New and confused as usual

[Guest guest]

Hello, I am mother to a wonderful, imaginative, playful, creative and

affectionate little boy who is 6 years old and was diagnosed with classic autism

at nearly 3. I never went through the typical reactions parents do. Not because

I am or ever was in denial but because I just didn't feel it. I was more like,

omg why won't anyone help me help him? I've been in a mixed greenspan ABA

intensive program for over 2 years. Yes he has grown but because of that? I

really don't think so, perhaps as any child would grow from contact. I think

he's sick, I know he's hurting. I think I shut down the for the last year and

now am panicking because I did. Ok that might not make sense but anyway I am new

to finding out about this and have convinced my provider to help me. A few

things worry me right off the bat... and a few of these things may have been

answered on the other forum, thank you for any responses.

1- My provider will help me but I have to help her understand what needs to be

done. Tests, interpreting tests, then after that meds perhaps... With my Lyrica

fog this is hard.

2-This diet seems rough. We went gluten casein free for a few months about a

year ago. I'm willing to try it again but for a kid who eats almost nothing but

pb and j and apples this is going to be a lot of screaming and self injury. I

KNOW all these kids are food picky so I seek suggestions.

3- The SPECT scan, what options do I have about knocking him out for this? He is

just horrified to the point of a nervous breakdown when he sees anything of the

sort.

4- If I do put him on meds, depending on the test results I read someplace about

weekly blood tests, what is that about? What meds specifically is this being

done for?

5- Is anyone not doing all these meds and just a few with success?

Thank you for baring with me, I am just a mess I know lol