Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Hi , Don't wait another day. Find the nearest CI center and go for it. Good luck, Curtis Tanner Freedon 10/6/05 Activated 10/17/05 Need Info > Hello, > My name is Glotzbach. I live in Floyds Knobs, IN (Southern > Indiana, near Louisville, KY). I lost my hearing 8 years ago this > December. The doctor hasn't really ever said a cause and just > termed it Sudden Nerve Deafness. I have been using a hearing aid > during this time, but it has been difficult. I can no longer hear > music like I used to, occasionally I can hear a old familar tune. I > don't go to the movies anymore, and I have to use a phone with an > amplifier on it. > Going to get togethers are difficult because I can't follow group > discussions very well. I usually do pretty good in a small group > setting or one on one. When I loss my hearing, I had no hearing > whatever in my right ear since birth and had always depended on my > left ear and now that is gone. The doctor said I have 4% hearing in > my left ear and have told me that I'm a good candiate for the CI. > I'm really concerned that I will eventually loss my 4% and the > doctor has said that the CI would get me back up to around 50%. > When I first lost my hearing, I was pregnant with my first child and > was really nervous about having the CI done with a newborn. Since > then, I now have two kids ages 7 and 3. I would love to be able to > hear my kids better. I feel like I have missed out on a lot, but I > also feel I have kept a good outlook. I'm 33 and I think maybe I > should consider having the surgery. I would love some feedback. > Thanks, > Glotzbach > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 Hi Angie, my name is Debbie, I am from Louisiana and like you I had a sudden hearing loss. I went from the normal hearing world to needing hearing aids, then all hearing was gone and needed a CI all in a matter of 18 months. I'm sure you have had many replys from this group, I don't post much but I enjoy it daily. My only regret is not knowing of it before I got my CI. I am 44 yrs old and my life has taken a drastic change, without the CI I'm not sure where or what I would be doing now. But thanks to this wonderful technology, I am dealing with all the changes better than I could have ever dreamed. Don't hesitate to ask any questions as I said before this group is both helpful and very knowledgable. Keep in touch, looking forward to reading about your journey. Debbie Clay CI/Nucleus Freedom Implanted June 2005 Activated July 2005 >From: " aglotzbach " <aglotzbach@...> >Reply- > >Subject: Need Info >Date: Fri, 11 Nov 2005 21:11:59 -0000 > >Hello, > My name is Glotzbach. I live in Floyds Knobs, IN (Southern >Indiana, near Louisville, KY). I lost my hearing 8 years ago this >December. The doctor hasn't really ever said a cause and just >termed it Sudden Nerve Deafness. I have been using a hearing aid >during this time, but it has been difficult. I can no longer hear >music like I used to, occasionally I can hear a old familar tune. I >don't go to the movies anymore, and I have to use a phone with an >amplifier on it. >Going to get togethers are difficult because I can't follow group >discussions very well. I usually do pretty good in a small group >setting or one on one. When I loss my hearing, I had no hearing >whatever in my right ear since birth and had always depended on my >left ear and now that is gone. The doctor said I have 4% hearing in >my left ear and have told me that I'm a good candiate for the CI. >I'm really concerned that I will eventually loss my 4% and the >doctor has said that the CI would get me back up to around 50%. >When I first lost my hearing, I was pregnant with my first child and >was really nervous about having the CI done with a newborn. Since >then, I now have two kids ages 7 and 3. I would love to be able to >hear my kids better. I feel like I have missed out on a lot, but I >also feel I have kept a good outlook. I'm 33 and I think maybe I >should consider having the surgery. I would love some feedback. > Thanks, > Glotzbach > > > > > > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 Hi , I too am a late deafened adult, (although my wife would argue about the adult part) and I was implanted in June of this year. I experienced quite sudden hearing loss due to Autoimmune Inner Ear Diease, I had all kinds of awful treatments for that and eventually a highpowered aid, nothing worked very well until I received my Implant. I am not one to push anyone to have surgery, I believe that is up to the specialists (ENT, Audiologist, Implant Surgeon) but having said that, if those folks say you are a good cantidate they are the ones to listen to. I am very grateful for what my implant has given me and I think you will find most CI users are the same. It is your decision to make, but the surgery is one of the easier operations today and the outcomes are excellent, so listen to the experts, but don't get all worried, my attitude was a CI could not make my situation worse and it offered hope of some hearing (which has exceeded my expectations) so I did not consider it much of a risk. Good luck in you quest, and ask as many questions as you can think of we are all here to help any way we can. ;-) Mike " Ears Hopin " Partridge > > Hello, > My name is Glotzbach. I live in Floyds Knobs, IN (Southern > Indiana, near Louisville, KY). I lost my hearing 8 years ago this > December. The doctor hasn't really ever said a cause and just > termed it Sudden Nerve Deafness. I have been using a hearing aid > during this time, but it has been difficult. I can no longer hear > music like I used to, occasionally I can hear a old familar tune. I > don't go to the movies anymore, and I have to use a phone with an > amplifier on it. > Going to get togethers are difficult because I can't follow group > discussions very well. I usually do pretty good in a small group > setting or one on one. When I loss my hearing, I had no hearing > whatever in my right ear since birth and had always depended on my > left ear and now that is gone. The doctor said I have 4% hearing in > my left ear and have told me that I'm a good candiate for the CI. > I'm really concerned that I will eventually loss my 4% and the > doctor has said that the CI would get me back up to around 50%. > When I first lost my hearing, I was pregnant with my first child and > was really nervous about having the CI done with a newborn. Since > then, I now have two kids ages 7 and 3. I would love to be able to > hear my kids better. I feel like I have missed out on a lot, but I > also feel I have kept a good outlook. I'm 33 and I think maybe I > should consider having the surgery. I would love some feedback. > Thanks, > Glotzbach > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2005 Report Share Posted November 14, 2005 , When I read your post I wanted to reply and say hi. We are neighbors! I live in ville, just a couple of hours away! (We survived the tornado, but know a lot of people who are now homeless...) It's always nice to meet someone that lives so close! Although I cannot give advice for an adult, I do know that there are a lot of people in this group that can. Feel free to ask anything and don't feel like any question you have is a dumb question. The reason I subscribe to this group is because my daughter is deaf. We learned about our daughter's deafness through the Indiana newborn screening test. She started wearing hearing aids when she was three months old. She is now 2-1/2 and had CI surgery at Riley on October 18th. She gets activated in two weeks. So again, I just wanted to say hi and let you know that there is a lot of support out there, and that you have come to the right place! P.S. My band director from High School was from Floyds Knobs and so was my sister's good friend from college! _____________________ A. Weinzapfel PURCHASING DEPARTMENT UNIVERSITY OF SOUTHERN INDIANA 812.464.1848 JWEINZAP@... ________________________________ From: [mailto: ] On Behalf Of aglotzbach Sent: Friday, November 11, 2005 3:12 PM Subject: Need Info Hello, My name is Glotzbach. I live in Floyds Knobs, IN (Southern Indiana, near Louisville, KY). I lost my hearing 8 years ago this December. The doctor hasn't really ever said a cause and just termed it Sudden Nerve Deafness. I have been using a hearing aid during this time, but it has been difficult. I can no longer hear music like I used to, occasionally I can hear a old familar tune. I don't go to the movies anymore, and I have to use a phone with an amplifier on it. Going to get togethers are difficult because I can't follow group discussions very well. I usually do pretty good in a small group setting or one on one. When I loss my hearing, I had no hearing whatever in my right ear since birth and had always depended on my left ear and now that is gone. The doctor said I have 4% hearing in my left ear and have told me that I'm a good candiate for the CI. I'm really concerned that I will eventually loss my 4% and the doctor has said that the CI would get me back up to around 50%. When I first lost my hearing, I was pregnant with my first child and was really nervous about having the CI done with a newborn. Since then, I now have two kids ages 7 and 3. I would love to be able to hear my kids better. I feel like I have missed out on a lot, but I also feel I have kept a good outlook. I'm 33 and I think maybe I should consider having the surgery. I would love some feedback. Thanks, Glotzbach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 I'm not familiar with this CO but what kind of ingredients are there in it? Barbara Since my funds are very limited, i buy the Louana coconut oil from wal-mart. i am concerned tho about the ingredients. i know it's not as good as the more expensive but, is it better than the other veg. oils out there! help! Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 it says, 100% pure and the only ingredient is coconut oil.no trans fat, has no smell. On 08 Mar 2007 12:03:32 -0800, Barbara <barbara3@...> wrote: > > I'm not familiar with this CO but what kind of ingredients are there in > it? > > Barbara > > Since my funds are very limited, i buy the Louana coconut oil from > wal-mart. i am concerned tho about the ingredients. i know it's not as > good as the more expensive but, is it better than the other veg. oils > out there! help! > Andy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 I have read somewhere that any version of coconut oil is better than the alternatives. But I have also read that it really makes a difference to use the higher-quality Virgin CO. I think it will also make quite a difference in the taste, too. But I can definitely relate to financial constraints influencing what you can afford to buy. So I think you should buy what you can afford to for now, then, as soon as you're able to, invest in some of the higher-quality oil and see if you can notice a difference. As long as you can cut out the " bad " fats as much as possible, that's what's most important. You can only do what you can afford to do. So do that until you can afford to do more. That's what I'm doing. Cryss > > Since my funds are very limited, i buy the Louana coconut oil from > wal-mart. i am concerned tho about the ingredients. i know it's not as > good as the more expensive but, is it better than the other veg. oils > out there! help! > Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 It is OK then, if it is not too refined Barbara it says, 100% pure and the only ingredient is coconut oil.no trans fat, has no smell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Any version of VCO is better than the vegetable oils, especially the ones that are hydrogenated. The difference is that VCO is a medium-chain fatty acid, which gets processed by the liver straight into energy, instead of being stored as fat. The vegetable oils--the hydrogenated ones--are long-chain fatty acids which get stored immediately as fat. As I understand what I've read, all of the usual vegetable oils are not good for you. I think olive oil is still ok, but VCO is better. And, according to what I've read, genuine butter, especially from grass-fed cows, and even genuine lard, is better than the vegetable oils. And people didn't have problems with obesity and diabetes and heart disease--at least not to the degree we do now--back when real butter and lard was the only thing people used. That's what I have read from reliable sources, and it all makes sense to me. My grandparents grew up on butter and lard, and other so- called " bad " foods, and they were NEVER overweight. My grandmother lived to be 92, and she never had a health problem. My step grandfather got to 98. Modern doctors who " preach " low-fat, low- salt, low this and that, would probably " cringe " at the foods they ate, as being " disastrously unhealthy " for them. But it wasn't. Hope this helps answer your questions about VCO and veggie oils. Cryss > > Since my funds are very limited, i buy the Louana coconut oil from > wal-mart. i am concerned tho about the ingredients. i know it's not as > good as the more expensive but, is it better than the other veg. oils > out there! help! > Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 This oil has not much taste and no smell. i hope it's not too refined. On 3/8/07, Barbara <barbara3@...> wrote: > > It is OK then, if it is not too refined > > Barbara > > it says, 100% pure and the only ingredient is coconut oil.no trans fat, > has no smell. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Exactly, obesity, heart disease and diabetes were not a major problem in this country(USA) until we switched to the polyunsaturated fats. zoe Thursday, March 8, 2007, 3:01:31 PM, you wrote: > Any version of VCO is better than the vegetable oils, especially the > ones that are hydrogenated. > The difference is that VCO is a medium-chain fatty acid, which gets > processed by the liver straight into energy, instead of being stored > as fat. > The vegetable oils--the hydrogenated ones--are long-chain fatty > acids which get stored immediately as fat. > As I understand what I've read, all of the usual vegetable oils are > not good for you. I think olive oil is still ok, but VCO is better. > And, according to what I've read, genuine butter, especially from > grass-fed cows, and even genuine lard, is better than the vegetable > oils. > And people didn't have problems with obesity and diabetes and heart > disease--at least not to the degree we do now--back when real butter > and lard was the only thing people used. > That's what I have read from reliable sources, and it all makes > sense to me. > My grandparents grew up on butter and lard, and other so- > called " bad " foods, and they were NEVER overweight. My grandmother > lived to be 92, and she never had a health problem. My step > grandfather got to 98. Modern doctors who " preach " low-fat, low- > salt, low this and that, would probably " cringe " at the foods they > ate, as being " disastrously unhealthy " for them. > But it wasn't. > Hope this helps answer your questions about VCO and veggie oils. > Cryss > >> Since my funds are very limited, i buy the Louana coconut oil from >> wal-mart. i am concerned tho about the ingredients. i know it's > not as >> good as the more expensive but, is it better than the other veg. > oils >> out there! help! >> Andy >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 For cooking it is far better than any other vegetable oil and it is also very stable in high temperatures which means it will not go rancid. For health benefits though, unrefined, virgin CO is best. It is $45 to $49 a gallon from several places. Barbara This oil has not much taste and no smell. i hope it's not too refined. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 There is some coconut oil that has been refined, bleached, and deodorized. That is the lowest quality CO. I think it's best for just cooking with, especially if someone doesn't like the taste of coconut (imagine that!). The best way to know what's best to buy is to go by what your body tells you. Some people get a " gag " reaction to some of the lesser- quality CO's, a kind of " catch " in the throat. If it has NO smell, then it has been deodorized, at least, to remove the smell. But I think that's still ok. I think you would still get the benefits of the lauric acid, even if it's not as much as you would get from the Virgin CO that's not RBD (refined, bleached, deodorized). Also, the RBD oil is probably coming from copra, which is a kind of " left-over " dried coconut. I forget exactly what it is, but I recall it's some kind of " unfresh " coconut, that's not as good as the fresh, first-quality coconut. I think the CO you're buying is OK for now. Anything CO is better than the veggie oils. That's what I remember reading. Like I said, you do what you can AFFORD to do, until you can afford to do more. Cryss > > It is OK then, if it is not too refined > > Barbara > > > > > it says, 100% pure and the only ingredient is coconut oil.no trans fat, has no smell. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 I am 67 and now know that the basis for my exceptionally good health was the good food,water and air from living on a poor dirt farm in frosty Northern Alberta from 1940 to 1956. After that things were not bad as Mum was a good cook and smart shopper. things degenerated with time and at 55 years I realized that I was not too well. Since then I feel that I have succeeded in total recovery. It has been more than 18 years since I visited a medical DR for anything other than one general medical, required for a life insurance policy. I have however been to a chiropractor about 5 times in the last 20 years,only once in the past 10. Re: need info Any version of VCO is better than the vegetable oils, especially the ones that are hydrogenated. The difference is that VCO is a medium-chain fatty acid, which gets processed by the liver straight into energy, instead of being stored as fat. The vegetable oils--the hydrogenated ones--are long-chain fatty acids which get stored immediately as fat. As I understand what I've read, all of the usual vegetable oils are not good for you. I think olive oil is still ok, but VCO is better. And, according to what I've read, genuine butter, especially from grass-fed cows, and even genuine lard, is better than the vegetable oils. And people didn't have problems with obesity and diabetes and heart disease--at least not to the degree we do now--back when real butter and lard was the only thing people used. That's what I have read from reliable sources, and it all makes sense to me. My grandparents grew up on butter and lard, and other so- called " bad " foods, and they were NEVER overweight. My grandmother lived to be 92, and she never had a health problem. My step grandfather got to 98. Modern doctors who " preach " low-fat, low- salt, low this and that, would probably " cringe " at the foods they ate, as being " disastrously unhealthy " for them. But it wasn't. Hope this helps answer your questions about VCO and veggie oils. Cryss > > Since my funds are very limited, i buy the Louana coconut oil from > wal-mart. i am concerned tho about the ingredients. i know it's not as > good as the more expensive but, is it better than the other veg. oils > out there! help! > Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 On 3/9/07, Cryss <cryssnfrank@...> wrote: > > There is some coconut oil that has been refined, bleached, and > deodorized. That is the lowest quality CO. I think it's best for > just cooking with, especially if someone doesn't like the taste of > coconut (imagine that!). LOL! I have to admit, this is me. I've got various makes of VCO and I struggle with all of them. I didn't particularly like the taste when I first tried it but I persevered. Now it makes me gag. The only way I can use it is in curries or really spicy foods to mask the taste. In my defence I've never liked coconut sweets or cakes etc. I used to think it was the texture, now I realise it's the taste as well :-( I've found a tasteless, odorless CO that I now use for general (i.e. non-curry cooking) I appreciate it's not as good as VCO but it's the best I can manage cheers Kirsteen Chaos, confusion, disorder - my work here is done Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Look...this is better than other oils if you don't want to use butter in cooking. Barbara LOL! I have to admit, this is me. I've got various makes of VCO and I struggle with all of them. I didn't particularly like the taste when I first tried it but I persevered. Now it makes me gag. The only way I can use it is in curries or really spicy foods to mask the taste. In my defence I've never liked coconut sweets or cakes etc. I used to think it was the texture, now I realise it's the taste as well :-( I've found a tasteless, odorless CO that I now use for general (i.e. non-curry cooking) I appreciate it's not as good as VCO but it's the best I can manage cheers Kirsteen Chaos, confusion, disorder - my work here is done Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 On 3/9/07, Barbara <barbara3@...> wrote: > > Look...this is better than other oils if you don't want to use butter in > cooking. Ok so here's another question. I also use organic butter. Which is better for cooking or should I just swap them around? Kirsteen Chaos, confusion, disorder - my work here is done Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Both are very good and you will eventually know which foods taste better cooked with which fat.... I like my eggs in butter rather than in CO but other foods are better in CO. Barbara Ok so here's another question. I also use organic butter. Which is better for cooking or should I just swap them around? Kirsteen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 On 3/9/07, Barbara <barbara3@...> wrote: > > Both are very good and you will eventually know which foods taste better > cooked with which fat.... Ah...if it's just for taste, give me butter every time or occasionally EVOL. Kirsteen Chaos, confusion, disorder - my work here is done Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Well, me too, I like butter the best. Butter is THE healthiest fat there is Barbara Ah...if it's just for taste, give me butter every time or occasionally EVOL. Kirsteen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 60mg=1 grain you are taking 4 1/2 grains yes I would miss it if I didn't take it one day. Gracia I am on 270 mg of Armour Thyroid. I was just wondering if it was normal to have symptoms from just missing two bills in one day. Also how many grains am I taking. Thanks for the help Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 I know lots of peeps split their Armour dose b/c T3 doesn't last long, but I can't split the dose. If I don't get enough meds in the a.m. I get very jittery, can't think or talk on the phone etc. Blech. Then I take cortef throughout the day. I guess you need to experiment to see what works best for you. Gracia Gracia, you said something that made me wonder about how I am taking my meds. You take all your meds at once. I had the idea that doing it twice a day was more like what your thyroid would do? Or does your body store it until it is needed? I was taking 2 and 1/2 grains in the morning and then 2 in the afternoon from what you said is that not necessary? Thanks for your time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hello there, I don't know how much help I can be but here it goes...I am also on prednisone, salphasalasine, and Humira. I am on short term disability, but to be honest I don't know how anyone can really work with RA. If I am on my feet too long, my legs are in excruciating pain at night. I was diagnosed July of 07'. There are days when I get down on myself, but I am going to try to think more positive. I saw Oprah the other day and it was all about positive thinking. She also does a book club, which is about changing your life--check out her website. Hope I helped, Petry <mapetry0177@...> wrote: I am new to this and am on prednisone and salphasalasine. My symptoms have improved alot but still have some trouble. Is there any one out there that has been healed completely? I was diagnosed in dec. 07. my hands and wrists were mainly the problem. My ra # was 74 from my blood test. Is this a high # compared to what? Do any of you know what yours was. I have filled out for disability. I cant believe people can work with ra what can you do? I have terible head aches and my back hurts all the time. I have had to go to a therapist for depression also. Does this all sound familiar? Please give me anything you know. I think I am getting addicted to Hydrocodone also. Also what is the diff between oxycodone and hydrocodone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hi , I think the difference between the drugs you mentioned is that oxycodone is long-acting and hydrocodone is short-acting. It's very normal to get depressed with RA, especially when you're flaring. Not only is it a very stressful, scary disease, I think there are biochemical reasons that flares make us blue. Inflammation probably affects brain chemistry too. I don't know if you would call me " healed " as I need drugs to function, but I do great on prednisone (1-5mg) and Enbrel. The group has heard me say it so often, they probably think Amgen-Wyeth pays me to shill for Enbrel, but it really has been a lifesaver for me I can work full time, I can exercise, I chase my 4 year old, and I'm expecting my 2nd child in June. My RF is usually around the 30s or 40s. My antiCCP antibodies are in the 90s to 100s. My markers of inflammation like CRP and sed rate go way down when my RA is controlled. Once my sed rate was 1 and I exclaimed to my rheum, " I'm practically a normal person! " Hang in there, and if you're still struggling, consider a second opinion. Often with RA, you have to try lots of different treatment approaches until you find the one that works with your body and your type of RA. The most important thing is to have a compassionate rheumatologist who will help you manage your disease and be your cheerleader when things get tough. very best wishes, Kate F [ ] Need info I am new to this and am on prednisone and salphasalasine. My symptoms have improved alot but still have some trouble. Is there any one out there that has been healed completely? I was diagnosed in dec. 07. my hands and wrists were mainly the problem. My ra # was 74 from my blood test. Is this a high # compared to what? Do any of you know what yours was. I have filled out for disability. I cant believe people can work with ra what can you do? I have terible head aches and my back hurts all the time. I have had to go to a therapist for depression also. Does this all sound familiar? Please give me anything you know. I think I am getting addicted to Hydrocodone also. Also what is the diff between oxycodone and hydrocodone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 , your RH factor is very high! What was your ESR? If you can get your ESR lowered, which means the higher the number the more inflammation you have, you will feel better, then you will not need to use the Vicodin as much. I have problems with my hands, wrists, fingers, hips, knees and back. Do they have you on an NSAID? Such as Mobic or Arthertec? I drop things, and at times have a really hard time doing my duties , but I just take it in stride and do the best I can. Do you exercise? Walking is great, you can do your own speed and distance and build it up at your pace. You need to talk to your doctor and see what else he can do for you and if you are not satisfied, find another doctor !You need to be proactive for yourself and get the care you feel you should be getting !!!! Research and find out what all is being done for RA. I was Dx'd almost two years ago with moderate RA, I am now on Arava and will starting Enbrel soon. I take prednisone as needed, Darvocet and zanaflex at night, during the day I use Aleve, and Ultracet as needed. I also take Cymbalta at night and man did it make a difference in my pain, sleep and outlook!!! I also take Calcium, Zinc, and Magnesium at night to help with sleep and my restless legs. I also take a good multi vitamin and Vitamin C daily. You need to balance your work and rest and learn to listen to your body. That was the hardest thing for me to learn!It took about a year to get to a set of meds that worked for me, it does not happen right away, everyone is different in how they react to meds. So much frustration and helpless feelings getting to this point too ! I work 3-12's a week on my feet running, bending and lifting, some days are harder then others, but I have to work. This past week having this bronchitis and what ever other virus on top of it, which had better not be the flu, as I had my flu shot last October like a good girl, LOL, it has been hard. , YOU ARE SO RIGHT ABOUT THE POSITITVE ATTITUDE!!!!! My attitude is: I will beat the RA , it will not beat me ! I figure with the support of my family, meds, and God in my life, I will work a few more years, would like another ten or so , but we will see !!! I do not know if they will all be in the ER or not, but it will be in nursing. My manager has been really nice in working my schedule the way I like it, which is 2 days on, 3 days off. It gives me the day I need to recover and then another if I need it and a day to do what I need to do in errands and such. I feel it helps too when you have a boss who is understanding too ! My prayers are with both of you !!! I know you both will soon find the right combination of meds that will help you too !!! Debbie A Have a great day ! Quote Link to comment Share on other sites More sharing options...
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