Guest guest Posted July 21, 1999 Report Share Posted July 21, 1999 Dear : I have been taking Paxil for 1 month. It eliminated my depression completely, but I was sleeping all the time and had NO motivation to do anything. I just stopped 3 days ago and I am up most of the day, only one nap a day, my motivation to do daily chores is back. So, I will continue without it, until the depression returns. Best wishes to you Dotti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 In a message dated 99-07-21 12:26:35 EDT, you write: << Hi everyone, I just saw a Rhuemotologist yesterday and she believes that Lyme may have caused Fibromyalgia. She also ran a bunch of blood tests for things like Lupus, etc. >> hi, I think one of the symptoms of lyme includes fibromyalgia. Not only do I have it, but a lot of other lymies I spoke with also have that condition. For me personally, the SSRI type of the antibiotics don't alleviate the fatigue but they sure help with the mild depression that I get from lyme. elizabeth md Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Hi , Paxil worked for me about a week after I started it, and it was really the difference between night and day. Not everyone can take it unfortunately, but I was lucky. I told my doctor I thought it was helping with the pain, but he said no, it was helping with the way I handled the pain. As for your rheumy thinking you have fibro, that is because they all think that people with Lyme have fibro. We share the same symptoms. But in my opinion Lyme does not cause fibromyalgia. You don't sleep well when you have Lyme disease, and your muscles hurt. Fibro is only a syndrome, Lyme is the disease. Let us know how you make out with the other tests, Hugs, Marta NJ >From: SCSullivan@... > >Hi everyone, >I just saw a Rhuemotologist yesterday and she believes that Lyme may have >caused Fibromyalgia. She also ran a bunch of blood tests for things like >Lupus, etc. > >While we wait for the test results, I agreed to try Paxil to help with the >fatigue. I've noticed that many on this list take it and was wondering how >it has worked for you, and how long it has taken to show any improvement. > >Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Thanks for the responses to my question about Paxil. I'm still adjusting to it, and I'm alittle out of it. I'm hoping that as my body gets used to it I feel some benefit. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hey All, Devon's psych upped his Paxil dose from 20mg daily to 30mg. because we reported no change at the 20mg dose. From what I have read on this site, it seems to me that his psych is being incredibly cautious with this dose. Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it takes awhile for the stuff to kick in (this is his sixth week on Paxil, but only his first on 30mg) but I am feeling a tad impatient. You see I feel like Devon is just falling through the cracks while we wait and wait and wait for each and every appointment, for the school district to get off its bottom, etc. I am sure you can all sympathize. Anyway, what do you feel about this dosage program? Thanks in advance Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 I feel the way you do--that does seem a snails pace. My son was up to 50mg paxil and weighed only 80 lbs. It seems to me the doctor increased by 10 mg every week. Judy DnEBrock@... wrote: > > From: DnEBrock@... > > Hey All, > > Devon's psych upped his Paxil dose from 20mg daily to 30mg. > because we > reported no change at the 20mg dose. From what I have read on this > site, it > seems to me that his psych is being incredibly cautious with this > dose. > Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it > takes > awhile for the stuff to kick in (this is his sixth week on Paxil, but > only > his first on 30mg) but I am feeling a tad impatient. You see I feel > like > Devon is just falling through the cracks while we wait and wait and > wait for > each and every appointment, for the school district to get off its > bottom, > etc. I am sure you can all sympathize. Anyway, what do you feel > about this > dosage program? Thanks in advance > > Elaine > ---------------------------------------------------------------------- > > ---------------------------------------------------------------------- > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The Archives and Links List for the OCD and > Parenting List may be accessed by going to > / . > Enter your email address and password. > Click on the highlighted list name and then click on message archives > by month or links located in the toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Kathy, Thanks for your support. A few questions here. The only possible " side effect " I can see is that lately Devon has complained of mild headaches more. Keep in mind that he doesn't get the sleep he needs (gotta gotta gotta do that homework right doncha know) and of course he doesn't get the fresh air and exercise a kid his age should have. Also, mom here now works nights four evenings a week, so there is a little less support at home (though his dad reports no melt downs as of old). His teacher does say that he seems " worse " at school lately (i.e. sneaking off from gym to finish something in the classroom). So anyway, other than that we see no effect at all. I agree that if a quick rise will cause quick problems, we would rather go this slowly. I can TRY to be patient ;-) Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 HI Elaine: Steve was titrated up so fast on his Paxil that I would never recommend this to anyone. He really suffered from the side effects. Is Devon suffering any side effects? If so a slow titration seems very wise. Some people are much, much more sensitive to these effects on SSRIs than others. If he is one of these a slow titration is probably wise. If he is not and tolerates the SSRIs pretty well then you probably do want to get the dosage up more into the realm of starting to help with the OCD symptoms before long. I suggest you discuss this with the p-doc right away. It is very hard to stay patient when living with someone who is adjusting to their meds but not yet showing any benefit. As usual I must make my plug for doing the CBT which is much more likely to have a positive effect quite rapidly and one which will remain after CBT is discontinued, unlike meds. Take care, aloha, Kathy (H) kathyh@... At 06:51 PM 03/28/2000 -0500, you wrote: >From: " Judith C. Lovchik " <jlovchik@...> > >I feel the way you do--that does seem a snails pace. My son was up to >50mg paxil and weighed only 80 lbs. It seems to me the doctor increased >by 10 mg every week. > >Judy > >DnEBrock@... wrote: >> >> From: DnEBrock@... >> >> Hey All, >> >> Devon's psych upped his Paxil dose from 20mg daily to 30mg. >> because we >> reported no change at the 20mg dose. From what I have read on this >> site, it >> seems to me that his psych is being incredibly cautious with this >> dose. >> Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it >> takes >> awhile for the stuff to kick in (this is his sixth week on Paxil, but >> only >> his first on 30mg) but I am feeling a tad impatient. You see I feel >> like >> Devon is just falling through the cracks while we wait and wait and >> wait for >> each and every appointment, for the school district to get off its >> bottom, >> etc. I am sure you can all sympathize. Anyway, what do you feel >> about this >> dosage program? Thanks in advance >> >> Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Hi: The worsening of symptoms at school might be a good sign that the medication is starting to activate the neurotransmitter sites in Devon's brain. We did experience a worsening of OCD at first when Steve went on Paxil. He also had the gastrointestinal stuff and was very restless and could not sleep. Please know I am very bad at being patient, you are doing a wonderful job taking it slowly but surely upwards. Good luck, please keep us posted on Devon's progress. Take care, aloha, Kathy (H) kathyh@... At 04:50 PM 03/29/2000 -0500, you wrote: >From: DnEBrock@... > >Kathy, > > Thanks for your support. A few questions here. The only possible " side >effect " I can see is that lately Devon has complained of mild headaches more. > Keep in mind that he doesn't get the sleep he needs (gotta gotta gotta do >that homework right doncha know) and of course he doesn't get the fresh air >and exercise a kid his age should have. Also, mom here now works nights four >evenings a week, so there is a little less support at home (though his dad >reports no melt downs as of old). His teacher does say that he seems " worse " >at school lately (i.e. sneaking off from gym to finish something in the >classroom). So anyway, other than that we see no effect at all. I agree >that if a quick rise will cause quick problems, we would rather go this >slowly. I can TRY to be patient ;-) > >Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Dear Several people on this list have been prescribed paxil, know iin the UK as Paroxetine. Could everyone who has taken it please just drop a quick line to the list to say so? My doctor is in the process of writing me a letter explaining why Paxil was offered to me every single time I complained of my (candida) symptoms over 8 years. It would be of use to me if I coudl show her that others have been given this too, and it was wrong, and now they are recovering without it. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 I originally was prescribed Prozac when I was going through the worst year of my life...knowing my husband was being unfaithful yet having him deny it and having no real proof that he was seeing this girl. Yes, I was very depressed! However, the Prozac made me feel dopey and fuzzy headed. I stopped taking it--big mistake--and crashed big time. So I started taking it again. Then I read about St. 's Wort and weaned myself from the Prozac to the SJW. I didn't crash; however, the SJW made me sun sensitive and everytime I'd go out in the sun I'd break out in hives. A few months ago I was at the doctor and told him how I felt on Prozac and he switched me to Paxil. To tell the truth, I don't seem to have any ill effects from it. The end of June we found out my mother-in-law has pancreatic cancer and I have also been dealing with a lot of stuff with my kids and my someday-to-be-ex's girlfriend. I think the stress made my candida flare up...I was suffering from irritable bowel and acid reflux as well as joint and muscle pain. Emotionally I was a basket case. The doctor upped my Paxil from 20 to 40 mg. Again, I don't seem to have any bad reactions from it. However, the other meds he had me on I stopped taking. They were for the irritable bowel and the acid reflux. They made me drowsy and I don't need that. D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 << After several months, if anything, n seems somewhat worse. Currently, n is on 40mg of Paxil. He began on 10mg, went to 20, and now has been on 40mg for a little less than a week. He seems worse to me, however I read somewhere (don't ask me where) that lower doses of Paxil can cause agitation in children but can be helpful in higher doses. Does anyone have experience with this drug? If so, how lon >> Hi, Everyone........I find this interesting. Gareth's been on 10 mg. for 2 wks. now. I thought it was really going well until I gave him Ritalin yesterday before church. He was horrible about 3 hours later.......growling, angry, belligerent. I was suppose to increase it tonight, but didn't. I was suppose to take him to the Dr. tonight for his med eval. but forgot to pick up the damn referral from his PCP. Now I have to wait 2 wks. I was leaning towards the idea that if a little gets him agitated, then a lot more would make it worse. He's got to be able to take the Ritalin for school. Welcome back MB and Sara. Take care, everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 , I had a really bad reaction to Paxil. I took it only one day and felt like I was viewing my life as a Bystander. I was told that the feeling would pass but I declined to take anymore. I want to be aware of who I was and what I was doing. This does not happen to everyone. It was just my experience. Good Luck. Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Hi /Ken: Yes, I have been on Paxil in 1994 for one year after repeating panic attacks from asthma attacks; afraid I could not breathe, live. Then I went again on Paxil this year in March and am still on it. This time it helps with pain management with rheumatoid arthritis and osteo-arthritis. I am at a high amount of level of pain with the arthritis. It also helps with panic attacks and gives me the tool to think before I leap into panic. I am on a high dosage of predisone once again after being in the hospital last week for asthma. I notice that it helps with that. It is good for depression but I also think it is good for anxiety as well with the panic disorder. Of course social phobia is now on the paxil label/for that disorder as well. I don't have that, but Paxil has no major drawbacks as I can tell such as side effects. I am staying on it for now; at least another year. Good luck Martha P.S> Some people said it would help with losing of weight, I have not found that ; mainly because of my predisone usage I guess >From: " Ken and " <kglg@...> > " rheumatic " <rheumaticegroups> >Subject: rheumatic Paxil >Date: Sun, 24 Sep 2000 11:09:34 -0400 > >Does anyone have any experience with the drug Paxil? > >Thanks, > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 << . the doc now wants to put on Paxil. >> Hi, Everyone.................Gareth was on Paxil for about a month (Aug.) before I took him off it. If the Paxil doesn't work for , there are other SSRI drugs to try. Don't give up on the first try if there is no improvement in behavior. Take care. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 paxil didnt work for nathan, it made him crazy if thats the right word, hallucinating etc, but every child reacts differently to meds, he is doing fairly well on the clomiproamine right now, and actually sleeping last few nights since we took him off the ritalin but now the school is haveing a fit, even sent him home today at 10 in the am, couldnt control him, oh phewy, he was an angel all afternoon at home, not in the least bit hyper. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 > > > << . the doc now wants to put on Paxil. >> > Hi Margaret!! You didnt mention why you took Gareth off paxil? was there a reaction or it didnt really change his behavior in any way? already has one failed attempt with luvox and i am concerned about him trying the paxil and any adverse affects. I feel like giving up actually but i wont lol. thanks for letting me know. MARIE > Hi, Everyone.................Gareth was on Paxil for about a month > (Aug.) before I took him off it. If the Paxil doesn't work for , there > are other SSRI drugs to try. Don't give up on the first try if there is > no improvement in behavior. Take care. > Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Hi Marie, Ben was on Paxil for just a week or two, after having been on Prozac for about 7 months. We weren't sure if the Prozac was completely out of his system at the time- it has a very long half life. (You won't know for up to 6-8 weeks whether it's going to do the job properly.) Paxil, on the other hand, has a much shorter half life and if the next dose is given after the first dose is out of the system, it can cause a rebound effect. We think that is what happened with PB- he became very aggressive on the Paxil and we discontinued it as soon as we figured out what was going on. In adults with depression, Paxil can be very difficult to stop taking- there are some physical side effects that can show up. (Sorry but I don't remember what they are.) So far PB has been on Prozac (too difficult to dose properly, and it was building up in his system), Paxil, Luvox- which made him very uninhibited- not great for a kid who is impulsive and obssessive compulsive for some things. Currently he is on a very low dose of Celexa (5 mg every 3 days.) We think it has helped him be calmer, a little less aggressive, and talk more- but don't know if it's the Celexa or just him that is behind the screaming all day at school. (He's a comparative angel at home). SIGH. > << . the doc now wants to put on Paxil. >> > Hi Margaret!! You didnt mention why you took Gareth off paxil? was there a reaction or it didnt really change his behavior in any way? already has one failed attempt with luvox and i am concerned about him trying the paxil and any adverse affects. I feel like giving up actually but i wont lol. thanks for letting me know. MARIE > Hi, Everyone.................Gareth was on Paxil for about a month > (Aug.) before I took him off it. If the Paxil doesn't work for , there > are other SSRI drugs to try. Don't give up on the first try if there is > no improvement in behavior. Take care. > Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Mashawnag@... wrote: paxil didnt work for nathan, it made him crazy if thats the right word, hallucinating etc, but every child reacts differently to meds, he is doing fairly well on the clomiproamine right now, and actually sleeping last few nights since we took him off the ritalin but now the school is haveing a fit, even sent him home today at 10 in the am, couldnt control him, oh phewy, he was an angel all afternoon at home, not in the least bit hyper. shawna. eGroups Sponsor hi shawna did your son have problems coming off the paxil?? i read an article (can t find the mag now)that some people have a real hard time when they stop it. they wind up having many of the side effects and can not get rid of them for a long time. carole --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Mashawnag@... wrote: paxil didnt work for nathan, it made him crazy if thats the right word, hallucinating etc, but every child reacts differently to meds, he is doing fairly well on the clomiproamine right now, and actually sleeping last few nights since we took him off the ritalin but now the school is haveing a fit, even sent him home today at 10 in the am, couldnt control him, oh phewy, he was an angel all afternoon at home, not in the least bit hyper. shawna. eGroups Sponsor hi shawna did your son have problems coming off the paxil?? i read an article (can t find the mag now)that some people have a real hard time when they stop it. they wind up having many of the side effects and can not get rid of them for a long time. carole --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/10/00 4:36:09 AM Pacific Daylight Time, egroups writes: << hi shawna did your son have problems coming off the paxil?? i read an article (can t find the mag now)that some people have a real hard time when they stop it. they wind up having many of the side effects and can not get rid of them for a long time. carole >> I'm on Paxil myself, and I'm kinda glad for the side effects that can happen......let me explain....when I was on other depression med's, I would feel better and take advantage of that, and forget to take my med.... With Paxil, because there are side effects if you forget to take it, I make sure I DON'T forget to take it, if that makes sense......I am curious, though, just how dangerous are the side effects? Can one day of missing cause that much distress? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 hi laura , sure wish i could find that article! i don t think the prob was for missing a day now and then as it was for thiose coming off totally yet kept having effects like they were still on i seem to remember extreme dizziness also. Ltb3105@... wrote: In a message dated 10/10/00 4:36:09 AM Pacific Daylight Time, egroups writes: << hi shawna did your son have problems coming off the paxil?? i read an article (can t find the mag now)that some people have a real hard time when they stop it. they wind up having many of the side effects and can not get rid of them for a long time. carole >> I'm on Paxil myself, and I'm kinda glad for the side effects that can happen......let me explain....when I was on other depression med's, I would feel better and take advantage of that, and forget to take my med.... With Paxil, because there are side effects if you forget to take it, I make sure I DON'T forget to take it, if that makes sense......I am curious, though, just how dangerous are the side effects? Can one day of missing cause that much distress? eGroups Sponsor --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 I use paxil with good results. Don Terradon Unlimited http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 -----Original Message-----From: cfinney_tco@... [mailto:cfinney_tco@...]Sent: Saturday, November 18, 2000 9:42 PM egroupsSubject: [ ] PaxilI saw that there was some posting regarding zoloft. Do any of you have any information regarding Paxil & AIH? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2001 Report Share Posted March 8, 2001 Katrina - I felt terrible on Paxil - completely zoned out, dizzy, numb, sleepy - couldn't function. Had the same reaction to Elavil. I switched to Celexa, starting with 5 mg/day, and am now on 10 mg/day with absolutely no side effects. FWIW - Jennie Message: 24 Date: Thu, 08 Mar 2001 21:18:30 -0000 From: REVIVE2000@... Subject: Paxil? What are people's experiences with this? (like any energy help?)I've been so wiped out,sometimes near paralysis, I cannot take my 30, whatever supplements, or come up with new plan. In this state in 90, small dose of Prozac got me on feet a bit. But don't want to do it because of awful reports. And it is on NO list for movement disorder,which I have, but Paxil is not. I feel defeatist considering either, but can not continue like this---support system is dispersed and I have to get up---even a little. If I can. next is to pursue Mito damage... Katrina __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.