LET’S JUST STOP CALLING IT “AUTISM”

[Guest guest]

LET'S JUST STOP CALLING IT " AUTISM "

What if the psychological affliction " Autism " had never existed? What if ever

increasing numbers children were showing up in schools without speech, lost in

their own worlds, and having unexplained seizures? Would we be diagnosing these

children with a " developmental disorder? " Or would we be looking for root causes

of their DISEASE and treating what they have medically? What if your children

have is not " Autism " at all, but a medical disease in most part caused by

viruses? According to a new study appearing in the October 2009 issue of

SCIENCE, the latest research supports this idea and it is exactly what I have

been advocating for twenty-seven years.

This study describes the detection of a virus called XMRV (xenotropic MLV

related virus) in about two-thirds of patients diagnosed with chronic fatigue

syndrome (CFS). It was conducted by researchers who collaborated from the

Whittemore Institute, the Cleveland Clinic, and the National Cancer

Institute and has tremendous implications for any family dealing with " Autism. "

Many of those diagnosed with " Autism " have blood work that contains these same

viruses. Autism (or should I say a " diagnosis " of Autism) has increased in

staggering numbers over the past ten years. One in every 91 children in the US

has what we refer to as " Autism " (read American Academy Pediatrics Report).

These statistics are endorsed by the Centers for Disease Control and Prevention

(CDC), American Academy of Pediatrics, and other agencies. California reports a

273% increase, land 513%, and Florida 600%.

When a child is diagnosed with cancer, everyone understands the seriousness of

the disease and its treatment. Because of this, cancer research is funded

generously. " Autism " is now the third most prevalent childhood disease, but it

remains the least funded in terms of research dollars. And how much of these

research funds are devoted to the genetic causes of " Autism? " We are wasting

what precious funds we have on genetic research for a disease that is, in no

way, genetic in nature. In addition, the cost to local school districts in

special education expenses is astronomical and growing every year! We are

draining budgets and there are kids NOT getting better every day.

What we have is an epidemic. Developmental disorders do not increase by 600%

or occur in epidemic proportions. From a purely scientific perspective, an

epidemic of something that can't be spread by germs is NOT POSSIBLE. It also

should be impossible to medically treat and recover children with these various

disorders, but I have been doing exactly that for 27 years (CFS and ADHD) and

now 14 year ( " Autistic Spectrum " ).

We have lost too much time focusing our energies on the genetic and

" refrigerator mother " causes of this disease. The time to act is now. We must

refocus our resources and move in the right direction with hard science, hard

logic, and hard data and finally address this crisis medically.

It is time to create a new focus with ONE goal and ONE idea to help your

children. We must promote the medical treatment for this disease. We have

proven time and time again, kids can get better. We, along with the medical

community must come together, rally around the flag (or any other name you

all want except " Autism " ) and focus on the true medical crisis. This is a tough

disease, but as a disease, it is beatable. It more than past the time for

parents and the medical community to join hands and lead the charge and make

recovery possible for all children afflicted with the disease formally known as

Autism.

Goldberg, MD

[Guest guest]

Yes, I can agree that the term Autism is possibly used too loosely. From what I

understand, many members of the Autism/Asperger adult groups are offended at

many of the parents of young children's efforts to find a cure. They themselves

believe nothing is " curable' about them. I look at my son's diagnosis from a

" mother with a four year old who is suffering " perspective. I am not a doctor or

a political advocate. I simply want my child to get care. We are military and

do not have a large income. We cannot afford you Dr. Goldberg, or most of your

colleagues. If we could, we would have been to you long ago. So, if a

diagnosis of Autism helps the medical community or my insurance pay for speech,

OT and ABA, then I embrace it, even if it ends up, as we hope, being incorrect.

I have seen the impact these specialists have had on my kiddo. It has been

fantastic. Is it, as some of my family members say, simply maturity that would

have happened anyway, or is it, a synergy of all the things we are doing

(supplements, treatments, diet, etc) that is that is turning on his light bulb?

I wish I knew. I wish there was coverage for bio-medical treatments, including

cognitive training and neurofeedback, but there is not. I have family members

that have been battling doctors, insurance companies and social security

disability regarding CFS and Fibro for nearly 20 years. My son does not have

that kind of time. Our goal is to get him, successfully through school, so that

he can be an independent adult. If the medical community wants my help testing

my son for XMRV, I am all for it. I want answers too. However, please, tell me

how I can help promote the medical treatment of the disease while still treating

my son. Do you want to run tests? Fine, tell me where to bring him. We want

to help not only our son, but also those behind us. I agree that our community

is too divided. We do need ONE vision, but to the leaders, like yourself, tell

us, specifically, what we can do, especially when we have limited financial

means and honestly, limited time. I have made the calls to our congressional

representatives, I help the community in many ways, I am part of the

conversation, but this is not my profession. The bottom line is, our goals are

the same, our hands are extended. What do can we do next?

McGowen

Mother of a 4yo diagnosed with ASD and

2yo preemie with asthma, Military Wife and Student

>

> LET'S JUST STOP CALLING IT " AUTISM "

>

> What if the psychological affliction " Autism " had never existed? What if ever

increasing numbers children were showing up in schools without speech, lost in

their own worlds, and having unexplained seizures? Would we be diagnosing these

children with a " developmental disorder? " Or would we be looking for root causes

of their DISEASE and treating what they have medically? What if your children

have is not " Autism " at all, but a medical disease in most part caused by

viruses? According to a new study appearing in the October 2009 issue of

SCIENCE, the latest research supports this idea and it is exactly what I have

been advocating for twenty-seven years.

>

> This study describes the detection of a virus called XMRV (xenotropic MLV

related virus) in about two-thirds of patients diagnosed with chronic fatigue

syndrome (CFS). It was conducted by researchers who collaborated from the

Whittemore Institute, the Cleveland Clinic, and the National Cancer

Institute and has tremendous implications for any family dealing with " Autism. "

>

> Many of those diagnosed with " Autism " have blood work that contains these same

viruses. Autism (or should I say a " diagnosis " of Autism) has increased in

staggering numbers over the past ten years. One in every 91 children in the US

has what we refer to as " Autism " (read American Academy Pediatrics Report).

These statistics are endorsed by the Centers for Disease Control and Prevention

(CDC), American Academy of Pediatrics, and other agencies. California reports a

273% increase, land 513%, and Florida 600%.

>

> When a child is diagnosed with cancer, everyone understands the seriousness of

the disease and its treatment. Because of this, cancer research is funded

generously. " Autism " is now the third most prevalent childhood disease, but it

remains the least funded in terms of research dollars. And how much of these

research funds are devoted to the genetic causes of " Autism? " We are wasting

what precious funds we have on genetic research for a disease that is, in no

way, genetic in nature. In addition, the cost to local school districts in

special education expenses is astronomical and growing every year! We are

draining budgets and there are kids NOT getting better every day.

>

> What we have is an epidemic. Developmental disorders do not increase by 600%

or occur in epidemic proportions. From a purely scientific perspective, an

epidemic of something that can't be spread by germs is NOT POSSIBLE. It also

should be impossible to medically treat and recover children with these various

disorders, but I have been doing exactly that for 27 years (CFS and ADHD) and

now 14 year ( " Autistic Spectrum " ).

>

> We have lost too much time focusing our energies on the genetic and

" refrigerator mother " causes of this disease. The time to act is now. We must

refocus our resources and move in the right direction with hard science, hard

logic, and hard data and finally address this crisis medically.

>

> It is time to create a new focus with ONE goal and ONE idea to help your

children. We must promote the medical treatment for this disease. We have

proven time and time again, kids can get better. We, along with the medical

community must come together, rally around the flag (or any other name you

all want except " Autism " ) and focus on the true medical crisis. This is a tough

disease, but as a disease, it is beatable. It more than past the time for

parents and the medical community to join hands and lead the charge and make

recovery possible for all children afflicted with the disease formally known as

Autism.

>

> Goldberg, MD

>

[Guest guest]

Yes, I can agree that the term Autism is possibly used too loosely. From what I

understand, many members of the Autism/Asperger adult groups are offended at

many of the parents of young children's efforts to find a cure. They themselves

believe nothing is " curable' about them. I look at my son's diagnosis from a

" mother with a four year old who is suffering " perspective. I am not a doctor or

a political advocate. I simply want my child to get care. We are military and

do not have a large income. We cannot afford you Dr. Goldberg, or most of your

colleagues. If we could, we would have been to you long ago. So, if a

diagnosis of Autism helps the medical and educational communities, and my health

insurance, pay for speech, OT and ABA, then I embrace it, even if it ends up, as

we hope, being incorrect. I have seen the impact these specialists have had on

my kiddo. It has been fantastic. Is it, as some of my family members say,

simply maturity that would have happened anyway, or is it, a synergy of all the

things we are doing (supplements, treatments, diet, etc) that is that is turning

on his light bulb? I wish I knew. I wish there was coverage for bio-medical

treatments, including cognitive training and neurofeedback, but there is not. I

have family members that have been battling doctors, insurance companies and

social security disability regarding CFS and Fibro for nearly 20 years. My son

does not have that kind of time. Our goal is to get him, successfully through

school, so that he can be an independent adult. If the medical community wants

my help testing my son for XMRV, I am all for it. I want answers too. However,

please, tell me how I can help promote the medical treatment of the disease

while still treating my son. Do you want to run tests? Fine, tell me where to

bring him. We want to help not only our son, but also those behind us. I agree

that our community is too divided. We do need ONE vision, but to the leaders,

like yourself, tell us, specifically, what we can do, especially when we have

limited financial means and honestly, limited time. I have made the calls to

our congressional representatives, I help the community in many ways, I am part

of the conversation, but this is not my profession. The bottom line is we all

have the same goal and our hands are outstretched. What's next?

Mom of a 4yo with ASD and

a 2yo preemie with asthma, Military Wife and Student

>

> LET'S JUST STOP CALLING IT " AUTISM "

>

> What if the psychological affliction " Autism " had never existed? What if ever

increasing numbers children were showing up in schools without speech, lost in

their own worlds, and having unexplained seizures? Would we be diagnosing these

children with a " developmental disorder? " Or would we be looking for root causes

of their DISEASE and treating what they have medically? What if your children

have is not " Autism " at all, but a medical disease in most part caused by

viruses? According to a new study appearing in the October 2009 issue of

SCIENCE, the latest research supports this idea and it is exactly what I have

been advocating for twenty-seven years.

>

> This study describes the detection of a virus called XMRV (xenotropic MLV

related virus) in about two-thirds of patients diagnosed with chronic fatigue

syndrome (CFS). It was conducted by researchers who collaborated from the

Whittemore Institute, the Cleveland Clinic, and the National Cancer

Institute and has tremendous implications for any family dealing with " Autism. "

>

> Many of those diagnosed with " Autism " have blood work that contains these same

viruses. Autism (or should I say a " diagnosis " of Autism) has increased in

staggering numbers over the past ten years. One in every 91 children in the US

has what we refer to as " Autism " (read American Academy Pediatrics Report).

These statistics are endorsed by the Centers for Disease Control and Prevention

(CDC), American Academy of Pediatrics, and other agencies. California reports a

273% increase, land 513%, and Florida 600%.

>

> When a child is diagnosed with cancer, everyone understands the seriousness of

the disease and its treatment. Because of this, cancer research is funded

generously. " Autism " is now the third most prevalent childhood disease, but it

remains the least funded in terms of research dollars. And how much of these

research funds are devoted to the genetic causes of " Autism? " We are wasting

what precious funds we have on genetic research for a disease that is, in no

way, genetic in nature. In addition, the cost to local school districts in

special education expenses is astronomical and growing every year! We are

draining budgets and there are kids NOT getting better every day.

>

> What we have is an epidemic. Developmental disorders do not increase by 600%

or occur in epidemic proportions. From a purely scientific perspective, an

epidemic of something that can't be spread by germs is NOT POSSIBLE. It also

should be impossible to medically treat and recover children with these various

disorders, but I have been doing exactly that for 27 years (CFS and ADHD) and

now 14 year ( " Autistic Spectrum " ).

>

> We have lost too much time focusing our energies on the genetic and

" refrigerator mother " causes of this disease. The time to act is now. We must

refocus our resources and move in the right direction with hard science, hard

logic, and hard data and finally address this crisis medically.

>

> It is time to create a new focus with ONE goal and ONE idea to help your

children. We must promote the medical treatment for this disease. We have

proven time and time again, kids can get better. We, along with the medical

community must come together, rally around the flag (or any other name you

all want except " Autism " ) and focus on the true medical crisis. This is a tough

disease, but as a disease, it is beatable. It more than past the time for

parents and the medical community to join hands and lead the charge and make

recovery possible for all children afflicted with the disease formally known as

Autism.

>

> Goldberg, MD

>

[Guest guest]

Hello ,

We are a one income " government " insurance family as well. Dr.

Goldberg takes our insurance, he's a preferred provider with Blue

Cross/Blue Shield.

On Oct 10, 2009, at 8:31 AM, dimcgowen22 wrote:

>

>

> Yes, I can agree that the term Autism is possibly used too loosely.

> From what I understand, many members of the Autism/Asperger adult

> groups are offended at many of the parents of young children's

> efforts to find a cure. They themselves believe nothing is " curable'

> about them. I look at my son's diagnosis from a " mother with a four

> year old who is suffering " perspective. I am not a doctor or a

> political advocate. I simply want my child to get care. We are

> military and do not have a large income. We cannot afford you Dr.

> Goldberg, or most of your colleagues. If we could, we would have

> been to you long ago. So, if a diagnosis of Autism helps the medical

> community or my insurance pay for speech, OT and ABA, then I embrace

> it, even if it ends up, as we hope, being incorrect. I have seen the

> impact these specialists have had on my kiddo. It has been

> fantastic. Is it, as some of my family members say, simply maturity

> that would have happened anyway, or is it, a synergy of all the

> things we are doing (supplements, treatments, diet, etc) that is

> that is turning on his light bulb? I wish I knew. I wish there was

> coverage for bio-medical treatments, including cognitive training

> and neurofeedback, but there is not. I have family members that have

> been battling doctors, insurance companies and social security

> disability regarding CFS and Fibro for nearly 20 years. My son does

> not have that kind of time. Our goal is to get him, successfully

> through school, so that he can be an independent adult. If the

> medical community wants my help testing my son for XMRV, I am all

> for it. I want answers too. However, please, tell me how I can help

> promote the medical treatment of the disease while still treating my

> son. Do you want to run tests? Fine, tell me where to bring him. We

> want to help not only our son, but also those behind us. I agree

> that our community is too divided. We do need ONE vision, but to the

> leaders, like yourself, tell us, specifically, what we can do,

> especially when we have limited financial means and honestly,

> limited time. I have made the calls to our congressional

> representatives, I help the community in many ways, I am part of the

> conversation, but this is not my profession. The bottom line is, our

> goals are the same, our hands are extended. What do can we do next?

>

> McGowen

> Mother of a 4yo diagnosed with ASD and

> 2yo preemie with asthma, Military Wife and Student

>

>

> >

> > LET'S JUST STOP CALLING IT " AUTISM "

> >

> > What if the psychological affliction " Autism " had never existed?

> What if ever increasing numbers children were showing up in schools

> without speech, lost in their own worlds, and having unexplained

> seizures? Would we be diagnosing these children with a

> " developmental disorder? " Or would we be looking for root causes of

> their DISEASE and treating what they have medically? What if your

> children have is not " Autism " at all, but a medical disease in most

> part caused by viruses? According to a new study appearing in the

> October 2009 issue of SCIENCE, the latest research supports this

> idea and it is exactly what I have been advocating for twenty-seven

> years.

> >

> > This study describes the detection of a virus called XMRV

> (xenotropic MLV related virus) in about two-thirds of patients

> diagnosed with chronic fatigue syndrome (CFS). It was conducted by

> researchers who collaborated from the Whittemore Institute,

> the Cleveland Clinic, and the National Cancer Institute and has

> tremendous implications for any family dealing with " Autism. "

> >

> > Many of those diagnosed with " Autism " have blood work that

> contains these same viruses. Autism (or should I say a " diagnosis "

> of Autism) has increased in staggering numbers over the past ten

> years. One in every 91 children in the US has what we refer to as

> " Autism " (read American Academy Pediatrics Report). These statistics

> are endorsed by the Centers for Disease Control and Prevention

> (CDC), American Academy of Pediatrics, and other agencies.

> California reports a 273% increase, land 513%, and Florida 600%.

> >

> > When a child is diagnosed with cancer, everyone understands the

> seriousness of the disease and its treatment. Because of this,

> cancer research is funded generously. " Autism " is now the third most

> prevalent childhood disease, but it remains the least funded in

> terms of research dollars. And how much of these research funds are

> devoted to the genetic causes of " Autism? " We are wasting what

> precious funds we have on genetic research for a disease that is, in

> no way, genetic in nature. In addition, the cost to local school

> districts in special education expenses is astronomical and growing

> every year! We are draining budgets and there are kids NOT getting

> better every day.

> >

> > What we have is an epidemic. Developmental disorders do not

> increase by 600% or occur in epidemic proportions. From a purely

> scientific perspective, an epidemic of something that can't be

> spread by germs is NOT POSSIBLE. It also should be impossible to

> medically treat and recover children with these various disorders,

> but I have been doing exactly that for 27 years (CFS and ADHD) and

> now 14 year ( " Autistic Spectrum " ).

> >

> > We have lost too much time focusing our energies on the genetic

> and " refrigerator mother " causes of this disease. The time to act is

> now. We must refocus our resources and move in the right direction

> with hard science, hard logic, and hard data and finally address

> this crisis medically.

> >

> > It is time to create a new focus with ONE goal and ONE idea to

> help your children. We must promote the medical treatment for this

> disease. We have proven time and time again, kids can get better.

> We, along with the medical community must come together, rally

> around the flag (or any other name you all want except

> " Autism " ) and focus on the true medical crisis. This is a tough

> disease, but as a disease, it is beatable. It more than past the

> time for parents and the medical community to join hands and lead

> the charge and make recovery possible for all children afflicted

> with the disease formally known as Autism.

> >

> > Goldberg, MD

> >

>

>

>