Guest guest Posted April 15, 2010 Report Share Posted April 15, 2010 After two years dairy free plus 6 months soy and wheat free my son was recently reintroduced to small amounts of dairy and soy and within days had a virus that kept him out of school and then a few more minor one's in quick succession. He has tested positive for reactions to both again so we are back to a dairy/soy free life. In a message dated 16/04/2010 06:48:35 GMT Daylight Time, knardini@... writes: It sounds like your son is very young. If so, this is the best time to control what he eats. I would eliminate all dairy (from cow), soy (the protein is almost identical to cow milk protein), sugar, fruit (apples are high in something that makes my son " drunk " ), food colorings & dyes, preservatives, nitrites and simple carbs (white flours). This is the time, if he is just 2-3 years old, to get him eating vegetables (I so wish I had pushed veggies on my twins when they were toddlers). My son started getting rashes right around 18 months, when he had reached his " tipping point " after a flu vaccination. He has been on the protocol since he was 3.5, and (knock on wood) only gets an eczema-like rash around his mouth if he gets a food infraction. I can't ID yet what it is but it is always after a weekend camping with my husband and the Adventure Guides trips they've been doing once/month this last school year. Argh! My husband swears he's not getting any dairy. It could be peanut butter, but I know peanuts doesn't do it. Kristy Nardini TazziniTM Stainless Steel Bottles www.tazzini.www. _kristy@..._ (mailto:kristy@...) Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of sablepawz Sent: Wednesday, April 14, 2010 7:31 AM _@..._ (mailto: ) Subject: Food is Infuriating me V_V I love this group, I'm learning a lot! I'm trying to get my son on this diet as best as possible. We have been on the G/C free for a few months 2 years ago, I did not see a change. Until a year ago he had Silk soy milk in his bottles as I found he was very gassy with the organic whole milk he got after going off formula & breast milk. I have seen major reactions to splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a no no over one small 4 oz box a day to hide probitics in or he will have uncontrollable diarrhea. I found the tofutti cutie bars at a store near me and was so happy but after he ate 2 of them he got big dark rings under his eyes, his face got puffy and he paced while looking down and wouldn't respond for some time then had to take a very restless nap in which I'm not sure he actually slept for 45 mins. Very similar reaction to when he got a bee sting. (I keep an epi pen in the kitchen) So UGH just like everyone I'm frustrated and cannot seem to find things to feed him. Suggestions most welcome. Also do you think it was the soy or the coconut in the ice cream bars? One more thing as I cram my post full XD Anyone else that their child gets rashes, what kind? and any pics? I don't think what my son gets is impetigo. It comes with heat (which he cannot tolerate) and stress. Thanks for ALL input! Jess [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2010 Report Share Posted April 15, 2010 It sounds like your son is very young. If so, this is the best time to control what he eats. I would eliminate all dairy (from cow), soy (the protein is almost identical to cow milk protein), sugar, fruit (apples are high in something that makes my son " drunk " ), food colorings & dyes, preservatives, nitrites and simple carbs (white flours). This is the time, if he is just 2-3 years old, to get him eating vegetables (I so wish I had pushed veggies on my twins when they were toddlers). My son started getting rashes right around 18 months, when he had reached his " tipping point " after a flu vaccination. He has been on the protocol since he was 3.5, and (knock on wood) only gets an eczema-like rash around his mouth if he gets a food infraction. I can't ID yet what it is but it is always after a weekend camping with my husband and the Adventure Guides trips they've been doing once/month this last school year. Argh! My husband swears he's not getting any dairy. It could be peanut butter, but I know peanuts doesn't do it. Kristy Nardini TazziniTM Stainless Steel Bottles www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of sablepawz Sent: Wednesday, April 14, 2010 7:31 AM Subject: Food is Infuriating me V_V I love this group, I'm learning a lot! I'm trying to get my son on this diet as best as possible. We have been on the G/C free for a few months 2 years ago, I did not see a change. Until a year ago he had Silk soy milk in his bottles as I found he was very gassy with the organic whole milk he got after going off formula & breast milk. I have seen major reactions to splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a no no over one small 4 oz box a day to hide probitics in or he will have uncontrollable diarrhea. I found the tofutti cutie bars at a store near me and was so happy but after he ate 2 of them he got big dark rings under his eyes, his face got puffy and he paced while looking down and wouldn't respond for some time then had to take a very restless nap in which I'm not sure he actually slept for 45 mins. Very similar reaction to when he got a bee sting. (I keep an epi pen in the kitchen) So UGH just like everyone I'm frustrated and cannot seem to find things to feed him. Suggestions most welcome. Also do you think it was the soy or the coconut in the ice cream bars? One more thing as I cram my post full XD Anyone else that their child gets rashes, what kind? and any pics? I don't think what my son gets is impetigo. It comes with heat (which he cannot tolerate) and stress. Thanks for ALL input! Jess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Jess, I am by no means the expert here on food, but I feel your stress. We too lock all foods up from our son. It kills me to deprive him, but if this works like everyone on this lists says it will, then there is no going back. We cleaned up his diet to perfection over the last 9 months and still did not see results in labs or behavior or physically with the dark circles. However after going through P/N testing (which the verdict is still out on in our minds) we discovered that the very benign foods that he has had everyday for the last nine months (rice and sweet potato) are highly allergic foods for him. SO . . . every child is different and reacts to different foods. We absolutely cannot have soy and would not try coconut milk either until the dark circles and labs are clear. Hope this helps. Martha On Wed, Apr 14, 2010 at 9:31 AM, sablepawz <sablepawz@...> wrote: > > > I love this group, I'm learning a lot! I'm trying to get my son on this > diet as best as possible. We have been on the G/C free for a few months 2 > years ago, I did not see a change. Until a year ago he had Silk soy milk in > his bottles as I found he was very gassy with the organic whole milk he got > after going off formula & breast milk. I have seen major reactions to > splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. > Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a > no no over one small 4 oz box a day to hide probitics in or he will have > uncontrollable diarrhea. > > I found the tofutti cutie bars at a store near me and was so happy but > after he ate 2 of them he got big dark rings under his eyes, his face got > puffy and he paced while looking down and wouldn't respond for some time > then had to take a very restless nap in which I'm not sure he actually slept > for 45 mins. Very similar reaction to when he got a bee sting. (I keep an > epi pen in the kitchen) > > So UGH just like everyone I'm frustrated and cannot seem to find things to > feed him. Suggestions most welcome. Also do you think it was the soy or the > coconut in the ice cream bars? > > One more thing as I cram my post full XD Anyone else that their child gets > rashes, what kind? and any pics? I don't think what my son gets is impetigo. > It comes with heat (which he cannot tolerate) and stress. > > Thanks for ALL input! Jess > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Rereading my post it does sound like he is much younger. He will actually be 7 this summer. Yea it took oral surgery last summer for him to break the bottle habit. I fondly recall he ate anything I fed him until he was nearly two. It's just nuts, I have no clue what is left to eat after eliminating everything I think could be a trigger. Ah well, I'll just keep plugging away at trying. I am in the fund-raising portion of my journey so I can get him to the NNY clinic. I bet when I have real medical help I will have at least more support. ty for the replies -hugs- > > > > > > > I love this group, I'm learning a lot! I'm trying to get my son on this > > diet as best as possible. We have been on the G/C free for a few months 2 > > years ago, I did not see a change. Until a year ago he had Silk soy milk in > > his bottles as I found he was very gassy with the organic whole milk he got > > after going off formula & breast milk. I have seen major reactions to > > splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. > > Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a > > no no over one small 4 oz box a day to hide probitics in or he will have > > uncontrollable diarrhea. > > > > I found the tofutti cutie bars at a store near me and was so happy but > > after he ate 2 of them he got big dark rings under his eyes, his face got > > puffy and he paced while looking down and wouldn't respond for some time > > then had to take a very restless nap in which I'm not sure he actually slept > > for 45 mins. Very similar reaction to when he got a bee sting. (I keep an > > epi pen in the kitchen) > > > > So UGH just like everyone I'm frustrated and cannot seem to find things to > > feed him. Suggestions most welcome. Also do you think it was the soy or the > > coconut in the ice cream bars? > > > > One more thing as I cram my post full XD Anyone else that their child gets > > rashes, what kind? and any pics? I don't think what my son gets is impetigo. > > It comes with heat (which he cannot tolerate) and stress. > > > > Thanks for ALL input! Jess > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 The rash could be the coconut milk, but if it comes in the heat, it *could be heat rash* OR if it comes on the arms and legs mainly (and sometimes buttocks) with some of the rash having hard white pimply heads, THEN it could be keratosis pilaris. You can google picture online, but most of them look worse than my son's KP. It is caused from an overproduction of keratin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 The rash around the mouth could have been due to cold or virus. > > It sounds like your son is very young. If so, this is the best time to > control what he eats. I would eliminate all dairy (from cow), soy (the > protein is almost identical to cow milk protein), sugar, fruit (apples are > high in something that makes my son " drunk " ), food colorings & dyes, > preservatives, nitrites and simple carbs (white flours). This is the time, > if he is just 2-3 years old, to get him eating vegetables (I so wish I had > pushed veggies on my twins when they were toddlers). > > My son started getting rashes right around 18 months, when he had reached > his " tipping point " after a flu vaccination. He has been on the > protocol since he was 3.5, and (knock on wood) only gets an eczema-like rash > around his mouth if he gets a food infraction. I can't ID yet what it is but > it is always after a weekend camping with my husband and the Adventure > Guides trips they've been doing once/month this last school year. Argh! My > husband swears he's not getting any dairy. It could be peanut butter, but I > know peanuts doesn't do it. > > Kristy Nardini > TazziniTM Stainless Steel Bottles > www.tazzini.com > kristy@... > Phone: 858.243.1929 > Fax: 858.724.1418 > > > P Please consider the environment before printing this email. > > From: [mailto: ] On Behalf Of > sablepawz > Sent: Wednesday, April 14, 2010 7:31 AM > > Subject: Food is Infuriating me V_V > > > I love this group, I'm learning a lot! I'm trying to get my son on this diet > as best as possible. We have been on the G/C free for a few months 2 years > ago, I did not see a change. Until a year ago he had Silk soy milk in his > bottles as I found he was very gassy with the organic whole milk he got > after going off formula & breast milk. I have seen major reactions to > splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. > Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a > no no over one small 4 oz box a day to hide probitics in or he will have > uncontrollable diarrhea. > > I found the tofutti cutie bars at a store near me and was so happy but after > he ate 2 of them he got big dark rings under his eyes, his face got puffy > and he paced while looking down and wouldn't respond for some time then had > to take a very restless nap in which I'm not sure he actually slept for 45 > mins. Very similar reaction to when he got a bee sting. (I keep an epi pen > in the kitchen) > > So UGH just like everyone I'm frustrated and cannot seem to find things to > feed him. Suggestions most welcome. Also do you think it was the soy or the > coconut in the ice cream bars? > > One more thing as I cram my post full XD Anyone else that their child gets > rashes, what kind? and any pics? I don't think what my son gets is impetigo. > It comes with heat (which he cannot tolerate) and stress. > > Thanks for ALL input! Jess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 I don't think that's likely, because it has happened at least 5-6 times in the last several months, almost always after my husband had him for the weekend. It has to be a food infraction. Kristy Nardini TazziniTM Stainless Steel Bottles www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of agirlnamedsuess21 Sent: Friday, April 16, 2010 2:22 PM Subject: Re: Food is Infuriating me V_V The rash around the mouth could have been due to cold or virus. > > It sounds like your son is very young. If so, this is the best time to > control what he eats. I would eliminate all dairy (from cow), soy (the > protein is almost identical to cow milk protein), sugar, fruit (apples are > high in something that makes my son " drunk " ), food colorings & dyes, > preservatives, nitrites and simple carbs (white flours). This is the time, > if he is just 2-3 years old, to get him eating vegetables (I so wish I had > pushed veggies on my twins when they were toddlers). > > My son started getting rashes right around 18 months, when he had reached > his " tipping point " after a flu vaccination. He has been on the > protocol since he was 3.5, and (knock on wood) only gets an eczema-like rash > around his mouth if he gets a food infraction. I can't ID yet what it is but > it is always after a weekend camping with my husband and the Adventure > Guides trips they've been doing once/month this last school year. Argh! My > husband swears he's not getting any dairy. It could be peanut butter, but I > know peanuts doesn't do it. > > Kristy Nardini > TazziniTM Stainless Steel Bottles > www.tazzini.com > kristy@... > Phone: 858.243.1929 > Fax: 858.724.1418 > > > P Please consider the environment before printing this email. > > From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of > sablepawz > Sent: Wednesday, April 14, 2010 7:31 AM > <mailto:%40> > Subject: Food is Infuriating me V_V > > > I love this group, I'm learning a lot! I'm trying to get my son on this diet > as best as possible. We have been on the G/C free for a few months 2 years > ago, I did not see a change. Until a year ago he had Silk soy milk in his > bottles as I found he was very gassy with the organic whole milk he got > after going off formula & breast milk. I have seen major reactions to > splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. > Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a > no no over one small 4 oz box a day to hide probitics in or he will have > uncontrollable diarrhea. > > I found the tofutti cutie bars at a store near me and was so happy but after > he ate 2 of them he got big dark rings under his eyes, his face got puffy > and he paced while looking down and wouldn't respond for some time then had > to take a very restless nap in which I'm not sure he actually slept for 45 > mins. Very similar reaction to when he got a bee sting. (I keep an epi pen > in the kitchen) > > So UGH just like everyone I'm frustrated and cannot seem to find things to > feed him. Suggestions most welcome. Also do you think it was the soy or the > coconut in the ice cream bars? > > One more thing as I cram my post full XD Anyone else that their child gets > rashes, what kind? and any pics? I don't think what my son gets is impetigo. > It comes with heat (which he cannot tolerate) and stress. > > Thanks for ALL input! Jess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 I think your responding to me.... No the rash he's always delt with on and off since maybe 2 years old...that and freakishly scary hives and a roseola rash that he's gotten 4 times in the past, last time as recently as last summer. But this heat/stress rash thing is different. It comes on his legs more often but can come anyplace on him, face, arms, anyplace. Looks like a spider bite or a mosquito bite at first, nothing to worry about...until it swells and gets horribly inflamed. Then if it is not cared for by me manually keeping him cool and calm and putting mupirocin on it it will become more pronounced in the center (the swelling is 1-2 inches in diameter around this wee " bite " ) and will weep a bit, no real color to the liquid but perhaps yellowish. Then it gets messy, looks exactly like a brown recluce spider bite when it starts eating the flesh. This only got that far the first time it happened and we rushed him to the ER and bug bombed the house thinking it was spiders lol. The scar was there for 2 years on his calf Yes with this he gets feverish and ill. I'm chocking it up to his immune system, have for 4 years. > > The rash could be the coconut milk, but if it comes in the heat, it *could be heat rash* OR if it comes on the arms and legs mainly (and sometimes buttocks) with some of the rash having hard white pimply heads, THEN it could be keratosis pilaris. You can google picture online, but most of them look worse than my son's KP. It is caused from an overproduction of keratin. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Hey have you ever had that wound cultured? It sounds like mrsa staph. Staph is often mis-diagnosed as a spider bite, even at the pediatrician. (Mupirocin is one of the treatments for it, too.) It will also cause rashes around the necrosing wounds as well. If it hasn't been cultured, then it really needs to be the next time you see one, preferably when it starts looking like a bite, or has some pus in it.   And once you've had mrsa staph, your skin tends to be colonized with it, so you get it again and again. The wounds often scar, too.  But if you know you have it, then you can take steps to reduce it, washing with a special soap, and especially washing sheets frequently w/hot water and tide w/bleach. Actually, I'd recommend that you do that at least weekly (if you don't that is - I didn't always) anyway, since staph is all around us as it is. Anyway, if it is mrsa staph, then you're going to need antibiotics for it too, in addition to mupirocin, to help it clear much faster. An extended course may also reduce future infections. My son also gets the ring rash around his mouth. It is also usually diet related, and it particularly happens when he takes antibiotics, like he's sensitive to them too. I don't know what it is or how to get rid of it. It goes away on it's own eventually. It looks awful and hurts my heart, even though it doesn't particularly bother him (except when his lips start cracking too), because it's this loud raging signal that something is off. Hope that helps. If you find a certain cause of this mouth rash ring, please let me know! Please get that 'rash' cultured. ________________________________ From: sablepawz <sablepawz@...> Sent: Fri, April 16, 2010 8:18:38 PM Subject: Re: Food is Infuriating me V_V  I think your responding to me.... No the rash he's always delt with on and off since maybe 2 years old...that and freakishly scary hives and a roseola rash that he's gotten 4 times in the past, last time as recently as last summer. But this heat/stress rash thing is different. It comes on his legs more often but can come anyplace on him, face, arms, anyplace. Looks like a spider bite or a mosquito bite at first, nothing to worry about...until it swells and gets horribly inflamed. Then if it is not cared for by me manually keeping him cool and calm and putting mupirocin on it it will become more pronounced in the center (the swelling is 1-2 inches in diameter around this wee " bite " ) and will weep a bit, no real color to the liquid but perhaps yellowish. Then it gets messy, looks exactly like a brown recluce spider bite when it starts eating the flesh. This only got that far the first time it happened and we rushed him to the ER and bug bombed the house thinking it was spiders lol. The scar was there for 2 years on his calf Yes with this he gets feverish and ill. I'm chocking it up to his immune system, have for 4 years. > > The rash could be the coconut milk, but if it comes in the heat, it *could be heat rash* OR if it comes on the arms and legs mainly (and sometimes buttocks) with some of the rash having hard white pimply heads, THEN it could be keratosis pilaris. You can google picture online, but most of them look worse than my son's KP. It is caused from an overproduction of keratin. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Actually, there is a lot left to give once you remove gluten, casein, and even soy. There is still: fresh vegetables, fresh fruits, and fresh meats (all in purest form, but you can steam and cook in a variety of ways with just these.) There are many great tasting breads andd mixes, if you go that roue, that are gluten and casein free. It really was not hard for my son, it was hard for *me* because *I* dod not like going without all the processed foods; they were too easy for me to make in a hurry or on the run. What I figured out was eating correctly kept us from going to all doctors and being on the go all the time; so, once you fix the diet, you have fixed many other problems. > > > > > > > > > > > I love this group, I'm learning a lot! I'm trying to get my son on this > > > diet as best as possible. We have been on the G/C free for a few months 2 > > > years ago, I did not see a change. Until a year ago he had Silk soy milk in > > > his bottles as I found he was very gassy with the organic whole milk he got > > > after going off formula & breast milk. I have seen major reactions to > > > splenda (uncontrolled urination) All sugars, he wants fruit ALL the time. > > > Apples and oranges mostly. Fruit must be hidden in the cupboards. Juice is a > > > no no over one small 4 oz box a day to hide probitics in or he will have > > > uncontrollable diarrhea. > > > > > > I found the tofutti cutie bars at a store near me and was so happy but > > > after he ate 2 of them he got big dark rings under his eyes, his face got > > > puffy and he paced while looking down and wouldn't respond for some time > > > then had to take a very restless nap in which I'm not sure he actually slept > > > for 45 mins. Very similar reaction to when he got a bee sting. (I keep an > > > epi pen in the kitchen) > > > > > > So UGH just like everyone I'm frustrated and cannot seem to find things to > > > feed him. Suggestions most welcome. Also do you think it was the soy or the > > > coconut in the ice cream bars? > > > > > > One more thing as I cram my post full XD Anyone else that their child gets > > > rashes, what kind? and any pics? I don't think what my son gets is impetigo. > > > It comes with heat (which he cannot tolerate) and stress. > > > > > > Thanks for ALL input! Jess > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 In that case, I am hearing mastocytosis (cutaneous, at least). My 3 year old has that. Be careful with NSAIDS (tylenol, motrin, aspirin) and when the rash occurs, give dye free loratidine (Rite Aid has a grape flavor that is clear over the counter.) My 3 yr-old, which only weighs in at (now 26, was 21 before the antihistamines), takes 1 tsp 2-3 times a day. It is an H2 antihistmaine, which means the sleepy part has been removed; however, the first week, of taking it he did get sleepy, but after that nothing...he was fine. But you definitely sound like you are speaking of mastocytosis (The Mastocytosis Society can help you). One way to check for sure is these odd loking bumps/hives will present with what is called the DARIER'S SIGN. What you do is rub and irritate the hive and see if it turns blistery like a chicken pox looking spot (it will shrink back down if it does ; if so, positively mast cell issues. We all have mast cells, but in moderated number usually. If there are in large and excessive number, then one has mastocytosis. They are related to immune system dysfunction. It s rare, but apparently, it is increasingly more common. Let me know if I can help anymore. > > > > The rash could be the coconut milk, but if it comes in the heat, it *could be heat rash* OR if it comes on the arms and legs mainly (and sometimes buttocks) with some of the rash having hard white pimply heads, THEN it could be keratosis pilaris. You can google picture online, but most of them look worse than my son's KP. It is caused from an overproduction of keratin. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 , I can send you an article on how we did the diet if you email me privately. Your post did not have your email. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Could you copy me on your article? Thanks, Freeman Phone: 902-826-9607 Email: freemanbk@... From: [mailto: ] On Behalf Of and Marcia Hinds Sent: April-17-10 3:10 PM Subject: Re: Food is Infuriating me V_V , I can send you an article on how we did the diet if you email me privately. Your post did not have your email. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Yes please! If it is a DOC file can you tell me how to open it please? I have gotten a couple private mails perhaps from you even? that I cannot open sablepawz@... I'm reading everything you are all saying and thank you so much! I'm trying so hard to comprehend things. My fog seems to just get thicker as time goes by. I am thrilled (I mean it sucks) but you know what I mean that that others have had these skin issues. No they just said impetigo and left it at that, never cultured. I swear if there is a day over 70 he will have it, the hotter the worse. I fear this summer. The online pics of mastocytosis and staph each kind of look like it, then again google pics are either extreme or very little. The mastocytosis looks more like it from some of the pics. Yes he also reacts to real bug bites but real bug bites itch him rather than hurt him. the only thing I've found to keep the skeeters away is OFF family care towlettes. They have DEET, but it's all I've found to do anything. In past years I have read many articles on abnormal reactions and mosquito bites. I remember taking one to a doctor we no longer use about it and the immune system link. Damn if we hadn't all been dismissed about our concerns for years.... After this last rash episode he has regressed. Now after I bought all this goats milk stuff today I have to go read everything you all said XD > > , > > I can send you an article on how we did the diet if you email me privately. > Your post did not have your email. > > Marcia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Do any of you have your child on meds, especially for aggressive behavior? Sheri Re: Food is Infuriating me V_V I think your responding to me.... No the rash he's always delt with on and off since maybe 2 years old...that and freakishly scary hives and a roseola rash that he's gotten 4 times in the past, last time as recently as last summer. But this heat/stress rash thing is different. It comes on his legs more often but can come anyplace on him, face, arms, anyplace. Looks like a spider bite or a mosquito bite at first, nothing to worry about...until it swells and gets horribly inflamed. Then if it is not cared for by me manually keeping him cool and calm and putting mupirocin on it it will become more pronounced in the center (the swelling is 1-2 inches in diameter around this wee " bite " ) and will weep a bit, no real color to the liquid but perhaps yellowish. Then it gets messy, looks exactly like a brown recluce spider bite when it starts eating the flesh. This only got that far the first time it happened and we rushed him to the ER and bug bombed the house thinking it was spiders lol. The scar was there for 2 years on his calf Yes with this he gets feverish and ill. I'm chocking it up to his immune system, have for 4 years. > > The rash could be the coconut milk, but if it comes in the heat, it *could be heat rash* OR if it comes on the arms and legs mainly (and sometimes buttocks) with some of the rash having hard white pimply heads, THEN it could be keratosis pilaris. You can google picture online, but most of them look worse than my son's KP. It is caused from an overproduction of keratin. > > Quote Link to comment Share on other sites More sharing options...
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