Re: Off Topic but maybe CFS related: Anyone have an idea of this?

[Guest guest]

Yes, I would definitely take him to his dr and insist he be seen by a

Cardiologist. They can do some very easy tests to check him out and give YOU

peace of mind. They can do an EKG, ultrasound to check blood flow through valves

and a stress test.

Please let is know how he is doing. All the best to you.

Sheryl b

Sent from my iPhone

On Mar 30, 2010, at 3:55 PM, <thecolemans4@...> wrote:

Hi,

My 8 yr old has CFS, which is doing pretty well on the protocol. Yesterday he

came in after jumping on the trampoline (good for cfs btw) saying his heart was

hurting. He didn't seem to be in acute pain, but the level of pain you might

feel with stomach cramps for instance. I felt his chest and it was pounding

very very hard and pretty fast. That slowed down soon enough, but the pain

didn't go away for at least an hour. I thought that maybe he had heartburn and

that the heart pounding was the exercise and some anxiety, because he did tell

me he was having a heart attack. The antacid didn't work immediately but almost

an hour later it was better.

Anyway, he said that his heart hurt again today at school right after class

started. He said his heart was pounding hard like yesterday but not as fast.

He has a long walk from where he is dropped off to his classroom. He said it

felt like a needle poking through his heart (from side to side, not directly

into it). He said after it stopped hurting that then it felt like it had a lot

of energy in it - he couldn't describe what that meant but that it was kind of

unpleasant. He said it hurt for about an hour - the same as yesterday.

I remember before he had been checked out - this was during one of his bad CFS

spells - because his heart was having racing spells - practically fluttering -

and they were rather frequent and disturbed him a lot. There were no findings

then - no surprise since it isn't uncommon with CFS. I don't remember if they

hurt or not then.

He's not turning pale or anything - the pain and pounding seems to be the only

symptom.

I would assume that this is autonomic but I know I need to have it checked out.

I do have a call into the pediatrician.

I just wanted to see if anyone else has already been thru this and if they found

out the cause.

Thanks!

[Guest guest]

I was reading your post and can’t help wondering – there are many studies

that show reduced blow flow in the brains of those who have autism symptoms.

Could it possibly be that some of our kids (not all but some) have a blocked

artery, vessel or vein in the brain? I know Dr. Paolo Zamboni discovered this in

many patients with MS and there are now trials to see how many MS patients

actually improve with operations that unclog these arteries. Now instead of MS

some of these patients actually have CCSVI – Chronic Cerebrospinal Venous

Insufficiency. Most people had thought of MS as an autoimmune disease as well.

Just a thought....

Here is the link:

http://www.mssociety.ca/en/research/medmmo_20091021_faq.htm

From: [mailto: ] On Behalf Of Sheryl

Sent: March-30-10 8:12 PM

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

Yes, I would definitely take him to his dr and insist he be seen by a

Cardiologist. They can do some very easy tests to check him out and give YOU

peace of mind. They can do an EKG, ultrasound to check blood flow through valves

and a stress test.

Please let is know how he is doing. All the best to you.

Sheryl b

Sent from my iPhone

On Mar 30, 2010, at 3:55 PM, <thecolemans4@...

<mailto:thecolemans4%40> > wrote:

Hi,

My 8 yr old has CFS, which is doing pretty well on the protocol. Yesterday he

came in after jumping on the trampoline (good for cfs btw) saying his heart was

hurting. He didn't seem to be in acute pain, but the level of pain you might

feel with stomach cramps for instance. I felt his chest and it was pounding very

very hard and pretty fast. That slowed down soon enough, but the pain didn't go

away for at least an hour. I thought that maybe he had heartburn and that the

heart pounding was the exercise and some anxiety, because he did tell me he was

having a heart attack. The antacid didn't work immediately but almost an hour

later it was better.

Anyway, he said that his heart hurt again today at school right after class

started. He said his heart was pounding hard like yesterday but not as fast. He

has a long walk from where he is dropped off to his classroom. He said it felt

like a needle poking through his heart (from side to side, not directly into

it). He said after it stopped hurting that then it felt like it had a lot of

energy in it - he couldn't describe what that meant but that it was kind of

unpleasant. He said it hurt for about an hour - the same as yesterday.

I remember before he had been checked out - this was during one of his bad CFS

spells - because his heart was having racing spells - practically fluttering -

and they were rather frequent and disturbed him a lot. There were no findings

then - no surprise since it isn't uncommon with CFS. I don't remember if they

hurt or not then.

He's not turning pale or anything - the pain and pounding seems to be the only

symptom.

I would assume that this is autonomic but I know I need to have it checked out.

I do have a call into the pediatrician.

I just wanted to see if anyone else has already been thru this and if they found

out the cause.

Thanks!

[Guest guest]

That's interesting about the venous insufficiency. I have fibromyalgia and CFS

like symptoms and am a patient of Dr. G's. I just finished a round of tests at

the cardiologist to to a sudden rise in BP and heart rate. All the tests turned

out fine, and the doctor said sometimes the heart starts to race for some

unknown reason. I've wondered if it's brain related as well--an interruption or

hiccup if you will in the autonomic nervous system.

all the best,

Robyn

________________________________

From: and Freeman <freemanbk@...>

Sent: Tue, March 30, 2010 4:44:35 PM

Subject: RE: Off Topic but maybe CFS related: Anyone have an idea of

this?

I was reading your post and can’t help wondering – there are many studies

that show reduced blow flow in the brains of those who have autism symptoms.

Could it possibly be that some of our kids (not all but some) have a blocked

artery, vessel or vein in the brain? I know Dr. Paolo Zamboni discovered this in

many patients with MS and there are now trials to see how many MS patients

actually improve with operations that unclog these arteries. Now instead of MS

some of these patients actually have CCSVI – Chronic Cerebrospinal Venous

Insufficiency. Most people had thought of MS as an autoimmune disease as well.

Just a thought....

Here is the link:

http://www.mssociety.ca/en/research/medmmo_20091021_faq.htm

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Sheryl

Sent: March-30-10 8:12 PM

groups (DOT) com

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

Yes, I would definitely take him to his dr and insist he be seen by a

Cardiologist. They can do some very easy tests to check him out and give YOU

peace of mind. They can do an EKG, ultrasound to check blood flow through valves

and a stress test.

Please let is know how he is doing. All the best to you.

Sheryl b

Sent from my iPhone

On Mar 30, 2010, at 3:55 PM, <thecolemans4

<mailto:thecolemans 4%40. com> > wrote:

Hi,

My 8 yr old has CFS, which is doing pretty well on the protocol. Yesterday he

came in after jumping on the trampoline (good for cfs btw) saying his heart was

hurting. He didn't seem to be in acute pain, but the level of pain you might

feel with stomach cramps for instance. I felt his chest and it was pounding very

very hard and pretty fast. That slowed down soon enough, but the pain didn't go

away for at least an hour. I thought that maybe he had heartburn and that the

heart pounding was the exercise and some anxiety, because he did tell me he was

having a heart attack. The antacid didn't work immediately but almost an hour

later it was better.

Anyway, he said that his heart hurt again today at school right after class

started. He said his heart was pounding hard like yesterday but not as fast. He

has a long walk from where he is dropped off to his classroom. He said it felt

like a needle poking through his heart (from side to side, not directly into

it). He said after it stopped hurting that then it felt like it had a lot of

energy in it - he couldn't describe what that meant but that it was kind of

unpleasant. He said it hurt for about an hour - the same as yesterday.

I remember before he had been checked out - this was during one of his bad CFS

spells - because his heart was having racing spells - practically fluttering -

and they were rather frequent and disturbed him a lot. There were no findings

then - no surprise since it isn't uncommon with CFS. I don't remember if they

hurt or not then.

He's not turning pale or anything - the pain and pounding seems to be the only

symptom.

I would assume that this is autonomic but I know I need to have it checked out.

I do have a call into the pediatrician.

I just wanted to see if anyone else has already been thru this and if they found

out the cause.

Thanks!

[Guest guest]

How are your hormone levels? Too much estrogen can (does) cause heart problems.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of Robyn &

Greg Coggins

Sent: Tuesday, March 30, 2010 8:13 PM

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

That's interesting about the venous insufficiency. I have fibromyalgia and CFS

like symptoms and am a patient of Dr. G's. I just finished a round of tests at

the cardiologist to to a sudden rise in BP and heart rate. All the tests turned

out fine, and the doctor said sometimes the heart starts to race for some

unknown reason. I've wondered if it's brain related as well--an interruption or

hiccup if you will in the autonomic nervous system.

all the best,

Robyn

________________________________

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

<mailto:%40>

Sent: Tue, March 30, 2010 4:44:35 PM

Subject: RE: Off Topic but maybe CFS related: Anyone have an idea of

this?

I was reading your post and can’t help wondering – there are many studies

that show reduced blow flow in the brains of those who have autism symptoms.

Could it possibly be that some of our kids (not all but some) have a blocked

artery, vessel or vein in the brain? I know Dr. Paolo Zamboni discovered this in

many patients with MS and there are now trials to see how many MS patients

actually improve with operations that unclog these arteries. Now instead of MS

some of these patients actually have CCSVI – Chronic Cerebrospinal Venous

Insufficiency. Most people had thought of MS as an autoimmune disease as well.

Just a thought....

Here is the link:

http://www.mssociety.ca/en/research/medmmo_20091021_faq.htm

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Sheryl

Sent: March-30-10 8:12 PM

groups (DOT) com

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

Yes, I would definitely take him to his dr and insist he be seen by a

Cardiologist. They can do some very easy tests to check him out and give YOU

peace of mind. They can do an EKG, ultrasound to check blood flow through valves

and a stress test.

Please let is know how he is doing. All the best to you.

Sheryl b

Sent from my iPhone

On Mar 30, 2010, at 3:55 PM, <thecolemans4

<mailto:thecolemans 4%40. com> > wrote:

Hi,

My 8 yr old has CFS, which is doing pretty well on the protocol. Yesterday he

came in after jumping on the trampoline (good for cfs btw) saying his heart was

hurting. He didn't seem to be in acute pain, but the level of pain you might

feel with stomach cramps for instance. I felt his chest and it was pounding very

very hard and pretty fast. That slowed down soon enough, but the pain didn't go

away for at least an hour. I thought that maybe he had heartburn and that the

heart pounding was the exercise and some anxiety, because he did tell me he was

having a heart attack. The antacid didn't work immediately but almost an hour

later it was better.

Anyway, he said that his heart hurt again today at school right after class

started. He said his heart was pounding hard like yesterday but not as fast. He

has a long walk from where he is dropped off to his classroom. He said it felt

like a needle poking through his heart (from side to side, not directly into

it). He said after it stopped hurting that then it felt like it had a lot of

energy in it - he couldn't describe what that meant but that it was kind of

unpleasant. He said it hurt for about an hour - the same as yesterday.

I remember before he had been checked out - this was during one of his bad CFS

spells - because his heart was having racing spells - practically fluttering -

and they were rather frequent and disturbed him a lot. There were no findings

then - no surprise since it isn't uncommon with CFS. I don't remember if they

hurt or not then.

He's not turning pale or anything - the pain and pounding seems to be the only

symptom.

I would assume that this is autonomic but I know I need to have it checked out.

I do have a call into the pediatrician.

I just wanted to see if anyone else has already been thru this and if they found

out the cause.

Thanks!

[Guest guest]

I have no idea, but something interesting to pursue.

Thanks!

________________________________

From: Kristy Nardini <knardini@...>

Sent: Tue, March 30, 2010 8:37:43 PM

Subject: RE: Off Topic but maybe CFS related: Anyone have an idea of

this?

How are your hormone levels? Too much estrogen can (does) cause heart problems.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini. com

kristytazzini (DOT) com

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Robyn &

Greg Coggins

Sent: Tuesday, March 30, 2010 8:13 PM

groups (DOT) com

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

That's interesting about the venous insufficiency. I have fibromyalgia and CFS

like symptoms and am a patient of Dr. G's. I just finished a round of tests at

the cardiologist to to a sudden rise in BP and heart rate. All the tests turned

out fine, and the doctor said sometimes the heart starts to race for some

unknown reason. I've wondered if it's brain related as well--an interruption or

hiccup if you will in the autonomic nervous system.

all the best,

Robyn

____________ _________ _________ __

From: and Freeman <freemanbkns (DOT) sympatico. ca <mailto:freemanbk%

40ns.sympatico. ca> >

groups (DOT) com <mailto:% 40groups. com>

Sent: Tue, March 30, 2010 4:44:35 PM

Subject: RE: Off Topic but maybe CFS related: Anyone have an idea of

this?

I was reading your post and can’t help wondering – there are many studies

that show reduced blow flow in the brains of those who have autism symptoms.

Could it possibly be that some of our kids (not all but some) have a blocked

artery, vessel or vein in the brain? I know Dr. Paolo Zamboni discovered this in

many patients with MS and there are now trials to see how many MS patients

actually improve with operations that unclog these arteries. Now instead of MS

some of these patients actually have CCSVI – Chronic Cerebrospinal Venous

Insufficiency. Most people had thought of MS as an autoimmune disease as well.

Just a thought....

Here is the link:

http://www.mssociety.ca/en/research/medmmo_20091021_faq.htm

From: groups (DOT) com [mailto:] On Behalf Of Sheryl

Sent: March-30-10 8:12 PM

groups (DOT) com

Subject: Re: Off Topic but maybe CFS related: Anyone have an idea of

this?

Yes, I would definitely take him to his dr and insist he be seen by a

Cardiologist. They can do some very easy tests to check him out and give YOU

peace of mind. They can do an EKG, ultrasound to check blood flow through valves

and a stress test.

Please let is know how he is doing. All the best to you.

Sheryl b

Sent from my iPhone

On Mar 30, 2010, at 3:55 PM, <thecolemans4

<mailto:thecolemans 4%40. com> > wrote:

Hi,

My 8 yr old has CFS, which is doing pretty well on the protocol. Yesterday he

came in after jumping on the trampoline (good for cfs btw) saying his heart was

hurting. He didn't seem to be in acute pain, but the level of pain you might

feel with stomach cramps for instance. I felt his chest and it was pounding very

very hard and pretty fast. That slowed down soon enough, but the pain didn't go

away for at least an hour. I thought that maybe he had heartburn and that the

heart pounding was the exercise and some anxiety, because he did tell me he was

having a heart attack. The antacid didn't work immediately but almost an hour

later it was better.

Anyway, he said that his heart hurt again today at school right after class

started. He said his heart was pounding hard like yesterday but not as fast. He

has a long walk from where he is dropped off to his classroom. He said it felt

like a needle poking through his heart (from side to side, not directly into

it). He said after it stopped hurting that then it felt like it had a lot of

energy in it - he couldn't describe what that meant but that it was kind of

unpleasant. He said it hurt for about an hour - the same as yesterday.

I remember before he had been checked out - this was during one of his bad CFS

spells - because his heart was having racing spells - practically fluttering -

and they were rather frequent and disturbed him a lot. There were no findings

then - no surprise since it isn't uncommon with CFS. I don't remember if they

hurt or not then.

He's not turning pale or anything - the pain and pounding seems to be the only

symptom.

I would assume that this is autonomic but I know I need to have it checked out.

I do have a call into the pediatrician.

I just wanted to see if anyone else has already been thru this and if they found

out the cause.

Thanks!

[Guest guest]

hi , here is some info on reduced blood flow to brain in autism

http://autismcalciumchannelopathy.com/Blood_Brain_Barrier.html

re CFS there is reduced overall body blood volume, forgot the exact data

but it is massive, something like 30% on average according to latest

studies (don't quote me on the 30% but it was definitely something

massive, do look it up)

Natasa

>

> Hi,

> My 8 yr old has CFS, which is doing pretty well on the protocol.

Yesterday he came in after jumping on the trampoline (good for cfs btw)

saying his heart was hurting. He didn't seem to be in acute pain, but

the level of pain you might feel with stomach cramps for instance. I

felt his chest and it was pounding very very hard and pretty fast. That

slowed down soon enough, but the pain didn't go away for at least an

hour. I thought that maybe he had heartburn and that the heart pounding

was the exercise and some anxiety, because he did tell me he was having

a heart attack. The antacid didn't work immediately but almost an hour

later it was better.

> Anyway, he said that his heart hurt again today at school right after

class started. He said his heart was pounding hard like yesterday but

not as fast. He has a long walk from where he is dropped off to his

classroom. He said it felt like a needle poking through his heart (from

side to side, not directly into it). He said after it stopped hurting

that then it felt like it had a lot of energy in it - he couldn't

describe what that meant but that it was kind of unpleasant. He said it

hurt for about an hour - the same as yesterday.

> I remember before he had been checked out - this was during one of his

bad CFS spells - because his heart was having racing spells -

practically fluttering - and they were rather frequent and disturbed him

a lot. There were no findings then - no surprise since it isn't uncommon

with CFS. I don't remember if they hurt or not then.

> He's not turning pale or anything - the pain and pounding seems to be

the only symptom.

> I would assume that this is autonomic but I know I need to have it

checked out. I do have a call into the pediatrician.

> I just wanted to see if anyone else has already been thru this and if

they found out the cause.

> Thanks!

>

>

>