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Our son was jaundiced as a newborn, he also had pneumonia. His hands and feet

are ALWAYS cold yet he sweats alot in bed to the point I had to change his

sheets everyday when he was a baby. He also hates to wear socks or use a

blanket.

My son is always congested yet doesn't always have a runny nose. Does anyone

else deal with this? He also had many different rashes as a baby that no doctor

could identify. Some would last a day, some would last an hour. He has grown

out of this now though.

I have never taken his temperature after fevering, but he has been cold to the

touch for the day or so after.

I am really finding it interesting as to how many similarities there are with

our children. Things that I have always found to be a bit concerning yet

doctors always brushed off.

Belobrajdic

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My son was jaundiced at birth. The doctor told me then that it is very common

for children with Asian origins (my son is half Asian) to be jaundiced at birth.

(mother of Raffaele, 7years old)

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  • 1 year later...
Guest guest

I have a child who has been 'unoffically', as of yet, put on the spectrum. He

is 9 and has ADHD, outbursts, OCD tendencies, and communication issues.

Nate was born early and was severely jaundice.

I am interested as to how many others were jaundice.

jamie

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Our soon had jaundice.

Sent from my iPhone

On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote:

I have a child who has been 'unoffically', as of yet, put on the spectrum. He is

9 and has ADHD, outbursts, OCD tendencies, and communication issues.

Nate was born early and was severely jaundice.

I am interested as to how many others were jaundice.

jamie

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Guest guest

My son was not Jaudice but interestingly I and my mother were both severely

jaundice. If you look at Fragile X the genetic issues often skip a generation.

There is so much bing done on mapping the human genome, I would expect answerers

very soon.

Bill

I have a child who has been 'unoffically', as of yet, put on the spectrum. He is

9 and has ADHD, outbursts, OCD tendencies, and communication issues.

Nate was born early and was severely jaundice.

I am interested as to how many others were jaundice.

jamie

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Guest guest

My son and his twin were born 14 weeks early. They had jaundice. He has asd but

she does not. He was on vancomyacin for sepsis. She had other nicu issues that

he did not have. They both received 5 vaccs in 1 day. My feeling is that the

sepsis/vancomyacin then 5 vaccinations has something to do with his asd.

Kristy

Bill klimas <klimas_bill@...> wrote:

>My son was not Jaudice but interestingly I and my mother were both severely

jaundice. If you look at Fragile X the genetic issues often skip a generation.

There is so much bing done on mapping the human genome, I would expect answerers

very soon.

>Bill

>

>

>

>

>I have a child who has been 'unoffically', as of yet, put on the spectrum. He

is 9 and has ADHD, outbursts, OCD tendencies, and communication issues.

>

>

>

>Nate was born early and was severely jaundice.

>

>

>

>I am interested as to how many others were jaundice.

>

>

>

>jamie

>

>

>

>

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Guest guest

Our son had jaundice too.  Just slightly.  He did the lights I believe for a

few days.  Do you think that the jaundice itself is possibly a factor in some

kids with asd or is the jaundice just more of a clue that our kids' immune

systems were weak from the womb???

Thanks.

dawn

________________________________

From: " erikadyan71@... " <erikadyan71@...>

Sent: Tue, June 1, 2010 6:25:12 PM

Subject: Re: jaundice

 

Our son, Hunter, had jaundice! He did not require the lights or extra

hospitalization. Worked through it by feeding and keeping him by a window

throughout the day!!

-

Sent on the Sprint® Now Network from my BlackBerry®

Re: jaundice

Our soon had jaundice.

Sent from my iPhone

On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote:

I have a child who has been 'unoffically', as of yet, put on the spectrum. He is

9 and has ADHD, outbursts, OCD tendencies, and communication issues.

Nate was born early and was severely jaundice.

I am interested as to how many others were jaundice.

jamie

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Guest guest

My oldest son had jaundice (and I did as well). His doctor (in the Netherlands)

told me to give him fish oil, if I remember correctly.

 

Cheers,

 

Jill

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Guest guest

My son has Kernicterus (KI)... jaundice poisoning after birth that was treated

by lights... his Bilirubin level was 21.7...

My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice

poisoning.. Bilirubin level 12.7...

As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now

termed 'spectrum'.

Nate was born early... but the jaundice has to do with the liver not producing

Albumin to bind with the Bilirubin. The body can't block the bilirubin from

crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose

function is to monitor behavior.. impulsiveness, social interaction, ect.

I am interested as to those who have had jaundice what level were they... It

would be important for research to find this out.

jamie

On Jun 1, 2010, at 9:31 PM, Dawn Dolan wrote:

> Our son had jaundice too. Just slightly. He did the lights I believe for a

few days. Do you think that the jaundice itself is possibly a factor in some

kids with asd or is the jaundice just more of a clue that our kids' immune

systems were weak from the womb???

>

> Thanks.

>

> dawn

>

>

>

>

> ________________________________

> From: " erikadyan71@... " <erikadyan71@...>

>

> Sent: Tue, June 1, 2010 6:25:12 PM

> Subject: Re: jaundice

>

>

> Our son, Hunter, had jaundice! He did not require the lights or extra

hospitalization. Worked through it by feeding and keeping him by a window

throughout the day!!

>

> -

> Sent on the Sprint® Now Network from my BlackBerry®

>

> Re: jaundice

>

> Our soon had jaundice.

>

> Sent from my iPhone

>

> On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote:

>

> I have a child who has been 'unoffically', as of yet, put on the spectrum. He

is 9 and has ADHD, outbursts, OCD tendencies, and communication issues.

>

> Nate was born early and was severely jaundice.

>

> I am interested as to how many others were jaundice.

>

> jamie

>

>

>

>

>

>

>

>

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Guest guest

My son had biliruben level of 19 last they checked. It was at about 7 in the

morning. The biliblanket didn't arrive until late that afternoon, he got on it

that evening so have no idea how high it got. Only know it was rising fast, day

before it was 16. Didn't know it was so serious until 2 years later when I

began to research due to son's autism, thought jaundice was common and told

1/100k chance of any problem.

- I'm sorry to read that your sons have KI. How is it dx when it is mild?

I have often wondered if my son's problems were related to this. But I thought

it wasn't so likely as I read somewhere that usually the biliruben levels have

to be up in the 30s.

Do you know a good source of info? I find it hard to get info on it.

Noticed in photos of my son, it took several weeks for him to loose that

yellow-orange look.

>

> My son has Kernicterus (KI)... jaundice poisoning after birth that was treated

by lights... his Bilirubin level was 21.7...

>

> My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice

poisoning.. Bilirubin level 12.7...

> As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now

termed 'spectrum'.

>

> Nate was born early... but the jaundice has to do with the liver not producing

Albumin to bind with the Bilirubin. The body can't block the bilirubin from

crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose

function is to monitor behavior.. impulsiveness, social interaction, ect.

>

> I am interested as to those who have had jaundice what level were they... It

would be important for research to find this out.

>

> jamie

>

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Guest guest

,

Would love more information on this too. My son had elevated bilirubin(sp) and

was discharged late due to this....it's amazing how many " start/stop " orders

were put in for that darn Hep B vaccine in the NICU. My child was termed the

orange baby for months by neurologists etc who attributed it to orange baby

foods.....this has haunted me forever.

My child was born with congenital lyme....i got really sick and was put on

prednisone which made all the infections worse. He is social, but very

delayed...some say he won't recover, but is moving in the right direction ever

soooooo slowly. his prognosis was wheelchair kid with GI tube. some put him on

the spectrum others says that he is massively inflamed and poisoned....either

way, it's getting the load down and trying to figure out how to repair

neurologic damage.

any scoop is appreciated. thanks.

lisa

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  • 2 weeks later...
Guest guest

,

If your son is in a wheelchair, I would look on the PICK -- parents of infants

and children with Kernicterus site!!

http://www.kernicterus.org/

Both my boys were also congenital lyme... I am lyme... How are you doing?

Would love to talk

....

217-778-5493

On Jun 5, 2010, at 10:44 PM, personalcargo@... wrote:

> ,

>

>

> Would love more information on this too. My son had elevated bilirubin(sp)

and was discharged late due to this....it's amazing how many " start/stop " orders

were put in for that darn Hep B vaccine in the NICU. My child was termed the

orange baby for months by neurologists etc who attributed it to orange baby

foods.....this has haunted me forever.

>

>

> My child was born with congenital lyme....i got really sick and was put on

prednisone which made all the infections worse. He is social, but very

delayed...some say he won't recover, but is moving in the right direction ever

soooooo slowly. his prognosis was wheelchair kid with GI tube. some put him on

the spectrum others says that he is massively inflamed and poisoned....either

way, it's getting the load down and trying to figure out how to repair

neurologic damage.

>

>

> any scoop is appreciated. thanks.

>

>

> lisa

>

>

>

>

>

>

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K,

Sorry it took so long to get back... email!!

Anyway. Jaundice damage is on the rise. In the 1980-early 90's it was treated

very aggressively and well all babies were kept in the hospital if they were the

least bit jaundice. Until the HMO's of the late 90's and then there was a paper

written that the kids were 'over treated' and that there is a reason for

jaundice....

The appropriate level for newborn jaundice is '0'.. but it does rise in most

infants. Anything can be dangerous, but the rule of thumb is treat for 'any

neuro changes' and if level exceeds 10-12. Double blood transfusions at 20.

This article explains it well... look especially at the 1st 'paragraph':

http://www.anaesthetist.com/icu/specl/neonate/Findex.htm

also there is a group of mom's causing change... I am one of them, don't wig

over the pictures, my son 'looks normal', but has 'ADHD' and 'OCD qualities':

http://www.kernicterus.org/

Dr Shapiro in VA is the best Doc around... for KI. AN- auditory neuropathy- a

'nerve deafness' is part of KI. The ear work, but the nerve to the brain is

'broken'-- Dr Berlin in Florida is the best for this.

http://auditoryneuropathy.tripod.com/ANindex.html

Give me a call

217-778-5493

On Jun 3, 2010, at 6:28 AM, K wrote:

> My son had : level of 19 last they checked. It was at about 7 in the morning.

The biliblanket didn't arrive until late that afternoon, he got on it that

evening so have no idea how high it got. Only know it was rising fast, day

before it was 16. Didn't know it was so serious until 2 years later when I

began to research due to son's autism, thought jaundice was common and told

1/100k chance of any problem.

>

> - I'm sorry to read that your sons have KI. How is it dx when it is

mild?

>

> I have often wondered if my son's problems were related to this. But I

thought it wasn't so likely as I read somewhere that usually the biliruben

levels have to be up in the 30s.

>

> Do you know a good source of info? I find it hard to get info on it.

>

> Noticed in photos of my son, it took several weeks for him to loose that

yellow-orange look.

>

>

>

>

>

>>

>> My son has Kernicterus (KI)... jaundice poisoning after birth that was

treated by lights... his Bilirubin level was 21.7...

>>

>> My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice

poisoning.. Bilirubin level 12.7...

>> As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now

termed 'spectrum'.

>>

>> Nate was born early... but the jaundice has to do with the liver not

producing Albumin to bind with the Bilirubin. The body can't block the

bilirubin from crossing the blood brain barrier and causes injury to the Basil

Ganglia-- whose function is to monitor behavior.. impulsiveness, social

interaction, ect.

>>

>> I am interested as to those who have had jaundice what level were they... It

would be important for research to find this out.

>>

>> jamie

>>

>

>

>

>

> ------------------------------------

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute, the Parent Coalition, or the list

moderator(s).

>

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- thanks so much for all the info! This really makes me sick to my

stomach! So senseless so preventable.

Still it's not clear to me how I can directly link my son's problems to

jaundice. It seems in the subtler situations that the could be many causes and

it could be hard to say specifically what the cause is.

My labor was long (32hrs), and induced and the first problem we had was the

sucking - he had a hard time latching and sucking. He was not born with

jaundice.

Anyway, thanks again for all your info!

> >>

> >> My son has Kernicterus (KI)... jaundice poisoning after birth that was

treated by lights... his Bilirubin level was 21.7...

> >>

> >> My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice

poisoning.. Bilirubin level 12.7...

> >> As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are

now termed 'spectrum'.

> >>

> >> Nate was born early... but the jaundice has to do with the liver not

producing Albumin to bind with the Bilirubin. The body can't block the

bilirubin from crossing the blood brain barrier and causes injury to the Basil

Ganglia-- whose function is to monitor behavior.. impulsiveness, social

interaction, ect.

> >>

> >> I am interested as to those who have had jaundice what level were they...

It would be important for research to find this out.

> >>

> >> jamie

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute, the Parent Coalition, or the

list moderator(s).

> >

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Guest guest

Was your child early? The latching on can come from simple

difficulties... But then the baby doesn't have the bilirubin flushed

out of the system with no stool flush. Day 3-5 is when jaundice

poisoning occurs.

If he level is in the low teens, 12-17, you get lethargic (sp?) and

limp babies.

After you have ADHD, impulsive, fine motor difficulties, constipation,

and communication issues.

All from a 'little jaundice'.

Sent from my iPhone

On Jun 15, 2010, at 5:18 AM, K <rcwdesigns@...> wrote:

> - thanks so much for all the info! This really makes me sick

> to my stomach! So senseless so preventable.

>

> Still it's not clear to me how I can directly link my son's problems

> to jaundice. It seems in the subtler situations that the could be

> many causes and it could be hard to say specifically what the cause

> is.

>

> My labor was long (32hrs), and induced and the first problem we had

> was the sucking - he had a hard time latching and sucking. He was

> not born with jaundice.

>

> Anyway, thanks again for all your info!

>

>

>

>>>>

>>>> My son has Kernicterus (KI)... jaundice poisoning after birth

>>>> that was treated by lights... his Bilirubin level was 21.7...

>>>>

>>>> My 2nd son has BIND bilirubin induced neurologic damage... mild

>>>> jaundice poisoning.. Bilirubin level 12.7...

>>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both

>>>> boys are now termed 'spectrum'.

>>>>

>>>> Nate was born early... but the jaundice has to do with the liver

>>>> not producing Albumin to bind with the Bilirubin. The body can't

>>>> block the bilirubin from crossing the blood brain barrier and

>>>> causes injury to the Basil Ganglia-- whose function is to monitor

>>>> behavior.. impulsiveness, social interaction, ect.

>>>>

>>>> I am interested as to those who have had jaundice what level were

>>>> they... It would be important for research to find this out.

>>>>

>>>> jamie

>>>>

>>>

>>>

>>>

>>>

>>> ------------------------------------

>>>

>>> Responsibility for the content of this message lies strictly with

>>> the original author(s), and is not necessarily endorsed by or the

>>> opinion of the Research Institute, the Parent Coalition,

>>> or the list moderator(s).

>>>

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Guest guest

wow, you really know a lot about this.

My son wasn't early, he was about 5 days late. I had no amnoitic fluid so they

induced.

I do remember he was late with his first stool. Can't really remember those

first few weeks, it was all a blur, poor thing was crying, fussy and probably

hungry. We were so inexperienced.

I don't really remember him being lethargic, more agitated.

He now definitely is impulsive, adhd, motor difficulties but not consistant - no

problems with sissor or drawing but completely behind being able to dress self,

struggles with putting socks on etc at 5.5 yo.

No constipation but had loose stools until this past year with probiotics etc

helping.

Definite communication issues - struggles to talk, think of words, can't

understand what he hears, over and over says 'what?', hypersensitive to sound

etc etc

I still don't understand how they can clearly link these problems with the

billirubin. It seems like just a clinical assessment, no test.

thanks for all your info!!

> >>>>

> >>>> My son has Kernicterus (KI)... jaundice poisoning after birth

> >>>> that was treated by lights... his Bilirubin level was 21.7...

> >>>>

> >>>> My 2nd son has BIND bilirubin induced neurologic damage... mild

> >>>> jaundice poisoning.. Bilirubin level 12.7...

> >>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both

> >>>> boys are now termed 'spectrum'.

> >>>>

> >>>> Nate was born early... but the jaundice has to do with the liver

> >>>> not producing Albumin to bind with the Bilirubin. The body can't

> >>>> block the bilirubin from crossing the blood brain barrier and

> >>>> causes injury to the Basil Ganglia-- whose function is to monitor

> >>>> behavior.. impulsiveness, social interaction, ect.

> >>>>

> >>>> I am interested as to those who have had jaundice what level were

> >>>> they... It would be important for research to find this out.

> >>>>

> >>>> jamie

> >>>>

> >>>

> >>>

> >>>

> >>>

> >>> ------------------------------------

> >>>

> >>> Responsibility for the content of this message lies strictly with

> >>> the original author(s), and is not necessarily endorsed by or the

> >>> opinion of the Research Institute, the Parent Coalition,

> >>> or the list moderator(s).

> >>>

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Guest guest

My son had jaundice too. I just looked at his records. he had a level of 15.1

when they discharged him from the hospital at 2 days old. That was at NYU, why

would they do that?!!!

They told us to take him to the pediatrician the next morning to follow up. The

pediatrician did bloodwork, when it came back he sent us straight to the

hospital and my son was put in a lightbox for 3 days. Ive always wondered if any

of this had anything to do with his delays... Dr. G didnt seem to think much of

it though.

> > >>>>

> > >>>> My son has Kernicterus (KI)... jaundice poisoning after birth

> > >>>> that was treated by lights... his Bilirubin level was 21.7...

> > >>>>

> > >>>> My 2nd son has BIND bilirubin induced neurologic damage... mild

> > >>>> jaundice poisoning.. Bilirubin level 12.7...

> > >>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both

> > >>>> boys are now termed 'spectrum'.

> > >>>>

> > >>>> Nate was born early... but the jaundice has to do with the liver

> > >>>> not producing Albumin to bind with the Bilirubin. The body can't

> > >>>> block the bilirubin from crossing the blood brain barrier and

> > >>>> causes injury to the Basil Ganglia-- whose function is to monitor

> > >>>> behavior.. impulsiveness, social interaction, ect.

> > >>>>

> > >>>> I am interested as to those who have had jaundice what level were

> > >>>> they... It would be important for research to find this out.

> > >>>>

> > >>>> jamie

> > >>>>

> > >>>

> > >>>

> > >>>

> > >>>

> > >>> ------------------------------------

> > >>>

> > >>> Responsibility for the content of this message lies strictly with

> > >>> the original author(s), and is not necessarily endorsed by or the

> > >>> opinion of the Research Institute, the Parent Coalition,

> > >>> or the list moderator(s).

> > >>>

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Guest guest

An ABR tracks the sound waves the brain is hearing and shows whether or not it

is discernible.

Go to:

http://auditoryneuropathy.tripod.com/ANindex.html

This information is ONLY about AN: AN is only a part of KI, Kernicterus.

Kernicterus in full term infants looks different than preemies.

My son was preemie. He was 33 weeks. Bilirubin level 21.7.

Full terms get 'angry'. They scream, arch and even get rigid sometimes. They

look orange, but color can be deceptive and should not be a 'rule out' of a dx.

I am a nurse and this disease has hurt 2 of my children. I have learned a good

deal about this disease and only want to help others.

jamie

Sent from my iPhone

On Jun 22, 2010, at 4:15 AM, K <rcwdesigns@...> wrote:

> wow, you really know a lot about this.

>

> My son wasn't early, he was about 5 days late. I had no amnoitic fluid so they

induced.

>

> I do remember he was late with his first stool. Can't really remember those

first few weeks, it was all a blur, poor thing was crying, fussy and probably

hungry. We were so inexperienced.

>

> I don't really remember him being lethargic, more agitated.

>

> He now definitely is impulsive, adhd, motor difficulties but not consistant -

no problems with sissor or drawing but completely behind being able to dress

self, struggles with putting socks on etc at 5.5 yo.

>

> No constipation but had loose stools until this past year with probiotics etc

helping.

>

> Definite communication issues - struggles to talk, think of words, can't

understand what he hears, over and over says 'what?', hypersensitive to sound

etc etc

>

> I still don't understand how they can clearly link these problems with the

billirubin. It seems like just a clinical assessment, no test.

>

> thanks for all your info!!

>

>

>

>

>>>>>>

>>>>>> My son has Kernicterus (KI)... jaundice poisoning after birth

>>>>>> that was treated by lights... his Bilirubin level was 21.7...

>>>>>>

>>>>>> My 2nd son has BIND bilirubin induced neurologic damage... mild

>>>>>> jaundice poisoning.. Bilirubin level 12.7...

>>>>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both

>>>>>> boys are now termed 'spectrum'.

>>>>>>

>>>>>> Nate was born early... but the jaundice has to do with the liver

>>>>>> not producing Albumin to bind with the Bilirubin. The body can't

>>>>>> block the bilirubin from crossing the blood brain barrier and

>>>>>> causes injury to the Basil Ganglia-- whose function is to monitor

>>>>>> behavior.. impulsiveness, social interaction, ect.

>>>>>>

>>>>>> I am interested as to those who have had jaundice what level were

>>>>>> they... It would be important for research to find this out.

>>>>>>

>>>>>> jamie

>>>>>>

>>>>>

>>>>>

>>>>>

>>>>>

>>>>> ------------------------------------

>>>>>

>>>>> Responsibility for the content of this message lies strictly with

>>>>> the original author(s), and is not necessarily endorsed by or the

>>>>> opinion of the Research Institute, the Parent Coalition,

>>>>> or the list moderator(s).

>>>>>

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Sloan-

Jaundice was 'eradicated' in the late 80's due to long hospital stays and good

insurance. When HMO's took over in the 90's the days were cut short and jaundice

had left medical radar. There are many doctors who will tell you a level

Bilirubin of under 20 is fine-- this is not true. The level must be decreasing!

Your child oboviously was not since you went under lights the next day.

Please call and go to:

http://www.kernicterus.org/

The pictures of these children may scare you, they did me, I thought my son

won't/didn't look like this. These children had bilirubin levels in the 30's.

They didn't die from the levels, some do, but they are much more severe than my

sons.

My one son is deaf with AN, has fine motor problems, severe ADHD and had

swallowing and gastric problems. Bilirubin level 21.7

My other son was blind till 9 mo, couldn't swallow, and had GERD so badly they

inserted a G-tube. He also has severe ADHD, but more understanding verbally than

his brother. Bilirubin level 12.5

I truly believe that lower level bilirubin babies are being missed by doctors

who believe the problem has been solved. It was, but it's back with a vengeance.

jamie Elliott

Sent from my iPhone

On Jun 28, 2010, at 5:49 PM, Sloan <Sloan_smith@...> wrote:

> My son had jaundice too. I just looked at his records. he had a level of 15.1

when they discharged him from the hospital at 2 days old. That was at NYU, why

would they do that?!!!

> They told us to take him to the pediatrician the next morning to follow up.

The pediatrician did bloodwork, when it came back he sent us straight to the

hospital and my son was put in a lightbox for 3 days. Ive always wondered if any

of this had anything to do with his delays... Dr. G didnt seem to think much of

it though.

>

>

>>>>>>>

>>>>>>> My son has Kernicterus (KI)... jaundice poisoning after birth

>>>>>>> that was treated by lights... his Bilirubin level was 21.7...

>>>>>>>

>>>>>>> My 2nd son has BIND bilirubin induced neurologic damage... mild

>>>>>>> jaundice poisoning.. Bilirubin level 12.7...

>>>>>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both

>>>>>>> boys are now termed 'spectrum'.

>>>>>>>

>>>>>>> Nate was born early... but the jaundice has to do with the liver

>>>>>>> not producing Albumin to bind with the Bilirubin. The body can't

>>>>>>> block the bilirubin from crossing the blood brain barrier and

>>>>>>> causes injury to the Basil Ganglia-- whose function is to monitor

>>>>>>> behavior.. impulsiveness, social interaction, ect.

>>>>>>>

>>>>>>> I am interested as to those who have had jaundice what level were

>>>>>>> they... It would be important for research to find this out.

>>>>>>>

>>>>>>> jamie

>>>>>>>

>>>>>>

>>>>>>

>>>>>>

>>>>>>

>>>>>> ------------------------------------

>>>>>>

>>>>>> Responsibility for the content of this message lies strictly with

>>>>>> the original author(s), and is not necessarily endorsed by or the

>>>>>> opinion of the Research Institute, the Parent Coalition,

>>>>>> or the list moderator(s).

>>>>>>

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  • 4 months later...

Hi Janet,

We had yellow skin.

We felt there was a problem with yellow foods (not processing

beta-carotene - probably causing a deficiency of vit A) - and having a

preference for yellow foods.

There's also a connection with sulphation (I can't find a good link just

now)

http://www.kingswaycompounding.com.au/News/tabid/103/articleType/Article\

View/articleId/67/Magnesium-Sulphate-Epsom-Salts.aspx

Best wishes,

Sandy

>

> Hi,

> In blood tests its been picked up that ds has jaundice (his skin has

had a yellowy tinge for a good few weeks) - it is the type that the high

bilirubin is there pre-liver. Had initially thought it might be due to a

blocked duct because of his ongoing impaction problem but dr says that

this is not the case, there are probs before it gets to the point of

being emptied into his large bowel. I was just wondering whether anybody

else had had this problem with their children? I've been reading up and

notice amongst the many many things that may cause this there is some

implication with the failure to use B12 properly in some children which

sounds familiar...

> Thanks Janet

>

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>

>

> Hi,

> In blood tests its been picked up that ds has jaundice (his skin has had a

yellowy tinge for a good few weeks) - it is the type that the high bilirubin is

there pre-liver. Had initially thought it might be due to a blocked duct because

of his ongoing impaction problem but dr says that this is not the case, there

are probs before it gets to the point of being emptied into his large bowel. I

was just wondering whether anybody else had had this problem with their

children?

It is so uncommon to see this I'd say it is rare.

Based on that I'd suggest having the doctor make sure no ordinary disease

process is causing it.

>I've been reading up and notice amongst the many many things that may cause

this there is some implication with the failure to use B12 properly in some

children which sounds familiar...

> Thanks Janet

>

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

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>

>

> Hi,

> In blood tests its been picked up that ds has jaundice (his skin has had a

yellowy tinge for a good few weeks) - it is the type that the high bilirubin is

there pre-liver. Had initially thought it might be due to a blocked duct because

of his ongoing impaction problem but dr says that this is not the case, there

are probs before it gets to the point of being emptied into his large bowel. I

was just wondering whether anybody else had had this problem with their

children?

It is so uncommon to see this I'd say it is rare.

Based on that I'd suggest having the doctor make sure no ordinary disease

process is causing it.

>I've been reading up and notice amongst the many many things that may cause

this there is some implication with the failure to use B12 properly in some

children which sounds familiar...

> Thanks Janet

>

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

Link to comment
Share on other sites

>

>

> Hi,

> In blood tests its been picked up that ds has jaundice (his skin has had a

yellowy tinge for a good few weeks) - it is the type that the high bilirubin is

there pre-liver. Had initially thought it might be due to a blocked duct because

of his ongoing impaction problem but dr says that this is not the case, there

are probs before it gets to the point of being emptied into his large bowel. I

was just wondering whether anybody else had had this problem with their

children?

It is so uncommon to see this I'd say it is rare.

Based on that I'd suggest having the doctor make sure no ordinary disease

process is causing it.

>I've been reading up and notice amongst the many many things that may cause

this there is some implication with the failure to use B12 properly in some

children which sounds familiar...

> Thanks Janet

>

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

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Share on other sites

Thank you for your reply Tracey and sharing your own story-I may well look into this when we are over this latest crisis- at the moment they're coming thick and fast. JanetTo: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 25 Nov 2010 20:25:36 +0000Subject: Re: Jaundice

Hi Janet

I am not sure if there is a link between autism and jaundice per se.. What I have noticed is that with kids with high toxin levels, impaired colon function either backed up or with leaky gut type issues, that toxic loading in liver may be a problem leading to jaundice.

When I was down seeing Scotson some time ago there was a young child who had begun her treatment with , with a tube into her stomach, and bright yellow in colour. As 's TST (The Scotson Technique) programme developed with the corresponding improvement in oxygenation, bowel function and improved metabolism of food, this little person lost the yellow colour, and is no longer tube fed.- This child had global disabilities so it is unclear whether there was an autism trait to her.

Scotson is a lady who through her journey to recover her profoundly disabled CP son, discovered that there is a common element in children and people with Neurological issues.- They all have impaired breathing mechanisms.. which impacts on the way the body can be used.. often the body shuts down some neural functions to protect the core ones.

There are a number of us on the group who are using TST and have had great gains... My journey is slightly different in that my DD never had an ASD diagnosis, but did regress significantly at 2, no talking, sleeping mega bowel issues.... and we have used homeopathics and other holistics to allow her to be a high achiever NT mainstream schooled girl..... however her profound problem has been complex seizures which have not been either lessened or controlled with drugs. We have been doing TST for 17 months and are currently on our 14th week seizure free... the longest period since she was 11 months old.. and she is nearly 18.

There is a separate file section within the yahoo group which has a lot more explanatory information about TST.

Best Wishes

Tracey

Hi Tracey,

Just found your email - so there is a link between jaundice in children and autism? Who is Scotson and what is TST if you wouldn't mind telling me?

Many thanks, Janet

To: Autism-Biomedical-Europe From: thelifechangers@...

Date: Wed, 24 Nov 2010 20:56:48 +0000Subject: Re: Jaundice

Might it be a toxic liver.. and I wonder if things like milk thistle, liverlife, nettle tea etc may help to detox the liver and help it to function better... also avoid things like Corn syrup, sugars and high proteins as these too can increase toxic load in liver.

Perhaps Helios homeopathic pharmacy could give you to a good remedy..... also many of the kids that see Scotson often arrive very yellow with jaundice and within a few months of doing TST it goes as body functional levels improve .

Best Wishes

Tracey

Hi,

In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar...

Thanks Janet

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Thank you for your reply Tracey and sharing your own story-I may well look into this when we are over this latest crisis- at the moment they're coming thick and fast. JanetTo: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 25 Nov 2010 20:25:36 +0000Subject: Re: Jaundice

Hi Janet

I am not sure if there is a link between autism and jaundice per se.. What I have noticed is that with kids with high toxin levels, impaired colon function either backed up or with leaky gut type issues, that toxic loading in liver may be a problem leading to jaundice.

When I was down seeing Scotson some time ago there was a young child who had begun her treatment with , with a tube into her stomach, and bright yellow in colour. As 's TST (The Scotson Technique) programme developed with the corresponding improvement in oxygenation, bowel function and improved metabolism of food, this little person lost the yellow colour, and is no longer tube fed.- This child had global disabilities so it is unclear whether there was an autism trait to her.

Scotson is a lady who through her journey to recover her profoundly disabled CP son, discovered that there is a common element in children and people with Neurological issues.- They all have impaired breathing mechanisms.. which impacts on the way the body can be used.. often the body shuts down some neural functions to protect the core ones.

There are a number of us on the group who are using TST and have had great gains... My journey is slightly different in that my DD never had an ASD diagnosis, but did regress significantly at 2, no talking, sleeping mega bowel issues.... and we have used homeopathics and other holistics to allow her to be a high achiever NT mainstream schooled girl..... however her profound problem has been complex seizures which have not been either lessened or controlled with drugs. We have been doing TST for 17 months and are currently on our 14th week seizure free... the longest period since she was 11 months old.. and she is nearly 18.

There is a separate file section within the yahoo group which has a lot more explanatory information about TST.

Best Wishes

Tracey

Hi Tracey,

Just found your email - so there is a link between jaundice in children and autism? Who is Scotson and what is TST if you wouldn't mind telling me?

Many thanks, Janet

To: Autism-Biomedical-Europe From: thelifechangers@...

Date: Wed, 24 Nov 2010 20:56:48 +0000Subject: Re: Jaundice

Might it be a toxic liver.. and I wonder if things like milk thistle, liverlife, nettle tea etc may help to detox the liver and help it to function better... also avoid things like Corn syrup, sugars and high proteins as these too can increase toxic load in liver.

Perhaps Helios homeopathic pharmacy could give you to a good remedy..... also many of the kids that see Scotson often arrive very yellow with jaundice and within a few months of doing TST it goes as body functional levels improve .

Best Wishes

Tracey

Hi,

In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar...

Thanks Janet

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