Re: Respirodal

[Guest guest]

It is considered a 'band-aid' medicine, and not something that helps target the

underlying problem, so Dr G does not use it. 

HTH

________________________________

From: and Freeman <freemanbk@...>

Sent: Wed, May 12, 2010 8:29:39 PM

Subject: Respirodal

 

What is the view of respirodal for children?

[Guest guest]

We have our son on extremely strict diet (gf/cf, dye free, low oxalate, low

sugar, etc. etc.), Austin air cleaner, dust mite bed cover as well as pillow

cover, Complete probiotics twice per day, ibuprofen, tried ldn until it brought

out the ‘meanies’ in our son, 12 months of pivotal response (PRT), etc. etc.

and still we have a child who plots against his schoolmates and any peer that

seems intimidating. We are starting on risperadol (.025 ml/day) and have seen

some nice calmness in him. Every time we start something new we get nice changes

and then it just blows up in our face. He ends up getting aggressive and mean.

We have tried SSRIs, strattera, clonidine, and nothing seems to take away that

mean edge. He has been tested for every HHV virus and nothing has shown up.

Thyroid looks good, digestive enzymes look good, mri/mra was clear, he does have

low cysteine at times and we fight off lots of yeast but besides that there

hasn’t been much to go on with him....I see these meds as a band-aid as well

but I am also trying to get him through the day.

From: [mailto: ] On Behalf Of

Sent: May-13-10 7:56 PM

Subject: Re: Respirodal

It is considered a 'band-aid' medicine, and not something that helps target the

underlying problem, so Dr G does not use it.

HTH

________________________________

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

<mailto:%40>

Sent: Wed, May 12, 2010 8:29:39 PM

Subject: Respirodal

What is the view of respirodal for children?

[Guest guest]

I have been doing biomed treatments for the last 4 years. It may be considered a

band -aid treatment but if  not for Respirodal my son would still be running

his heads into walls, naked , angry ,miserable, and not learning.

 He is in every sense a new child, behaviors are only when he is " set up " so we

can work on them. For example not always being first in line.

I know familys are scared and I'm always checking prolactine levels but 

atleast I have a happy child who is reading and actually sitting in his class.

And yes I still continue with our Bio-med treatments and yes we have done

everything(chelation, IVIG, secretin, Yasko,gfcf  PK flushes, hbot, ect.).

We all want our children healed but remember they are children and if there is a

chance to give them some happiness  through these years of horrible treatments

then  we shouldn't push that chance aside.

From: <thecolemans4@...>

Subject: Re: Respirodal

Date: Thursday, May 13, 2010, 10:56 PM

 

It is considered a 'band-aid' medicine, and not something that helps target the

underlying problem, so Dr G does not use it. 

HTH

____________ _________ _________ __

From: and Freeman <freemanbkns (DOT) sympatico. ca>

groups (DOT) com

Sent: Wed, May 12, 2010 8:29:39 PM

Subject: Respirodal

 

What is the view of respirodal for children?

[Guest guest]

We have a teenager that was aggressive toward others and it came down to how we

were handling the aggressive behavior. From past experience Risperadal will only

work for awhile then how are you going to handle this behavior. May I suggest

that you read (I know another book but this one really helps) Parent

Effectiveness Training by Gorden and also the Transformation Program by

Dr. Lehman. Please be open to looking at your home dynamics and how you are

letting your son handle his own problems remember these problems are not a

reflection on you (as parents)  these are his issues and he needs to learn how

deal with them properly.  If you have any need of additional support please

let me know. Follow Dr. G's protocol but look into these tools to help you help

your child.

From a parent that has been there and back. Blessings upon your day, Tresa

From: and Freeman <freemanbk@...>

Subject: RE: Respirodal

Date: Thursday, May 13, 2010, 6:35 PM

 

We have our son on extremely strict diet (gf/cf, dye free, low oxalate, low

sugar, etc. etc.), Austin air cleaner, dust mite bed cover as well as pillow

cover, Complete probiotics twice per day, ibuprofen, tried ldn until it brought

out the ‘meanies’ in our son, 12 months of pivotal response (PRT), etc. etc.

and still we have a child who plots against his schoolmates and any peer that

seems intimidating. We are starting on risperadol (.025 ml/day) and have seen

some nice calmness in him. Every time we start something new we get nice changes

and then it just blows up in our face. He ends up getting aggressive and mean.

We have tried SSRIs, strattera, clonidine, and nothing seems to take away that

mean edge. He has been tested for every HHV virus and nothing has shown up.

Thyroid looks good, digestive enzymes look good, mri/mra was clear, he does have

low cysteine at times and we fight off lots of yeast but besides that there

hasn’t been much to go

on with him....I see these meds as a band-aid as well but I am also trying to

get him through the day.

From: [mailto: ] On Behalf Of

Sent: May-13-10 7:56 PM

Subject: Re: Respirodal

It is considered a 'band-aid' medicine, and not something that helps target the

underlying problem, so Dr G does not use it.

HTH

________________________________

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

<mailto:%40>

Sent: Wed, May 12, 2010 8:29:39 PM

Subject: Respirodal

What is the view of respirodal for children?

[Guest guest]

Yes, in the Parenting Effectiveness Training By Gorden Chapter 5 goes

over on how to communicate with a child who is non-verbal. Hope this

helps--children with a neurological disorder from illness are just sick

children--if given a chance they will communicate their needs and wants even the

reasons why they are aggressive. Watch your child--look at your child as a

typical child who is sick--then what do you see? A child who is able to learn

and grow and be a vibrant part of a community. Most importantly, just because a

child is sick does not mean it needs its way or our pity they need guidelines

and most importantly they need to be valued as a human being. Not one of us on

this earth is perfect or without defect--look beyond the illness to the person

with unique abilities to love, laugh, and learn. Tresa

From: dlundgren5@... <dlundgren5@...>

Subject: Respirodal

Date: Sunday, May 16, 2010, 10:37 AM

 

I was wondering if those books would be helpful for a child who is nonverbal as

well?

Thank you

[Guest guest]

My son was a terror to himself and others on Strattera. Aggressive, manic, no

sleep, obsessive and self-destructive. I think we did some major damage because

I allowed a month trial period instead of stopping it immediately. Risperadal

sedated him, so he was easier to manage, but it did nothing to really help.

After 13 years of biomed, treating yeast, clostridia, and secretin infusions

brought about our best behavioral and cognitive changes. Right now, Adderral

has been a miracle for him during the school day. He is fully included with no

behavior problems thanks to the Adderral. He is still high functioning

autistic, so we continue with the biomed in hopes of resolving the remaining

issues.

>

>

> From: and Freeman <freemanbk@...>

> Subject: RE: Respirodal

>

> Date: Thursday, May 13, 2010, 6:35 PM

>

>

>  

>

>

>

> We have our son on extremely strict diet (gf/cf, dye free, low oxalate, low

sugar, etc. etc.), Austin air cleaner, dust mite bed cover as well as pillow

cover, Complete probiotics twice per day, ibuprofen, tried ldn until it brought

out the ‘meanies’ in our son, 12 months of pivotal response (PRT), etc. etc.

and still we have a child who plots against his schoolmates and any peer that

seems intimidating. We are starting on risperadol (.025 ml/day) and have seen

some nice calmness in him. Every time we start something new we get nice changes

and then it just blows up in our face. He ends up getting aggressive and mean.

We have tried SSRIs, strattera, clonidine, and nothing seems to take away that

mean edge. He has been tested for every HHV virus and nothing has shown up.

Thyroid looks good, digestive enzymes look good, mri/mra was clear, he does have

low cysteine at times and we fight off lots of yeast but besides that there

hasn’t been much to go

> on with him....I see these meds as a band-aid as well but I am also trying to

get him through the day.

>

> From: [mailto: ] On Behalf Of

> Sent: May-13-10 7:56 PM

>

> Subject: Re: Respirodal

>

> It is considered a 'band-aid' medicine, and not something that helps target

the underlying problem, so Dr G does not use it.

> HTH

>

>

> ________________________________

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

> <mailto:%40>

> Sent: Wed, May 12, 2010 8:29:39 PM

> Subject: Respirodal

>

> What is the view of respirodal for children?

>

>

[Guest guest]

I am new to this board but have been living with a child who lives with the

daily challenge of PDD-NOS, PANDAS, TS, and ADHD. He has had challenges for the

last 8 years following a strep infection and those challenges included violent

physical meltdowns. Two years ago, he started hurting himself and I could no

longer physically hold him down so we had to seek meds. I too thought of it as

a band aid and for five years did not seek them out, but instead did every

possible natural based treatment in France, the US and Japan. Now, we use

Respirodal on a daily basis, but his psych said that it is not uncommon with PDD

children and the dose he takes is about half what a child who takes it for other

psyh issues. The change was immediate and welcomed. We not longer have the

violent attacks, I don't have bruises all over, no more broken teeth from his

head slamming backward as I held him to keep him from hurting himself, he

doesn't attack his little sister...unless he doesn't get his meds right away in

the morning, and he actually has friends at school now.

I can understand why some people may refer to meds as band-aids, but I feel that

as a parent who personally has done everything but move the earth I don't think

it is fair to criticize another parent about their choices, particularly when

they have sought out all other possibilities. We have been given intelligence

to be advocates for our children and it is our right and duty to use the best of

whatever method works and scrap the rest because no treatment works the same for

every child.

Our personal experience was quite harsh and I would not change having tried

everything under the sun, and there are still part of different treatments we

continue because they work; BUT I also would not disregard traditional medicine

either because it does have some relevance. I do agree with the previous poster

though, it does need to be used with behavioral modification and we also found

Lehman's books and cd's wonderful, in particular we found the consequences

method useful for both of our children.

JMO,

Robin

[Guest guest]

I'm interested in a trial of Adderral ... have you had to deal with any

side-effects?  Is sleep a problem, and if it wears off during the afternoon,

does he have 'rebounds'?

Thanks,

________________________________

From: S <iferstevens@...>

Sent: Mon, May 17, 2010 6:32:17 AM

Subject: Re: Respirodal

 

My son was a terror to himself and others on Strattera. Aggressive, manic, no

sleep, obsessive and self-destructive. I think we did some major damage because

I allowed a month trial period instead of stopping it immediately. Risperadal

sedated him, so he was easier to manage, but it did nothing to really help.

After 13 years of biomed, treating yeast, clostridia, and secretin infusions

brought about our best behavioral and cognitive changes. Right now, Adderral has

been a miracle for him during the school day. He is fully included with no

behavior problems thanks to the Adderral. He is still high functioning autistic,

so we continue with the biomed in hopes of resolving the remaining issues.

>

>

> From: and Freeman <freemanbk@...>

> Subject: RE: Respirodal

>

> Date: Thursday, May 13, 2010, 6:35 PM

>

>

>  

>

>

>

> We have our son on extremely strict diet (gf/cf, dye free, low oxalate, low

sugar, etc. etc.), Austin air cleaner, dust mite bed cover as well as pillow

cover, Complete probiotics twice per day, ibuprofen, tried ldn until it brought

out the ‘meanies’ in our son, 12 months of pivotal response (PRT),

etc. etc. and still we have a child who plots against his schoolmates and any

peer that seems intimidating. We are starting on risperadol (.025 ml/day) and

have seen some nice calmness in him. Every time we start something new we get

nice changes and then it just blows up in our face. He ends up getting

aggressive and mean. We have tried SSRIs, strattera, clonidine, and nothing

seems to take away that mean edge. He has been tested for every HHV virus and

nothing has shown up. Thyroid looks good, digestive enzymes look good, mri/mra

was clear, he does have low cysteine at times and we fight off lots of yeast but

besides that there hasn’t

been much to go

> on with him....I see these meds as a band-aid as well but I am also trying to

get him through the day.

>

> From: [mailto: ] On Behalf Of

> Sent: May-13-10 7:56 PM

>

> Subject: Re: Respirodal

>

> It is considered a 'band-aid' medicine, and not something that helps target

the underlying problem, so Dr G does not use it.

> HTH

>

>

> ________________________________

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

> <mailto:%40>

> Sent: Wed, May 12, 2010 8:29:39 PM

> Subject: Respirodal

>

> What is the view of respirodal for children?

>

>

[Guest guest]

Hey ,

My younger son has been on it for several years (low dose). It¹s been a

great thing for him. He takes 1/2 of the dose in the morning, other half

late in the afternoon. He conks out almost upon hitting the pillow, so no

sleep issues here. In fact, sometimes HE tells ME he¹s tired and wants to

go to bed!

CAroline

From: <thecolemans4@...>

Reply-< >

Date: Mon, 17 May 2010 15:44:06 -0700 (PDT)

< >

Subject: Re: Re: Respirodal

I'm interested in a trial of Adderral ... have you had to deal with any

side-effects?  Is sleep a problem, and if it wears off during the afternoon,

does he have 'rebounds'?

Thanks,

[Guest guest]

Two side effects for us, loss of appetite, and he is cranky and argumentative in

the evening when it wears off. I am willing to put up with this in the evening

because I want him to eat a good meal, get a good nights sleep, (it is a

stimulant and would keep him awake if I gave him a second dose in the evening)

and his behavior during the school day is perfect. The quality of his school

work has improved as well.

I give it to him after he eats breakfast and takes his supplements, so he is

sure to get them in. He takes extended release so he does not need to take

another dose at school.

> >

> >

> > From: and Freeman <freemanbk@>

> > Subject: RE: Respirodal

> >

> > Date: Thursday, May 13, 2010, 6:35 PM

> >

> >

> >  

> >

> >

> >

> > We have our son on extremely strict diet (gf/cf, dye free, low oxalate, low

sugar, etc. etc.), Austin air cleaner, dust mite bed cover as well as pillow

cover, Complete probiotics twice per day, ibuprofen, tried ldn until it brought

out the ‘meanies’ in our son, 12 months of pivotal response (PRT),

etc. etc. and still we have a child who plots against his schoolmates and any

peer that seems intimidating. We are starting on risperadol (.025 ml/day) and

have seen some nice calmness in him. Every time we start something new we get

nice changes and then it just blows up in our face. He ends up getting

aggressive and mean. We have tried SSRIs, strattera, clonidine, and nothing

seems to take away that mean edge. He has been tested for every HHV virus and

nothing has shown up. Thyroid looks good, digestive enzymes look good, mri/mra

was clear, he does have low cysteine at times and we fight off lots of yeast but

besides that there hasn’t

> been much to go

> > on with him....I see these meds as a band-aid as well but I am also trying

to get him through the day.

> >

> > From: [mailto: ] On Behalf Of

> > Sent: May-13-10 7:56 PM

> >

> > Subject: Re: Respirodal

> >

> > It is considered a 'band-aid' medicine, and not something that helps target

the underlying problem, so Dr G does not use it.

> > HTH

> >

> >

> > ________________________________

> > From: and Freeman <freemanbk@

<mailto:freemanbk%40ns.sympatico.ca> >

> > <mailto:%40>

> > Sent: Wed, May 12, 2010 8:29:39 PM

> > Subject: Respirodal

> >

> > What is the view of respirodal for children?

> >

> >

[Guest guest]

This is good to hear.  The sleep issue worries me, but I have heard of it not

causing problems.

I'm leaning closer and closer to asking to try it. 

Thanks!

________________________________

From: Caroline Glover <sfglover@...>

Sent: Tue, May 18, 2010 7:26:33 AM

Subject: Re: Re: Respirodal

 

Hey ,

My younger son has been on it for several years (low dose). It¹s been a

great thing for him. He takes 1/2 of the dose in the morning, other half

late in the afternoon. He conks out almost upon hitting the pillow, so no

sleep issues here. In fact, sometimes HE tells ME he¹s tired and wants to

go to bed!

CAroline

From: <thecolemans4@...>

Reply-< >

Date: Mon, 17 May 2010 15:44:06 -0700 (PDT)

< >

Subject: Re: Re: Respirodal

I'm interested in a trial of Adderral ... have you had to deal with any

side-effects?  Is sleep a problem, and if it wears off during the afternoon,

does he have 'rebounds'?

Thanks,