Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 OMG,that is unbelivable,enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77@...>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Unbelievable! ________________________________ From: Cotter <cotter.mary1@...> Sent: Wed, March 24, 2010 10:33:56 AM Subject: Re: I'm in utter shock OMG,that is unbelivable,enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77@...>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I'd find out the head of the department (i.e. someone way above the person you were talking to) and copy paste this email to an email to him/her and explain that you're very frustrated. Explain that you're in shock by how you were treated by the employee (and be sure to include her name). I would say that you're connected to other families and that you've been sharing your experiences and everyone is shocked...See what kind of response you get. Janelle Re: I'm in utter shock OMG,that is unbelivable,enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) <mailto:briffa77%40> com>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I am so sorry you were treated that way. That is not right. > > Hello, > I learned about the NNY autism center. I called them. A women called back. She spoke as if she was very annoyed that she had to call me back, let alone answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that was within a day's drive I from me I became very happy and excited so that's why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we work. We determine if your child has a family history of immune/neuroimmune disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be looking for a family history - " > " We have _____ call you and interview you to see if you would be a candidate. Then it goes past ME and I decide who gets in. We are taking on new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to set up an appointment time for the interview. " > " No, she will just call YOU. " >  > I felt like it was going to be a joke, like one of those phone jokes on the radio? > I am in utter shock. >  >  >  >  > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 > > > horrible, so sorry to hear that. > > it sounds as if they have someone on asd spectrum manning the phones, maybe a > person with aspergers? > > Natasa > > > > > > Unbelievable! > > ________________________________ > From: Cotter <cotter.mary1@... <mailto:cotter.mary1%40gmail.com> > > <mailto:%40> > Sent: Wed, March 24, 2010 10:33:56 AM > Subject: Re: I'm in utter shock > > OMG,that is unbelivable,enough to make your blood boil or else just sit down > and cry > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77@... > <mailto:briffa77%40> >wrote: > >> > >> > >> > Hello, >> > I learned about the NNY autism center. I called them. A women called back. >> > She spoke as if she was very annoyed that she had to call me back, let >> alone >> > answer any questions. She asked for me. >> > I said " Yes, this is _______ " >> > She said " This is_____ from the NNY autism center. " >> > I said, " Hello, thank you for calling me back! " I was very happy. >> > Dead silence. >> > I thought I was disconnected. >> > " Hello? " I said >> > " I'm here. " She said. Then dead silence. >> > " Umm....well I called to find out more about your doctor's office. " >> > Dead silence. >> > So I continued. >> > " When I heard that there was a clinic that follows the protocol that >> > was within a day's drive I from me I became very happy and excited so >> that's >> > why I decided to give you a call... " >> > Dead silence. >> > " Hello? " >> > " Yes I'm here. " >> > " Um..is this a good time to talk? " >> > " It is NEVER a good time to talk about anything - that's not how we >> > work. We determine if your child has a family history of immune/neuroimmune >> > disorders and we decide if we want to take your child on as a client. " >> > " Oh, okay. Well if you need certain things I have lab reports showing my >> > own HHV6 and EBV reactivation- " >> > " Are you being treated or the child? " she says sarcastically. >> > " Well....I just thought I'd mention that because you said you would be >> > looking for a family history - " >> > " We have _____ call you and interview you to see if you would be a >> > candidate. Then it goes past ME and I decide who gets in. We are taking >> on >> > new patients as of May 1, and then after that who knows when... " >> > " Okay so why don't you have _______ call and interview me? Do we have to >> > set up an appointment time for the interview. " >> > " No, she will just call YOU. " >> > >> > I felt like it was going to be a joke, like one of those phone jokes on the >> > radio? >> > I am in utter shock. >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 You know - that thought crossed my mind during the first minute of the conversation. I thought maybe that could have explained the lack of reciprocity in the conversation - the dead silences, etc. But she sounded too angry, trying too hard to take what I said and say something nasty in response, to have been somebody with Asperger's. She seemed to be in a very bad mood and looking for an argument with anybody. It was hurtful and disappointing to say the least. From: Neno/Natasa <neno@...> Subject: Re: I'm in utter shock Date: Wednesday, March 24, 2010, 3:36 PM  > > > horrible, so sorry to hear that. > > it sounds as if they have someone on asd spectrum manning the phones, maybe a > person with aspergers? > > Natasa > > > > > > Unbelievable! > > ____________ _________ _________ __ > From: Cotter <cotter.mary1@ gmail.com <mailto:cotter. mary1%40gmail. com> > > groups (DOT) com <mailto:% 40groups. com> > Sent: Wed, March 24, 2010 10:33:56 AM > Subject: Re: I'm in utter shock > > OMG,that is unbelivable, enough to make your blood boil or else just sit down > and cry > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) com > <mailto:briffa77% 40> >wrote: > >> > >> > >> > Hello, >> > I learned about the NNY autism center. I called them. A women called back. >> > She spoke as if she was very annoyed that she had to call me back, let >> alone >> > answer any questions. She asked for me. >> > I said " Yes, this is _______ " >> > She said " This is_____ from the NNY autism center. " >> > I said, " Hello, thank you for calling me back! " I was very happy. >> > Dead silence. >> > I thought I was disconnected. >> > " Hello? " I said >> > " I'm here. " She said. Then dead silence. >> > " Umm....well I called to find out more about your doctor's office. " >> > Dead silence. >> > So I continued. >> > " When I heard that there was a clinic that follows the protocol that >> > was within a day's drive I from me I became very happy and excited so >> that's >> > why I decided to give you a call... " >> > Dead silence. >> > " Hello? " >> > " Yes I'm here. " >> > " Um..is this a good time to talk? " >> > " It is NEVER a good time to talk about anything - that's not how we >> > work. We determine if your child has a family history of immune/neuroimmune >> > disorders and we decide if we want to take your child on as a client. " >> > " Oh, okay. Well if you need certain things I have lab reports showing my >> > own HHV6 and EBV reactivation- " >> > " Are you being treated or the child? " she says sarcastically. >> > " Well....I just thought I'd mention that because you said you would be >> > looking for a family history - " >> > " We have _____ call you and interview you to see if you would be a >> > candidate. Then it goes past ME and I decide who gets in. We are taking >> on >> > new patients as of May 1, and then after that who knows when... " >> > " Okay so why don't you have _______ call and interview me? Do we have to >> > set up an appointment time for the interview. " >> > " No, she will just call YOU. " >> > >> > I felt like it was going to be a joke, like one of those phone jokes on the >> > radio? >> > I am in utter shock. >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Hi Janelle, Thanks - that's good advice. She made it sound as if she was the head of everything, saying " I'll have somebody call you and interview you and then I'LL see if we take your son on as a client. " Yet when she said her name all she said was " Mrs._______ " She wouldn't give me her first name, let alone any title she may have had. From: J & J Hall <tallcedars@...> Subject: RE: I'm in utter shock Date: Wednesday, March 24, 2010, 2:21 PM  I'd find out the head of the department (i.e. someone way above the person you were talking to) and copy paste this email to an email to him/her and explain that you're very frustrated. Explain that you're in shock by how you were treated by the employee (and be sure to include her name). I would say that you're connected to other families and that you've been sharing your experiences and everyone is shocked...See what kind of response you get. Janelle Re: I'm in utter shock OMG,that is unbelivable, enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) <mailto:briffa77% 40> com>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Sorry to hear of your experience. This nonsense seems to be spreading. A 'Developmental' Pediatrician started a practice three years ago in our area, and also has a child with autism. A family was told just last week this Dr. is not accepting new patients with autism but just accepting typical children, because the practice had too much of a percentage of ASD children. The numbers are increasing because the percentage of our children with neuro-immune disorders is increasing. It is ridiculous that some of these so-called 'Doctors' out there are choosing to ignore this fact. Re: I'm in utter shock OMG,that is unbelivable,enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77@...>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I feel for you and yes that should not have happened. having been a business owner for years I have dealt with these horror stories before. Realize that there are less than a dozen docs in the USA that are addressing the immune issues. NNY Autism is one of them this is different, the NNY Autism clinic is run by a very dedicated staff and is awesome. they are a non profit and the woman that has made this happen has spent years as a volunteer director, no pay, just helping kids whether they have dollars or not. Hundreds of children have been helped/recovered because of her tenacity and commitment. In today's economic environment much less philanthropic dollars are available. It is hard is an understatement. A lot of stress, you have one child they have dozens. No excuses for not being empathetic but realize what the docs are up against! call back and ask for again, we all have bad days. I feel for you but your decision to call NNY Autism was a good one. Bill From: Neno/Natasa <nenodalmaholidays (DOT) co.uk> Subject: Re: I'm in utter shock groups (DOT) com Date: Wednesday, March 24, 2010, 3:36 PM > > > horrible, so sorry to hear that. > > it sounds as if they have someone on asd spectrum manning the phones, maybe a > person with aspergers? > > Natasa > > > > > > Unbelievable! > > ____________ _________ _________ __ > From: Cotter <cotter.mary1@ gmail.com <mailto:cotter. mary1%40gmail. com> > > groups (DOT) com <mailto:% 40groups. com> > Sent: Wed, March 24, 2010 10:33:56 AM > Subject: Re: I'm in utter shock > > OMG,that is unbelivable, enough to make your blood boil or else just sit down > and cry > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) com > <mailto:briffa77% 40> >wrote: > >> > >> > >> > Hello, >> > I learned about the NNY autism center. I called them. A women called back. >> > She spoke as if she was very annoyed that she had to call me back, let >> alone >> > answer any questions. She asked for me. >> > I said " Yes, this is _______ " >> > She said " This is_____ from the NNY autism center. " >> > I said, " Hello, thank you for calling me back! " I was very happy. >> > Dead silence. >> > I thought I was disconnected. >> > " Hello? " I said >> > " I'm here. " She said. Then dead silence. >> > " Umm....well I called to find out more about your doctor's office. " >> > Dead silence. >> > So I continued. >> > " When I heard that there was a clinic that follows the protocol that >> > was within a day's drive I from me I became very happy and excited so >> that's >> > why I decided to give you a call... " >> > Dead silence. >> > " Hello? " >> > " Yes I'm here. " >> > " Um..is this a good time to talk? " >> > " It is NEVER a good time to talk about anything - that's not how we >> > work. We determine if your child has a family history of immune/neuroimmune >> > disorders and we decide if we want to take your child on as a client. " >> > " Oh, okay. Well if you need certain things I have lab reports showing my >> > own HHV6 and EBV reactivation- " >> > " Are you being treated or the child? " she says sarcastically. >> > " Well....I just thought I'd mention that because you said you would be >> > looking for a family history - " >> > " We have _____ call you and interview you to see if you would be a >> > candidate. Then it goes past ME and I decide who gets in. We are taking >> on >> > new patients as of May 1, and then after that who knows when... " >> > " Okay so why don't you have _______ call and interview me? Do we have to >> > set up an appointment time for the interview. " >> > " No, she will just call YOU. " >> > >> > I felt like it was going to be a joke, like one of those phone jokes on the >> > radio? >> > I am in utter shock. >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I echo Bill's view, too, as my daughter is a patient of the NNY Autism Center. I have never ever seen such dedicated people who really care about kids with autism. They have so much work with so many kids, but their knowledge and service is unparelleled. The people of that office have changed our lives. The director has gone out of her way and spent many hours on the phone with me, even just to help me get through tough times with some sound advice. I am so sorry about how you were treated, not that it is an excused but I know that people there are stressed out, over-worked, and underpaid. I don't think you will regret it if you still move forward with them. Please email me privately if you wish, I will do my best to answer any questions you may have. - > > > > From: Neno/Natasa <nenodalmaholidays (DOT) co.uk> > > Subject: Re: I'm in utter shock > > groups (DOT) com > > Date: Wednesday, March 24, 2010, 3:36 PM > > > > > > > > > > > > > > > horrible, so sorry to hear that. > > > > > > it sounds as if they have someone on asd spectrum manning the phones, maybe a > > > person with aspergers? > > > > > > Natasa > > > > > > > > > > > > > > > > > > Unbelievable! > > > > > > ____________ _________ _________ __ > > > From: Cotter <cotter.mary1@ gmail.com <mailto:cotter. mary1%40gmail. com> > > > > groups (DOT) com <mailto:% 40groups. com> > > > Sent: Wed, March 24, 2010 10:33:56 AM > > > Subject: Re: I'm in utter shock > > > > > > OMG,that is unbelivable, enough to make your blood boil or else just sit down > > > and cry > > > > > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) com > > > <mailto:briffa77% 40> >wrote: > > > > > >> > > > >> > > > >> > Hello, > > >> > I learned about the NNY autism center. I called them. A women called back. > > >> > She spoke as if she was very annoyed that she had to call me back, let > > >> alone > > >> > answer any questions. She asked for me. > > >> > I said " Yes, this is _______ " > > >> > She said " This is_____ from the NNY autism center. " > > >> > I said, " Hello, thank you for calling me back! " I was very happy. > > >> > Dead silence. > > >> > I thought I was disconnected. > > >> > " Hello? " I said > > >> > " I'm here. " She said. Then dead silence. > > >> > " Umm....well I called to find out more about your doctor's office. " > > >> > Dead silence. > > >> > So I continued. > > >> > " When I heard that there was a clinic that follows the protocol that > > >> > was within a day's drive I from me I became very happy and excited so > > >> that's > > >> > why I decided to give you a call... " > > >> > Dead silence. > > >> > " Hello? " > > >> > " Yes I'm here. " > > >> > " Um..is this a good time to talk? " > > >> > " It is NEVER a good time to talk about anything - that's not how we > > >> > work. We determine if your child has a family history of immune/neuroimmune > > >> > disorders and we decide if we want to take your child on as a client. " > > >> > " Oh, okay. Well if you need certain things I have lab reports showing my > > >> > own HHV6 and EBV reactivation- " > > >> > " Are you being treated or the child? " she says sarcastically. > > >> > " Well....I just thought I'd mention that because you said you would be > > >> > looking for a family history - " > > >> > " We have _____ call you and interview you to see if you would be a > > >> > candidate. Then it goes past ME and I decide who gets in. We are taking > > >> on > > >> > new patients as of May 1, and then after that who knows when... " > > >> > " Okay so why don't you have _______ call and interview me? Do we have to > > >> > set up an appointment time for the interview. " > > >> > " No, she will just call YOU. " > > >> > > > >> > I felt like it was going to be a joke, like one of those phone jokes on the > > >> > radio? > > >> > I am in utter shock. > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I agree. That sounds like a much different experience than the helpfulness I got a few years ago when I exchanged e-mails with the clinic's founder. Gaylen In a message dated 3/24/2010 1:21:56 P.M. Central Daylight Time, tallcedars@... writes: I'd find out the head of the department (i.e. someone way above the person you were talking to) and copy paste this email to an email to him/her and explain that you're very frustrated. Explain that you're in shock by how you were treated by the employee (and be sure to include her name). I would say that you're connected to other families and that you've been sharing your experiences and everyone is shocked...See what kind of response you get. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 I wonder if that is the one connected with Texas because if it is then that woman was cold to me as well. Flat out pushed me Texas and said it was closer and they could not help me. She did not even bother to get more information about whether or not *I* thought it would be closer or if I would be traveling in that area soon. So, I called TExas and lo and behold, she was also short and I had to practically beg her to send out the packet they normally send out in snail mail to me. (I have to say that it still has not arrived and I do not anticipate on it arriving at all.) I think I will just have to get all the information I can from my groups, like this one, and keep plugging at it until a doctor orders the tests my son needs. Back to the issue at hand, when you work with the public, whether you are a doctor, a telephone receptionist, or a pizza delivery restaurant, you have to respect the customer or potential customer on the other end. Not doing so is simply unprofessional in behavior and not very friendly. People who cannot be cheerful, helpful, and friendly, need not be a telephone receptionist answering the phones and being a representatie for the company. People asking for/seeking help do not deserve to be treated any less than kindly 100% all the way. > > > > > > > > From: Neno/Natasa <nenodalmaholidays (DOT) co.uk> > > > > Subject: Re: I'm in utter shock > > > > groups (DOT) com > > > > Date: Wednesday, March 24, 2010, 3:36 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > horrible, so sorry to hear that. > > > > > > > > > > it sounds as if they have someone on asd spectrum manning the phones, maybe a > > > > > person with aspergers? > > > > > > > > > > Natasa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Unbelievable! > > > > > > > > > > ____________ _________ _________ __ > > > > > From: Cotter <cotter.mary1@ gmail.com <mailto:cotter. mary1%40gmail. com> > > > > > > groups (DOT) com <mailto:% 40groups. com> > > > > > Sent: Wed, March 24, 2010 10:33:56 AM > > > > > Subject: Re: I'm in utter shock > > > > > > > > > > OMG,that is unbelivable, enough to make your blood boil or else just sit down > > > > > and cry > > > > > > > > > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) com > > > > > <mailto:briffa77% 40> >wrote: > > > > > > > > > >> > > > > > >> > > > > > >> > Hello, > > > > >> > I learned about the NNY autism center. I called them. A women called back. > > > > >> > She spoke as if she was very annoyed that she had to call me back, let > > > > >> alone > > > > >> > answer any questions. She asked for me. > > > > >> > I said " Yes, this is _______ " > > > > >> > She said " This is_____ from the NNY autism center. " > > > > >> > I said, " Hello, thank you for calling me back! " I was very happy. > > > > >> > Dead silence. > > > > >> > I thought I was disconnected. > > > > >> > " Hello? " I said > > > > >> > " I'm here. " She said. Then dead silence. > > > > >> > " Umm....well I called to find out more about your doctor's office. " > > > > >> > Dead silence. > > > > >> > So I continued. > > > > >> > " When I heard that there was a clinic that follows the protocol that > > > > >> > was within a day's drive I from me I became very happy and excited so > > > > >> that's > > > > >> > why I decided to give you a call... " > > > > >> > Dead silence. > > > > >> > " Hello? " > > > > >> > " Yes I'm here. " > > > > >> > " Um..is this a good time to talk? " > > > > >> > " It is NEVER a good time to talk about anything - that's not how we > > > > >> > work. We determine if your child has a family history of immune/neuroimmune > > > > >> > disorders and we decide if we want to take your child on as a client. " > > > > >> > " Oh, okay. Well if you need certain things I have lab reports showing my > > > > >> > own HHV6 and EBV reactivation- " > > > > >> > " Are you being treated or the child? " she says sarcastically. > > > > >> > " Well....I just thought I'd mention that because you said you would be > > > > >> > looking for a family history - " > > > > >> > " We have _____ call you and interview you to see if you would be a > > > > >> > candidate. Then it goes past ME and I decide who gets in. We are taking > > > > >> on > > > > >> > new patients as of May 1, and then after that who knows when... " > > > > >> > " Okay so why don't you have _______ call and interview me? Do we have to > > > > >> > set up an appointment time for the interview. " > > > > >> > " No, she will just call YOU. " > > > > >> > > > > > >> > I felt like it was going to be a joke, like one of those phone jokes on the > > > > >> > radio? > > > > >> > I am in utter shock. > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Odds are Mrs. _______ has at least one boss! I'd make sure her boss knows what's going on when the phone gets answered or calls get returned! Just my take on it. Good luck! Janelle Re: I'm in utter shock OMG,that is unbelivable, enough to make your blood boil or else just sit down and cry On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) <mailto:briffa77% 40> com>wrote: > > > Hello, > I learned about the NNY autism center. I called them. A women called back. > She spoke as if she was very annoyed that she had to call me back, let alone > answer any questions. She asked for me. > I said " Yes, this is _______ " > She said " This is_____ from the NNY autism center. " > I said, " Hello, thank you for calling me back! " I was very happy. > Dead silence. > I thought I was disconnected. > " Hello? " I said > " I'm here. " She said. Then dead silence. > " Umm....well I called to find out more about your doctor's office. " > Dead silence. > So I continued. > " When I heard that there was a clinic that follows the protocol that > was within a day's drive I from me I became very happy and excited so that's > why I decided to give you a call... " > Dead silence. > " Hello? " > " Yes I'm here. " > " Um..is this a good time to talk? " > " It is NEVER a good time to talk about anything - that's not how we > work. We determine if your child has a family history of immune/neuroimmune > disorders and we decide if we want to take your child on as a client. " > " Oh, okay. Well if you need certain things I have lab reports showing my > own HHV6 and EBV reactivation- " > " Are you being treated or the child? " she says sarcastically. > " Well....I just thought I'd mention that because you said you would be > looking for a family history - " > " We have _____ call you and interview you to see if you would be a > candidate. Then it goes past ME and I decide who gets in. We are taking on > new patients as of May 1, and then after that who knows when... " > " Okay so why don't you have _______ call and interview me? Do we have to > set up an appointment time for the interview. " > " No, she will just call YOU. " > > I felt like it was going to be a joke, like one of those phone jokes on the > radio? > I am in utter shock. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2010 Report Share Posted March 25, 2010 Wow! I called there and talked to ? (I'm can't remember her name- maybe someone else can help) - the nurse, who was incredible- she spent at least 45 min talking to me explaining the philosophy, etc and was incredibly generous with her time and info and she knew we were going out to see Dr G. See if you can talk to her. It doesn't sound like the person you spoke with is how the rest of the clinic/group is. > > I agree. That sounds like a much different experience than the > helpfulness I got a few years ago when I exchanged e-mails with the clinic's founder. > > Gaylen > > > In a message dated 3/24/2010 1:21:56 P.M. Central Daylight Time, > tallcedars@... writes: > > I'd find out the head of the department (i.e. someone way above the > person you were talking to) and copy paste this email to an email to > him/her and explain that you're very frustrated. Explain that you're in > shock by how you were treated by the employee (and be sure to include > her name). I would say that you're connected to other families > and that you've been sharing your experiences and everyone is > shocked...See what kind of response you get. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2010 Report Share Posted March 26, 2010 Except when Mrs.______ does not let you speak to anyone else! And no one returns your call. I have been in that situation too many times and what I have learned is that it wastes a lot of precious time to fight some things because they will try to turn it around on you. > > From: J & J Hall <tallcedarscomcast (DOT) <mailto:tallcedars%40comcast.net> > net> > Subject: RE: I'm in utter shock > groups (DOT) <mailto:%40> com > Date: Wednesday, March 24, 2010, 2:21 PM > > > > I'd find out the head of the department (i.e. someone way above the > person you were talking to) and copy paste this email to an email to > him/her and explain that you're very frustrated. Explain that you're in > shock by how you were treated by the employee (and be sure to include > her name). I would say that you're connected to other families > and that you've been sharing your experiences and everyone is > shocked...See what kind of response you get. > > Janelle > > Re: I'm in utter shock > > OMG,that is unbelivable, enough to make your blood boil or else just sit > down > and cry > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) > <mailto:briffa77% 40> com>wrote: > > > > > > > Hello, > > I learned about the NNY autism center. I called them. A women called > back. > > She spoke as if she was very annoyed that she had to call me back, let > alone > > answer any questions. She asked for me. > > I said " Yes, this is _______ " > > She said " This is_____ from the NNY autism center. " > > I said, " Hello, thank you for calling me back! " I was very happy. > > Dead silence. > > I thought I was disconnected. > > " Hello? " I said > > " I'm here. " She said. Then dead silence. > > " Umm....well I called to find out more about your doctor's office. " > > Dead silence. > > So I continued. > > " When I heard that there was a clinic that follows the protocol > that > > was within a day's drive I from me I became very happy and excited so > that's > > why I decided to give you a call... " > > Dead silence. > > " Hello? " > > " Yes I'm here. " > > " Um..is this a good time to talk? " > > " It is NEVER a good time to talk about anything - that's not how we > > work. We determine if your child has a family history of > immune/neuroimmune > > disorders and we decide if we want to take your child on as a client. " > > " Oh, okay. Well if you need certain things I have lab reports showing > my > > own HHV6 and EBV reactivation- " > > " Are you being treated or the child? " she says sarcastically. > > " Well....I just thought I'd mention that because you said you would be > > looking for a family history - " > > " We have _____ call you and interview you to see if you would be a > > candidate. Then it goes past ME and I decide who gets in. We are > taking on > > new patients as of May 1, and then after that who knows when... " > > " Okay so why don't you have _______ call and interview me? Do we have > to > > set up an appointment time for the interview. " > > " No, she will just call YOU. " > > > > I felt like it was going to be a joke, like one of those phone jokes > on the > > radio? > > I am in utter shock. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2010 Report Share Posted March 27, 2010 Hello, All is well now. I received a very nice email from the director of the center, and the office will be in contact with me shortly for the interview. I feel a lot better now. Bridget From: agirlnamedsuess21 <agirlnamedsuess@...> Subject: Re: I'm in utter shock Date: Friday, March 26, 2010, 2:52 PM  Except when Mrs.______ does not let you speak to anyone else! And no one returns your call. I have been in that situation too many times and what I have learned is that it wastes a lot of precious time to fight some things because they will try to turn it around on you. > > From: J & J Hall <tallcedars@ comcast. <mailto:tallcedars% 40comcast. net> > net> > Subject: RE: I'm in utter shock > groups (DOT) <mailto:% 40groups. com> com > Date: Wednesday, March 24, 2010, 2:21 PM > > > > I'd find out the head of the department (i.e. someone way above the > person you were talking to) and copy paste this email to an email to > him/her and explain that you're very frustrated. Explain that you're in > shock by how you were treated by the employee (and be sure to include > her name). I would say that you're connected to other families > and that you've been sharing your experiences and everyone is > shocked...See what kind of response you get. > > Janelle > > Re: I'm in utter shock > > OMG,that is unbelivable, enough to make your blood boil or else just sit > down > and cry > > On Wed, Mar 24, 2010 at 5:13 PM, Briffa SeventySeven <briffa77 (DOT) > <mailto:briffa77% 40> com>wrote: > > > > > > > Hello, > > I learned about the NNY autism center. I called them. A women called > back. > > She spoke as if she was very annoyed that she had to call me back, let > alone > > answer any questions. She asked for me. > > I said " Yes, this is _______ " > > She said " This is_____ from the NNY autism center. " > > I said, " Hello, thank you for calling me back! " I was very happy. > > Dead silence. > > I thought I was disconnected. > > " Hello? " I said > > " I'm here. " She said. Then dead silence. > > " Umm....well I called to find out more about your doctor's office. " > > Dead silence. > > So I continued. > > " When I heard that there was a clinic that follows the protocol > that > > was within a day's drive I from me I became very happy and excited so > that's > > why I decided to give you a call... " > > Dead silence. > > " Hello? " > > " Yes I'm here. " > > " Um..is this a good time to talk? " > > " It is NEVER a good time to talk about anything - that's not how we > > work. We determine if your child has a family history of > immune/neuroimmune > > disorders and we decide if we want to take your child on as a client. " > > " Oh, okay. Well if you need certain things I have lab reports showing > my > > own HHV6 and EBV reactivation- " > > " Are you being treated or the child? " she says sarcastically. > > " Well....I just thought I'd mention that because you said you would be > > looking for a family history - " > > " We have _____ call you and interview you to see if you would be a > > candidate. Then it goes past ME and I decide who gets in. We are > taking on > > new patients as of May 1, and then after that who knows when... " > > " Okay so why don't you have _______ call and interview me? Do we have > to > > set up an appointment time for the interview. " > > " No, she will just call YOU. " > > > > I felt like it was going to be a joke, like one of those phone jokes > on the > > radio? > > I am in utter shock. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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