Re: Fluoxetine makes child angry

[Guest guest]

Did you recently increase the SSRI? If so, this can sometimes cause problems; it

usually takes about 10 days before they fully adjust. I would avoid the use of

tryptophan. If you believe the fluoxetine is the problem, I would call his

office and let them know or send the info in an update. We went through several

SSRIs before we found an effective one with no negative side effects. With our

middle son, we use a " cocktail " of SSRIs and SNRIs in very small dosages. My

other two are good with Celexa.

All the best,

Robyn

________________________________

From: and Freeman <freemanbk@...>

Sent: Sat, April 17, 2010 11:45:19 AM

Subject: Fluoxetine makes child angry

If you have a child on .8 ml of fluoxetine and they become very angry after

a few months of using it, what should you do? Does this mean that they

should try another ssri? Is Prozac the best ssri for helping to heal the

brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

patient switches? was acting really good on fluoxetine for a few weeks

(at first he even acted extremely normal by following people and

interacting) and then he started acting angry and deceitful. I don't like

his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

and doesn't seem to really help with the mood...I would like some help with

this.

[Guest guest]

We have been on fluoxetine since January. The first week was really amazing! OCD

stopped and he did not have any stims at all!! We had similar results when we

first tried Strattera – really engaging, mannerisms that we so normal it was

incredible, joining in with everyone…and then it started to just fade. This

happens with our son – something will work amazingly and then it just fades. I

know he is so close to being normal because we see it every time we try

something like the ssris but then it is like his body goes back to the way it

was. He gets nasty, makes fun of people, doesn’t look when being spoken to,

etc. I have kept him on tryptophan but I have Cipralex (escitalopram oxalate

tablet) which is Lexapro but I am not sure if giving this is what our son needs.

He has: high oxalates, low cysteine and methionine and is taking NAC,

glutathione oral and vitamin c as well as b6 50 mg. I know this has something to

do with his digestion and don’t want to get him into a state where his brain

cannot function without an ssri….this is such a hard road to walk. Can these

kids ever come off the ssris? He turned 8 yesterday.

He is currently on:

vitamin c 1500 mg hypoallergenic

NAC 350 mg,

glutathione oral 300 mg,

3mg LDN,

strattera 10 mg,

creatine ½ teaspoon,

1000 mg carnitine,

50 mg B6, probiotics,

theanine,

tryptophan 300 mg.

He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains high.

He has been following the diet as well as low oxalate and we have an air

cleaner for his room and the house. Any help would be greatly appreciated. His

main problem is not understanding the effect his behaviour has on others and his

impulsivity. He does well academically but I feel he will struggle later on in

school because he just doesn’t have the ability to process things fast enough.

He has a full time aide because his behaviours are unpredictable. He steals and

lies.

From: [mailto: ] On Behalf Of Robyn &

Greg Coggins

Sent: April-18-10 9:17 PM

Subject: Re: Fluoxetine makes child angry

Did you recently increase the SSRI? If so, this can sometimes cause problems; it

usually takes about 10 days before they fully adjust. I would avoid the use of

tryptophan. If you believe the fluoxetine is the problem, I would call his

office and let them know or send the info in an update. We went through several

SSRIs before we found an effective one with no negative side effects. With our

middle son, we use a " cocktail " of SSRIs and SNRIs in very small dosages. My

other two are good with Celexa.

All the best,

Robyn

________________________________

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

<mailto:%40>

Sent: Sat, April 17, 2010 11:45:19 AM

Subject: Fluoxetine makes child angry

If you have a child on .8 ml of fluoxetine and they become very angry after

a few months of using it, what should you do? Does this mean that they

should try another ssri? Is Prozac the best ssri for helping to heal the

brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

patient switches? was acting really good on fluoxetine for a few weeks

(at first he even acted extremely normal by following people and

interacting) and then he started acting angry and deceitful. I don't like

his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

and doesn't seem to really help with the mood...I would like some help with

this.

[Guest guest]

what about an antiviral? antifungal?

>

> We have been on fluoxetine since January. The first week was really amazing!

OCD stopped and he did not have any stims at all!! We had similar results when

we first tried Strattera †" really engaging, mannerisms that we so normal it

was incredible, joining in with everyone…and then it started to just fade.

This happens with our son †" something will work amazingly and then it just

fades. I know he is so close to being normal because we see it every time we try

something like the ssris but then it is like his body goes back to the way it

was. He gets nasty, makes fun of people, doesn’t look when being spoken to,

etc. I have kept him on tryptophan but I have Cipralex (escitalopram oxalate

tablet) which is Lexapro but I am not sure if giving this is what our son needs.

He has: high oxalates, low cysteine and methionine and is taking NAC,

glutathione oral and vitamin c as well as b6 50 mg. I know this has something to

do with his digestion and don’t want to get him into a state where his brain

cannot function without an ssri….this is such a hard road to walk. Can these

kids ever come off the ssris? He turned 8 yesterday.

>

>

>

> He is currently on:

>

> vitamin c 1500 mg hypoallergenic

>

> NAC 350 mg,

>

> glutathione oral 300 mg,

>

> 3mg LDN,

>

> strattera 10 mg,

>

> creatine ½ teaspoon,

>

> 1000 mg carnitine,

>

> 50 mg B6, probiotics,

>

> theanine,

>

> tryptophan 300 mg.

>

>

>

> He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains high.

He has been following the diet as well as low oxalate and we have an air

cleaner for his room and the house. Any help would be greatly appreciated. His

main problem is not understanding the effect his behaviour has on others and his

impulsivity. He does well academically but I feel he will struggle later on in

school because he just doesn’t have the ability to process things fast enough.

He has a full time aide because his behaviours are unpredictable. He steals and

lies.

>

>

>

>

>

>

>

> From: [mailto: ] On Behalf Of Robyn &

Greg Coggins

> Sent: April-18-10 9:17 PM

>

> Subject: Re: Fluoxetine makes child angry

>

>

>

>

>

> Did you recently increase the SSRI? If so, this can sometimes cause problems;

it usually takes about 10 days before they fully adjust. I would avoid the use

of tryptophan. If you believe the fluoxetine is the problem, I would call his

office and let them know or send the info in an update. We went through several

SSRIs before we found an effective one with no negative side effects. With our

middle son, we use a " cocktail " of SSRIs and SNRIs in very small dosages. My

other two are good with Celexa.

>

> All the best,

>

> Robyn

>

> ________________________________

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

> <mailto:%40>

> Sent: Sat, April 17, 2010 11:45:19 AM

> Subject: Fluoxetine makes child angry

>

> If you have a child on .8 ml of fluoxetine and they become very angry after

> a few months of using it, what should you do? Does this mean that they

> should try another ssri? Is Prozac the best ssri for helping to heal the

> brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> patient switches? was acting really good on fluoxetine for a few weeks

> (at first he even acted extremely normal by following people and

> interacting) and then he started acting angry and deceitful. I don't like

> his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

> and doesn't seem to really help with the mood...I would like some help with

> this.

>

>

[Guest guest]

He was been on nystatin a few months ago and I still give it occasionally. The

doctor will not prescribe antivirals as his HHV1-8 came back fine. I do give LDN

and I am hoping that if there are viruses they will be kept regulated by the

LDN. He has had tests done through Great Plains a few years back and finally his

doctor is looking at the B6 deficiency that was indicated in the test. I give B6

50 mg and now he is able to have dreams and recall them.

From: [mailto: ] On Behalf Of

Sent: April-19-10 10:14 AM

Subject: Re: Fluoxetine makes child angry

what about an antiviral? antifungal?

>

> We have been on fluoxetine since January. The first week was really amazing!

OCD stopped and he did not have any stims at all!! We had similar results when

we first tried Strattera †" really engaging, mannerisms that we so normal it

was incredible, joining in with everyone…and then it started to just fade.

This happens with our son †" something will work amazingly and then it just

fades. I know he is so close to being normal because we see it every time we try

something like the ssris but then it is like his body goes back to the way it

was. He gets nasty, makes fun of people, doesn’t look when being spoken

to, etc. I have kept him on tryptophan but I have Cipralex (escitalopram oxalate

tablet) which is Lexapro but I am not sure if giving this is what our son needs.

He has: high oxalates, low cysteine and methionine and is taking NAC,

glutathione oral and vitamin c as well as b6 50 mg. I know this has something to

do with his digestion and don’t want to get him into a state where his

brain cannot function without an ssri….this is such a hard road to walk.

Can these kids ever come off the ssris? He turned 8 yesterday.

>

>

>

> He is currently on:

>

> vitamin c 1500 mg hypoallergenic

>

> NAC 350 mg,

>

> glutathione oral 300 mg,

>

> 3mg LDN,

>

> strattera 10 mg,

>

> creatine ½ teaspoon,

>

> 1000 mg carnitine,

>

> 50 mg B6, probiotics,

>

> theanine,

>

> tryptophan 300 mg.

>

>

>

> He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains high.

He has been following the diet as well as low oxalate and we have an air

cleaner for his room and the house. Any help would be greatly appreciated. His

main problem is not understanding the effect his behaviour has on others and his

impulsivity. He does well academically but I feel he will struggle later on in

school because he just doesn’t have the ability to process things fast

enough. He has a full time aide because his behaviours are unpredictable. He

steals and lies.

>

>

>

>

>

>

>

> From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Robyn & Greg Coggins

> Sent: April-18-10 9:17 PM

> <mailto:%40>

> Subject: Re: Fluoxetine makes child angry

>

>

>

>

>

> Did you recently increase the SSRI? If so, this can sometimes cause problems;

it usually takes about 10 days before they fully adjust. I would avoid the use

of tryptophan. If you believe the fluoxetine is the problem, I would call his

office and let them know or send the info in an update. We went through several

SSRIs before we found an effective one with no negative side effects. With our

middle son, we use a " cocktail " of SSRIs and SNRIs in very small dosages. My

other two are good with Celexa.

>

> All the best,

>

> Robyn

>

> ________________________________

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

> <mailto:%40>

<mailto:%40>

> Sent: Sat, April 17, 2010 11:45:19 AM

> Subject: Fluoxetine makes child angry

>

> If you have a child on .8 ml of fluoxetine and they become very angry after

> a few months of using it, what should you do? Does this mean that they

> should try another ssri? Is Prozac the best ssri for helping to heal the

> brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> patient switches? was acting really good on fluoxetine for a few weeks

> (at first he even acted extremely normal by following people and

> interacting) and then he started acting angry and deceitful. I don't like

> his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

> and doesn't seem to really help with the mood...I would like some help with

> this.

>

>

[Guest guest]

LDN will not be enough to take care of viruses...as it only modulates the immune

system, if your child doesn't have enough humoral or cell mediated immunity,

(antibodies/NK cells, T-cells) to take care of neuroinvasive viruses like HHV6

the LDN will not be enough. I cannot stress enough how important and antiviral

was for my daughter. We had her on Valtrex for months. Wish I could still have

her on it!!

I hope this helps.

-

> >

> > We have been on fluoxetine since January. The first week was really amazing!

OCD stopped and he did not have any stims at all!! We had similar results when

we first tried Strattera †" really engaging, mannerisms that we so normal it

was incredible, joining in with everyone…and then it started to just fade.

This happens with our son †" something will work amazingly and then it just

fades. I know he is so close to being normal because we see it every time we try

something like the ssris but then it is like his body goes back to the way it

was. He gets nasty, makes fun of people, doesn’t look when being spoken

to, etc. I have kept him on tryptophan but I have Cipralex (escitalopram oxalate

tablet) which is Lexapro but I am not sure if giving this is what our son needs.

He has: high oxalates, low cysteine and methionine and is taking NAC,

glutathione oral and vitamin c as well as b6 50 mg. I know this has something to

do with his digestion and don’t want to get him into a state where his

brain cannot function without an ssri….this is such a hard road to walk.

Can these kids ever come off the ssris? He turned 8 yesterday.

> >

> >

> >

> > He is currently on:

> >

> > vitamin c 1500 mg hypoallergenic

> >

> > NAC 350 mg,

> >

> > glutathione oral 300 mg,

> >

> > 3mg LDN,

> >

> > strattera 10 mg,

> >

> > creatine ½ teaspoon,

> >

> > 1000 mg carnitine,

> >

> > 50 mg B6, probiotics,

> >

> > theanine,

> >

> > tryptophan 300 mg.

> >

> >

> >

> > He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains high.

He has been following the diet as well as low oxalate and we have an air

cleaner for his room and the house. Any help would be greatly appreciated. His

main problem is not understanding the effect his behaviour has on others and his

impulsivity. He does well academically but I feel he will struggle later on in

school because he just doesn’t have the ability to process things fast

enough. He has a full time aide because his behaviours are unpredictable. He

steals and lies.

> >

> >

> >

> >

> >

> >

> >

> > From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Robyn & Greg Coggins

> > Sent: April-18-10 9:17 PM

> > <mailto:%40>

> > Subject: Re: Fluoxetine makes child angry

> >

> >

> >

> >

> >

> > Did you recently increase the SSRI? If so, this can sometimes cause

problems; it usually takes about 10 days before they fully adjust. I would avoid

the use of tryptophan. If you believe the fluoxetine is the problem, I would

call his office and let them know or send the info in an update. We went through

several SSRIs before we found an effective one with no negative side effects.

With our middle son, we use a " cocktail " of SSRIs and SNRIs in very small

dosages. My other two are good with Celexa.

> >

> > All the best,

> >

> > Robyn

> >

> > ________________________________

> > From: and Freeman <freemanbk@

<mailto:freemanbk%40ns.sympatico.ca> >

> > <mailto:%40>

<mailto:%40>

> > Sent: Sat, April 17, 2010 11:45:19 AM

> > Subject: Fluoxetine makes child angry

> >

> > If you have a child on .8 ml of fluoxetine and they become very angry after

> > a few months of using it, what should you do? Does this mean that they

> > should try another ssri? Is Prozac the best ssri for helping to heal the

> > brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> > patient switches? was acting really good on fluoxetine for a few weeks

> > (at first he even acted extremely normal by following people and

> > interacting) and then he started acting angry and deceitful. I don't like

> > his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

> > and doesn't seem to really help with the mood...I would like some help with

> > this.

> >

> >

[Guest guest]

Unfortunately, I cannot get my doctor to agree. Because our son’s viral

tests all came back clear, he does not want to put him on any antivirals. I

will continue to work on the dr about it.

In the meantime, serotonin does seem to be a big factor in our child’s

recovery. He also responds very well to vitamin B supplements. I am still

not convinced that he could not achieve the same results from 5-htp as he

has from ssri....

What is done in the protocol for omega fatty acids?

Thanks again for your words of support!

From: [mailto: ] On Behalf Of

Sent: April-20-10 10:46 AM

Subject: Re: Fluoxetine makes child angry

LDN will not be enough to take care of viruses...as it only modulates the

immune system, if your child doesn't have enough humoral or cell mediated

immunity, (antibodies/NK cells, T-cells) to take care of neuroinvasive

viruses like HHV6 the LDN will not be enough. I cannot stress enough how

important and antiviral was for my daughter. We had her on Valtrex for

months. Wish I could still have her on it!!

I hope this helps.

-

>

> He was been on nystatin a few months ago and I still give it occasionally.

The doctor will not prescribe antivirals as his HHV1-8 came back fine. I do

give LDN and I am hoping that if there are viruses they will be kept

regulated by the LDN. He has had tests done through Great Plains a few years

back and finally his doctor is looking at the B6 deficiency that was

indicated in the test. I give B6 50 mg and now he is able to have dreams and

recall them.

>

>

>

>

>

>

>

> From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

> Sent: April-19-10 10:14 AM

> <mailto:%40>

> Subject: Re: Fluoxetine makes child angry

>

>

>

>

>

> what about an antiviral? antifungal?

>

> --- In <mailto:%40>

<mailto:%40> , " and Freeman " <freemanbk@>

wrote:

> >

> > We have been on fluoxetine since January. The first week was really

amazing! OCD stopped and he did not have any stims at all!! We had similar

results when we first tried Strattera †" really engaging, mannerisms

that we so normal it was incredible, joining in with everyone…and then

it started to just fade. This happens with our son †" something will

work amazingly and then it just fades. I know he is so close to being normal

because we see it every time we try something like the ssris but then it is

like his body goes back to the way it was. He gets nasty, makes fun of

people, doesn’t look when being spoken to, etc. I have kept him on

tryptophan but I have Cipralex (escitalopram oxalate tablet) which is

Lexapro but I am not sure if giving this is what our son needs. He has: high

oxalates, low cysteine and methionine and is taking NAC, glutathione oral

and vitamin c as well as b6 50 mg. I know this has something to do with his

digestion and don’t want to get him into a state where his brain

cannot function without an ssri….this is such a hard road to walk. Can

these kids ever come off the ssris? He turned 8 yesterday.

> >

> >

> >

> > He is currently on:

> >

> > vitamin c 1500 mg hypoallergenic

> >

> > NAC 350 mg,

> >

> > glutathione oral 300 mg,

> >

> > 3mg LDN,

> >

> > strattera 10 mg,

> >

> > creatine ½ teaspoon,

> >

> > 1000 mg carnitine,

> >

> > 50 mg B6, probiotics,

> >

> > theanine,

> >

> > tryptophan 300 mg.

> >

> >

> >

> > He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains

high. He has been following the diet as well as low oxalate and we have

an air cleaner for his room and the house. Any help would be greatly

appreciated. His main problem is not understanding the effect his behaviour

has on others and his impulsivity. He does well academically but I feel he

will struggle later on in school because he just doesn’t have the

ability to process things fast enough. He has a full time aide because his

behaviours are unpredictable. He steals and lies.

> >

> >

> >

> >

> >

> >

> >

> > From: <mailto:%40>

<mailto:%40> [mailto:

<mailto:%40> <mailto:%40> ] On Behalf

Of Robyn & Greg Coggins

> > Sent: April-18-10 9:17 PM

> > <mailto:%40>

<mailto:%40>

> > Subject: Re: Fluoxetine makes child angry

> >

> >

> >

> >

> >

> > Did you recently increase the SSRI? If so, this can sometimes cause

problems; it usually takes about 10 days before they fully adjust. I would

avoid the use of tryptophan. If you believe the fluoxetine is the problem, I

would call his office and let them know or send the info in an update. We

went through several SSRIs before we found an effective one with no negative

side effects. With our middle son, we use a " cocktail " of SSRIs and SNRIs in

very small dosages. My other two are good with Celexa.

> >

> > All the best,

> >

> > Robyn

> >

> > ________________________________

> > From: and Freeman <freemanbk@

<mailto:freemanbk%40ns.sympatico.ca> >

> > <mailto:%40>

<mailto:%40> <mailto:%40>

> > Sent: Sat, April 17, 2010 11:45:19 AM

> > Subject: Fluoxetine makes child angry

> >

> > If you have a child on .8 ml of fluoxetine and they become very angry

after

> > a few months of using it, what should you do? Does this mean that they

> > should try another ssri? Is Prozac the best ssri for helping to heal the

> > brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> > patient switches? was acting really good on fluoxetine for a few

weeks

> > (at first he even acted extremely normal by following people and

> > interacting) and then he started acting angry and deceitful. I don't

like

> > his behaviour on the ssri. I gave him tryptophan but that makes him

sleepy

> > and doesn't seem to really help with the mood...I would like some help

with

> > this.

> >

> >

[Guest guest]

,

Did you ever consider that maybe the reason things work for a short time is

because you have hope and are excited that this treatment may be the answer

you have been searching for? I know when was little he was attached to

my hip. I was his window to the world and when I had PMS, he was out of

control. When I was upbeat and hopeful, he seemed better.

Once I did an experiment. When he was crabby I cranked on the rock and roll

and started dancing around the house to see if I could change the way he was

acting. Soon he was better. That was when I came up with the " If you don't

feel it, fake it " treatment. Sometimes instead of rock and roll this

treatment would consist of ignoring bad behavior and changing the scenery

when things were melting down. I'd take him for a walk, bike ride or throw

him in the car and we would go somewhere, anywhere else. (park, mall,

grocery store or anything to change our outlook)

Our kids are hard and we are often wracked with fear and anxiety about how

things will be for them in the future. It is often depressing and hard to

get up each day and keep going, but what other choice do we have? And is

the process we sometimes forget to be their mommy and make them hug us even

when we don't want them to or they don't want to. I used to tell , "

You have to hug me. I'm your mommy and it's your job. "

When things were spiraling out of control or I was obsessing over the

smallest parts of the diet or medical, I would try to remember I had to

treat him like a kid. There were days when I cancelled all the therapies

and just got to be mommy. We need that and they need that from us also. I

didn't want to be the doctor or behavior therapist anymore. When I didn't

have hope or a plan it was the hardest time for me.

When I couldn't go on, I would tell myself he was weird, but many weird

people made it. What about Einstein, Bill Gates, Jacque Cousteau and

Edison. All these guys didn't really fit but they did okay. Aw, the mind

games we have to play to keep going at this. Another therapy for me was

doing something nice for someone else or helping another parent. It got me

out of my pity party and focused on something tangible and good to do.

Helping others is great therapy for all of us. That is why I have stayed on

this list for so long. It really is about how much it helps me too.

Hope this helps,

Marcia

P.S. I don't know where you live but if your doctor isn't helping, it might

be time to get to Dr. or Dr. G

[Guest guest]

Thank you so much for writing this. Marcia. You are such a help !!! God bless

you. Sheryl

Sent from my iPhone

On Apr 21, 2010, at 8:49 AM, " and Marcia Hinds " <hindssite@...>

wrote:

,

Did you ever consider that maybe the reason things work for a short time is

because you have hope and are excited that this treatment may be the answer

you have been searching for? I know when was little he was attached to

my hip. I was his window to the world and when I had PMS, he was out of

control. When I was upbeat and hopeful, he seemed better.

Once I did an experiment. When he was crabby I cranked on the rock and roll

and started dancing around the house to see if I could change the way he was

acting. Soon he was better. That was when I came up with the " If you don't

feel it, fake it " treatment. Sometimes instead of rock and roll this

treatment would consist of ignoring bad behavior and changing the scenery

when things were melting down. I'd take him for a walk, bike ride or throw

him in the car and we would go somewhere, anywhere else. (park, mall,

grocery store or anything to change our outlook)

Our kids are hard and we are often wracked with fear and anxiety about how

things will be for them in the future. It is often depressing and hard to

get up each day and keep going, but what other choice do we have? And is

the process we sometimes forget to be their mommy and make them hug us even

when we don't want them to or they don't want to. I used to tell , "

You have to hug me. I'm your mommy and it's your job. "

When things were spiraling out of control or I was obsessing over the

smallest parts of the diet or medical, I would try to remember I had to

treat him like a kid. There were days when I cancelled all the therapies

and just got to be mommy. We need that and they need that from us also. I

didn't want to be the doctor or behavior therapist anymore. When I didn't

have hope or a plan it was the hardest time for me.

When I couldn't go on, I would tell myself he was weird, but many weird

people made it. What about Einstein, Bill Gates, Jacque Cousteau and

Edison. All these guys didn't really fit but they did okay. Aw, the mind

games we have to play to keep going at this. Another therapy for me was

doing something nice for someone else or helping another parent. It got me

out of my pity party and focused on something tangible and good to do.

Helping others is great therapy for all of us. That is why I have stayed on

this list for so long. It really is about how much it helps me too.

Hope this helps,

Marcia

P.S. I don't know where you live but if your doctor isn't helping, it might

be time to get to Dr. or Dr. G

[Guest guest]

You are a very insightful parent, for sure! As the mom, I am aware that MY

behaviour contributes to a lot of the issues with our son. I don't always

calm him after he has had a bad time or redirect as I should. It's a hard

job being a parent - even harder to our special kids...

I am trying my very best on most days. When we try something and it has

great results, it is heart breaking to see it fade away. I am currently

using 5-htp and b vitamins on and although we still have problems with

attention and concentration, he does seem much more happy. It is hard to be

loving to a child that is as verbally abusive as he can be. As well, he gets

into a lot of trouble and often the parents of the children in the

neighbourhood have avoided us or not bothered getting involved with our

family because of what my son has done to other children. I love him dearly

but some days are truly harder than others.

A few months ago I got a copy of all of his blood work and found out that he

was neutropenic when he was a baby. He also continues to have high blood

platelet counts, high eosinophils (these have come down to high normal) and

low testosterone and low androstenedione. He also has low cysteine and low

methionine. I am treating him because the doctors don't know what all this

means and I am trying to do it all by myself. In the meantime, after ldn,

epd, multiple supplements, diet, Epson salt baths, thousands of dollars

later - we see only slight improvement. I will say that his stims are almost

completely gone. Thank god for something great like that, eh? I would like

someone to walk me through this because I am so open to criticism I just

need help by someone who knows what they are doing.

I am including the test results we had done by Great Plains for review. We

are trying all the things they told us when his organic acid test was done.

Thank you for your concern. It is truly appreciated and needed.

From: [mailto: ] On Behalf Of

and Marcia Hinds

Sent: April-21-10 12:49 PM

freemanbk@...;

Subject: Re: Fluoxetine makes child angry

,

Did you ever consider that maybe the reason things work for a short time is

because you have hope and are excited that this treatment may be the answer

you have been searching for? I know when was little he was attached to

my hip. I was his window to the world and when I had PMS, he was out of

control. When I was upbeat and hopeful, he seemed better.

Once I did an experiment. When he was crabby I cranked on the rock and roll

and started dancing around the house to see if I could change the way he was

acting. Soon he was better. That was when I came up with the " If you don't

feel it, fake it " treatment. Sometimes instead of rock and roll this

treatment would consist of ignoring bad behavior and changing the scenery

when things were melting down. I'd take him for a walk, bike ride or throw

him in the car and we would go somewhere, anywhere else. (park, mall,

grocery store or anything to change our outlook)

Our kids are hard and we are often wracked with fear and anxiety about how

things will be for them in the future. It is often depressing and hard to

get up each day and keep going, but what other choice do we have? And is

the process we sometimes forget to be their mommy and make them hug us even

when we don't want them to or they don't want to. I used to tell , "

You have to hug me. I'm your mommy and it's your job. "

When things were spiraling out of control or I was obsessing over the

smallest parts of the diet or medical, I would try to remember I had to

treat him like a kid. There were days when I cancelled all the therapies

and just got to be mommy. We need that and they need that from us also. I

didn't want to be the doctor or behavior therapist anymore. When I didn't

have hope or a plan it was the hardest time for me.

When I couldn't go on, I would tell myself he was weird, but many weird

people made it. What about Einstein, Bill Gates, Jacque Cousteau and

Edison. All these guys didn't really fit but they did okay. Aw, the mind

games we have to play to keep going at this. Another therapy for me was

doing something nice for someone else or helping another parent. It got me

out of my pity party and focused on something tangible and good to do.

Helping others is great therapy for all of us. That is why I have stayed on

this list for so long. It really is about how much it helps me too.

Hope this helps,

Marcia

P.S. I don't know where you live but if your doctor isn't helping, it might

be time to get to Dr. or Dr. G

[Guest guest]

Hi ,

We just returned a few weeks ago from seeing Dr. Goldberg for our son who is 6.

He placed him on an anti-viral cause his titers are high... BUT he did say that

some kids have no titers until they are provoked with an anti-viral and then

they shoot up.

On another note, he scolded me (more like the DAN we were seeing before) for

" sometimes " using drugs (like you are the nystatin) because the fungus can grow

resistant to drugs if you go on & off.

Also to note, my son was on a lot of the supplements you mentioned. He pulled

him off all of them. I was terrified to do it, but he is doing much better and

his red ears have all but gone. So that is something to think about. Perhaps

your son has a allergy to one of his supplements.

Best!, Sloan

> > >

> > > We have been on fluoxetine since January. The first week was really

amazing! OCD stopped and he did not have any stims at all!! We had similar

results when we first tried Strattera †" really engaging, mannerisms that we

so normal it was incredible, joining in with everyone…and then it started

to just fade. This happens with our son †" something will work amazingly and

then it just fades. I know he is so close to being normal because we see it

every time we try something like the ssris but then it is like his body goes

back to the way it was. He gets nasty, makes fun of people, doesn’t look

when being spoken to, etc. I have kept him on tryptophan but I have Cipralex

(escitalopram oxalate tablet) which is Lexapro but I am not sure if giving this

is what our son needs. He has: high oxalates, low cysteine and methionine and is

taking NAC, glutathione oral and vitamin c as well as b6 50 mg. I know this has

something to do with his digestion and don’t want to get him into a state

where his brain cannot function without an ssri….this is such a hard road

to walk. Can these kids ever come off the ssris? He turned 8 yesterday.

> > >

> > >

> > >

> > > He is currently on:

> > >

> > > vitamin c 1500 mg hypoallergenic

> > >

> > > NAC 350 mg,

> > >

> > > glutathione oral 300 mg,

> > >

> > > 3mg LDN,

> > >

> > > strattera 10 mg,

> > >

> > > creatine ½ teaspoon,

> > >

> > > 1000 mg carnitine,

> > >

> > > 50 mg B6, probiotics,

> > >

> > > theanine,

> > >

> > > tryptophan 300 mg.

> > >

> > >

> > >

> > > He get enzyme potentiated desensitization (EPD) shots for environmental

allergies every two months which seem to be lowering his eosinophils to high

normal but his neutrophils remain low and his blood platelet count remains high.

He has been following the diet as well as low oxalate and we have an air

cleaner for his room and the house. Any help would be greatly appreciated. His

main problem is not understanding the effect his behaviour has on others and his

impulsivity. He does well academically but I feel he will struggle later on in

school because he just doesn’t have the ability to process things fast

enough. He has a full time aide because his behaviours are unpredictable. He

steals and lies.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Robyn & Greg Coggins

> > > Sent: April-18-10 9:17 PM

> > > <mailto:%40>

> > > Subject: Re: Fluoxetine makes child angry

> > >

> > >

> > >

> > >

> > >

> > > Did you recently increase the SSRI? If so, this can sometimes cause

problems; it usually takes about 10 days before they fully adjust. I would avoid

the use of tryptophan. If you believe the fluoxetine is the problem, I would

call his office and let them know or send the info in an update. We went through

several SSRIs before we found an effective one with no negative side effects.

With our middle son, we use a " cocktail " of SSRIs and SNRIs in very small

dosages. My other two are good with Celexa.

> > >

> > > All the best,

> > >

> > > Robyn

> > >

> > > ________________________________

> > > From: and Freeman <freemanbk@

<mailto:freemanbk%40ns.sympatico.ca> >

> > > <mailto:%40>

<mailto:%40>

> > > Sent: Sat, April 17, 2010 11:45:19 AM

> > > Subject: Fluoxetine makes child angry

> > >

> > > If you have a child on .8 ml of fluoxetine and they become very angry

after

> > > a few months of using it, what should you do? Does this mean that they

> > > should try another ssri? Is Prozac the best ssri for helping to heal the

> > > brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> > > patient switches? was acting really good on fluoxetine for a few

weeks

> > > (at first he even acted extremely normal by following people and

> > > interacting) and then he started acting angry and deceitful. I don't like

> > > his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

> > > and doesn't seem to really help with the mood...I would like some help

with

> > > this.

> > >

> > >

[Guest guest]

Thank you so much Sloan! I was trying to use 5-htp for our son but his ocd

and panic/anxiety attacks came back. I put him back on his .8 ml of

fluoxetine. Here in Nova Scotia it has almost impossible to get a doctor to

help. We are lucky to have one that gives me something every once and a

while to go on. The Nystatin we are able to get can only be made up in large

amounts 4 times per day...I know that sounds crazy but even getting decent

Nystatin is almost impossible here. I am just about at my breaking point. My

son acted up at Beavers tonight and I just decided I cannot take him there

anymore. He does not have any friends there as he doesn’t really interact

with them. He only wants to win or outdo the other kids. It is heartbreaking

– as you know. My dr comes back in two weeks and I will try to get the data

together to make him put him on antivirals. AS for the supplements, his

cysteine was low and my dr wanted me to put him on NAC and glutathione (I

also supplement with probiotics or he gets huge yeast issues!) My son had

neutropenia as an infant and always has low neutrophils, high eosinophils

(high normal now), high blood platelet count and low male hormones

(testosterone and androstenedione). I am almost ready to have a breakdown if

I can’t help him. I will cut back on supplements – should I give omegas of

any kind?

Thanks again,

freemanbk@...

From: [mailto: ] On Behalf Of Sloan

Sent: April-21-10 8:58 PM

Subject: Re: Fluoxetine makes child angry

Hi ,

We just returned a few weeks ago from seeing Dr. Goldberg for our son who is

6. He placed him on an anti-viral cause his titers are high... BUT he did

say that some kids have no titers until they are provoked with an anti-viral

and then they shoot up.

On another note, he scolded me (more like the DAN we were seeing before) for

" sometimes " using drugs (like you are the nystatin) because the fungus can

grow resistant to drugs if you go on & off.

Also to note, my son was on a lot of the supplements you mentioned. He

pulled him off all of them. I was terrified to do it, but he is doing much

better and his red ears have all but gone. So that is something to think

about. Perhaps your son has a allergy to one of his supplements.

Best!, Sloan

> >

> > He was been on nystatin a few months ago and I still give it

occasionally. The doctor will not prescribe antivirals as his HHV1-8 came

back fine. I do give LDN and I am hoping that if there are viruses they will

be kept regulated by the LDN. He has had tests done through Great Plains a

few years back and finally his doctor is looking at the B6 deficiency that

was indicated in the test. I give B6 50 mg and now he is able to have dreams

and recall them.

> >

> >

> >

> >

> >

> >

> >

> > From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

> > Sent: April-19-10 10:14 AM

> > <mailto:%40>

> > Subject: Re: Fluoxetine makes child angry

> >

> >

> >

> >

> >

> > what about an antiviral? antifungal?

> >

> > --- In <mailto:%40>

<mailto:%40> , " and Freeman " <freemanbk@>

wrote:

> > >

> > > We have been on fluoxetine since January. The first week was really

amazing! OCD stopped and he did not have any stims at all!! We had similar

results when we first tried Strattera †" really engaging, mannerisms

that we so normal it was incredible, joining in with everyone…and then

it started to just fade. This happens with our son †" something will

work amazingly and then it just fades. I know he is so close to being normal

because we see it every time we try something like the ssris but then it is

like his body goes back to the way it was. He gets nasty, makes fun of

people, doesn’t look when being spoken to, etc. I have kept him on

tryptophan but I have Cipralex (escitalopram oxalate tablet) which is

Lexapro but I am not sure if giving this is what our son needs. He has: high

oxalates, low cysteine and methionine and is taking NAC, glutathione oral

and vitamin c as well as b6 50 mg. I know this has something to do with his

digestion and don’t want to get him into a state where his brain

cannot function without an ssri….this is such a hard road to walk. Can

these kids ever come off the ssris? He turned 8 yesterday.

> > >

> > >

> > >

> > > He is currently on:

> > >

> > > vitamin c 1500 mg hypoallergenic

> > >

> > > NAC 350 mg,

> > >

> > > glutathione oral 300 mg,

> > >

> > > 3mg LDN,

> > >

> > > strattera 10 mg,

> > >

> > > creatine ½ teaspoon,

> > >

> > > 1000 mg carnitine,

> > >

> > > 50 mg B6, probiotics,

> > >

> > > theanine,

> > >

> > > tryptophan 300 mg.

> > >

> > >

> > >

> > > He get enzyme potentiated desensitization (EPD) shots for

environmental allergies every two months which seem to be lowering his

eosinophils to high normal but his neutrophils remain low and his blood

platelet count remains high. He has been following the diet as well as

low oxalate and we have an air cleaner for his room and the house. Any help

would be greatly appreciated. His main problem is not understanding the

effect his behaviour has on others and his impulsivity. He does well

academically but I feel he will struggle later on in school because he just

doesn’t have the ability to process things fast enough. He has a full

time aide because his behaviours are unpredictable. He steals and lies.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > From: <mailto:%40>

<mailto:%40> [mailto:

<mailto:%40> <mailto:%40> ] On Behalf

Of Robyn & Greg Coggins

> > > Sent: April-18-10 9:17 PM

> > > <mailto:%40>

<mailto:%40>

> > > Subject: Re: Fluoxetine makes child angry

> > >

> > >

> > >

> > >

> > >

> > > Did you recently increase the SSRI? If so, this can sometimes cause

problems; it usually takes about 10 days before they fully adjust. I would

avoid the use of tryptophan. If you believe the fluoxetine is the problem, I

would call his office and let them know or send the info in an update. We

went through several SSRIs before we found an effective one with no negative

side effects. With our middle son, we use a " cocktail " of SSRIs and SNRIs in

very small dosages. My other two are good with Celexa.

> > >

> > > All the best,

> > >

> > > Robyn

> > >

> > > ________________________________

> > > From: and Freeman <freemanbk@

<mailto:freemanbk%40ns.sympatico.ca> >

> > > <mailto:%40>

<mailto:%40> <mailto:%40>

> > > Sent: Sat, April 17, 2010 11:45:19 AM

> > > Subject: Fluoxetine makes child angry

> > >

> > > If you have a child on .8 ml of fluoxetine and they become very angry

after

> > > a few months of using it, what should you do? Does this mean that they

> > > should try another ssri? Is Prozac the best ssri for helping to heal

the

> > > brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> > > patient switches? was acting really good on fluoxetine for a few

weeks

> > > (at first he even acted extremely normal by following people and

> > > interacting) and then he started acting angry and deceitful. I don't

like

> > > his behaviour on the ssri. I gave him tryptophan but that makes him

sleepy

> > > and doesn't seem to really help with the mood...I would like some help

with

> > > this.

> > >

> > >

[Guest guest]

>

> ,

>

> Did you ever consider that maybe the reason things work for a short time is

> because you have hope and are excited that this treatment may be the answer

> you have been searching for? I know when was little he was attached to

> my hip. I was his window to the world and when I had PMS, he was out of

> control. When I was upbeat and hopeful, he seemed better.

>

>

>

> Once I did an experiment. When he was crabby I cranked on the rock and roll

> and started dancing around the house to see if I could change the way he was

> acting. Soon he was better. That was when I came up with the " If you don't

> feel it, fake it " treatment. Sometimes instead of rock and roll this

> treatment would consist of ignoring bad behavior and changing the scenery

> when things were melting down. I'd take him for a walk, bike ride or throw

> him in the car and we would go somewhere, anywhere else. (park, mall,

> grocery store or anything to change our outlook)

>

>

>

> Our kids are hard and we are often wracked with fear and anxiety about how

> things will be for them in the future. It is often depressing and hard to

> get up each day and keep going, but what other choice do we have? And is

> the process we sometimes forget to be their mommy and make them hug us even

> when we don't want them to or they don't want to. I used to tell , "

> You have to hug me. I'm your mommy and it's your job. "

>

>

>

> When things were spiraling out of control or I was obsessing over the

> smallest parts of the diet or medical, I would try to remember I had to

> treat him like a kid. There were days when I cancelled all the therapies

> and just got to be mommy. We need that and they need that from us also. I

> didn't want to be the doctor or behavior therapist anymore. When I didn't

> have hope or a plan it was the hardest time for me.

>

>

>

> When I couldn't go on, I would tell myself he was weird, but many weird

> people made it. What about Einstein, Bill Gates, Jacque Cousteau and

> Edison. All these guys didn't really fit but they did okay. Aw, the mind

> games we have to play to keep going at this. Another therapy for me was

> doing something nice for someone else or helping another parent. It got me

> out of my pity party and focused on something tangible and good to do.

> Helping others is great therapy for all of us. That is why I have stayed on

> this list for so long. It really is about how much it helps me too.

>

> Hope this helps,

>

> Marcia

>

>

>

> P.S. I don't know where you live but if your doctor isn't helping, it might

> be time to get to Dr. or Dr. G

>

>

>

>

[Guest guest]

You have great words of wisdom, Marcia! An autism-mom has to learn to do that

through the marathon we call " recovery " . We have to expect bad days and we know

good days will come. We can't let the bad days get us down. I have been guilty

of getting overwhelmed but I noticed there is always a better day and I worry

too quickly when we have a bad one.

However, my daughter totally stopped tolerating her meds. Her big problem is

allergies and they do cause anger, over emotional behavior.

If allergies are an issue (and it could be chemical allergies like my daughter

has) your child can exhibit angry and defiant behavior. I just uploaded some

before and after videos on youtube of my daughter I will share them shortly. I

think if you are having way too many bad days in a row with no break in between

something is wrong. But that is my personal experience.

Its a hard road, autism recovery, but what is the alternative? We can't just

watch our children disappear into their own worlds...and not only that, we do

not know the future of their health if we ignore this. How many old people with

autism have you seen lately??? Hmmmm...

-

> >

> > ,

> >

> > Did you ever consider that maybe the reason things work for a short time is

> > because you have hope and are excited that this treatment may be the answer

> > you have been searching for? I know when was little he was attached to

> > my hip. I was his window to the world and when I had PMS, he was out of

> > control. When I was upbeat and hopeful, he seemed better.

> >

> >

> >

> > Once I did an experiment. When he was crabby I cranked on the rock and roll

> > and started dancing around the house to see if I could change the way he was

> > acting. Soon he was better. That was when I came up with the " If you don't

> > feel it, fake it " treatment. Sometimes instead of rock and roll this

> > treatment would consist of ignoring bad behavior and changing the scenery

> > when things were melting down. I'd take him for a walk, bike ride or throw

> > him in the car and we would go somewhere, anywhere else. (park, mall,

> > grocery store or anything to change our outlook)

> >

> >

> >

> > Our kids are hard and we are often wracked with fear and anxiety about how

> > things will be for them in the future. It is often depressing and hard to

> > get up each day and keep going, but what other choice do we have? And is

> > the process we sometimes forget to be their mommy and make them hug us even

> > when we don't want them to or they don't want to. I used to tell , "

> > You have to hug me. I'm your mommy and it's your job. "

> >

> >

> >

> > When things were spiraling out of control or I was obsessing over the

> > smallest parts of the diet or medical, I would try to remember I had to

> > treat him like a kid. There were days when I cancelled all the therapies

> > and just got to be mommy. We need that and they need that from us also. I

> > didn't want to be the doctor or behavior therapist anymore. When I didn't

> > have hope or a plan it was the hardest time for me.

> >

> >

> >

> > When I couldn't go on, I would tell myself he was weird, but many weird

> > people made it. What about Einstein, Bill Gates, Jacque Cousteau and

> > Edison. All these guys didn't really fit but they did okay. Aw, the mind

> > games we have to play to keep going at this. Another therapy for me was

> > doing something nice for someone else or helping another parent. It got me

> > out of my pity party and focused on something tangible and good to do.

> > Helping others is great therapy for all of us. That is why I have stayed on

> > this list for so long. It really is about how much it helps me too.

> >

> > Hope this helps,

> >

> > Marcia

> >

> >

> >

> > P.S. I don't know where you live but if your doctor isn't helping, it might

> > be time to get to Dr. or Dr. G

> >

> >

> >

> >

[Guest guest]

,

Hey. I have been meaning to send you an email privately but maybe my

question is the same for someone else with allergy issues.

We just went through P/N testing largely because of the stories you shared

about your daughter. Although Dr. G did not encourage us to do this and

probably would have said " no " if we had asked first, we found P/N testing

helpful as we are trying to pinpoint what is causing his food allergy issues

in our son's already restricted diet. However, my question is . . . Are the

P/N shots which contain the antigen or the actual trigger foods going to

cause a problem? His dark circles remain after a month on P/N treatment. I

am just wondering if it would be better to just remove the offending foods

and forget about the shots. We haven't had a chance to even get to the

environmental and chemical piece yet BTW.

Also, even though our son did not test positive to wheat, baker's yeast and

strawberry Dr. G says not to give it to him. So we are not going to allow it

just to err on the side of caution.

Thanks for sharing your stories. I think moving forward with P/N moved us

forward with .

Gratefully,

Martha

On Fri, Apr 23, 2010 at 8:23 AM, <jlhank80@...> wrote:

>

>

>

> You have great words of wisdom, Marcia! An autism-mom has to learn to do

> that through the marathon we call " recovery " . We have to expect bad days and

> we know good days will come. We can't let the bad days get us down. I have

> been guilty of getting overwhelmed but I noticed there is always a better

> day and I worry too quickly when we have a bad one.

>

> However, my daughter totally stopped tolerating her meds. Her big problem

> is allergies and they do cause anger, over emotional behavior.

> If allergies are an issue (and it could be chemical allergies like my

> daughter has) your child can exhibit angry and defiant behavior. I just

> uploaded some before and after videos on youtube of my daughter I will share

> them shortly. I think if you are having way too many bad days in a row with

> no break in between something is wrong. But that is my personal experience.

>

> Its a hard road, autism recovery, but what is the alternative? We can't

> just watch our children disappear into their own worlds...and not only that,

> we do not know the future of their health if we ignore this. How many old

> people with autism have you seen lately??? Hmmmm...

>

> -

>

>

> > >

> > > ,

> > >

> > > Did you ever consider that maybe the reason things work for a short

> time is

> > > because you have hope and are excited that this treatment may be the

> answer

> > > you have been searching for? I know when was little he was

> attached to

> > > my hip. I was his window to the world and when I had PMS, he was out of

> > > control. When I was upbeat and hopeful, he seemed better.

> > >

> > >

> > >

> > > Once I did an experiment. When he was crabby I cranked on the rock and

> roll

> > > and started dancing around the house to see if I could change the way

> he was

> > > acting. Soon he was better. That was when I came up with the " If you

> don't

> > > feel it, fake it " treatment. Sometimes instead of rock and roll this

> > > treatment would consist of ignoring bad behavior and changing the

> scenery

> > > when things were melting down. I'd take him for a walk, bike ride or

> throw

> > > him in the car and we would go somewhere, anywhere else. (park, mall,

> > > grocery store or anything to change our outlook)

> > >

> > >

> > >

> > > Our kids are hard and we are often wracked with fear and anxiety about

> how

> > > things will be for them in the future. It is often depressing and hard

> to

> > > get up each day and keep going, but what other choice do we have? And

> is

> > > the process we sometimes forget to be their mommy and make them hug us

> even

> > > when we don't want them to or they don't want to. I used to tell ,

> "

> > > You have to hug me. I'm your mommy and it's your job. "

> > >

> > >

> > >

> > > When things were spiraling out of control or I was obsessing over the

> > > smallest parts of the diet or medical, I would try to remember I had to

> > > treat him like a kid. There were days when I cancelled all the

> therapies

> > > and just got to be mommy. We need that and they need that from us also.

> I

> > > didn't want to be the doctor or behavior therapist anymore. When I

> didn't

> > > have hope or a plan it was the hardest time for me.

> > >

> > >

> > >

> > > When I couldn't go on, I would tell myself he was weird, but many weird

> > > people made it. What about Einstein, Bill Gates, Jacque Cousteau and

>

> > > Edison. All these guys didn't really fit but they did okay. Aw, the

> mind

> > > games we have to play to keep going at this. Another therapy for me was

> > > doing something nice for someone else or helping another parent. It got

> me

> > > out of my pity party and focused on something tangible and good to do.

> > > Helping others is great therapy for all of us. That is why I have

> stayed on

> > > this list for so long. It really is about how much it helps me too.

> > >

> > > Hope this helps,

> > >

> > > Marcia

> > >

> > >

> > >

> > > P.S. I don't know where you live but if your doctor isn't helping, it

> might

> > > be time to get to Dr. or Dr. G

> > >

> > >

> > >

> > >

[Guest guest]

We are doing EPD (enzyme potentiated desensitization therapy) shots here in

Nova Scotia. I think a lot of the anger we are getting lately is because we

are also doing LDN and maybe have not provided enough antifungal such as

nystatin. I will begin tonight giving him nystatin and see if it clears up.

Also, he also is low in lipase - are digestive enzymes allowed in the

protocol?

Re: Re: Fluoxetine makes child angry

,

Hey. I have been meaning to send you an email privately but maybe my

question is the same for someone else with allergy issues.

We just went through P/N testing largely because of the stories you shared

about your daughter. Although Dr. G did not encourage us to do this and

probably would have said " no " if we had asked first, we found P/N testing

helpful as we are trying to pinpoint what is causing his food allergy issues

in our son's already restricted diet. However, my question is . . . Are the

P/N shots which contain the antigen or the actual trigger foods going to

cause a problem? His dark circles remain after a month on P/N treatment. I

am just wondering if it would be better to just remove the offending foods

and forget about the shots. We haven't had a chance to even get to the

environmental and chemical piece yet BTW.

Also, even though our son did not test positive to wheat, baker's yeast and

strawberry Dr. G says not to give it to him. So we are not going to allow it

just to err on the side of caution.

Thanks for sharing your stories. I think moving forward with P/N moved us

forward with .

Gratefully,

Martha

On Fri, Apr 23, 2010 at 8:23 AM, <jlhank80@...> wrote:

>

>

>

> You have great words of wisdom, Marcia! An autism-mom has to learn to do

> that through the marathon we call " recovery " . We have to expect bad days

and

> we know good days will come. We can't let the bad days get us down. I have

> been guilty of getting overwhelmed but I noticed there is always a better

> day and I worry too quickly when we have a bad one.

>

> However, my daughter totally stopped tolerating her meds. Her big problem

> is allergies and they do cause anger, over emotional behavior.

> If allergies are an issue (and it could be chemical allergies like my

> daughter has) your child can exhibit angry and defiant behavior. I just

> uploaded some before and after videos on youtube of my daughter I will

share

> them shortly. I think if you are having way too many bad days in a row

with

> no break in between something is wrong. But that is my personal

experience.

>

> Its a hard road, autism recovery, but what is the alternative? We can't

> just watch our children disappear into their own worlds...and not only

that,

> we do not know the future of their health if we ignore this. How many old

> people with autism have you seen lately??? Hmmmm...

>

> -

>

>

> > >

> > > ,

> > >

> > > Did you ever consider that maybe the reason things work for a short

> time is

> > > because you have hope and are excited that this treatment may be the

> answer

> > > you have been searching for? I know when was little he was

> attached to

> > > my hip. I was his window to the world and when I had PMS, he was out

of

> > > control. When I was upbeat and hopeful, he seemed better.

> > >

> > >

> > >

> > > Once I did an experiment. When he was crabby I cranked on the rock and

> roll

> > > and started dancing around the house to see if I could change the way

> he was

> > > acting. Soon he was better. That was when I came up with the " If you

> don't

> > > feel it, fake it " treatment. Sometimes instead of rock and roll this

> > > treatment would consist of ignoring bad behavior and changing the

> scenery

> > > when things were melting down. I'd take him for a walk, bike ride or

> throw

> > > him in the car and we would go somewhere, anywhere else. (park, mall,

> > > grocery store or anything to change our outlook)

> > >

> > >

> > >

> > > Our kids are hard and we are often wracked with fear and anxiety about

> how

> > > things will be for them in the future. It is often depressing and hard

> to

> > > get up each day and keep going, but what other choice do we have? And

> is

> > > the process we sometimes forget to be their mommy and make them hug us

> even

> > > when we don't want them to or they don't want to. I used to tell ,

> "

> > > You have to hug me. I'm your mommy and it's your job. "

> > >

> > >

> > >

> > > When things were spiraling out of control or I was obsessing over the

> > > smallest parts of the diet or medical, I would try to remember I had

to

> > > treat him like a kid. There were days when I cancelled all the

> therapies

> > > and just got to be mommy. We need that and they need that from us

also.

> I

> > > didn't want to be the doctor or behavior therapist anymore. When I

> didn't

> > > have hope or a plan it was the hardest time for me.

> > >

> > >

> > >

> > > When I couldn't go on, I would tell myself he was weird, but many

weird

> > > people made it. What about Einstein, Bill Gates, Jacque Cousteau and

>

> > > Edison. All these guys didn't really fit but they did okay. Aw, the

> mind

> > > games we have to play to keep going at this. Another therapy for me

was

> > > doing something nice for someone else or helping another parent. It

got

> me

> > > out of my pity party and focused on something tangible and good to do.

> > > Helping others is great therapy for all of us. That is why I have

> stayed on

> > > this list for so long. It really is about how much it helps me too.

> > >

> > > Hope this helps,

> > >

> > > Marcia

> > >

> > >

> > >

> > > P.S. I don't know where you live but if your doctor isn't helping, it

> might

> > > be time to get to Dr. or Dr. G

> > >

> > >

> > >

> > >

[Guest guest]

No. No digestive enzymes. Basically, everything in DAN is pretty much not in

. Except Antiviral, antifungal.

Cheryl

~http://www.gryffins-tail.blogspot.com

~@midian42~

On Apr 23, 2010, at 7:41 AM, and Freeman wrote:

> We are doing EPD (enzyme potentiated desensitization therapy) shots here in

> Nova Scotia. I think a lot of the anger we are getting lately is because we

> are also doing LDN and maybe have not provided enough antifungal such as

> nystatin. I will begin tonight giving him nystatin and see if it clears up.

> Also, he also is low in lipase - are digestive enzymes allowed in the

> protocol?

>

>

>

> Re: Re: Fluoxetine makes child angry

>

> ,

> Hey. I have been meaning to send you an email privately but maybe my

> question is the same for someone else with allergy issues.

>

> We just went through P/N testing largely because of the stories you shared

> about your daughter. Although Dr. G did not encourage us to do this and

> probably would have said " no " if we had asked first, we found P/N testing

> helpful as we are trying to pinpoint what is causing his food allergy issues

> in our son's already restricted diet. However, my question is . . . Are the

> P/N shots which contain the antigen or the actual trigger foods going to

> cause a problem? His dark circles remain after a month on P/N treatment. I

> am just wondering if it would be better to just remove the offending foods

> and forget about the shots. We haven't had a chance to even get to the

> environmental and chemical piece yet BTW.

>

> Also, even though our son did not test positive to wheat, baker's yeast and

> strawberry Dr. G says not to give it to him. So we are not going to allow it

> just to err on the side of caution.

>

> Thanks for sharing your stories. I think moving forward with P/N moved us

> forward with .

> Gratefully,

> Martha

>

> On Fri, Apr 23, 2010 at 8:23 AM, <jlhank80@...> wrote:

>

> >

> >

> >

> > You have great words of wisdom, Marcia! An autism-mom has to learn to do

> > that through the marathon we call " recovery " . We have to expect bad days

> and

> > we know good days will come. We can't let the bad days get us down. I have

> > been guilty of getting overwhelmed but I noticed there is always a better

> > day and I worry too quickly when we have a bad one.

> >

> > However, my daughter totally stopped tolerating her meds. Her big problem

> > is allergies and they do cause anger, over emotional behavior.

> > If allergies are an issue (and it could be chemical allergies like my

> > daughter has) your child can exhibit angry and defiant behavior. I just

> > uploaded some before and after videos on youtube of my daughter I will

> share

> > them shortly. I think if you are having way too many bad days in a row

> with

> > no break in between something is wrong. But that is my personal

> experience.

> >

> > Its a hard road, autism recovery, but what is the alternative? We can't

> > just watch our children disappear into their own worlds...and not only

> that,

> > we do not know the future of their health if we ignore this. How many old

> > people with autism have you seen lately??? Hmmmm...

> >

> > -

> >

> >

> > > >

> > > > ,

> > > >

> > > > Did you ever consider that maybe the reason things work for a short

> > time is

> > > > because you have hope and are excited that this treatment may be the

> > answer

> > > > you have been searching for? I know when was little he was

> > attached to

> > > > my hip. I was his window to the world and when I had PMS, he was out

> of

> > > > control. When I was upbeat and hopeful, he seemed better.

> > > >

> > > >

> > > >

> > > > Once I did an experiment. When he was crabby I cranked on the rock and

> > roll

> > > > and started dancing around the house to see if I could change the way

> > he was

> > > > acting. Soon he was better. That was when I came up with the " If you

> > don't

> > > > feel it, fake it " treatment. Sometimes instead of rock and roll this

> > > > treatment would consist of ignoring bad behavior and changing the

> > scenery

> > > > when things were melting down. I'd take him for a walk, bike ride or

> > throw

> > > > him in the car and we would go somewhere, anywhere else. (park, mall,

> > > > grocery store or anything to change our outlook)

> > > >

> > > >

> > > >

> > > > Our kids are hard and we are often wracked with fear and anxiety about

> > how

> > > > things will be for them in the future. It is often depressing and hard

> > to

> > > > get up each day and keep going, but what other choice do we have? And

> > is

> > > > the process we sometimes forget to be their mommy and make them hug us

> > even

> > > > when we don't want them to or they don't want to. I used to tell ,

> > "

> > > > You have to hug me. I'm your mommy and it's your job. "

> > > >

> > > >

> > > >

> > > > When things were spiraling out of control or I was obsessing over the

> > > > smallest parts of the diet or medical, I would try to remember I had

> to

> > > > treat him like a kid. There were days when I cancelled all the

> > therapies

> > > > and just got to be mommy. We need that and they need that from us

> also.

> > I

> > > > didn't want to be the doctor or behavior therapist anymore. When I

> > didn't

> > > > have hope or a plan it was the hardest time for me.

> > > >

> > > >

> > > >

> > > > When I couldn't go on, I would tell myself he was weird, but many

> weird

> > > > people made it. What about Einstein, Bill Gates, Jacque Cousteau and

> >

> > > > Edison. All these guys didn't really fit but they did okay. Aw, the

> > mind

> > > > games we have to play to keep going at this. Another therapy for me

> was

> > > > doing something nice for someone else or helping another parent. It

> got

> > me

> > > > out of my pity party and focused on something tangible and good to do.

> > > > Helping others is great therapy for all of us. That is why I have

> > stayed on

> > > > this list for so long. It really is about how much it helps me too.

> > > >

> > > > Hope this helps,

> > > >

> > > > Marcia

> > > >

> > > >

> > > >

> > > > P.S. I don't know where you live but if your doctor isn't helping, it

> > might

> > > > be time to get to Dr. or Dr. G

> > > >

> > > >

> > > >

> > > >

[Guest guest]

My son responded this way with all ssri's. He would do great and then need to

be switched. I think the longest he was on one was 6 months, give or take. And

the time between switching got shorter and shorter. We eventually dropped the

ssri's and saw huge improvements - after the withdrawal was over (withdrawal

took a month and that's not including titrating down for 2.5 months). We no

longer see Dr. G, though.

I don't know what .8 ml translates into for mg. How many mg is the dose? That

will help compare his dose to others. I don't remember what my son was on.

Cheryl

~http://www.gryffins-tail.blogspot.com

~@midian42~

On Apr 17, 2010, at 11:45 AM, and Freeman wrote:

> If you have a child on .8 ml of fluoxetine and they become very angry after

> a few months of using it, what should you do? Does this mean that they

> should try another ssri? Is Prozac the best ssri for helping to heal the

> brain - I know Dr. G sometimes prescribes Prozac - does he mind if the

> patient switches? was acting really good on fluoxetine for a few weeks

> (at first he even acted extremely normal by following people and

> interacting) and then he started acting angry and deceitful. I don't like

> his behaviour on the ssri. I gave him tryptophan but that makes him sleepy

> and doesn't seem to really help with the mood...I would like some help with

> this.

>

>