Re: WPI more research on autism?

[Guest guest]

I just read this (it was posted 2 days ago)...

³Meanwhile the work at the WPI appears to be continuing as before. Certainly

from the outside we don't any sense that the discovery is falling apart; Dr.

Mikovits is as public as ever and is continuing to talk at conferences and

before groups. We just learned, in fact, that she'll publicly be expanding

the WPI's XMRV work into autism - hardly the behavior of a researcher who

feels in doubt of her work.²

It was posted here...

http://www.forums.aboutmecfs.org/entry.php?292-XMRV-Check-Check-Check#commen

ts

Does anyone know anything about this? Has she made some sort of

announcement?

I don¹t see anything on the WPI website.

Caroline G.

[Guest guest]

Hey Caroline,

 

I saw your post there on the forum. Great Question! I went to the link that Cort

provided and will post this little treat:

 

Shining A Light on the Autism ME/CFS Connection - in an email to a researcher, a

couple of months ago, Dr. Mikovits agreed that it probably would have better for

her not to mention unpublished results about finding XMRV in autism patients.

 It sounds like a paper is in sight now, though, as the document states that

she will " show evidence of XMRV infection in ASD and discuss the implications of

XMRV infection in the pathogenesis of neuroimmune disease including ASD " . If

some researchers are worried about the status of XMRV Dr. Mikovits is clearly

not and she's moving boldly forward into one of the most contentious research

areas of all. The autism crowd is organized and active and they want answers. 

Could XMRV be one of them? The Conference is May 29th.

All the best,

 

Jill

From: Caroline Glover <sfglover@...>

Subject: Re: WPI more research on autism?

Date: Monday, March 22, 2010, 8:14 AM

 

I just read this (it was posted 2 days ago)...

³Meanwhile the work at the WPI appears to be continuing as before. Certainly

from the outside we don't any sense that the discovery is falling apart; Dr.

Mikovits is as public as ever and is continuing to talk at conferences and

before groups. We just learned, in fact, that she'll publicly be expanding

the WPI's XMRV work into autism - hardly the behavior of a researcher who

feels in doubt of her work.²

It was posted here...

http://www.forums. aboutmecfs. org/entry. php?292-XMRV- Check-Check-

Check#commen

ts

Does anyone know anything about this? Has she made some sort of

announcement?

I don¹t see anything on the WPI website.

Caroline G.

[Guest guest]

Oh dear, I forgot to add the paragraph before that.

 

The Autism-CFS connection on the face of it is a strange one. How can one relate

often severely socially and terribly cognitively impaired autism patients to

ME/CFS patients? Apparently by looking at study results; Dr. Mikovits reported

that both groups share " immune dysregulation, increased oxidative stress,

increased expression of proinflammatory cytokines and chemokines, mitochondrial

dysfunction and chronic active microbial infections " . One wonders if different

but somewhat similar immune dysfunctions can, by targeting different areas, have

quite different results.

The Autism-CFS connection on the face of it is a strange one. How can one relate

often severely socially and terribly cognitively impaired autism patients to

ME/CFS patients? Apparently by looking at study results; Dr. Mikovits reported

that both groups share " immune dysregulation, increased oxidative stress,

increased expression of proinflammatory cytokines and chemokines, mitochondrial

dysfunction and chronic active microbial infections " . One wonders if different

but somewhat similar immune dysfunctions can, by targeting different areas, have

quite different results.

All the best,

 

Jill

[Guest guest]

The key there is " chronic active microbial infections " . That is the root of the

problem. The other viruses are like bystanders at the scene of the crime. There

is debate about the best treatment, but treatment is available. & nbsp;

[Guest guest]

No official announcements about their research about XMRV and autism yet, I am

afraid...

>

> I just read this (it was posted 2 days ago)...

>

> ³Meanwhile the work at the WPI appears to be continuing as before. Certainly

> from the outside we don't any sense that the discovery is falling apart; Dr.

> Mikovits is as public as ever and is continuing to talk at conferences and

> before groups. We just learned, in fact, that she'll publicly be expanding

> the WPI's XMRV work into autism - hardly the behavior of a researcher who

> feels in doubt of her work.²

>

> It was posted here...

>

> http://www.forums.aboutmecfs.org/entry.php?292-XMRV-Check-Check-Check#commen

> ts

>

> Does anyone know anything about this? Has she made some sort of

> announcement?

>

> I don¹t see anything on the WPI website.

>

> Caroline G.

>

>

>

[Guest guest]

Thanks, Jill!

If this comes to fruition, it could be amazing. Politically speaking, it¹s

a fiery furnace... she¹s a bold woman. I just keep thinking about what

happened to Elaine DeFreitas and am keeping my fingers crossed that things

will move in whichever direction they need to to help our kids.

Caroline

[Guest guest]

I know... I looked all over the WPI website hoping to find something!

Caroline

[Guest guest]

People with ME/CFS can also be " severely socially and terribly cognitively

impaired " and often bedridden.  They are more alike than you'd think!!  Hugs,

Michele

----- " Jill Boyer " <sjillboyer@...> wrote:

> Oh dear, I forgot to add the paragraph before that.

>  

> The Autism-CFS connection on the face of it is a strange one. How can one

relate often severely socially and terribly cognitively impaired autism patients

to ME/CFS patients? Apparently by looking at study results; Dr. Mikovits

reported that both groups share " immune dysregulation, increased oxidative

stress, increased expression of proinflammatory cytokines and chemokines,

mitochondrial dysfunction and chronic active microbial infections " . One wonders

if different but somewhat similar immune dysfunctions can, by targeting

different areas, have quite different results.

> All the best,

>  

> Jill

[Guest guest]

hi Jillwelll i have to say that i have cfs and my son has autism, i am also

aspergers

with the testing we have been doing thru Prof De Meirler (belgium) my son is

showing the same, as in gut issues, iggs to food (same), fructose malabsorption

etc. so yes i would say there is a very big connection. Prof De Meirlier is out

in australia, in april where i will be seing him for a follow up but he also

wants to see my son. i have already started his protocol, and my son Dermott has

already started, the mb12 spray (readisorb), the l glutamine 500mg for

him,(script) and the readisorb l glutathione, 1 ml per 10kgs, and kirkmans amino

support, biocueticals sb flora proactive, and metagenics super dophilis (the

probiotics are according to his stool test and what is lacking),and already a

very HUGE improvement with him. i am taking these but in far bigger dosages as

well as some other specific stuff.

he has just had the IGG/M tests for EB, CMV, and a few others i cannot remember.

which i was positive to. prof de meirlier will also be doing specific testing on

the TH2/TH1 part of the immune system, alot similar to wakefield, hvv6 and 7 and

a few others as well.

attached is a copy of his talk last time in australia, yes it is about cfs, but

as he explained to me it is also very relevant to Autsim, as there is

mitchondral issues.

From: mtownsend29@...

Date: Mon, 22 Mar 2010 23:47:57 +0000

Subject: Re: WPI more research on autism?

People with ME/CFS can also be " severely socially and terribly cognitively

impaired " and often bedridden. They are more alike than you'd think!! Hugs,

Michele

----- " Jill Boyer " <sjillboyer@...> wrote:

> Oh dear, I forgot to add the paragraph before that.

>

> The Autism-CFS connection on the face of it is a strange one. How can one

relate often severely socially and terribly cognitively impaired autism patients

to ME/CFS patients? Apparently by looking at study results; Dr. Mikovits

reported that both groups share " immune dysregulation, increased oxidative

stress, increased expression of proinflammatory cytokines and chemokines,

mitochondrial dysfunction and chronic active microbial infections " . One wonders

if different but somewhat similar immune dysfunctions can, by targeting

different areas, have quite different results.

> All the best,

>

> Jill

[Guest guest]

What is the specific TH1 test?

>

> > Oh dear, I forgot to add the paragraph before that.

>

> >

>

> > The Autism-CFS connection on the face of it is a strange one. How can one

relate often severely socially and terribly cognitively impaired autism patients

to ME/CFS patients? Apparently by looking at study results; Dr. Mikovits

reported that both groups share " immune dysregulation, increased oxidative

stress, increased expression of proinflammatory cytokines and chemokines,

mitochondrial dysfunction and chronic active microbial infections " . One wonders

if different but somewhat similar immune dysfunctions can, by targeting

different areas, have quite different results.

>

> > All the best,

>

> >

>

> > Jill

>

>

>

>

[Guest guest]

it is a specific test that is done by prof De Meirlier, but it is done back in

Belgium, at red laboratories

http://www.redlabs.be/red-labs/our-tests/immune-function-assays.php

the below is all IgG/M tests

forhttp://www.redlabs.be/red-labs/our-science/viral-infections.php

actually all the tests on this site is what is used, as part of his diagnosis,

as he likes to get a full picture, along with tests that are done locally, as

here in australia, like stool sample test, fructose and lactose malabsorption,

IGG food antigen testing, and the H2S neuro toxic test (which is now available

online)

From: centriverse@...

Date: Tue, 23 Mar 2010 04:08:20 +0000

Subject: Re: WPI more research on autism?

What is the specific TH1 test?

>

> > Oh dear, I forgot to add the paragraph before that.

>

> >

>

> > The Autism-CFS connection on the face of it is a strange one. How can one

relate often severely socially and terribly cognitively impaired autism patients

to ME/CFS patients? Apparently by looking at study results; Dr. Mikovits

reported that both groups share " immune dysregulation, increased oxidative

stress, increased expression of proinflammatory cytokines and chemokines,

mitochondrial dysfunction and chronic active microbial infections " . One wonders

if different but somewhat similar immune dysfunctions can, by targeting

different areas, have quite different results.

>

> > All the best,

>

> >

>

> > Jill

>

>

>

>

[Guest guest]

True Michele, the difference is that the immune dysfunction in kids as

described by Dr Mikovits is triggered in the most vulnerable neurological

growth time - 6 mo - 3 years, whereas CFS emerges well after this period

- teens to adulthood, when neurological development is a lot more advanced.

Our kids do not develop correctly, CFS patients have already developed so

their symptoms are as you describe..and if treated recover more quickly.

_____

From: [mailto: ] On Behalf Of

Michele Townsend

Sent: Monday, March 22, 2010 4:48 PM

Subject: Re: WPI more research on autism?

People with ME/CFS can also be " severely socially and terribly cognitively

impaired " and often bedridden. They are more alike than you'd think!!

Hugs, Michele

----- " Jill Boyer " <sjillboyer (DOT) <mailto:sjillboyer%40> com>

wrote:

> Oh dear, I forgot to add the paragraph before that.

>

> The Autism-CFS connection on the face of it is a strange one. How can one

relate often severely socially and terribly cognitively impaired autism

patients to ME/CFS patients? Apparently by looking at study results; Dr.

Mikovits reported that both groups share " immune dysregulation, increased

oxidative stress, increased expression of proinflammatory cytokines and

chemokines, mitochondrial dysfunction and chronic active microbial

infections " . One wonders if different but somewhat similar immune

dysfunctions can, by targeting different areas, have quite different

results.

> All the best,

>

> Jill

[Guest guest]

Well said, and Dr. Mikovits herself said that the earlier a patient develops

CFS, the more severe the case. If you look at our children's bloodwork and the

bloodwork of people who have CFS, they have very similar issues.

-

> > Oh dear, I forgot to add the paragraph before that.

> >

> > The Autism-CFS connection on the face of it is a strange one. How can one

> relate often severely socially and terribly cognitively impaired autism

> patients to ME/CFS patients? Apparently by looking at study results; Dr.

> Mikovits reported that both groups share " immune dysregulation, increased

> oxidative stress, increased expression of proinflammatory cytokines and

> chemokines, mitochondrial dysfunction and chronic active microbial

> infections " . One wonders if different but somewhat similar immune

> dysfunctions can, by targeting different areas, have quite different

> results.

> > All the best,

> >

> > Jill

>

>