Re: Re: Question- probiotics

[Guest guest]

Georgiasand32 - Just curious - What in the probiotics does the doctor think he

is allergic too? The actual bacteria itself? The toxins in the die off

reaction?  I believe Kirkman makes gfcf probiotics. Is it something else in

the pills/wafers that they believe he is allergic too?

My son had a rash break out when we tried Three Lac - I had to stop that. (Plus

one bacteria in that has been questioned about safety.)

From: georgiasand32 <georgiasand32@...>

Subject: Re: Question- probiotics

Date: Saturday, March 27, 2010, 3:38 PM

 

I have been hounding Dr.G at every consult about probiotics but he specifically

wants my son to hold off on starting them again. Since my son is allergic to

almost everything he wants him to take time off from it as he suspects he was

allergic to these as well. I am anxious to start again but have seen no

difference-- good or bad--since cutting back drastically on all the DAN

supplements including probiotics. Does your son have high allergies?

>

> >

> >

> > We just saw Dr.G. Thanks for the tape recorder advice- really will help! We

> > were doing the dan 'protocol' and Dr G basically told us to stop all

> > supplements and start famvir (haven't started yet) but the antifungal iron

> > and claritin. My son was on alinia for clostridia- since taking him off, he

> > is starting to hit again, aggressive behavior. This is typical for him when

> > he goes off this particular med. It's frustrating but we are going to try

> > this. Anyone else notice behavior changes when changing over from one

> > protocol to a different one? Also, can I still use probiotics? I forgot to

> > ask him. Any help or advice is appreciated. We are hoping we are going in

> > the right direction.

> >

> > Thanks,

> > (a nervous) Meera

> >

> >

> >

>

>

>

[Guest guest]

It may be that because probiotics have a direct impact on certain parts of the

immune system - certain bacteria trigger the TH1 arm of the immune system and

many other things, he may simply be concerned about them making the immune

system too 'hot' in a specific area.  He usually encourages them, so he has a

very specific reason. 

I can't take them at all - it sets off stomach problems, and triggers anxiety

and ocd.  I have to manage yeast issues w/diflucan.

HTH

________________________________

From: georgiasand32 <georgiasand32@...>

Sent: Sat, March 27, 2010 2:38:20 PM

Subject: Re: Question- probiotics

 

I have been hounding Dr.G at every consult about probiotics but he specifically

wants my son to hold off on starting them again. Since my son is allergic to

almost everything he wants him to take time off from it as he suspects he was

allergic to these as well. I am anxious to start again but have seen no

difference-- good or bad--since cutting back drastically on all the DAN

supplements including probiotics. Does your son have high allergies?

>

> >

> >

> > We just saw Dr.G. Thanks for the tape recorder advice- really will help! We

> > were doing the dan 'protocol' and Dr G basically told us to stop all

> > supplements and start famvir (haven't started yet) but the antifungal iron

> > and claritin. My son was on alinia for clostridia- since taking him off, he

> > is starting to hit again, aggressive behavior. This is typical for him when

> > he goes off this particular med. It's frustrating but we are going to try

> > this. Anyone else notice behavior changes when changing over from one

> > protocol to a different one? Also, can I still use probiotics? I forgot to

> > ask him. Any help or advice is appreciated. We are hoping we are going in

> > the right direction.

> >

> > Thanks,

> > (a nervous) Meera

> >

> >

> >

>

>

>

[Guest guest]

> Has everyones kids shown improvement?

I don't know that all kids will improve on the protocol, but our son

has. In his early years, he was sick all the time, but he's been much

healthier since starting antivirals and antifungals. He started school in a

special education pre-K classroom, was added to a regular Kindergarten

classroom the next year with an aide, and now (fourth grade), he's in the

talented and gifted program. Last year, he got a perfect score on his

standardized tests (TAKS test in Texas). That didn't surprise us on the

math, but it did on the verbal.

We've always been able to tell he was smart, even before starting the

protocol, but lots of things are just harder for him. He learned the

complete alphbet (very early) before he would say " mom " and " dad " . He still

doesn't pick up social rules easily, he gets in trouble at school for

behavioral issues, and he has trouble forming his sentences and writing. So

we're certainly not done. But we have made so much progress from when all

he could do was use words to label things, not to communicate what he

wanted.

Dan Jagnow

On Sat, Mar 27, 2010 at 9:36 PM, meera327 <mckataria@...> wrote:

>

>

> Spect showed hypoperfusion in temporal lobes and cerebellum. Hyperperfusion

> in frontal lobe. 3 possible seizure foci. Not good. He thinks it's bc of our

> previous dan! Stuff. We stopped everything and he is no longer potty trained

> - he was dry at night (used to be wet when he was 'yeasty' only) but is

> having multiple accidents in the day too. He's been off everything for 4-5

> days now. Going to start the famvir tomorrow. We promised ourselves 3-6 mos

> of really doing this protocol before we decide if it really works or not.

>

> Has everyones kids shown improvement? Or are there nonresponders to this

> too? All input is appreciated.

>

> Meera

>

>

> >

> > >

> > >

> > > We just saw Dr.G. Thanks for the tape recorder advice- really will

> help! We

> > > were doing the dan 'protocol' and Dr G basically told us to stop all

> > > supplements and start famvir (haven't started yet) but the antifungal

> iron

> > > and claritin. My son was on alinia for clostridia- since taking him

> off, he

> > > is starting to hit again, aggressive behavior. This is typical for him

> when

> > > he goes off this particular med. It's frustrating but we are going to

> try

> > > this. Anyone else notice behavior changes when changing over from one

> > > protocol to a different one? Also, can I still use probiotics? I forgot

> to

> > > ask him. Any help or advice is appreciated. We are hoping we are going

> in

> > > the right direction.

> > >

> > > Thanks,

> > > (a nervous) Meera

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

My son gained language when we started the diet at age 3. He's been on

protocol a year. After a few months his HHV6 was normal. His NK% is up from 3 to

7. All of the blood work that was out of range a year ago is now normal. He's

starting to read now.

-- Sent from my Palm Pre

[Guest guest]

This sounds SO MUCH like my son (except getting in trouble for behavioral

stuff, KOW).

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of Dan

Jagnow

Sent: Sunday, March 28, 2010 9:17 AM

Subject: Re: Re: Question- probiotics

> Has everyones kids shown improvement?

I don't know that all kids will improve on the protocol, but our son

has. In his early years, he was sick all the time, but he's been much

healthier since starting antivirals and antifungals. He started school in a

special education pre-K classroom, was added to a regular Kindergarten

classroom the next year with an aide, and now (fourth grade), he's in the

talented and gifted program. Last year, he got a perfect score on his

standardized tests (TAKS test in Texas). That didn't surprise us on the

math, but it did on the verbal.

We've always been able to tell he was smart, even before starting the

protocol, but lots of things are just harder for him. He learned the

complete alphbet (very early) before he would say " mom " and " dad " . He still

doesn't pick up social rules easily, he gets in trouble at school for

behavioral issues, and he has trouble forming his sentences and writing. So

we're certainly not done. But we have made so much progress from when all

he could do was use words to label things, not to communicate what he

wanted.

Dan Jagnow

On Sat, Mar 27, 2010 at 9:36 PM, meera327 <mckataria@...

<mailto:mckataria%40> > wrote:

>

>

> Spect showed hypoperfusion in temporal lobes and cerebellum.

Hyperperfusion

> in frontal lobe. 3 possible seizure foci. Not good. He thinks it's bc of

our

> previous dan! Stuff. We stopped everything and he is no longer potty

trained

> - he was dry at night (used to be wet when he was 'yeasty' only) but is

> having multiple accidents in the day too. He's been off everything for 4-5

> days now. Going to start the famvir tomorrow. We promised ourselves 3-6

mos

> of really doing this protocol before we decide if it really works or not.

>

> Has everyones kids shown improvement? Or are there nonresponders to this

> too? All input is appreciated.

>

> Meera

>

>

> >

> > >

> > >

> > > We just saw Dr.G. Thanks for the tape recorder advice- really will

> help! We

> > > were doing the dan 'protocol' and Dr G basically told us to stop all

> > > supplements and start famvir (haven't started yet) but the antifungal

> iron

> > > and claritin. My son was on alinia for clostridia- since taking him

> off, he

> > > is starting to hit again, aggressive behavior. This is typical for him

> when

> > > he goes off this particular med. It's frustrating but we are going to

> try

> > > this. Anyone else notice behavior changes when changing over from one

> > > protocol to a different one? Also, can I still use probiotics? I

forgot

> to

> > > ask him. Any help or advice is appreciated. We are hoping we are going

> in

> > > the right direction.

> > >

> > > Thanks,

> > > (a nervous) Meera

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Meera,

Did you do HBOT with your son?.

Thanks

Kotesh

On Sat, Mar 27, 2010 at 9:36 PM, meera327 <mckataria@...> wrote:

>

>

> Spect showed hypoperfusion in temporal lobes and cerebellum. Hyperperfusion

> in frontal lobe. 3 possible seizure foci. Not good. He thinks it's bc of our

> previous dan! Stuff. We stopped everything and he is no longer potty trained

> - he was dry at night (used to be wet when he was 'yeasty' only) but is

> having multiple accidents in the day too. He's been off everything for 4-5

> days now. Going to start the famvir tomorrow. We promised ourselves 3-6 mos

> of really doing this protocol before we decide if it really works or not.

>

> Has everyones kids shown improvement? Or are there nonresponders to this

> too? All input is appreciated.

>

> Meera

>

>

> >

> > >

> > >

> > > We just saw Dr.G. Thanks for the tape recorder advice- really will

> help! We

> > > were doing the dan 'protocol' and Dr G basically told us to stop all

> > > supplements and start famvir (haven't started yet) but the antifungal

> iron

> > > and claritin. My son was on alinia for clostridia- since taking him

> off, he

> > > is starting to hit again, aggressive behavior. This is typical for him

> when

> > > he goes off this particular med. It's frustrating but we are going to

> try

> > > this. Anyone else notice behavior changes when changing over from one

> > > protocol to a different one? Also, can I still use probiotics? I forgot

> to

> > > ask him. Any help or advice is appreciated. We are hoping we are going

> in

> > > the right direction.

> > >

> > > Thanks,

> > > (a nervous) Meera

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

And what results did you see?  Any observations of changes, positive or

negative?

 

________________________________

From: Meera <meera327@...>

Sent: Sun, March 28, 2010 7:06:34 PM

Subject: Re: Question- probiotics

 

Yes - we did HBOT - both mild chamber and hard chamber;

Meera

And what

[Guest guest]

My son was on the DAN protocol for years also.

Dr G did say we could use Kyodophilus for

probiotics.

Re: Re: Question- probiotics

Meera,

Did you do HBOT with your son?.

Thanks

Kotesh

On Sat, Mar 27, 2010 at 9:36 PM, meera327 <mckataria@...> wrote:

>

>

> Spect showed hypoperfusion in temporal lobes and cerebellum. Hyperperfusion

> in frontal lobe. 3 possible seizure foci. Not good. He thinks it's bc of our

> previous dan! Stuff. We stopped everything and he is no longer potty trained

> - he was dry at night (used to be wet when he was 'yeasty' only) but is

> having multiple accidents in the day too. He's been off everything for 4-5

> days now. Going to start the famvir tomorrow. We promised ourselves 3-6 mos

> of really doing this protocol before we decide if it really works or not.

>

> Has everyones kids shown improvement? Or are there nonresponders to this

> too? All input is appreciated.

>

> Meera

>

>

> >

> > >

> > >

> > > We just saw Dr.G. Thanks for the tape recorder advice- really will

> help! We

> > > were doing the dan 'protocol' and Dr G basically told us to stop all

> > > supplements and start famvir (haven't started yet) but the antifungal

> iron

> > > and claritin. My son was on alinia for clostridia- since taking him

> off, he

> > > is starting to hit again, aggressive behavior. This is typical for him

> when

> > > he goes off this particular med. It's frustrating but we are going to

> try

> > > this. Anyone else notice behavior changes when changing over from one

> > > protocol to a different one? Also, can I still use probiotics? I forgot

> to

> > > ask him. Any help or advice is appreciated. We are hoping we are going

> in

> > > the right direction.

> > >

> > > Thanks,

> > > (a nervous) Meera

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Meera,

My son is close to 4 and we did not do any HBOT but did lot of

supplementation last 1 1/2 year. We saw nothing from supplementation. This

is how we ended-up seeing Dr. G in the first week of March. My son is still

non-verbal. He had one word before he regressed around 14 months of age. Dr.

G said no for SPECT scan at this time as we did not do HBOT.

Did you see any benefit from HBOT?. Is your son verbal?

Thanks

Kotesh

On Mon, Mar 29, 2010 at 12:31 AM, Sheryl Saturnino <ssaturnino@...>wrote:

>

>

> And what results did you see? Any observations of changes, positive or

> negative?

>

>

>

> ________________________________

> From: Meera <meera327@... <meera327%40>>

> <%40>

> Sent: Sun, March 28, 2010 7:06:34 PM

>

> Subject: Re: Question- probiotics

>

>

> Yes - we did HBOT - both mild chamber and hard chamber;

>

> Meera

>

> And what

>

>