RE: Re:Curemark - digestive enzymes

April 27, 2010

I wouldn't go so far as to say he only uses proven scientific methods, I don't

care how many times he says it. If that were the case, he wouldn't be Rxing

off label use of SSRIs (remember, they still come with a black box warning

whether anyone reads it or not), Valtrex or antifungals. He would have no

protocol if that were true. There is no universally accepted idea that autism

is caused by an immune dysfunction. There is no universally accepted idea that

antivirals/antifungals are a viable treatment option. Most peds are very

uncomfortable giving Valtrex or antifungals long term. I will say that doctors

do love to hand out the SSRIs, though. Especially since that study came out

about SSRIs helping autism symptoms, but I digress. There's plenty of science

that shows many DAN treatments work, too. Chronic Fatigue Syndrome is still

considered to be, to some doctors, a made up disease. What Dr. G is doing is no

less " experimental " than DAN. Yes, there are some studies that prove it but

that doesn't make it any more " scientifically proven " than DAN, Yasko, Chinese

Medicine or homeopathy, because I can find published studies to prove they work,

too.

This is in no way meant to slight Dr. G. But it is to say that we shouldn't

overstate his methods any more than we should understate others'. Many people

have left his practice because the gut issue never " resolved itself " or some

other reason. This list is a tiny bubble of people out of thousands of

possible current and previous patients. Most " previous " patients don't stick

around, as far as I can tell, I'm probably the only one. I'm happy that your

son recovered because of Dr. G. I wish we all could have that. But my son

didn't. My son eventually did horribly on . As a matter of fact, he's

recovering very well from a broader approach with DAN.

And to clarify, DAN does not think that autism is the *result* of leaky gut.

Not all autistic children have leaky gut; mine does not. DAN believes that

autism is the result of *many* things and it can be different for many children

- which is typically true. Just as it's typically true that immune issues are

huge in our kids, something Dr. G and the rest of the biomed community, no

matter what method, agree upon. For a long time I thought some of the things

DAN does is crazy. And some of it I still think is a bit out there. But you

know, I've learned not to throw the baby out with the bath water.

It's phenomenal that your son didn't need more than Dr. G had to offer. I mean

that sincerely. I think it's awesome when any child grows and recovers, no

matter what protocol they chose and in some cases, didn't choose any.

Recovery is the key here. Not who's better than whom.

Cheryl

~http://www.gryffins-tail.blogspot.com

~@midian42~

On Apr 27, 2010, at 7:32 AM, and Marcia Hinds wrote:

> ,

>

> The Dan doctors think that autism is a result of a leaky gut. Dr. G he

> believes that the gut problem is a secondary result of a bigger issue, an

> overactive immune system that doesn't fire when it should or fires too much

> when it shouldn't. So rather than just treating the stomach issues, he

> treats the entire immune system and that resolves the gut problem over time.

> He only uses proven scientific methods of treating children. Hope this

> helps.

>

> Marcia

>

April 27, 2010

hi Cheryl

well we all have different experiences, not familiar with Dr G, obviously and

american Dr, but have had very very very limited success with the DAN protocol.

i see a Dr here in OZ that deals with CFS as i have that as well as being

aspergers, my son asd. NOw this Dr works along side Prof De meirlier, who

happens to believe that the gut/immune issues are a major part of CFS and

autism.

De Meirlier has spent years researching the causes of CFS, which not encompasses

autsim.

he treats each patient as an individual, not as an assumption of the mass

symptoms. he does specific bloods for immune pannel and leaky gut. which are

done thru red laboratories in belgium. along with other specific testing, like

Igg food antigens, fructose/lactose malasorption etc.

now my test results have come back with leaky gut, no natural killer cells in

the TH2 part of my immune system and quite a few other things as well. my son

just saw him about a week ago, and bloods have been taken back to belgium for

testing.

but what i can say is that dermott has been on the very basic of De Meirliers

protocol for about 2 months now and the change has been astonishing, compared to

the 2 years on Dan.

with the Dan it was all over the place and i guess that comes down to the

practitioner, but nothing was ever really based on tests, it was all guess work

and assumption.

so what might be good for some might not be good for others. like i am on a very

small dosage of an ssri, why because i am producting zero seretonin. it was

explained to me by De Meirlier that i do not have the basic mechanics to even

metabolise trypothan amino acid into seretoning, my stool samples showed i had

zero ecoli, De Meirler explained that you need ecoli to metabolise thryptthan

into seretonin.

so whether you are officially diagnosed with " leaky gut " you can still have

bowel/immune issues if you do not have the right balance of good gut flora, and

also no point in pumping yourself full of probiotics if you have a strep over

growth as strep will hinder/stop the re colonisation so you need to deal with

that first.

>

> From: cheryl.lowrance@...

> Date: Tue, 27 Apr 2010 15:01:17 -0700

> Subject: Re: Re:Curemark - digestive enzymes

>

> I wouldn't go so far as to say he only uses proven scientific methods, I don't