RE: LDN: Low Dose Naltrexone

March 31, 2010

We saw Dr. G for the first time last week. Our son has been on LDN for close to

two years, and it has had a positive effect...the one intervention beyond diet

that really made a noticeable difference. The only way I can describe it is it

seemed to affect his " stuckness " . When he's on it he's a little less rigid.

Also, some problematic behaviors seemed to disappear...like his previous adamant

refusal to toilet at school (he's been fully toilet trained for nearly four

years). THAT SAID, Dr. G told us he still would like us to take him off it. We

covered a ton of material in that appointment so I'm a little fuzzy on his

reasoning. I think it has to do with him not wanting our son on an artificial

immune modulator as we are treating him. I think to it probably gets beck to his

dislike of medical treatment of symptoms with untested (on children) methods,

rather than addressing underlying causes. Hope that makes some sense. If anyone

else has a better sense of it, I'd love to hear it too.

Tammy

LDN: Low Dose Naltrexone

Hi all,

Ive been reading about LDN for ASD. Seems to have an immune modulating effect.

Wondering of anyone has any thoughts on thi particular drug and/ or what Dr. G

thinks about it. Seems some of the DAN docs have embraced this drug, but he uses

Immunovir.

Best, Sloan

April 1, 2010

This is where I get stuck with the protocol --- I understand the

idea of not treating symptoms but rather treating the cause. In fact, I

fully embrace the concept! However, isn't using SSRIs, in fact,

treating symptoms vs. causes...SSRIs are an almost always used treatment

in the protocol from what I can see. This is something that I

don't understand about Dr. G's protocol. I understand he says that

targeted use of some pharma drugs is necessary. But, isn't that what

DAN! docs are doing as well?

And, to me, the use of LDN actually does seem to get at the cause --- it

is treating a base issue in our kids --- the immune system. It is

helping to modulate an immune system that is clearly out of whack and

causal to our kids' issues.

All that being said we've used LDN for about 18 months. We have seen

great things from it --- like significantly increased clarity,

presentness (for lack of a better word), raised fog, calmer moods, etc.

At two different points we have tried to wean off of it and saw the bad

symptoms begin to return. We went back on at the regular dose and all

was good again. Our DAN! told us that in his opinion that showed our

son still had a need for it. I tend to agree.

Some other " biggies " for us (aside from diet which is the first and

foremost (lifelong) intervention in my opinion) have been things that

have also targeted his immune system -- simple things like Astralagus,

Mycopotent Immune, Goldenseal...Some " biggies " that fall under

neurotransmitter and cognition aids have been Theanine, Phosphytadyl

Choline and Serine, Gingko Biloba, Gotu Kola, etc.

I see this as less an issue of vs. DAN! and more an issue of which

combination of the two protocols will help our kids. Some of the

concepts in each protocol overlap and both have very good science and

theories behind them. ly, whatever it (safely) takes(!) is my

attitude. Each kid is different so each kid has a different " success "

formula.

Good luck to each of us on our journeys...

Janelle

Re: LDN: Low Dose Naltrexone

We saw Dr. G for the first time last week. Our son has been on LDN for

close to two years, and it has had a positive effect...the one

intervention beyond diet that really made a noticeable difference. The

only way I can describe it is it seemed to affect his " stuckness " . When

he's on it he's a little less rigid. Also, some problematic behaviors

seemed to disappear...like his previous adamant refusal to toilet at

school (he's been fully toilet trained for nearly four years). THAT

SAID, Dr. G told us he still would like us to take him off it. We

covered a ton of material in that appointment so I'm a little fuzzy on

his reasoning. I think it has to do with him not wanting our son on an

artificial immune modulator as we are treating him. I think to it

probably gets beck to his dislike of medical treatment of symptoms with

untested (on children) methods, rather than addressing underlying

causes. Hope that makes some sense. If anyone else has a better sense of

it, I'd love to hear it too.

Tammy

LDN: Low Dose Naltrexone

Hi all,

Ive been reading about LDN for ASD. Seems to have an immune modulating

effect. Wondering of anyone has any thoughts on thi particular drug and/

or what Dr. G thinks about it. Seems some of the DAN docs have embraced

this drug, but he uses Immunovir.

Best, Sloan

April 2, 2010

This only a GUESS on my part, but I wonder...if Dr. G's goal is to get the

immune system healthy and doing its work properly on its own, that during the

course of treatment, it could muddy the waters to have the child on an

artificial immune modulator. Perhaps this can interfere with ability to assess

effectiveness of particular treatments he prescribes. We have a follow-up call

with him in a couple weeks and I plan to ask for clarity on it.

LDN: Low Dose Naltrexone

Hi all,

Ive been reading about LDN for ASD. Seems to have an immune modulating

effect. Wondering of anyone has any thoughts on thi particular drug and/

or what Dr. G thinks about it. Seems some of the DAN docs have embraced

this drug, but he uses Immunovir.

Best, Sloan

April 2, 2010

I think LDN is one of the best things we have done for our daughter. We no

longer see Dr. Goldberg but I still have respect for his ideas and are still

using the anti-viral and SSRI. If you think something has made a big difference

then you should listen to your gut! My daughter is really in a better place

because of LDN. It really does follow some of the reasoning for . I wish Dr.

Goldberg would have been more open minded about LDN, we might have stayed with

him.

>

> This is where I get stuck with the protocol --- I understand the

> idea of not treating symptoms but rather treating the cause. In fact, I

> fully embrace the concept! However, isn't using SSRIs, in fact,

> treating symptoms vs. causes...SSRIs are an almost always used treatment

> in the protocol from what I can see. This is something that I

> don't understand about Dr. G's protocol. I understand he says that

> targeted use of some pharma drugs is necessary. But, isn't that what

> DAN! docs are doing as well?

>

> And, to me, the use of LDN actually does seem to get at the cause --- it

> is treating a base issue in our kids --- the immune system. It is

> helping to modulate an immune system that is clearly out of whack and

> causal to our kids' issues.

>

> All that being said we've used LDN for about 18 months. We have seen

> great things from it --- like significantly increased clarity,

> presentness (for lack of a better word), raised fog, calmer moods, etc.

> At two different points we have tried to wean off of it and saw the bad

> symptoms begin to return. We went back on at the regular dose and all

> was good again. Our DAN! told us that in his opinion that showed our

> son still had a need for it. I tend to agree.

>

> Some other " biggies " for us (aside from diet which is the first and

> foremost (lifelong) intervention in my opinion) have been things that

> have also targeted his immune system -- simple things like Astralagus,

> Mycopotent Immune, Goldenseal...Some " biggies " that fall under

> neurotransmitter and cognition aids have been Theanine, Phosphytadyl

> Choline and Serine, Gingko Biloba, Gotu Kola, etc.

>

> I see this as less an issue of vs. DAN! and more an issue of which

> combination of the two protocols will help our kids. Some of the

> concepts in each protocol overlap and both have very good science and

> theories behind them. ly, whatever it (safely) takes(!) is my

> attitude. Each kid is different so each kid has a different " success "

> formula.

>

> Good luck to each of us on our journeys...

>

> Janelle

>

> Re: LDN: Low Dose Naltrexone

>

> We saw Dr. G for the first time last week. Our son has been on LDN for

> close to two years, and it has had a positive effect...the one

> intervention beyond diet that really made a noticeable difference. The

> only way I can describe it is it seemed to affect his " stuckness " . When

> he's on it he's a little less rigid. Also, some problematic behaviors

> seemed to disappear...like his previous adamant refusal to toilet at

> school (he's been fully toilet trained for nearly four years). THAT

> SAID, Dr. G told us he still would like us to take him off it. We

> covered a ton of material in that appointment so I'm a little fuzzy on

> his reasoning. I think it has to do with him not wanting our son on an

> artificial immune modulator as we are treating him. I think to it

> probably gets beck to his dislike of medical treatment of symptoms with

> untested (on children) methods, rather than addressing underlying

> causes. Hope that makes some sense. If anyone else has a better sense of

> it, I'd love to hear it too.

> Tammy

>

> LDN: Low Dose Naltrexone

>

> Hi all,

> Ive been reading about LDN for ASD. Seems to have an immune modulating

> effect. Wondering of anyone has any thoughts on thi particular drug and/

> or what Dr. G thinks about it. Seems some of the DAN docs have embraced

> this drug, but he uses Immunovir.

> Best, Sloan

>

April 2, 2010

Who do you see now?

________________________________

From: <heather646mcd@...>

Sent: Fri, April 2, 2010 11:47:57 AM

Subject: Re: LDN: Low Dose Naltrexone

I think LDN is one of the best things we have done for our daughter. We no

longer see Dr. Goldberg but I still have respect for his ideas and are still

using the anti-viral and SSRI. If you think something has made a big difference

then you should listen to your gut! My daughter is really in a better place

because of LDN. It really does follow some of the reasoning for . I wish Dr.

Goldberg would have been more open minded about LDN, we might have stayed with

him.

>

> This is where I get stuck with the protocol --- I understand the

> idea of not treating symptoms but rather treating the cause. In fact, I

> fully embrace the concept! However, isn't using SSRIs, in fact,

> treating symptoms vs. causes...SSRIs are an almost always used treatment

> in the protocol from what I can see. This is something that I

> don't understand about Dr. G's protocol. I understand he says that

> targeted use of some pharma drugs is necessary. But, isn't that what

> DAN! docs are doing as well?

>

> And, to me, the use of LDN actually does seem to get at the cause --- it

> is treating a base issue in our kids --- the immune system. It is

> helping to modulate an immune system that is clearly out of whack and

> causal to our kids' issues.

>

> All that being said we've used LDN for about 18 months. We have seen

> great things from it --- like significantly increased clarity,

> presentness (for lack of a better word), raised fog, calmer moods, etc.

> At two different points we have tried to wean off of it and saw the bad

> symptoms begin to return. We went back on at the regular dose and all

> was good again. Our DAN! told us that in his opinion that showed our

> son still had a need for it. I tend to agree.

>

> Some other " biggies " for us (aside from diet which is the first and

> foremost (lifelong) intervention in my opinion) have been things that

> have also targeted his immune system -- simple things like Astralagus,

> Mycopotent Immune, Goldenseal.. .Some " biggies " that fall under

> neurotransmitter and cognition aids have been Theanine, Phosphytadyl

> Choline and Serine, Gingko Biloba, Gotu Kola, etc.

>

> I see this as less an issue of vs. DAN! and more an issue of which

> combination of the two protocols will help our kids. Some of the

> concepts in each protocol overlap and both have very good science and

> theories behind them. ly, whatever it (safely) takes(!) is my

> attitude. Each kid is different so each kid has a different " success "

> formula.

>

> Good luck to each of us on our journeys...

>

> Janelle

>

> Re: LDN: Low Dose Naltrexone

>

> We saw Dr. G for the first time last week. Our son has been on LDN for

> close to two years, and it has had a positive effect...the one

> intervention beyond diet that really made a noticeable difference. The

> only way I can describe it is it seemed to affect his " stuckness " . When

> he's on it he's a little less rigid. Also, some problematic behaviors

> seemed to disappear... like his previous adamant refusal to toilet at