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Dr. Amy told me females are typically stronger, not in terms of muscle but in

terms of resilience, which may be why boys are more often affected. She also

said (and I agree) that while the " official " autism ratio is 5:1 she has

found it's more like 15:1. I've got one of the unlucky " ones " , I guess. I was

reading a while back (maybe it was on this board) that pale skinned girls of

Scandinavian descent are much more apt to be sensitive to mercury than the

general population. My husband is 1/2 Swedish, and Sonja is pale, so maybe

there a link, for what it's worth.

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In a message dated 10/17/01 3:17:35 PM Eastern Daylight Time,

mturner@... writes:

<< I have been reading about possible causes of autism - vaccines,

antibiotics, toxic elements, gluten/casein intolerance but I am

confused. Why is it that the ratio of autistic boys to girls is

4:1? Are girls biologically different that their able to fight

better? Just trying to pull it all together in my mind.

>>

:

I posted this last week, but to repeat:

The ratio is about 4 boys to every 1 girl who is affected. The theories that

have arisen for this have to do with hormonal differerences between males and

females. Also, generally, females tend to have stronger physiological

constitutions, since they are 'designed' for reproduction of offspring.

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Likewise, why do more women than men have autoimmune diseases? We are

genetically different is my guess.

Carmen

mturner@... wrote:

> I have been reading about possible causes of autism - vaccines,

> antibiotics, toxic elements, gluten/casein intolerance but I am

> confused. Why is it that the ratio of autistic boys to girls is

> 4:1? Are girls biologically different that their able to fight

> better? Just trying to pull it all together in my mind.

>

>

>

>

> =======================================================

>

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Dear Everyone

In reply to:I have been reading about possible causes of autism - vaccines,

antibiotics, toxic elements, gluten/casein intolerance but I am

confused. Why is it that the ratio of autistic boys to girls is

4:1? Are girls biologically different that their able to fight

better? Just trying to pull it all together in my mind.

Comment: The ratio of gender (boys/girls) who developed mercury

sensitivity/poisoning from the mercurous chloride in the baby's teething powders

(pink disease, acrodynia) in the first half of last century was equal. However,

the number of male babies who succumbed to the symptoms of the time and

consequently died, was greater. More girl babies survived pink disease than

boys. I was told once that girl babies are better " fighters " in illness or even

prematurity of birth. Can anyone confirm this?

Just a comment. Thiele

Pink Disease Support Group Australia

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mturner@... wrote:

> I have been reading about possible causes of autism - vaccines,

> antibiotics, toxic elements, gluten/casein intolerance but I am

> confused. Why is it that the ratio of autistic boys to girls is

> 4:1? Are girls biologically different that their able to fight

> better? Just trying to pull it all together in my mind.

>

>

>

It could be that girls do have a genetic " advantage " in the avoidance of

autism expression.

<I studied genetics in graduate school while pursuing a degree in plant

breeding.>

Genetics based on gender could be the reason for the difference. But why

then would both sexes get autism?

Since both sexes exhibit autism, it seems possible to suggest that

several or many genes may be involved in triggering autism unrelated to

gender. (I have read in my study of autism of several genes on different

chromosomes being identified for possibly being linked to autism). In

the case of females to males expression ratio -there may be another gene

(or genes) responsible for some form of autism like symptoms which might

be found on the 23rd or " Y " chromosome, the one that determines the

gender.

Females 23rd chromosome is an " XX " and males are a " XY " . Females have no

" Y " chromosome - this is the fundamental genetic difference between the

genders. If there is another gene or genes that exist on the " Y "

chromosome, this might explain why boys express autism with a greater

frequency. If boys have potentially more genes (on the " Y " ) in addition

to potential other genes on the rest of the chromosomes, then the cards

would be stacked against the boys.

(The " Y " chromosome is probably responsible for other things like

finding the 3 stooges funny, remote control dependency issues and toilet

lid closure - but Ill let other speculate that possibility ;) )

Again, I would suspect that several genes on different chromosomes are

involved in autism expression since both male and females can express

it. Several differing genes being responsible might also explain the

varying degrees exhibited individual to individual of autism in addition

to environmental factors. Environmental factors or a set of

environmental factors might also influence the varying degrees of austim

expression.

Environmental factors would being things such as heavy metals, weakened

immune systems, nutritional issues and/or dysbiosis of intestinal

flora.

Studies to determine what genes and how or when they are expressed would

not be easy.

Does that help?

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---This is the way I have come to understand why more boys have

autism than girls... Girls' immune systems are developed earlier than

boys and they have a stronger immune system. I think hormones may

have something to do with it. So it may be easier for the girls to

fight off the effects of the vaccines and other " junk "

(including monkey blood) that is injected into our innocent children.

I had this question thrown at me many times, as I have boy-girl

twins, my son has autism and my daughter does not, although my

daughter does have some sensory issues, and some problems retaining

what she learns. BUT... at about the same time my son was diagnosed

with autism, several people had asked me if my daughter had Downs

Syndrome...she had the facial features, and was very clingy, and

quiet at that time.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

In @y..., Mueller <yardist@k...> wrote:

> mturner@c... wrote:

>

> > I have been reading about possible causes of autism - vaccines,

> > antibiotics, toxic elements, gluten/casein intolerance but I am

> > confused. Why is it that the ratio of autistic boys to girls is

> > 4:1? Are girls biologically different that their able to fight

> > better? Just trying to pull it all together in my mind.

> >

> >

> >

>

> It could be that girls do have a genetic " advantage " in the

avoidance of

> autism expression.

> <I studied genetics in graduate school while pursuing a degree in

plant

> breeding.>

>

> Genetics based on gender could be the reason for the difference.

But why

> then would both sexes get autism?

>

> Since both sexes exhibit autism, it seems possible to suggest that

> several or many genes may be involved in triggering autism

unrelated to

> gender. (I have read in my study of autism of several genes on

different

> chromosomes being identified for possibly being linked to autism).

In

> the case of females to males expression ratio -there may be another

gene

> (or genes) responsible for some form of autism like symptoms which

might

> be found on the 23rd or " Y " chromosome, the one that determines the

> gender.

>

> Females 23rd chromosome is an " XX " and males are a " XY " . Females

have no

> " Y " chromosome - this is the fundamental genetic difference between

the

> genders. If there is another gene or genes that exist on the " Y "

> chromosome, this might explain why boys express autism with a

greater

> frequency. If boys have potentially more genes (on the " Y " ) in

addition

> to potential other genes on the rest of the chromosomes, then the

cards

> would be stacked against the boys.

>

> (The " Y " chromosome is probably responsible for other things like

> finding the 3 stooges funny, remote control dependency issues and

toilet

> lid closure - but Ill let other speculate that possibility ;) )

>

> Again, I would suspect that several genes on different chromosomes

are

> involved in autism expression since both male and females can

express

> it. Several differing genes being responsible might also explain the

> varying degrees exhibited individual to individual of autism in

addition

> to environmental factors. Environmental factors or a set of

> environmental factors might also influence the varying degrees of

austim

> expression.

>

> Environmental factors would being things such as heavy metals,

weakened

> immune systems, nutritional issues and/or dysbiosis of intestinal

> flora.

>

> Studies to determine what genes and how or when they are expressed

would

> not be easy.

>

> Does that help?

>

>

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If mercury poisoning does influence/trigger/worsen autism then the

explanation that was given to me makes sense. Mercury in low doses

affects mainly males. Mercury in high doses affects males and

females equally. This would go along with females having stronger

immune systems when doses are small they are able to move the toxins

out and maintain an intact immune system. When the mercury amounts

are high, even our girls are injured.

Theresa,

Mom to 3yr old , ASD

and 4 yr old , NT

> >

> > > I have been reading about possible causes of autism - vaccines,

> > > antibiotics, toxic elements, gluten/casein intolerance but I am

> > > confused. Why is it that the ratio of autistic boys to girls is

> > > 4:1? Are girls biologically different that their able to fight

> > > better? Just trying to pull it all together in my mind.

> > >

> > >

> > >

> >

> > It could be that girls do have a genetic " advantage " in the

> avoidance of

> > autism expression.

> > <I studied genetics in graduate school while pursuing a degree in

> plant

> > breeding.>

> >

> > Genetics based on gender could be the reason for the difference.

> But why

> > then would both sexes get autism?

> >

> > Since both sexes exhibit autism, it seems possible to suggest that

> > several or many genes may be involved in triggering autism

> unrelated to

> > gender. (I have read in my study of autism of several genes on

> different

> > chromosomes being identified for possibly being linked to

autism).

> In

> > the case of females to males expression ratio -there may be

another

> gene

> > (or genes) responsible for some form of autism like symptoms

which

> might

> > be found on the 23rd or " Y " chromosome, the one that determines

the

> > gender.

> >

> > Females 23rd chromosome is an " XX " and males are a " XY " . Females

> have no

> > " Y " chromosome - this is the fundamental genetic difference

between

> the

> > genders. If there is another gene or genes that exist on the " Y "

> > chromosome, this might explain why boys express autism with a

> greater

> > frequency. If boys have potentially more genes (on the " Y " ) in

> addition

> > to potential other genes on the rest of the chromosomes, then the

> cards

> > would be stacked against the boys.

> >

> > (The " Y " chromosome is probably responsible for other things like

> > finding the 3 stooges funny, remote control dependency issues and

> toilet

> > lid closure - but Ill let other speculate that possibility ;) )

> >

> > Again, I would suspect that several genes on different

chromosomes

> are

> > involved in autism expression since both male and females can

> express

> > it. Several differing genes being responsible might also explain

the

> > varying degrees exhibited individual to individual of autism in

> addition

> > to environmental factors. Environmental factors or a set of

> > environmental factors might also influence the varying degrees of

> austim

> > expression.

> >

> > Environmental factors would being things such as heavy metals,

> weakened

> > immune systems, nutritional issues and/or dysbiosis of intestinal

> > flora.

> >

> > Studies to determine what genes and how or when they are

expressed

> would

> > not be easy.

> >

> > Does that help?

> >

> >

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While I can't explain this, neither can anybody else in any really

fundamental way. Nor can they explain most of the other differences

between men and women. They also can't explain why you are

bilaterally summetric on the outside but not at all so on the inside,

or how your body knows which side to put your organs on.

There are known biochemical differences in how men and women respond

to lead intoxication, so it isn't unexpected there should be a sex

difference.

There are also some very profound and poorly understood metabolic

differences between men and women (to go with the physical

differences) but for the most part modern medicine assumes they are

the same except for a few hormones.

> >

> > > I have been reading about possible causes of autism - vaccines,

> > > antibiotics, toxic elements, gluten/casein intolerance but I am

> > > confused. Why is it that the ratio of autistic boys to girls is

> > > 4:1? Are girls biologically different that their able to fight

> > > better? Just trying to pull it all together in my mind.

> > >

> > >

> > >

> >

> > It could be that girls do have a genetic " advantage " in the

> avoidance of

> > autism expression.

> > <I studied genetics in graduate school while pursuing a degree in

> plant

> > breeding.>

> >

> > Genetics based on gender could be the reason for the difference.

> But why

> > then would both sexes get autism?

> >

> > Since both sexes exhibit autism, it seems possible to suggest that

> > several or many genes may be involved in triggering autism

> unrelated to

> > gender. (I have read in my study of autism of several genes on

> different

> > chromosomes being identified for possibly being linked to

autism).

> In

> > the case of females to males expression ratio -there may be

another

> gene

> > (or genes) responsible for some form of autism like symptoms

which

> might

> > be found on the 23rd or " Y " chromosome, the one that determines

the

> > gender.

> >

> > Females 23rd chromosome is an " XX " and males are a " XY " . Females

> have no

> > " Y " chromosome - this is the fundamental genetic difference

between

> the

> > genders. If there is another gene or genes that exist on the " Y "

> > chromosome, this might explain why boys express autism with a

> greater

> > frequency. If boys have potentially more genes (on the " Y " ) in

> addition

> > to potential other genes on the rest of the chromosomes, then the

> cards

> > would be stacked against the boys.

> >

> > (The " Y " chromosome is probably responsible for other things like

> > finding the 3 stooges funny, remote control dependency issues and

> toilet

> > lid closure - but Ill let other speculate that possibility ;) )

> >

> > Again, I would suspect that several genes on different

chromosomes

> are

> > involved in autism expression since both male and females can

> express

> > it. Several differing genes being responsible might also explain

the

> > varying degrees exhibited individual to individual of autism in

> addition

> > to environmental factors. Environmental factors or a set of

> > environmental factors might also influence the varying degrees of

> austim

> > expression.

> >

> > Environmental factors would being things such as heavy metals,

> weakened

> > immune systems, nutritional issues and/or dysbiosis of intestinal

> > flora.

> >

> > Studies to determine what genes and how or when they are

expressed

> would

> > not be easy.

> >

> > Does that help?

> >

> >

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  • 3 months later...

>>chiled has a strong intolerance for wheat over milk ore milk over

wheat if you get different problems. Like wheat and phenol problems

go together and milk and hyper problems go to gether .

That is an interesting observation. I would have put milk and phenol

and hyper together, and wheat with diarrhea or something like that.

I haven't really noticed anything in particular, but it is worth

considering.

.

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  • 5 months later...
Guest guest

I agree that this could be Sensory integration dysfunction. Has he

had an OT eval? My daughter has a lot of sensory integration (SI)

issues that could be confused for autistic like behaviors. She is

also very social and engaging. Brushing has helped a lot, but should

ONLY be done under the supervision of a qualified OT. So has a lot

of the other SI activities. " the out of sync child " book is a good

place to start.

Traci mom to Kennedy 2.1

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  • 8 months later...
  • 1 month later...
Guest guest

Hi Athena,

I agree, it's not the best time to get information from messages now,

but while all this is going on you can read the " Files " section of

this group. You will get a lot of good information from there. If you

have questions, you can ask them, and I am sure here will be people

willing to help. I hope you do not vaccinate your kids any more. I

wish you good luck with this group and chelation and progress and

recovery for your children.

Margaret

> I am new to the group. I have 8 children. 5 solidly reside on the

spectrum.

> 2 have one foot on and one foot off. The youngest is only 7 mos old

and

> shows no symptoms YET. All my children were carried while I was at

various

> stages of mercury toxicity. I came to this list to get information

regarding

> the relationship between mercury and ASD. However I am disappointed

to fing

> that the majority of this list is little more than a group of

bickering

> people that appear to have no interest in disseminating any

information at

> all. I feel for the loss the children are suffering due to the

heated

> discussions over this person. Now I will not be drawn into

> discussions relating to this issue because it all occurred before I

joined

> this group. I am sure there are strong feelings on both sides. I

for one

> would hope that inappropriate language would be moderated and

corrected.

> However as a teacher I would hope that this was done in a way that

truly

> allowed the individual to understand how to comply with the

instructions.

> Whether all this occurred is unknown to me. I would hope however

that this

> list could move on and continue to be helpful to new members that

know

> nothing of this debate. If the moderators wish to ban me for my

comments

> then so be it. I plan to give the list a little more time to see if

I can

> get any useful information. If I cannot then I will be leaving.

This debate

> is destroying the usefulness of this group. I hope that this can

stop.

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

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Guest guest

The list is usually OK. You just hit it at a bad time. Stick around

and let's hope some people decide to be more responsible and let us

get back to discussing how to help sick kids who need it.

> I am new to the group. I have 8 children. 5 solidly reside on the

spectrum.

> 2 have one foot on and one foot off. The youngest is only 7 mos old

and

> shows no symptoms YET. All my children were carried while I was at

various

> stages of mercury toxicity. I came to this list to get information

regarding

> the relationship between mercury and ASD. However I am disappointed

to fing

> that the majority of this list is little more than a group of

bickering

> people that appear to have no interest in disseminating any

information at

> all. I feel for the loss the children are suffering due to the

heated

> discussions over this person. Now I will not be drawn into

> discussions relating to this issue because it all occurred before I

joined

> this group. I am sure there are strong feelings on both sides. I for

one

> would hope that inappropriate language would be moderated and

corrected.

> However as a teacher I would hope that this was done in a way that

truly

> allowed the individual to understand how to comply with the

instructions.

> Whether all this occurred is unknown to me. I would hope however

that this

> list could move on and continue to be helpful to new members that

know

> nothing of this debate. If the moderators wish to ban me for my

comments

> then so be it.

Believe me, this is the least of your worries.

> I plan to give the list a little more time to see if I can

> get any useful information.

You might find some useful information in the files section of the

listserver's web interface:

/group/autism treatment/files

>If I cannot then I will be leaving. This debate

> is destroying the usefulness of this group. I hope that this can

stop.

So do I. And I hope you are patient enough to wait it out.

Andy . . . ..

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Guest guest

> However I am disappointed to fing

> that the majority of this list is little more than a group of bickering

> people that appear to have no interest in disseminating any information at

> all.

I think that if you would read some messages from the archive, or some of the

files in the Files section, you would be surprised to find out that this group

is one of the most valuable (regarding autism, of course).

Most people here are very helpful, knowledgeable, they are always eager to share

any information they have with everybody, it's a really nice group. Well... only

if you want to learn. If you don't, then you won't like it much.

At times, there are arguments and fights here. But that's just part of the charm

of this group :)

Valentina

PS. Don't worry, the moderator will not ban you.

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Guest guest

Hey Athena,

Don't leave us now. I've been on this list for about two years or more.

These kinds of personality conflicts blow up every once in a while, but then

subside. There's lots of good stuff here for the taking.

Barb

[ ] Confused

> I am new to the group. I have 8 children. 5 solidly reside on the

spectrum.

> 2 have one foot on and one foot off. The youngest is only 7 mos old and

> shows no symptoms YET. All my children were carried while I was at various

> stages of mercury toxicity. I came to this list to get information

regarding

> the relationship between mercury and ASD. However I am disappointed to

fing

> that the majority of this list is little more than a group of bickering

> people that appear to have no interest in disseminating any information at

> all. I feel for the loss the children are suffering due to the heated

> discussions over this person. Now I will not be drawn into

> discussions relating to this issue because it all occurred before I joined

> this group. I am sure there are strong feelings on both sides. I for one

> would hope that inappropriate language would be moderated and corrected.

> However as a teacher I would hope that this was done in a way that truly

> allowed the individual to understand how to comply with the instructions.

> Whether all this occurred is unknown to me. I would hope however that this

> list could move on and continue to be helpful to new members that know

> nothing of this debate. If the moderators wish to ban me for my comments

> then so be it. I plan to give the list a little more time to see if I can

> get any useful information. If I cannot then I will be leaving. This

debate

> is destroying the usefulness of this group. I hope that this can stop.

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

>

>

>

>

> =======================================================

>

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  • 1 year later...
Guest guest

Hi Jill,

I am certainly not a medical professional and not in a position to diagnose,

but the sensory issues you described below are flags for autism spectrum

disorders. Certainly the sooner you get her into appropriate therapy (the

OT should help) the better. Ask the developmental pediatrican if you can

get on a waiting list in case of cancellations. I'm not sure what the rules

are in your state, but in North Carolina there is an agency that screens

young children, and then depending on their report, you can get access to

some early intervention services. Ask around to see what early intervention

services your area offers -- they will at least steer you in the right

direction.

I wish you all the best with your daughter. Our three and a half year old

son has both apraxia and autism, and it certainly has been a difficult road

to travel. We use a combination of PROMPT type speech therapy, verbal

behavior analysis and OT with a sensory integration approach for him. He's

made great gains, but there is still a long way to go!

Best,

Pam

[ ] confused

hi, i jsut wanted to say how great this list is to communicate with others

in the same set of circumstances, and i was hoping someone out there could

shed some light on my situation. my 21 month old daughter has been in speech

therapy for about 2 months now because she is not using words to

communicate. she can babble and verbalize ma ma ma ma da da da but doesn't

use it like when she is looking for either one of us or when she wants our

attention. she also has about 8 other words (some are approximations), but

will only repeat them when said to her. in other words, she won't see an

apple and say " apple " , she will only repeat it if you say it to her. she

also has no way of communicating whether she is hungry or thirsty...instead

she breaks down in a tantrum at certain times in the day but will snap out

of it instantly if i say, " do you want a drink? " she understands a lot of

what i say and follows commands, although she tends to ignore me sometimes

and do whatever s!

he wants.

the ST has told me that she does not think she has dyspraxia. i am

starting OT also next week b/c of her sensory integration issues such as

feeding aversions, tactile issues, difficulty transitioning, and motor

issues such as arm flapping and spinning. but it seems like no one either

knows or will tell me why she does what she does. is there a diagnosis for

all this? i am starting the process of getting her in to see a

developmental pediatrician, but i hear it won't be for 3 months til she gets

an appt. if anyone has any insight, i would love to hear it.

thanks in advance,

jill

__________________________________________________

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Guest guest

Jill,

I'm no doctor but from the sound of it, your daughter may have Apraxia

which is a nuerologically based motor-planning disorder. My son was

diagnosed in February by a neurodevelopmental pediatrician. Prior to this

appointment, which also took 2 months to get; my son was pretty much

non-verbal. He didn't even say Mom. He's improved alot and I think it's due

to his pre-school which runs a developmentally delay program and our

persistance. He now says about 100 words but cannot string any into

sentences. There are many words where he'll cut off the beginning -in uck

instead of truck, us for bus, ilk for milk. If he's hungry, he will say

" eat " or he'll take me to the stove...I would have her seen by a

developmental pediatrician and the mean time, stick with the Speech. The

treatment for Apraxia is extensive Speech Therapy. My son also had mild

hypotonia (low-muscle town in his forearms) for which OT is recommended and

some sensory issues; loud noises really bother him like the vacuum and lawn

tractor.

I hope this helps.

Jill

<jillybener@...>

Sent by: cc:

@yaho Subject:

[ ] confused

ogroups.com

04/15/2005 02:20 PM

Please respond to

hi, i jsut wanted to say how great this list is to communicate with others

in the same set of circumstances, and i was hoping someone out there could

shed some light on my situation. my 21 month old daughter has been in

speech therapy for about 2 months now because she is not using words to

communicate. she can babble and verbalize ma ma ma ma da da da but doesn't

use it like when she is looking for either one of us or when she wants our

attention. she also has about 8 other words (some are approximations), but

will only repeat them when said to her. in other words, she won't see an

apple and say " apple " , she will only repeat it if you say it to her. she

also has no way of communicating whether she is hungry or thirsty...instead

she breaks down in a tantrum at certain times in the day but will snap out

of it instantly if i say, " do you want a drink? " she understands a lot

of what i say and follows commands, although she tends to ignore me

sometimes and do whatever s!

he wants.

the ST has told me that she does not think she has dyspraxia. i am

starting OT also next week b/c of her sensory integration issues such as

feeding aversions, tactile issues, difficulty transitioning, and motor

issues such as arm flapping and spinning. but it seems like no one either

knows or will tell me why she does what she does. is there a diagnosis for

all this? i am starting the process of getting her in to see a

developmental pediatrician, but i hear it won't be for 3 months til she

gets an appt. if anyone has any insight, i would love to hear it.

thanks in advance,

jill

__________________________________________________

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Guest guest

You want to lay her on the right side, opposite the flat spot. Most likely her left forehead and facial features look more pronounced because they are pushed slightly forward. Also, the tight neck has an impact on the right side.

mom to naDOC GradSouth Carolinawww.thefilyaws.com datb71 <aguinesslover@...> wrote:

Hi. I'm confused. If my baby is always laying to the left, I want to position her to the right while she is sleeping? I just read that external forces should be applied to the side that sticks out. So the affected side is the larger or the smaller side. Her right side, ear and eye seem to be smaller, is that the affected side?. I feel like these questions are stupid, sorry.For more plagio info

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Guest guest

You want to lay her on the right side, opposite the flat spot. Most likely her left forehead and facial features look more pronounced because they are pushed slightly forward. Also, the tight neck has an impact on the right side.

mom to naDOC GradSouth Carolinawww.thefilyaws.com datb71 <aguinesslover@...> wrote:

Hi. I'm confused. If my baby is always laying to the left, I want to position her to the right while she is sleeping? I just read that external forces should be applied to the side that sticks out. So the affected side is the larger or the smaller side. Her right side, ear and eye seem to be smaller, is that the affected side?. I feel like these questions are stupid, sorry.For more plagio info

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  • 2 months later...
Guest guest

What neuro did you see? Not all doctors are helmet friendly. If your

ped says your son needs a band and Cranial Tech agrees, I'd definitely

get him one. You don't need a prescription from a specialist, just

ask your ped to write it. Many neurosurgeons are just looking at

brain function and if they don't see that as a concern they won't

recommend banding. Many children don't have facial asymmetry

(especially with the brachy shape), but they can still have very

severe flatness that you would want corrected. So, I definitely think

you should just call your ped and ask them to write the presciption

for you. Cranial Tech would not suggest a band to you if he wouldn't

benefit from it.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

--- In Plagiocephaly , " mhalla12590 " <mhalla12590@y...>

wrote:

> I took my 3 month old son to Cranial Tech b/c my pediatrician said

he

> would benefit from the Doc Band. The office is 1 1/2 hours from my

> home. The PT at Cranial Tech said he needed the band. My insurance

> said they would pay for it if a neurosurgeon agreed it was

necessary.

> Needless to say, the neurosurgeon said my son has plagio, but he

does

> not need the band b/c his eyes are symmetrical and so are his ears.

> Also, developmentally he is advanced. I am confused b/c his head is

so

> flat in the back. Has anyone else experienced this?

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Guest guest

What neuro did you see? Not all doctors are helmet friendly. If your

ped says your son needs a band and Cranial Tech agrees, I'd definitely

get him one. You don't need a prescription from a specialist, just

ask your ped to write it. Many neurosurgeons are just looking at

brain function and if they don't see that as a concern they won't

recommend banding. Many children don't have facial asymmetry

(especially with the brachy shape), but they can still have very

severe flatness that you would want corrected. So, I definitely think

you should just call your ped and ask them to write the presciption

for you. Cranial Tech would not suggest a band to you if he wouldn't

benefit from it.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

--- In Plagiocephaly , " mhalla12590 " <mhalla12590@y...>

wrote:

> I took my 3 month old son to Cranial Tech b/c my pediatrician said

he

> would benefit from the Doc Band. The office is 1 1/2 hours from my

> home. The PT at Cranial Tech said he needed the band. My insurance

> said they would pay for it if a neurosurgeon agreed it was

necessary.

> Needless to say, the neurosurgeon said my son has plagio, but he

does

> not need the band b/c his eyes are symmetrical and so are his ears.

> Also, developmentally he is advanced. I am confused b/c his head is

so

> flat in the back. Has anyone else experienced this?

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Guest guest

I agree with . You can get the Prescription from the

pediatrician although from your post it sounds as if your Ins would

pay ONLY if the prescription was from a Neurosurgeon? Check on

that. If that's the case, then you may want to go try and find a

more " band friendly " Neurosurgeon or craniofacial specialist. When

we were looking into banding , we first went to a Neurosurgeon

who did NOT recommend banding, but then got a 2nd opinion from a

craniofacial surgeon and he gave us the prescription.

Good luck. Remember... if YOU think he needs the band... then fight

for it!

Jen :)

(11 mo), tort resolved, Hanger Grad

EMily (3 years)

> > I took my 3 month old son to Cranial Tech b/c my pediatrician

said

> he

> > would benefit from the Doc Band. The office is 1 1/2 hours from

my

> > home. The PT at Cranial Tech said he needed the band. My

insurance

> > said they would pay for it if a neurosurgeon agreed it was

> necessary.

> > Needless to say, the neurosurgeon said my son has plagio, but he

> does

> > not need the band b/c his eyes are symmetrical and so are his

ears.

> > Also, developmentally he is advanced. I am confused b/c his head

is

> so

> > flat in the back. Has anyone else experienced this?

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Share on other sites

Guest guest

I agree with . You can get the Prescription from the

pediatrician although from your post it sounds as if your Ins would

pay ONLY if the prescription was from a Neurosurgeon? Check on

that. If that's the case, then you may want to go try and find a

more " band friendly " Neurosurgeon or craniofacial specialist. When

we were looking into banding , we first went to a Neurosurgeon

who did NOT recommend banding, but then got a 2nd opinion from a

craniofacial surgeon and he gave us the prescription.

Good luck. Remember... if YOU think he needs the band... then fight

for it!

Jen :)

(11 mo), tort resolved, Hanger Grad

EMily (3 years)

> > I took my 3 month old son to Cranial Tech b/c my pediatrician

said

> he

> > would benefit from the Doc Band. The office is 1 1/2 hours from

my

> > home. The PT at Cranial Tech said he needed the band. My

insurance

> > said they would pay for it if a neurosurgeon agreed it was

> necessary.

> > Needless to say, the neurosurgeon said my son has plagio, but he

> does

> > not need the band b/c his eyes are symmetrical and so are his

ears.

> > Also, developmentally he is advanced. I am confused b/c his head

is

> so

> > flat in the back. Has anyone else experienced this?

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Guest guest

--Thanks, I will ask for a second opinion.

- In Plagiocephaly , " Jen " <ronandjenvelez@p...>

wrote:

> I agree with . You can get the Prescription from the

> pediatrician although from your post it sounds as if your Ins

would

> pay ONLY if the prescription was from a Neurosurgeon? Check on

> that. If that's the case, then you may want to go try and find a

> more " band friendly " Neurosurgeon or craniofacial specialist.

When

> we were looking into banding , we first went to a

Neurosurgeon

> who did NOT recommend banding, but then got a 2nd opinion from a

> craniofacial surgeon and he gave us the prescription.

>

> Good luck. Remember... if YOU think he needs the band... then

fight

> for it!

>

> Jen :)

> (11 mo), tort resolved, Hanger Grad

> EMily (3 years)

>

>

>

> > > I took my 3 month old son to Cranial Tech b/c my pediatrician

> said

> > he

> > > would benefit from the Doc Band. The office is 1 1/2 hours

from

> my

> > > home. The PT at Cranial Tech said he needed the band. My

> insurance

> > > said they would pay for it if a neurosurgeon agreed it was

> > necessary.

> > > Needless to say, the neurosurgeon said my son has plagio, but

he

> > does

> > > not need the band b/c his eyes are symmetrical and so are his

> ears.

> > > Also, developmentally he is advanced. I am confused b/c his

head

> is

> > so

> > > flat in the back. Has anyone else experienced this?

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Guest guest

--Thanks, I will ask for a second opinion.

- In Plagiocephaly , " Jen " <ronandjenvelez@p...>

wrote:

> I agree with . You can get the Prescription from the

> pediatrician although from your post it sounds as if your Ins

would

> pay ONLY if the prescription was from a Neurosurgeon? Check on

> that. If that's the case, then you may want to go try and find a

> more " band friendly " Neurosurgeon or craniofacial specialist.

When

> we were looking into banding , we first went to a

Neurosurgeon

> who did NOT recommend banding, but then got a 2nd opinion from a

> craniofacial surgeon and he gave us the prescription.

>

> Good luck. Remember... if YOU think he needs the band... then

fight

> for it!

>

> Jen :)

> (11 mo), tort resolved, Hanger Grad

> EMily (3 years)

>

>

>

> > > I took my 3 month old son to Cranial Tech b/c my pediatrician

> said

> > he

> > > would benefit from the Doc Band. The office is 1 1/2 hours

from

> my

> > > home. The PT at Cranial Tech said he needed the band. My

> insurance

> > > said they would pay for it if a neurosurgeon agreed it was

> > necessary.

> > > Needless to say, the neurosurgeon said my son has plagio, but

he

> > does

> > > not need the band b/c his eyes are symmetrical and so are his

> ears.

> > > Also, developmentally he is advanced. I am confused b/c his

head

> is

> > so

> > > flat in the back. Has anyone else experienced this?

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