RE: New scared and lost :(

[Guest guest]

What did you want to know? Does he have autism? are you wondering about ?

-

>

> We are still at the beginning stages with my 6 yr old son Aadon trying to

figure out what is wrong.It is driving me insane wish we had more answers.He has

blank stare episodes,has a hard time expressing his feelings and needs,cannot

write anything beyond a circle sucks on his thumb continuously but pulls his

hair out while sucking his thumb while he goes to sleep and at school.

>

>

> Some history

>

> My son was born at 32 weeks and had to stay 1 month in the hospital.He could

not eat or breath on his own.When he began to eat solids after a year old

instead of chewing he sucked his food while it was in his mouth until it was

soft enough to swallow until he was around 3 years old.He walked late too when

he was almost 2.At first the doctors believed he has cerebral palsy but with

much therapy and work he has over come those obstacles and they long believe

this to be the case.He had severe speech delay as well.His speech delay now is

just very very mild.He olso didnt potty train till he was four.

>

> His first neurologist said he had complex partial.His new neurologist says he

isnt quite sure because of where the spikes are on the eeg. Waiting to see more

specialists!

>

[Guest guest]

Aadon's history sounds a lot like my son's.

He was born at 26 weeks (with his twin sister). He was dx'd with CP and ASD

(both mild) right around age 3. He was relatively healthy until 12 months,

when he got the MMR while being introduced to cow's milk (the cow's milk DID

NOT go over well, gave him asthma and SEVERE constipation), and at 18 months

he got both a flu vaccination and rotovirus in the same 5 day window. From

then on, he was getting sick ALL the time, and staying sick for months at a

time. Rashes, ear infections, respiratory infections, constipation. Dr. G

has helped him TONS in that area. His biggest challenges now are speech

(language) and because of that, social.

My son had early intervention from the NICU. He would present with a delay

or an 'issue', receive therapy for it, then move on and not have a delay.

Except speech. That wasn't " caught " until he was 2, and by then, I think he

was really delayed and that was when he was sick so much that it further

delayed him. You would not know he has CP, it's that mild due to all the EI

he got.

Dr. G talks about a retrovirus. I read a study that 30-some % of preemies

that develop CP develop it due to exposure to a herpes-related virus right

around the time of birth, not a hypoxic event. That really fits for me in

relation to my son, and I think it's why he has been so successful on Dr.

G's protocol. My son STARTED drooling at 3 years - I feel like it was

encephalitis taking over his brain. I shudder when I think of where he would

be without Dr. G's help.

Kristy

From: [mailto: ] On Behalf Of

lockedillusionz

Sent: Thursday, October 08, 2009 11:59 AM

Subject: New scared and lost

We are still at the beginning stages with my 6 yr old son Aadon trying to

figure out what is wrong.It is driving me insane wish we had more answers.He

has blank stare episodes,has a hard time expressing his feelings and

needs,cannot write anything beyond a circle sucks on his thumb continuously

but pulls his hair out while sucking his thumb while he goes to sleep and at

school.

Some history

My son was born at 32 weeks and had to stay 1 month in the hospital.He could

not eat or breath on his own.When he began to eat solids after a year old

instead of chewing he sucked his food while it was in his mouth until it was

soft enough to swallow until he was around 3 years old.He walked late too

when he was almost 2.At first the doctors believed he has cerebral palsy but

with much therapy and work he has over come those obstacles and they long

believe this to be the case.He had severe speech delay as well.His speech

delay now is just very very mild.He olso didnt potty train till he was four.

His first neurologist said he had complex partial.His new neurologist says

he isnt quite sure because of where the spikes are on the eeg. Waiting to

see more specialists!

[Guest guest]

Hi Kristy,

Thank you for sharing your story.

What did Dr. Goldberg tell you about retroviruses?

Thanks,

JR

From: knardini@...

Date: Fri, 9 Oct 2009 09:23:02 -0700

Subject: RE: New scared and lost

Aadon's history sounds a lot like my son's.

He was born at 26 weeks (with his twin sister). He was dx'd with CP and ASD

(both mild) right around age 3. He was relatively healthy until 12 months,

when he got the MMR while being introduced to cow's milk (the cow's milk DID

NOT go over well, gave him asthma and SEVERE constipation), and at 18 months

he got both a flu vaccination and rotovirus in the same 5 day window. From

then on, he was getting sick ALL the time, and staying sick for months at a

time. Rashes, ear infections, respiratory infections, constipation. Dr. G

has helped him TONS in that area. His biggest challenges now are speech

(language) and because of that, social.

My son had early intervention from the NICU. He would present with a delay

or an 'issue', receive therapy for it, then move on and not have a delay.

Except speech. That wasn't " caught " until he was 2, and by then, I think he

was really delayed and that was when he was sick so much that it further

delayed him. You would not know he has CP, it's that mild due to all the EI

he got.

Dr. G talks about a retrovirus. I read a study that 30-some % of preemies

that develop CP develop it due to exposure to a herpes-related virus right

around the time of birth, not a hypoxic event. That really fits for me in

relation to my son, and I think it's why he has been so successful on Dr.

G's protocol. My son STARTED drooling at 3 years - I feel like it was

encephalitis taking over his brain. I shudder when I think of where he would

be without Dr. G's help.

Kristy

From: [mailto: ] On Behalf Of

lockedillusionz

Sent: Thursday, October 08, 2009 11:59 AM

Subject: New scared and lost

We are still at the beginning stages with my 6 yr old son Aadon trying to

figure out what is wrong.It is driving me insane wish we had more answers.He

has blank stare episodes,has a hard time expressing his feelings and

needs,cannot write anything beyond a circle sucks on his thumb continuously

but pulls his hair out while sucking his thumb while he goes to sleep and at

school.

Some history

My son was born at 32 weeks and had to stay 1 month in the hospital.He could

not eat or breath on his own.When he began to eat solids after a year old

instead of chewing he sucked his food while it was in his mouth until it was

soft enough to swallow until he was around 3 years old.He walked late too

when he was almost 2.At first the doctors believed he has cerebral palsy but

with much therapy and work he has over come those obstacles and they long

believe this to be the case.He had severe speech delay as well.His speech

delay now is just very very mild.He olso didnt potty train till he was four.

His first neurologist said he had complex partial.His new neurologist says

he isnt quite sure because of where the spikes are on the eeg. Waiting to

see more specialists!

[Guest guest]

We've had many discussions about them. What were you wondering about?

Kristy

From: [mailto: ] On Behalf Of

Sent: Friday, October 09, 2009 10:00 AM

nids

Subject: RE: New scared and lost

Hi Kristy,

Thank you for sharing your story.

What did Dr. Goldberg tell you about retroviruses?

Thanks,

JR

<mailto:%40>

From: knardini@... <mailto:knardini%40roadrunner.com>

Date: Fri, 9 Oct 2009 09:23:02 -0700

Subject: RE: New scared and lost

Aadon's history sounds a lot like my son's.

He was born at 26 weeks (with his twin sister). He was dx'd with CP and ASD

(both mild) right around age 3. He was relatively healthy until 12 months,

when he got the MMR while being introduced to cow's milk (the cow's milk DID

NOT go over well, gave him asthma and SEVERE constipation), and at 18 months

he got both a flu vaccination and rotovirus in the same 5 day window. From

then on, he was getting sick ALL the time, and staying sick for months at a

time. Rashes, ear infections, respiratory infections, constipation. Dr. G

has helped him TONS in that area. His biggest challenges now are speech

(language) and because of that, social.

My son had early intervention from the NICU. He would present with a delay

or an 'issue', receive therapy for it, then move on and not have a delay.

Except speech. That wasn't " caught " until he was 2, and by then, I think he

was really delayed and that was when he was sick so much that it further

delayed him. You would not know he has CP, it's that mild due to all the EI

he got.

Dr. G talks about a retrovirus. I read a study that 30-some % of preemies

that develop CP develop it due to exposure to a herpes-related virus right

around the time of birth, not a hypoxic event. That really fits for me in

relation to my son, and I think it's why he has been so successful on Dr.

G's protocol. My son STARTED drooling at 3 years - I feel like it was

encephalitis taking over his brain. I shudder when I think of where he would

be without Dr. G's help.

Kristy

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

lockedillusionz

Sent: Thursday, October 08, 2009 11:59 AM

<mailto:%40>

Subject: New scared and lost

We are still at the beginning stages with my 6 yr old son Aadon trying to

figure out what is wrong.It is driving me insane wish we had more answers.He

has blank stare episodes,has a hard time expressing his feelings and

needs,cannot write anything beyond a circle sucks on his thumb continuously

but pulls his hair out while sucking his thumb while he goes to sleep and at

school.

Some history

My son was born at 32 weeks and had to stay 1 month in the hospital.He could

not eat or breath on his own.When he began to eat solids after a year old

instead of chewing he sucked his food while it was in his mouth until it was

soft enough to swallow until he was around 3 years old.He walked late too

when he was almost 2.At first the doctors believed he has cerebral palsy but

with much therapy and work he has over come those obstacles and they long

believe this to be the case.He had severe speech delay as well.His speech

delay now is just very very mild.He olso didnt potty train till he was four.

His first neurologist said he had complex partial.His new neurologist says

he isnt quite sure because of where the spikes are on the eeg. Waiting to

see more specialists!