Re: Question on SSRI and Seizures

[Guest guest]

Good question. Two of my three boys had a seizure disorder before starting the

protocol. We were able to wean both off medication and they've been seizure

free for over a year now. Personally, I think it was more due to controlling the

virus. i really believe it was HHV 6 causing the seizures.

All the best,

Robyn

________________________________

From: J <jkrishnaa@...>

Sent: Fri, March 26, 2010 4:44:54 PM

Subject: Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use and

a decrease in seizure like activity (I am suspecting seizure like activity in my

son though his EEG 2 years ago was normal). I am reading that brain serotonin

deficiency can cause temporal lobe seizures, so was curious if anyone's child's

seizures went away on SSRIs ? I guess I am wondering if my son's seizure like

jerks and freezing could be related to brain serotonin deficiency in addition

to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

Thanks Robyn for your response. I understand Valtrex, Famvir and Zovirax are the

mainstays in and these are not as effective against HHV 6. Could it be that

a combo of one of these and an SSRI is effective against HHV 6 ? Esp if XMRV is

also involved as some SSRIs are effective against HIV ?

My son has been on Famvir and he did well initially (the first two weeks) and

now he has more of those jerks, anxiety etc. I know that he has had serotonin

issues for a long time well before Famvir. Also, Natasa had posted some time

back that antivirals increase IDO and this in turn depletes

tryptophan/serotonin. So this is all very interesting.

Thanks

Jay

>

> Good question. Two of my three boys had a seizure disorder before starting the

protocol. We were able to wean both off medication and they've been seizure

free for over a year now. Personally, I think it was more due to controlling the

virus. i really believe it was HHV 6 causing the seizures.

>

> All the best,

>

> Robyn

>

>

>

>

>

> ________________________________

> From: J <jkrishnaa@...>

>

> Sent: Fri, March 26, 2010 4:44:54 PM

> Subject: Question on SSRI and Seizures

>

>

> I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like activity

in my son though his EEG 2 years ago was normal). I am reading that brain

serotonin deficiency can cause temporal lobe seizures, so was curious if

anyone's child's seizures went away on SSRIs ? I guess I am wondering if my

son's seizure like jerks and freezing could be related to brain serotonin

deficiency in addition to other low serotonin symptoms.

>

> Thanks SO much

> Jay

>

>

>

>

>

[Guest guest]

I'm sorry I do not have a real answer for you, but I often find myself so deep

in my own world that I am mouthing, whispering, or even speaking out loud the

words I am thinking, without any regard to where I am. Then when I come to I

realize that somebody has seen me and it is so embarrassing. I've often

wondered if this was a form of a seizure. Since I've started Imunovir I've

noticed a decrease in this.

 

I have been on SSRIs for over 15 years but this did not help it. However, like I

said, since I've been on Imunovir it has been happening a lot less.  Also,

since I started Imunovir (I've been on it one month) I'm a LOT less tired and

the numbness I had from my left shoulder down to my fingers is gone (except for

my pinky - for some reason I can't get rid of that.)

Bridget

From: J <jkrishnaa@...>

Subject: Question on SSRI and Seizures

Date: Friday, March 26, 2010, 7:44 PM

 

I was wondering if anyone knows if there is any connection between SSRI use and

a decrease in seizure like activity (I am suspecting seizure like activity in my

son though his EEG 2 years ago was normal). I am reading that brain serotonin

deficiency can cause temporal lobe seizures, so was curious if anyone's child's

seizures went away on SSRIs ? I guess I am wondering if my son's seizure like

jerks and freezing could be related to brain serotonin deficiency in addition to

other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

hi jay

i had seizures and they could not work out why? evey test showed clear. had them

all stumped lol. but since being on the lexapro the seizures have stopped. but

still get the uncontrolled shakes if i stop the valium and magnesium. there is a

connection there with the CNS, specific hormones, brain function and gut

function.

From: rngcoggs@...

Date: Sat, 27 Mar 2010 09:31:59 -0700

Subject: Re: Question on SSRI and Seizures

Good question. Two of my three boys had a seizure disorder before starting

the protocol. We were able to wean both off medication and they've been

seizure free for over a year now. Personally, I think it was more due to

controlling the virus. i really believe it was HHV 6 causing the seizures.

All the best,

Robyn

________________________________

From: J <jkrishnaa@...>

Sent: Fri, March 26, 2010 4:44:54 PM

Subject: Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use and

a decrease in seizure like activity (I am suspecting seizure like activity in my

son though his EEG 2 years ago was normal). I am reading that brain serotonin

deficiency can cause temporal lobe seizures, so was curious if anyone's child's

seizures went away on SSRIs ? I guess I am wondering if my son's seizure like

jerks and freezing could be related to brain serotonin deficiency in addition

to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

We've had excellent results with Famvir with two out of my three boys. My other

son switched to Acyclovir and his titers have come down. I cannot say beyond a

shadow of a doubt exactly what resulted in improvements. It could be everything

working in concert. I just know that my most severely affected son, Noah,

suffered from seizures and another neurological condition called Cyclical

Vomiting Syndrome. He would vomit for 2 to 3 days every month with migraines

before and after. Altogether, he was out of commission for about 10 days out of

each month. This went on for two years until Dr. G and antivirals.

All the best,

Robyn

________________________________

From: J <jkrishnaa@...>

Sent: Sat, March 27, 2010 10:43:40 AM

Subject: Re: Question on SSRI and Seizures

Thanks Robyn for your response. I understand Valtrex, Famvir and Zovirax are the

mainstays in and these are not as effective against HHV 6. Could it be that

a combo of one of these and an SSRI is effective against HHV 6 ? Esp if XMRV is

also involved as some SSRIs are effective against HIV ?

My son has been on Famvir and he did well initially (the first two weeks) and

now he has more of those jerks, anxiety etc. I know that he has had serotonin

issues for a long time well before Famvir. Also, Natasa had posted some time

back that antivirals increase IDO and this in turn depletes tryptophan/serotoni

n. So this is all very interesting.

Thanks

Jay

>

> Good question. Two of my three boys had a seizure disorder before starting the

protocol. We were able to wean both off medication and they've been seizure

free for over a year now. Personally, I think it was more due to controlling the

virus. i really believe it was HHV 6 causing the seizures.

>

> All the best,

>

> Robyn

>

>

>

>

>

> ____________ _________ _________ __

> From: J <jkrishnaa@. ..>

> groups (DOT) com

> Sent: Fri, March 26, 2010 4:44:54 PM

> Subject: Question on SSRI and Seizures

>

>

> I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like activity

in my son though his EEG 2 years ago was normal). I am reading that brain

serotonin deficiency can cause temporal lobe seizures, so was curious if

anyone's child's seizures went away on SSRIs ? I guess I am wondering if my

son's seizure like jerks and freezing could be related to brain serotonin

deficiency in addition to other low serotonin symptoms.

>

> Thanks SO much

> Jay

>

>

>

>

>

[Guest guest]

Thanks again Robyn. That's great to hear. It's amazing you have managed to

remove antiseizure drugs. I am hoping we too won't need it. Maybe some of the

things we're seeing on Famvir is still 'dieoff'. It does make sense when the

'right' antiviral is used, the seizures should go away too.

Jay

> >

> > Good question. Two of my three boys had a seizure disorder before starting

the protocol. We were able to wean both off medication and they've been

seizure free for over a year now. Personally, I think it was more due to

controlling the virus. i really believe it was HHV 6 causing the seizures.

> >

> > All the best,

> >

> > Robyn

> >

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: J <jkrishnaa@ ..>

> > groups (DOT) com

> > Sent: Fri, March 26, 2010 4:44:54 PM

> > Subject: Question on SSRI and Seizures

> >

> >

> > I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like activity

in my son though his EEG 2 years ago was normal). I am reading that brain

serotonin deficiency can cause temporal lobe seizures, so was curious if

anyone's child's seizures went away on SSRIs ? I guess I am wondering if my

son's seizure like jerks and freezing could be related to brain serotonin

deficiency in addition to other low serotonin symptoms.

> >

> > Thanks SO much

> > Jay

> >

> >

> >

> >

> >

[Guest guest]

Thanks Bridget for your response. I am still not sure what we are currently

seeing are real seizures or seizure like jerks. So it would be nice if we can

avoid any antiseizure med on . That's great that you benefit from Immunovir.

I am looking forward to using it with my son one day.

Jay

>

>

> From: J <jkrishnaa@...>

> Subject: Question on SSRI and Seizures

>

> Date: Friday, March 26, 2010, 7:44 PM

>

>

>  

>

>

>

> I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like activity

in my son though his EEG 2 years ago was normal). I am reading that brain

serotonin deficiency can cause temporal lobe seizures, so was curious if

anyone's child's seizures went away on SSRIs ? I guess I am wondering if my

son's seizure like jerks and freezing could be related to brain serotonin

deficiency in addition to other low serotonin symptoms.

>

> Thanks SO much

> Jay

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

You're right. Apart from these seizure like jerks that we are seeing now, my son

has had episodes (a few) in the past that did look like real seizures. Since

those were stimuli(smells and elevation) triggered (I realised it late) they

didn't show up on EEG as he didn't have those exact ones at that time. Luckily,

we haven't had any of those for a long time.

You're absolutely right about the CNS, hormone, brain and gut connection. The

gut function is crucial in healing. After many years I realised my son's gut

problems are actually due to the autonomic imbalance he has (partly could be due

to Varicella/other herpes and partly due to other reasons).

Thanks

Jay

>

>

> hi jay

> i had seizures and they could not work out why? evey test showed clear. had

them all stumped lol. but since being on the lexapro the seizures have stopped.

but still get the uncontrolled shakes if i stop the valium and magnesium. there

is a connection there with the CNS, specific hormones, brain function and gut

function.

>

>

>

>

>

>

> From: rngcoggs@...

> Date: Sat, 27 Mar 2010 09:31:59 -0700

> Subject: Re: Question on SSRI and Seizures

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Good question. Two of my three boys had a seizure disorder before

starting the protocol. We were able to wean both off medication and they've

been seizure free for over a year now. Personally, I think it was more due to

controlling the virus. i really believe it was HHV 6 causing the seizures.

>

>

>

> All the best,

>

>

>

> Robyn

>

>

>

> ________________________________

>

> From: J <jkrishnaa@...>

>

>

>

> Sent: Fri, March 26, 2010 4:44:54 PM

>

> Subject: Question on SSRI and Seizures

>

>

>

> I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like activity

in my son though his EEG 2 years ago was normal). I am reading that brain

serotonin deficiency can cause temporal lobe seizures, so was curious if

anyone's child's seizures went away on SSRIs ? I guess I am wondering if my

son's seizure like jerks and freezing could be related to brain serotonin

deficiency in addition to other low serotonin symptoms.

>

>

>

> Thanks SO much

>

> Jay

>

>

>

>

[Guest guest]

Hi ,

Just curious if you follow a special diet, like the diet or something

else?

Kristy Nardini

Tazzini Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

hi Kirstly

i have all this testing like fructose malabsorption hydrogen breath testing,

which was exceptionally high, so i have to eliminate all fruits, vegetables and

foods containing fructose, fructans and sorbitol. i have also had blood testing

for IgG food antigens, which for me showed a few things, but caesin (mil

protien) egg and gluten were very severe, so i have eliminated those things from

my diet. i have just had a sucrose malabsroption test done and my dr has

suggested that i go totally sugar free, that is inclusive off things like

glucose, dextrose, maltose, isolmalt etc. this has made a huge huge difference

have had my ASD son tested and he is exactly the same with the exception of the

sugars, but his fructose was really high too. as with his blood antigens to

caesin, gluten and egg.

From: knardini@...

Date: Sun, 28 Mar 2010 08:44:24 -0700

Subject: RE: Question on SSRI and Seizures

Hi ,

Just curious if you follow a special diet, like the diet or something

else?

Kristy Nardini

Tazzini Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

Very interesting, ! I didn't even know about these sugar

malabsorption tests. Thanks for the post!

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

hi

fructose malabsorption is one of the main contributors to leaky gut/dysibiosis,

as in the permability of the gut wall.

i go thru prof De Meilier who deals mainly in CFS which i have, but i am also

Aspergers. to me alot of things made sense so had my son tested, and got the

same results back. we are in the process of having his immune panel done thru

red laboratories, based in belgium, Prof De Meirlier uses them for all his

testing.

http://www.lifebioscience.com.au/

he uses this teste a urine toxic metabolite test to test for neurotoxicity, we

both came back extremely strong

From: freemanbk@...

Date: Sun, 28 Mar 2010 21:29:24 -0300

Subject: RE: Question on SSRI and Seizures

Very interesting, ! I didn't even know about these sugar

malabsorption tests. Thanks for the post!

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

Interesting! Thanks for sharing. I've wondered for a long time about foods

high in phenols, too. Do you know about these?

Kristy Nardini

Tazzini Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay

[Guest guest]

Dear melissa,

The dr you mentioned that orders these tests , can you give us his contact

details as we would like to find out correctly which foods do not agree with our

son

As I can make out that there are things that cause problems but I can't make out

which ones

Regards

Sunira

Sent from BlackBerry® on Airtel

Question on SSRI and Seizures

I was wondering if anyone knows if there is any connection between SSRI use

and a decrease in seizure like activity (I am suspecting seizure like

activity in my son though his EEG 2 years ago was normal). I am reading that

brain serotonin deficiency can cause temporal lobe seizures, so was curious

if anyone's child's seizures went away on SSRIs ? I guess I am wondering if

my son's seizure like jerks and freezing could be related to brain

serotonin deficiency in addition to other low serotonin symptoms.

Thanks SO much

Jay