Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Our son was jaundiced as a newborn, he also had pneumonia. His hands and feet are ALWAYS cold yet he sweats alot in bed to the point I had to change his sheets everyday when he was a baby. He also hates to wear socks or use a blanket. My son is always congested yet doesn't always have a runny nose. Does anyone else deal with this? He also had many different rashes as a baby that no doctor could identify. Some would last a day, some would last an hour. He has grown out of this now though. I have never taken his temperature after fevering, but he has been cold to the touch for the day or so after. I am really finding it interesting as to how many similarities there are with our children. Things that I have always found to be a bit concerning yet doctors always brushed off. Belobrajdic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2009 Report Share Posted February 9, 2009 My son was jaundiced at birth. The doctor told me then that it is very common for children with Asian origins (my son is half Asian) to be jaundiced at birth. (mother of Raffaele, 7years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. Nate was born early and was severely jaundice. I am interested as to how many others were jaundice. jamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Our soon had jaundice. Sent from my iPhone On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote: I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. Nate was born early and was severely jaundice. I am interested as to how many others were jaundice. jamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 My son was not Jaudice but interestingly I and my mother were both severely jaundice. If you look at Fragile X the genetic issues often skip a generation. There is so much bing done on mapping the human genome, I would expect answerers very soon. Bill I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. Nate was born early and was severely jaundice. I am interested as to how many others were jaundice. jamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 My son and his twin were born 14 weeks early. They had jaundice. He has asd but she does not. He was on vancomyacin for sepsis. She had other nicu issues that he did not have. They both received 5 vaccs in 1 day. My feeling is that the sepsis/vancomyacin then 5 vaccinations has something to do with his asd. Kristy Bill klimas <klimas_bill@...> wrote: >My son was not Jaudice but interestingly I and my mother were both severely jaundice. If you look at Fragile X the genetic issues often skip a generation. There is so much bing done on mapping the human genome, I would expect answerers very soon. >Bill > > > > >I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. > > > >Nate was born early and was severely jaundice. > > > >I am interested as to how many others were jaundice. > > > >jamie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Our son had jaundice too. Just slightly. He did the lights I believe for a few days.  Do you think that the jaundice itself is possibly a factor in some kids with asd or is the jaundice just more of a clue that our kids' immune systems were weak from the womb??? Thanks. dawn ________________________________ From: " erikadyan71@... " <erikadyan71@...> Sent: Tue, June 1, 2010 6:25:12 PM Subject: Re: jaundice  Our son, Hunter, had jaundice! He did not require the lights or extra hospitalization. Worked through it by feeding and keeping him by a window throughout the day!! - Sent on the Sprint® Now Network from my BlackBerry® Re: jaundice Our soon had jaundice. Sent from my iPhone On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote: I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. Nate was born early and was severely jaundice. I am interested as to how many others were jaundice. jamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 My oldest son had jaundice (and I did as well). His doctor (in the Netherlands) told me to give him fish oil, if I remember correctly. Â Cheers, Â Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 My son has Kernicterus (KI)... jaundice poisoning after birth that was treated by lights... his Bilirubin level was 21.7... My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice poisoning.. Bilirubin level 12.7... As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now termed 'spectrum'. Nate was born early... but the jaundice has to do with the liver not producing Albumin to bind with the Bilirubin. The body can't block the bilirubin from crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose function is to monitor behavior.. impulsiveness, social interaction, ect. I am interested as to those who have had jaundice what level were they... It would be important for research to find this out. jamie On Jun 1, 2010, at 9:31 PM, Dawn Dolan wrote: > Our son had jaundice too. Just slightly. He did the lights I believe for a few days. Do you think that the jaundice itself is possibly a factor in some kids with asd or is the jaundice just more of a clue that our kids' immune systems were weak from the womb??? > > Thanks. > > dawn > > > > > ________________________________ > From: " erikadyan71@... " <erikadyan71@...> > > Sent: Tue, June 1, 2010 6:25:12 PM > Subject: Re: jaundice > > > Our son, Hunter, had jaundice! He did not require the lights or extra hospitalization. Worked through it by feeding and keeping him by a window throughout the day!! > > - > Sent on the Sprint® Now Network from my BlackBerry® > > Re: jaundice > > Our soon had jaundice. > > Sent from my iPhone > > On Jun 1, 2010, at 12:08 PM, " heppynate " <heppy@...> wrote: > > I have a child who has been 'unoffically', as of yet, put on the spectrum. He is 9 and has ADHD, outbursts, OCD tendencies, and communication issues. > > Nate was born early and was severely jaundice. > > I am interested as to how many others were jaundice. > > jamie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 My son had biliruben level of 19 last they checked. It was at about 7 in the morning. The biliblanket didn't arrive until late that afternoon, he got on it that evening so have no idea how high it got. Only know it was rising fast, day before it was 16. Didn't know it was so serious until 2 years later when I began to research due to son's autism, thought jaundice was common and told 1/100k chance of any problem. - I'm sorry to read that your sons have KI. How is it dx when it is mild? I have often wondered if my son's problems were related to this. But I thought it wasn't so likely as I read somewhere that usually the biliruben levels have to be up in the 30s. Do you know a good source of info? I find it hard to get info on it. Noticed in photos of my son, it took several weeks for him to loose that yellow-orange look. > > My son has Kernicterus (KI)... jaundice poisoning after birth that was treated by lights... his Bilirubin level was 21.7... > > My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice poisoning.. Bilirubin level 12.7... > As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now termed 'spectrum'. > > Nate was born early... but the jaundice has to do with the liver not producing Albumin to bind with the Bilirubin. The body can't block the bilirubin from crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose function is to monitor behavior.. impulsiveness, social interaction, ect. > > I am interested as to those who have had jaundice what level were they... It would be important for research to find this out. > > jamie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 , Would love more information on this too. My son had elevated bilirubin(sp) and was discharged late due to this....it's amazing how many " start/stop " orders were put in for that darn Hep B vaccine in the NICU. My child was termed the orange baby for months by neurologists etc who attributed it to orange baby foods.....this has haunted me forever. My child was born with congenital lyme....i got really sick and was put on prednisone which made all the infections worse. He is social, but very delayed...some say he won't recover, but is moving in the right direction ever soooooo slowly. his prognosis was wheelchair kid with GI tube. some put him on the spectrum others says that he is massively inflamed and poisoned....either way, it's getting the load down and trying to figure out how to repair neurologic damage. any scoop is appreciated. thanks. lisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2010 Report Share Posted June 14, 2010 , If your son is in a wheelchair, I would look on the PICK -- parents of infants and children with Kernicterus site!! http://www.kernicterus.org/ Both my boys were also congenital lyme... I am lyme... How are you doing? Would love to talk .... 217-778-5493 On Jun 5, 2010, at 10:44 PM, personalcargo@... wrote: > , > > > Would love more information on this too. My son had elevated bilirubin(sp) and was discharged late due to this....it's amazing how many " start/stop " orders were put in for that darn Hep B vaccine in the NICU. My child was termed the orange baby for months by neurologists etc who attributed it to orange baby foods.....this has haunted me forever. > > > My child was born with congenital lyme....i got really sick and was put on prednisone which made all the infections worse. He is social, but very delayed...some say he won't recover, but is moving in the right direction ever soooooo slowly. his prognosis was wheelchair kid with GI tube. some put him on the spectrum others says that he is massively inflamed and poisoned....either way, it's getting the load down and trying to figure out how to repair neurologic damage. > > > any scoop is appreciated. thanks. > > > lisa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2010 Report Share Posted June 14, 2010 K, Sorry it took so long to get back... email!! Anyway. Jaundice damage is on the rise. In the 1980-early 90's it was treated very aggressively and well all babies were kept in the hospital if they were the least bit jaundice. Until the HMO's of the late 90's and then there was a paper written that the kids were 'over treated' and that there is a reason for jaundice.... The appropriate level for newborn jaundice is '0'.. but it does rise in most infants. Anything can be dangerous, but the rule of thumb is treat for 'any neuro changes' and if level exceeds 10-12. Double blood transfusions at 20. This article explains it well... look especially at the 1st 'paragraph': http://www.anaesthetist.com/icu/specl/neonate/Findex.htm also there is a group of mom's causing change... I am one of them, don't wig over the pictures, my son 'looks normal', but has 'ADHD' and 'OCD qualities': http://www.kernicterus.org/ Dr Shapiro in VA is the best Doc around... for KI. AN- auditory neuropathy- a 'nerve deafness' is part of KI. The ear work, but the nerve to the brain is 'broken'-- Dr Berlin in Florida is the best for this. http://auditoryneuropathy.tripod.com/ANindex.html Give me a call 217-778-5493 On Jun 3, 2010, at 6:28 AM, K wrote: > My son had : level of 19 last they checked. It was at about 7 in the morning. The biliblanket didn't arrive until late that afternoon, he got on it that evening so have no idea how high it got. Only know it was rising fast, day before it was 16. Didn't know it was so serious until 2 years later when I began to research due to son's autism, thought jaundice was common and told 1/100k chance of any problem. > > - I'm sorry to read that your sons have KI. How is it dx when it is mild? > > I have often wondered if my son's problems were related to this. But I thought it wasn't so likely as I read somewhere that usually the biliruben levels have to be up in the 30s. > > Do you know a good source of info? I find it hard to get info on it. > > Noticed in photos of my son, it took several weeks for him to loose that yellow-orange look. > > > > > >> >> My son has Kernicterus (KI)... jaundice poisoning after birth that was treated by lights... his Bilirubin level was 21.7... >> >> My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice poisoning.. Bilirubin level 12.7... >> As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now termed 'spectrum'. >> >> Nate was born early... but the jaundice has to do with the liver not producing Albumin to bind with the Bilirubin. The body can't block the bilirubin from crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose function is to monitor behavior.. impulsiveness, social interaction, ect. >> >> I am interested as to those who have had jaundice what level were they... It would be important for research to find this out. >> >> jamie >> > > > > > ------------------------------------ > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 - thanks so much for all the info! This really makes me sick to my stomach! So senseless so preventable. Still it's not clear to me how I can directly link my son's problems to jaundice. It seems in the subtler situations that the could be many causes and it could be hard to say specifically what the cause is. My labor was long (32hrs), and induced and the first problem we had was the sucking - he had a hard time latching and sucking. He was not born with jaundice. Anyway, thanks again for all your info! > >> > >> My son has Kernicterus (KI)... jaundice poisoning after birth that was treated by lights... his Bilirubin level was 21.7... > >> > >> My 2nd son has BIND bilirubin induced neurologic damage... mild jaundice poisoning.. Bilirubin level 12.7... > >> As he has grown, he has mild KI. Very few have 'mild' KI. Both boys are now termed 'spectrum'. > >> > >> Nate was born early... but the jaundice has to do with the liver not producing Albumin to bind with the Bilirubin. The body can't block the bilirubin from crossing the blood brain barrier and causes injury to the Basil Ganglia-- whose function is to monitor behavior.. impulsiveness, social interaction, ect. > >> > >> I am interested as to those who have had jaundice what level were they... It would be important for research to find this out. > >> > >> jamie > >> > > > > > > > > > > ------------------------------------ > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute, the Parent Coalition, or the list moderator(s). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Was your child early? The latching on can come from simple difficulties... But then the baby doesn't have the bilirubin flushed out of the system with no stool flush. Day 3-5 is when jaundice poisoning occurs. If he level is in the low teens, 12-17, you get lethargic (sp?) and limp babies. After you have ADHD, impulsive, fine motor difficulties, constipation, and communication issues. All from a 'little jaundice'. Sent from my iPhone On Jun 15, 2010, at 5:18 AM, K <rcwdesigns@...> wrote: > - thanks so much for all the info! This really makes me sick > to my stomach! So senseless so preventable. > > Still it's not clear to me how I can directly link my son's problems > to jaundice. It seems in the subtler situations that the could be > many causes and it could be hard to say specifically what the cause > is. > > My labor was long (32hrs), and induced and the first problem we had > was the sucking - he had a hard time latching and sucking. He was > not born with jaundice. > > Anyway, thanks again for all your info! > > > >>>> >>>> My son has Kernicterus (KI)... jaundice poisoning after birth >>>> that was treated by lights... his Bilirubin level was 21.7... >>>> >>>> My 2nd son has BIND bilirubin induced neurologic damage... mild >>>> jaundice poisoning.. Bilirubin level 12.7... >>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both >>>> boys are now termed 'spectrum'. >>>> >>>> Nate was born early... but the jaundice has to do with the liver >>>> not producing Albumin to bind with the Bilirubin. The body can't >>>> block the bilirubin from crossing the blood brain barrier and >>>> causes injury to the Basil Ganglia-- whose function is to monitor >>>> behavior.. impulsiveness, social interaction, ect. >>>> >>>> I am interested as to those who have had jaundice what level were >>>> they... It would be important for research to find this out. >>>> >>>> jamie >>>> >>> >>> >>> >>> >>> ------------------------------------ >>> >>> Responsibility for the content of this message lies strictly with >>> the original author(s), and is not necessarily endorsed by or the >>> opinion of the Research Institute, the Parent Coalition, >>> or the list moderator(s). >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 wow, you really know a lot about this. My son wasn't early, he was about 5 days late. I had no amnoitic fluid so they induced. I do remember he was late with his first stool. Can't really remember those first few weeks, it was all a blur, poor thing was crying, fussy and probably hungry. We were so inexperienced. I don't really remember him being lethargic, more agitated. He now definitely is impulsive, adhd, motor difficulties but not consistant - no problems with sissor or drawing but completely behind being able to dress self, struggles with putting socks on etc at 5.5 yo. No constipation but had loose stools until this past year with probiotics etc helping. Definite communication issues - struggles to talk, think of words, can't understand what he hears, over and over says 'what?', hypersensitive to sound etc etc I still don't understand how they can clearly link these problems with the billirubin. It seems like just a clinical assessment, no test. thanks for all your info!! > >>>> > >>>> My son has Kernicterus (KI)... jaundice poisoning after birth > >>>> that was treated by lights... his Bilirubin level was 21.7... > >>>> > >>>> My 2nd son has BIND bilirubin induced neurologic damage... mild > >>>> jaundice poisoning.. Bilirubin level 12.7... > >>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both > >>>> boys are now termed 'spectrum'. > >>>> > >>>> Nate was born early... but the jaundice has to do with the liver > >>>> not producing Albumin to bind with the Bilirubin. The body can't > >>>> block the bilirubin from crossing the blood brain barrier and > >>>> causes injury to the Basil Ganglia-- whose function is to monitor > >>>> behavior.. impulsiveness, social interaction, ect. > >>>> > >>>> I am interested as to those who have had jaundice what level were > >>>> they... It would be important for research to find this out. > >>>> > >>>> jamie > >>>> > >>> > >>> > >>> > >>> > >>> ------------------------------------ > >>> > >>> Responsibility for the content of this message lies strictly with > >>> the original author(s), and is not necessarily endorsed by or the > >>> opinion of the Research Institute, the Parent Coalition, > >>> or the list moderator(s). > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 My son had jaundice too. I just looked at his records. he had a level of 15.1 when they discharged him from the hospital at 2 days old. That was at NYU, why would they do that?!!! They told us to take him to the pediatrician the next morning to follow up. The pediatrician did bloodwork, when it came back he sent us straight to the hospital and my son was put in a lightbox for 3 days. Ive always wondered if any of this had anything to do with his delays... Dr. G didnt seem to think much of it though. > > >>>> > > >>>> My son has Kernicterus (KI)... jaundice poisoning after birth > > >>>> that was treated by lights... his Bilirubin level was 21.7... > > >>>> > > >>>> My 2nd son has BIND bilirubin induced neurologic damage... mild > > >>>> jaundice poisoning.. Bilirubin level 12.7... > > >>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both > > >>>> boys are now termed 'spectrum'. > > >>>> > > >>>> Nate was born early... but the jaundice has to do with the liver > > >>>> not producing Albumin to bind with the Bilirubin. The body can't > > >>>> block the bilirubin from crossing the blood brain barrier and > > >>>> causes injury to the Basil Ganglia-- whose function is to monitor > > >>>> behavior.. impulsiveness, social interaction, ect. > > >>>> > > >>>> I am interested as to those who have had jaundice what level were > > >>>> they... It would be important for research to find this out. > > >>>> > > >>>> jamie > > >>>> > > >>> > > >>> > > >>> > > >>> > > >>> ------------------------------------ > > >>> > > >>> Responsibility for the content of this message lies strictly with > > >>> the original author(s), and is not necessarily endorsed by or the > > >>> opinion of the Research Institute, the Parent Coalition, > > >>> or the list moderator(s). > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 An ABR tracks the sound waves the brain is hearing and shows whether or not it is discernible. Go to: http://auditoryneuropathy.tripod.com/ANindex.html This information is ONLY about AN: AN is only a part of KI, Kernicterus. Kernicterus in full term infants looks different than preemies. My son was preemie. He was 33 weeks. Bilirubin level 21.7. Full terms get 'angry'. They scream, arch and even get rigid sometimes. They look orange, but color can be deceptive and should not be a 'rule out' of a dx. I am a nurse and this disease has hurt 2 of my children. I have learned a good deal about this disease and only want to help others. jamie Sent from my iPhone On Jun 22, 2010, at 4:15 AM, K <rcwdesigns@...> wrote: > wow, you really know a lot about this. > > My son wasn't early, he was about 5 days late. I had no amnoitic fluid so they induced. > > I do remember he was late with his first stool. Can't really remember those first few weeks, it was all a blur, poor thing was crying, fussy and probably hungry. We were so inexperienced. > > I don't really remember him being lethargic, more agitated. > > He now definitely is impulsive, adhd, motor difficulties but not consistant - no problems with sissor or drawing but completely behind being able to dress self, struggles with putting socks on etc at 5.5 yo. > > No constipation but had loose stools until this past year with probiotics etc helping. > > Definite communication issues - struggles to talk, think of words, can't understand what he hears, over and over says 'what?', hypersensitive to sound etc etc > > I still don't understand how they can clearly link these problems with the billirubin. It seems like just a clinical assessment, no test. > > thanks for all your info!! > > > > >>>>>> >>>>>> My son has Kernicterus (KI)... jaundice poisoning after birth >>>>>> that was treated by lights... his Bilirubin level was 21.7... >>>>>> >>>>>> My 2nd son has BIND bilirubin induced neurologic damage... mild >>>>>> jaundice poisoning.. Bilirubin level 12.7... >>>>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both >>>>>> boys are now termed 'spectrum'. >>>>>> >>>>>> Nate was born early... but the jaundice has to do with the liver >>>>>> not producing Albumin to bind with the Bilirubin. The body can't >>>>>> block the bilirubin from crossing the blood brain barrier and >>>>>> causes injury to the Basil Ganglia-- whose function is to monitor >>>>>> behavior.. impulsiveness, social interaction, ect. >>>>>> >>>>>> I am interested as to those who have had jaundice what level were >>>>>> they... It would be important for research to find this out. >>>>>> >>>>>> jamie >>>>>> >>>>> >>>>> >>>>> >>>>> >>>>> ------------------------------------ >>>>> >>>>> Responsibility for the content of this message lies strictly with >>>>> the original author(s), and is not necessarily endorsed by or the >>>>> opinion of the Research Institute, the Parent Coalition, >>>>> or the list moderator(s). >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Sloan- Jaundice was 'eradicated' in the late 80's due to long hospital stays and good insurance. When HMO's took over in the 90's the days were cut short and jaundice had left medical radar. There are many doctors who will tell you a level Bilirubin of under 20 is fine-- this is not true. The level must be decreasing! Your child oboviously was not since you went under lights the next day. Please call and go to: http://www.kernicterus.org/ The pictures of these children may scare you, they did me, I thought my son won't/didn't look like this. These children had bilirubin levels in the 30's. They didn't die from the levels, some do, but they are much more severe than my sons. My one son is deaf with AN, has fine motor problems, severe ADHD and had swallowing and gastric problems. Bilirubin level 21.7 My other son was blind till 9 mo, couldn't swallow, and had GERD so badly they inserted a G-tube. He also has severe ADHD, but more understanding verbally than his brother. Bilirubin level 12.5 I truly believe that lower level bilirubin babies are being missed by doctors who believe the problem has been solved. It was, but it's back with a vengeance. jamie Elliott Sent from my iPhone On Jun 28, 2010, at 5:49 PM, Sloan <Sloan_smith@...> wrote: > My son had jaundice too. I just looked at his records. he had a level of 15.1 when they discharged him from the hospital at 2 days old. That was at NYU, why would they do that?!!! > They told us to take him to the pediatrician the next morning to follow up. The pediatrician did bloodwork, when it came back he sent us straight to the hospital and my son was put in a lightbox for 3 days. Ive always wondered if any of this had anything to do with his delays... Dr. G didnt seem to think much of it though. > > >>>>>>> >>>>>>> My son has Kernicterus (KI)... jaundice poisoning after birth >>>>>>> that was treated by lights... his Bilirubin level was 21.7... >>>>>>> >>>>>>> My 2nd son has BIND bilirubin induced neurologic damage... mild >>>>>>> jaundice poisoning.. Bilirubin level 12.7... >>>>>>> As he has grown, he has mild KI. Very few have 'mild' KI. Both >>>>>>> boys are now termed 'spectrum'. >>>>>>> >>>>>>> Nate was born early... but the jaundice has to do with the liver >>>>>>> not producing Albumin to bind with the Bilirubin. The body can't >>>>>>> block the bilirubin from crossing the blood brain barrier and >>>>>>> causes injury to the Basil Ganglia-- whose function is to monitor >>>>>>> behavior.. impulsiveness, social interaction, ect. >>>>>>> >>>>>>> I am interested as to those who have had jaundice what level were >>>>>>> they... It would be important for research to find this out. >>>>>>> >>>>>>> jamie >>>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> ------------------------------------ >>>>>> >>>>>> Responsibility for the content of this message lies strictly with >>>>>> the original author(s), and is not necessarily endorsed by or the >>>>>> opinion of the Research Institute, the Parent Coalition, >>>>>> or the list moderator(s). >>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 Hi Janet, We had yellow skin. We felt there was a problem with yellow foods (not processing beta-carotene - probably causing a deficiency of vit A) - and having a preference for yellow foods. There's also a connection with sulphation (I can't find a good link just now) http://www.kingswaycompounding.com.au/News/tabid/103/articleType/Article\ View/articleId/67/Magnesium-Sulphate-Epsom-Salts.aspx Best wishes, Sandy > > Hi, > In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... > Thanks Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 > > > Hi, > In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? It is so uncommon to see this I'd say it is rare. Based on that I'd suggest having the doctor make sure no ordinary disease process is causing it. >I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... > Thanks Janet > Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 > > > Hi, > In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? It is so uncommon to see this I'd say it is rare. Based on that I'd suggest having the doctor make sure no ordinary disease process is causing it. >I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... > Thanks Janet > Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 > > > Hi, > In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? It is so uncommon to see this I'd say it is rare. Based on that I'd suggest having the doctor make sure no ordinary disease process is causing it. >I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... > Thanks Janet > Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Thank you for your reply Tracey and sharing your own story-I may well look into this when we are over this latest crisis- at the moment they're coming thick and fast. JanetTo: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 25 Nov 2010 20:25:36 +0000Subject: Re: Jaundice Hi Janet I am not sure if there is a link between autism and jaundice per se.. What I have noticed is that with kids with high toxin levels, impaired colon function either backed up or with leaky gut type issues, that toxic loading in liver may be a problem leading to jaundice. When I was down seeing Scotson some time ago there was a young child who had begun her treatment with , with a tube into her stomach, and bright yellow in colour. As 's TST (The Scotson Technique) programme developed with the corresponding improvement in oxygenation, bowel function and improved metabolism of food, this little person lost the yellow colour, and is no longer tube fed.- This child had global disabilities so it is unclear whether there was an autism trait to her. Scotson is a lady who through her journey to recover her profoundly disabled CP son, discovered that there is a common element in children and people with Neurological issues.- They all have impaired breathing mechanisms.. which impacts on the way the body can be used.. often the body shuts down some neural functions to protect the core ones. There are a number of us on the group who are using TST and have had great gains... My journey is slightly different in that my DD never had an ASD diagnosis, but did regress significantly at 2, no talking, sleeping mega bowel issues.... and we have used homeopathics and other holistics to allow her to be a high achiever NT mainstream schooled girl..... however her profound problem has been complex seizures which have not been either lessened or controlled with drugs. We have been doing TST for 17 months and are currently on our 14th week seizure free... the longest period since she was 11 months old.. and she is nearly 18. There is a separate file section within the yahoo group which has a lot more explanatory information about TST. Best Wishes Tracey Hi Tracey, Just found your email - so there is a link between jaundice in children and autism? Who is Scotson and what is TST if you wouldn't mind telling me? Many thanks, Janet To: Autism-Biomedical-Europe From: thelifechangers@... Date: Wed, 24 Nov 2010 20:56:48 +0000Subject: Re: Jaundice Might it be a toxic liver.. and I wonder if things like milk thistle, liverlife, nettle tea etc may help to detox the liver and help it to function better... also avoid things like Corn syrup, sugars and high proteins as these too can increase toxic load in liver. Perhaps Helios homeopathic pharmacy could give you to a good remedy..... also many of the kids that see Scotson often arrive very yellow with jaundice and within a few months of doing TST it goes as body functional levels improve . Best Wishes Tracey Hi, In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... Thanks Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Thank you for your reply Tracey and sharing your own story-I may well look into this when we are over this latest crisis- at the moment they're coming thick and fast. JanetTo: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 25 Nov 2010 20:25:36 +0000Subject: Re: Jaundice Hi Janet I am not sure if there is a link between autism and jaundice per se.. What I have noticed is that with kids with high toxin levels, impaired colon function either backed up or with leaky gut type issues, that toxic loading in liver may be a problem leading to jaundice. When I was down seeing Scotson some time ago there was a young child who had begun her treatment with , with a tube into her stomach, and bright yellow in colour. As 's TST (The Scotson Technique) programme developed with the corresponding improvement in oxygenation, bowel function and improved metabolism of food, this little person lost the yellow colour, and is no longer tube fed.- This child had global disabilities so it is unclear whether there was an autism trait to her. Scotson is a lady who through her journey to recover her profoundly disabled CP son, discovered that there is a common element in children and people with Neurological issues.- They all have impaired breathing mechanisms.. which impacts on the way the body can be used.. often the body shuts down some neural functions to protect the core ones. There are a number of us on the group who are using TST and have had great gains... My journey is slightly different in that my DD never had an ASD diagnosis, but did regress significantly at 2, no talking, sleeping mega bowel issues.... and we have used homeopathics and other holistics to allow her to be a high achiever NT mainstream schooled girl..... however her profound problem has been complex seizures which have not been either lessened or controlled with drugs. We have been doing TST for 17 months and are currently on our 14th week seizure free... the longest period since she was 11 months old.. and she is nearly 18. There is a separate file section within the yahoo group which has a lot more explanatory information about TST. Best Wishes Tracey Hi Tracey, Just found your email - so there is a link between jaundice in children and autism? Who is Scotson and what is TST if you wouldn't mind telling me? Many thanks, Janet To: Autism-Biomedical-Europe From: thelifechangers@... Date: Wed, 24 Nov 2010 20:56:48 +0000Subject: Re: Jaundice Might it be a toxic liver.. and I wonder if things like milk thistle, liverlife, nettle tea etc may help to detox the liver and help it to function better... also avoid things like Corn syrup, sugars and high proteins as these too can increase toxic load in liver. Perhaps Helios homeopathic pharmacy could give you to a good remedy..... also many of the kids that see Scotson often arrive very yellow with jaundice and within a few months of doing TST it goes as body functional levels improve . Best Wishes Tracey Hi, In blood tests its been picked up that ds has jaundice (his skin has had a yellowy tinge for a good few weeks) - it is the type that the high bilirubin is there pre-liver. Had initially thought it might be due to a blocked duct because of his ongoing impaction problem but dr says that this is not the case, there are probs before it gets to the point of being emptied into his large bowel. I was just wondering whether anybody else had had this problem with their children? I've been reading up and notice amongst the many many things that may cause this there is some implication with the failure to use B12 properly in some children which sounds familiar... Thanks Janet Quote Link to comment Share on other sites More sharing options...
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