked right through a basketball court during a

game -- no awareness of what was going on around him AT. All. Yet Dr. G keeps

telling me that these things are somehow either behavioral or food-related. I

am really feeling at wit's end here. Maybe things will start to get better

again soon (they always do, but this has been a particularly long slump) and

this vent will seem unnecessary in a week or two, but for now...I don't know.

So any encouragement or insight would be greatly appreciated.

Edited to add: He's started his third course of Imunovir a month ago.

TIA for your thoughts,

Donna

>

> Hi All,

>

> Is anyone willing to share some feedback/encouragement regarding Dr. G's diet

for our kids? We have been doing it for 3 years now and I am growing fatigued

from it (and falling off the wagon). Of course, Dr. G says how important it is,

but when we occasionally " cheat " , we don't see any negative results, until we

gradually cheat more and more. Then I think, " Well, maybe is one of

those kids who does not need the diet " . Meanwhile, three months go by and were

wondering if the diet needs to be adjusted.

>

> We are adamant about no dairy, but I think we give far too many carbs. Have

any of you gone off the diet and still been able to maintain improvement with

the protocol?

>

> Maybe I just need a kick square in the pants to put me back on track! Any

comments/suggestions appreciated.

>

> Thanks in advance,

>

>