I'm New Here!

[Guest guest]

Thank you kittee. I'm totally gaga over him!!

> > > > > > >

> > > > > > > Greetings all you heterochromiacs!! My one year old

> > daughter

> > > > has

> > > > > one

> > > > > > > brown eye and one very light blue eye with 3 brown

> spots..

> > it

> > > > is

> > > > > so

> > > > > > > beautiful..... i am interested in hearing everyones

> > stories,

> > > > > > > experiences and opinions on this subject.

> > > > > > >

> > > > > > I'm wondering if it is acquired heterochromia or was she

> born

> > > > with

> > > > > it?

> > > > > > My grandson's eyes are quite beautiful as well. We've had

> him

> > > > > > thoroughly examined by an opthalmalogist and his vision

is

> > fine

> > > > so

> > > > > our

> > > > > > fears of any abnormalities were put to rest. He's very

> > advanced

> > > > for

> > > > > a

> > > > > > five month old, actually. (Except he never SLEEPS!) It's

an

> > > > > interesting

> > > > > > and unique condition. I thought the odds were about one

in

> 60

> > > > > million,

> > > > > > but since joining this group it seems to be more common

> than

> > I

> > > > ever

> > > > > > thought. I recommend the book, " The Incredible Peepers of

> > > > Penelope

> > > > > > Budd " by Marie Karns. A sweet story about a little child

> with

> > > > > > heterochromia and the way she views the world.

> > > > > > ch

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

PS: So is Rhiannon. What a sweet face!

> > > > > > >

> > > > > > > Greetings all you heterochromiacs!! My one year old

> > daughter

> > > > has

> > > > > one

> > > > > > > brown eye and one very light blue eye with 3 brown

> spots..

> > it

> > > > is

> > > > > so

> > > > > > > beautiful..... i am interested in hearing everyones

> > stories,

> > > > > > > experiences and opinions on this subject.

> > > > > > >

> > > > > > I'm wondering if it is acquired heterochromia or was she

> born

> > > > with

> > > > > it?

> > > > > > My grandson's eyes are quite beautiful as well. We've had

> him

> > > > > > thoroughly examined by an opthalmalogist and his vision

is

> > fine

> > > > so

> > > > > our

> > > > > > fears of any abnormalities were put to rest. He's very

> > advanced

> > > > for

> > > > > a

> > > > > > five month old, actually. (Except he never SLEEPS!) It's

an

> > > > > interesting

> > > > > > and unique condition. I thought the odds were about one

in

> 60

> > > > > million,

> > > > > > but since joining this group it seems to be more common

> than

> > I

> > > > ever

> > > > > > thought. I recommend the book, " The Incredible Peepers of

> > > > Penelope

> > > > > > Budd " by Marie Karns. A sweet story about a little child

> with

> > > > > > heterochromia and the way she views the world.

> > > > > > ch

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sea Breeze - there's no definitive lab test nor x-ray finding. It's

diagnosed clinically, based on observation and symptoms. Basically, if

you have psoriasis AND joint pain, they will pretty much diagnose you

with PA. In some cases there will be elevated c-reactive protein or

other inflammation marker. In some cases, the person will have a blood

marker called HLA-B27. In some cases, unfortunately, there is already

visible damage to the joint. Having swelling and/or redness of a

joint, especially " sausage fingers or toes " helps lock in the

diagnosis, but it's not necessary.

regards,

sherry z

>

> What do doctor's use these days to diagnose PSA/RA? It has been so

> long, that I wouldn't have a clue.

[Guest guest]

Hi,

I couldn't resist " chiming in " wih Sherry about there not being a really

clearcut dx for PA. My " sed rate " was high which indicates inflammation. I

tested negative for the HLA-B27. As far as sausage digits, I have always had

really long thin fingers despite being obese so its harder to recognize a change

unless it is very severe. I do notice that my toes seem to have taken on a

" clublike " appearance, my Rheumy tends to examine my feet more than my hands

when evaluating me.

Since I've been on the board however, I have learned so much about this disease

and have been comforted by the idea that there is not really any definite set of

symptoms. Others on here have stated things about themselves that all of a

sudden make my symptoms make sense. My best advice to any " newbie " is to " read

and learn " .

Welcome Seabreeze!

Deanna

[Guest guest]

Hi Margee

I am sort of where you are. I have had the blocks and the radio frequency waves

that destroyed my nerves which worked for some time for my sciatic pain. I had a

2 level lumbar fusion in 2006. Now I am having and have had a lot of sciatic

pain since. The pain mgt doc just told me that my hardware is sitting in my SI

joint and my nerve lovely huh?

Well we are doing SI injections now and possiblly looking at the SCS or I am

thinking of a pain pump.

It can be overwhelming yes, I know exactly how you feel. When I got that news

last month I was frantic. I joined the group and did a lot of reading and got

settled in. I feel a lot better now.

It sounds like you have a ways to go yet. The blocks or the neurotomys may well

give you some decent relief. I got a good year out of one of mine.

If you have any ? feel free to email me privatly

Kim

I'm new here!

I don't have a Spinal Cord Stimulator yet.

I just started with my Pain Management doctor. He put me on

Gabapentin(Neurontin) last week. On the 15th I will start Step One of

my pain treatments -Medial Branch Blocks for Facet Joints(Diagnostic

Proscedure).

He discussed Step Two -Radio Frequency Neurotomy and Step Three-

Spinal Cord Stimulator.

I'm really new to all of this and a bit overwhelmed right now.

I joined this group, hoping to get more information on all of this.

[Guest guest]

I'm just starting. A little afraid of what to expect on the 15th, can

you explain it. But sounds like mine will be multi level.

>

> Hi Margee

> I am sort of where you are. I have had the blocks and the radio

frequency waves that destroyed my nerves which worked for some time

for my sciatic pain. I had a 2 level lumbar fusion in 2006. Now I am

having and have had a lot of sciatic pain since. The pain mgt doc just

told me that my hardware is sitting in my SI joint and my nerve lovely

huh?

> Well we are doing SI injections now and possiblly looking at the SCS

or I am thinking of a pain pump.

> It can be overwhelming yes, I know exactly how you feel. When I got

that news last month I was frantic. I joined the group and did a lot

of reading and got settled in. I feel a lot better now.

> It sounds like you have a ways to go yet. The blocks or the

neurotomys may well give you some decent relief. I got a good year out

of one of mine.

> If you have any ? feel free to email me privatly

> Kim

> I'm new here!

>

>

> I don't have a Spinal Cord Stimulator yet.

>

> I just started with my Pain Management doctor. He put me on

> Gabapentin(Neurontin) last week. On the 15th I will start Step One of

> my pain treatments -Medial Branch Blocks for Facet Joints(Diagnostic

> Proscedure).

> He discussed Step Two -Radio Frequency Neurotomy and Step Three-

> Spinal Cord Stimulator.

>

> I'm really new to all of this and a bit overwhelmed right now.

>

> I joined this group, hoping to get more information on all of this.

>

>

>

>

>

>

[Guest guest]

Hello all,

I am in the middle of an autism evaluation for my son, Foard, who is three years

old. After all my research, this makes complete sense to me. There are so many

things about Foard that don't fit the typical autism diagnosis and we have seen

dramatic changes in him just from changing his diet as Dr. G suggested. I'm

wondering if it is possible to get my pediatrician to help me look into this

further, or do I specifically need to try and see Dr. G. (we live in NC).

Could anyone share stories of how they got started and what led them to believe

this could be the answer for their children? I'm very excited, but nervous

because I have NO idea what to do now.

Thanks in advance,

Amy

[Guest guest]

Hi Amy,

I can't speak for everyone, but I'm very glad we started with Dr. G when my

son was 3, just a few months after his dx with ASD. Dr. G's protocol " fit "

my son and his presentation of ASD, and he has made huge gains on the

protocol. He used to be sick ALL the time. He has been on the protocol 4+

years and 85% or so recovered.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of Amy

Sent: Wednesday, March 17, 2010 11:31 PM

Subject: I'm New Here!

Hello all,

I am in the middle of an autism evaluation for my son, Foard, who is three

years old. After all my research, this makes complete sense to me. There are

so many things about Foard that don't fit the typical autism diagnosis and

we have seen dramatic changes in him just from changing his diet as Dr. G

suggested. I'm wondering if it is possible to get my pediatrician to help me

look into this further, or do I specifically need to try and see Dr. G. (we

live in NC).

Could anyone share stories of how they got started and what led them to

believe this could be the answer for their children? I'm very excited, but

nervous because I have NO idea what to do now.

Thanks in advance,

Amy

[Guest guest]

Hi Kristy,

Thanks for your response. I am definitely looking in to this more. He is doing

so well with just the food eliminations I can't wait to see what else may be in

store for him. I know he FEELS better, and that is what is driving me right now.

This just feels and sounds like what is truly going on with all of these

children.

Thanks again and congratulations on your son's recovery process. Sounds

wonderful,

Amy

>

> Hi Amy,

>

> I can't speak for everyone, but I'm very glad we started with Dr. G when my

> son was 3, just a few months after his dx with ASD. Dr. G's protocol " fit "

> my son and his presentation of ASD, and he has made huge gains on the

> protocol. He used to be sick ALL the time. He has been on the protocol 4+

> years and 85% or so recovered.

>

> Kristy Nardini

> TazziniTM Stainless Steel Bottles

> www.tazzini.com

> kristy@...

> Phone: 858.243.1929

> Fax: 858.724.1418

>

>

> P Please consider the environment before printing this email.

>

> From: [mailto: ] On Behalf Of Amy

> Sent: Wednesday, March 17, 2010 11:31 PM

>

> Subject: I'm New Here!

>

>

> Hello all,

> I am in the middle of an autism evaluation for my son, Foard, who is three

> years old. After all my research, this makes complete sense to me. There are

> so many things about Foard that don't fit the typical autism diagnosis and

> we have seen dramatic changes in him just from changing his diet as Dr. G

> suggested. I'm wondering if it is possible to get my pediatrician to help me

> look into this further, or do I specifically need to try and see Dr. G. (we

> live in NC).

>

> Could anyone share stories of how they got started and what led them to

> believe this could be the answer for their children? I'm very excited, but

> nervous because I have NO idea what to do now.

> Thanks in advance,

> Amy

>

>

>

>