XMRV testing

[Guest guest]

I for one am curious to see how this XMRV plays out as I have two kids and a

husband possibly implicated. Something tells me the answer will not be simple

but  certainly a confirmation of this virus would give us another component of

the whole complex neuro immune viral pathology (!) .

I spoke to Dr G about actually testing for the virus which some of us are

curious to do. Dr. Goldberg is in the loop with the Whittemore sen

institute and therefore he will be able to coordinate legitimate testing as to

the virus for people who want it .( He thinks fairly soon). I assume it will

be to  the advantage of the group as a whole and to individuals to have this

standardized and collected in one place.  Dr Goldberg has been on the viral

path for many years and in all fairness the identifying of a new viral component

is just more fodder for the argument and potentially another tool for a

long overdue medically based diagnosis.

Maybe as parents  we can use this XMRV hoopla  as more ammunition that our

kids are sick and not developmentally delayed and that we really need some

serious medical attention for them NOW!  //