Re: How to do the extensive testing?

[Guest guest]

Hey Tammy,

What insurance do you have?  Does it require a referral from your primary care

to get coverage for labs?  Is it Tricare or United Healthcare or something?

I don't know if Dr G's list serves as orders or not... he'd have to have an

account number or physician ID# on it for it to be sufficient for him to order

the tests, so you do kinda need your local doc's cooperation.  If you start the

meds, the follow up tests will be easy enough since it's mostly CBCs and chem

panels, but this first batch is just harder.

Anyway, if your insurance requires the orders to be done by a PCP (you want to

confirm that is so), then you may have to wait for your visit w/Dr G to get

them, which wouldn't be that big of a deal.  But if it isn't all about who

ordered it, you could go to a doc-in-the-box and find out if they would do

it....

Sometimes it's better to maintain your relationship with the pediatrician than

to go to your first visit w/labs in hand.

HTH

________________________________

From: Tammy Koupal <tamkoupal@...>

< >

Sent: Tue, May 4, 2010 3:29:28 PM

Subject: How to do the extensive testing?

 

Hello,

Does anyone out there have recommendations for how to go about getting all the

follow-up testing done that Dr. G orders. We were able to convince our existing

pediatrician (who is a DAN) to run the initial tests leading up to our first

visit with Dr. G, but now here we are nearly two months later and our doc does

" not see the point " of the test Dr. G wants and won't work with us on this--even

after hearing from Dr. G himself. This means our insurance will likely not be

covering it...

Dr. G has ordered what looks like a couple grand worth of blood tests. I am not

questioning the need for this at all, but am wondering how other people go about

it when their PCP won't go along. Is there a lab nationally that folks use? I

understand that what Dr. G sent us serves as a doctor's order for the blood

work, so we can go get the blood drawn for all this, but I'm not sure where to

send it. When we go thru our usual doc it is all done through our local

university hospital system. Now I'm not sure that's the route to go. Any

suggestions would be really appreciated.

Even though we're new to this, we're committed, and want to follow Dr. G's

instructions. Our 7 year old son, who usually only answers yes/no questions with

a prompt, told us at breakfast this morning that he wants piano lessons!!

Thanks in advance...

Tammy

[Guest guest]

Hi Tammy.

 

I am not sure how you feel about your pediatrician, but mine (we are here on the

East Coast) is cooperating with the protocol.  When my son started, my

pediatrician agreed that we cannot wait for science to catch up and Dr. Goldberg

doesn't prescribe or do anything that is dangerous.  I think he talked to him

at least once in the beginning. If it were me, I would consider getting another

pediatrician.  I think you need to have someone with an open mind. The labwork

will be able to help find out whether or not your child's problems are

neuroimmune related.

 

Good luck. 

 

Lynn

From: Tammy Koupal <tamkoupal@...>

Subject: How to do the extensive testing?

" " < >

Date: Tuesday, May 4, 2010, 4:29 PM

 

Hello,

Does anyone out there have recommendations for how to go about getting all the

follow-up testing done that Dr. G orders. We were able to convince our existing

pediatrician (who is a DAN) to run the initial tests leading up to our first

visit with Dr. G, but now here we are nearly two months later and our doc does

" not see the point " of the test Dr. G wants and won't work with us on this--even

after hearing from Dr. G himself. This means our insurance will likely not be

covering it...

Dr. G has ordered what looks like a couple grand worth of blood tests. I am not

questioning the need for this at all, but am wondering how other people go about

it when their PCP won't go along. Is there a lab nationally that folks use? I

understand that what Dr. G sent us serves as a doctor's order for the blood

work, so we can go get the blood drawn for all this, but I'm not sure where to

send it. When we go thru our usual doc it is all done through our local

university hospital system. Now I'm not sure that's the route to go. Any

suggestions would be really appreciated.

Even though we're new to this, we're committed, and want to follow Dr. G's

instructions. Our 7 year old son, who usually only answers yes/no questions with

a prompt, told us at breakfast this morning that he wants piano lessons!!

Thanks in advance...

Tammy

[Guest guest]

Can I ask, what labs did you do that showed neuroimmune issues? Thank you.

From: [mailto: ] On Behalf Of Lynn

Capone

Sent: May-04-10 8:46 PM

Subject: Re: How to do the extensive testing?

Hi Tammy.

I am not sure how you feel about your pediatrician, but mine (we are here on the

East Coast) is cooperating with the protocol. When my son started, my

pediatrician agreed that we cannot wait for science to catch up and Dr. Goldberg

doesn't prescribe or do anything that is dangerous. I think he talked to him at

least once in the beginning. If it were me, I would consider getting another

pediatrician. I think you need to have someone with an open mind. The labwork

will be able to help find out whether or not your child's problems are

neuroimmune related.

Good luck.

Lynn

From: Tammy Koupal <tamkoupal@... <mailto:tamkoupal%40comcast.net> >

Subject: How to do the extensive testing?

" " < <mailto:%40> >

Date: Tuesday, May 4, 2010, 4:29 PM

Hello,

Does anyone out there have recommendations for how to go about getting all the

follow-up testing done that Dr. G orders. We were able to convince our existing

pediatrician (who is a DAN) to run the initial tests leading up to our first

visit with Dr. G, but now here we are nearly two months later and our doc does

" not see the point " of the test Dr. G wants and won't work with us on this--even

after hearing from Dr. G himself. This means our insurance will likely not be

covering it...

Dr. G has ordered what looks like a couple grand worth of blood tests. I am not

questioning the need for this at all, but am wondering how other people go about

it when their PCP won't go along. Is there a lab nationally that folks use? I

understand that what Dr. G sent us serves as a doctor's order for the blood

work, so we can go get the blood drawn for all this, but I'm not sure where to

send it. When we go thru our usual doc it is all done through our local

university hospital system. Now I'm not sure that's the route to go. Any

suggestions would be really appreciated.

Even though we're new to this, we're committed, and want to follow Dr. G's

instructions. Our 7 year old son, who usually only answers yes/no questions with

a prompt, told us at breakfast this morning that he wants piano lessons!!

Thanks in advance...

Tammy

[Guest guest]

I believe for my child it was the white blood cell counts, lymphocytes,

monocytes. (These have to do with your immune system fighting infection.) 

Also, easonophils (allergy cells.)

This was for my son, but there may be other markers that he saw as an

indication.  I am not sure if his elevated liver count is included under

neuroimmune, but it is now normal.  There is so much info in regards to medical

and learning for yourself what therapies that are appropriate, that I may have

missed some things that point in that direction.

From: Tammy Koupal <tamkoupalcomcast (DOT) net <mailto:tamkoupal% 40comcast. net> >

Subject: How to do the extensive testing?

" " <groups (DOT) com <mailto:% 40groups. com> >

Date: Tuesday, May 4, 2010, 4:29 PM

Hello,

Does anyone out there have recommendations for how to go about getting all the

follow-up testing done that Dr. G orders. We were able to convince our existing

pediatrician (who is a DAN) to run the initial tests leading up to our first

visit with Dr. G, but now here we are nearly two months later and our doc does

" not see the point " of the test Dr. G wants and won't work with us on this--even

after hearing from Dr. G himself. This means our insurance will likely not be

covering it...

Dr. G has ordered what looks like a couple grand worth of blood tests. I am not

questioning the need for this at all, but am wondering how other people go about

it when their PCP won't go along. Is there a lab nationally that folks use? I

understand that what Dr. G sent us serves as a doctor's order for the blood

work, so we can go get the blood drawn for all this, but I'm not sure where to

send it. When we go thru our usual doc it is all done through our local

university hospital system. Now I'm not sure that's the route to go. Any

suggestions would be really appreciated.

Even though we're new to this, we're committed, and want to follow Dr. G's

instructions. Our 7 year old son, who usually only answers yes/no questions with

a prompt, told us at breakfast this morning that he wants piano lessons!!

Thanks in advance...

Tammy

[Guest guest]

Tammy,

One thing which matters on whether or not the labs get covered is the

diagnosis code on the lab order. Dr. Goldberg uses 279.3 (unspecified

immunity deficiency) and 477.9 (allergic rhinitis, cause unspecified) on the

labs for my boys.

HTH,

Caroline

[Guest guest]

Thanks everyone. I think I will take our son over to the the blood draw site we

use for the U-M Hospital system and put in the order, give them our insurance

card and cross fingers we don't get slapped with a big bill. My concern is that

we have an HMO and Dr. G is an out of state doctor not referred by our PCP. Ya?

We have the diagnosis codes right for immune disfunction, but it's the HMO

limitations that might hang us up. Like I said, our local pediatrician was

willing to order all the initial tests, so we have those and they were covered.

He's just not wiling to now order the follow-up work Dr. G wants. He doesn't see

the point and has told me himself that he is paranoid about being audited by the

insurance company. They have been known to slap alternative docs with huge bills

for services that according to them are " unwarranted " . He is closing his

practice soon (largely because of this concern) so we have to find a new doc

anyway. Anyone know a good, -sympathetic pediatrician in the Ann Arbor,

Michigan area?

--Tammy

Re: How to do the extensive testing?

Tammy,

One thing which matters on whether or not the labs get covered is the

diagnosis code on the lab order. Dr. Goldberg uses 279.3 (unspecified

immunity deficiency) and 477.9 (allergic rhinitis, cause unspecified) on the

labs for my boys.

HTH,

Caroline

[Guest guest]

I also forgot to mention high levels of Herpes I/II or Herpes 6 viruses is also

an indication of

neuroimmune problems.........Lynn

From: Tammy Koupal <tamkoupalcomcast (DOT) net <mailto:tamkoupal% 40comcast. net> >

Subject: How to do the extensive testing?

" " <groups (DOT) com <mailto:% 40groups. com> >

Date: Tuesday, May 4, 2010, 4:29 PM

Hello,

Does anyone out there have recommendations for how to go about getting all the

follow-up testing done that Dr. G orders. We were able to convince our existing

pediatrician (who is a DAN) to run the initial tests leading up to our first

visit with Dr. G, but now here we are nearly two months later and our doc does

" not see the point " of the test Dr. G wants and won't work with us on this--even

after hearing from Dr. G himself. This means our insurance will likely not be

covering it...

Dr. G has ordered what looks like a couple grand worth of blood tests. I am not

questioning the need for this at all, but am wondering how other people go about

it when their PCP won't go along. Is there a lab nationally that folks use? I

understand that what Dr. G sent us serves as a doctor's order for the blood

work, so we can go get the blood drawn for all this, but I'm not sure where to

send it. When we go thru our usual doc it is all done through our local

university hospital system. Now I'm not sure that's the route to go. Any

suggestions would be really appreciated.

Even though we're new to this, we're committed, and want to follow Dr. G's

instructions. Our 7 year old son, who usually only answers yes/no questions with

a prompt, told us at breakfast this morning that he wants piano lessons!!

Thanks in advance...

Tammy