Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 FWIW I just learned that in San Diego at the Children¹s hospital they have Social Workers on call 24 hours a day. When a child with a disability arrives in the ER, you can request to see the Social Worker who will then, that person can facilitate getting seen right away. Thought I would bring it to everyone¹s attention as it might work the same at other hospitals. Laureen On 10/28/09 5:46 AM, " Jill Boyer " <sjillboyer@...> wrote: > > > > > Thank you . The strange thing is, he does not have a fever but yet the > seizures have increased days after his seizure broke. I was going to take him > to the emergency room but we have been there several times and it is awful. It > can take up to 6-8 hours and you only see a doctor for 3 minutes and they just > tell you to increase his anti-seizure medications and you are on your way. > Fortunately, has an appt at 11:00 with his neurologist tomorrow so I > am just crossing my fingers and hoping he can last until then. He still has > the dry cough and I have no idea if his chest hurts. > > Jill > > > > From: meljackmom <meljackmom@... <mailto:meljackmom%40> > > Subject: Re: H1N1 vaccine > <mailto:%40> > Date: Wednesday, October 28, 2009, 7:56 AM > > > > Hi Jill > > i feel your worry too. My son has had the H1N1 since last Tuesday, ie we are > on Day 9. What medications is your son on right now? The fevers broke and > then got worse sounds like a possible second infection? Does he have any > symptoms that would leave you to believe he has a secondary infection... > .sinus, bronchial? Is he eating and drinking OK? > > > > > >> > > >> > I just want to say that both of my kids came down with the flu one week and >> a half ago. Their pediatrician would not verify if it was the H1N1 because >> she said it is more likely than not since they have all of the symptoms and >> that the H1N1 has hit everywhere. My kids did do O.K. last week and their >> fevers broke. However, my oldest son got worse this past Sunday. He has >> increased seizure activity and he is falling down, very wobbly and walking >> into walls. His pediatrician said he looked fine and told me to make sure he >> gets plenty of fluids. His neurologist recommended that I increase his >> seizure medications. > >> > > >> > It was too late to give my kids the H1N1 vaccination anyway but if I could, >> I think I may have given them the vaccination. I am very leery of >> vaccinations but I think this wild virus may have been worse. I am so nervous >> right now. My son is scheduled to see the neurologist this Thursday. Does >> anybody have any advise on what I should say to her or do you have any ideas >> on what to recommend to get him better? > >> > > >> > Please advise, > >> > > >> > Jill > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
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