Apraxia

[Guest guest]

thanks sandy i never heard of the tapping and speech ther didnt help because of

behaviors.

 

thank you i am glad you are seeing great things

From: sandy lehmann <mommie2chris@...>

Subject: Re: [ ] APRAXIA

Date: Saturday, April 24, 2010, 3:42 PM

 

well, lots and lots of hard work with tapping out words and other speech

therapy.  tapping helped alot and we taught him to tap out on his leg instead

of the tapping boards because he always has his leg!  by grade 2 he had 2 word

sentences which we thought was amazing. Tapping the words out for him helped but

we had to be careful because we didn't want him in the habit of breaking up

words so that once he tapped out a word, we'd then try and smooth it out if that

makes any sense.  it was one strategy that helped him not get stuck getting a

word out.

[Guest guest]

Tapping, clapping, moving fingers, pushing two object together- these are all

suggestions of motor planning strategies. I always found it best to provide

Tanner with a number of therapies, strategies, to best help him overcome. As he

got older for example I taught Tanner to keep his hand near his thigh and to

motor plan if he had to he could move his fingers lightly on his leg where

people wouldn't notice. I also suggested to him to use his toes because nobody

would notice that!

Here is a page I wrote for Contemporary Pediatrics on things we can do to help

at home

http://contemporarypediatrics.modernmedicine.com/contpeds/data/articlestandard//\

contpeds/492004/136315/article.pdf

and here is the article in full which explains a bit more about " the late

talker " and apraxia (this article was a front cover article after the book The

Late Talker came out)

http://www.cherabfoundation.org/2004/when-silence-isnt-golden/

http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720

and speaking of the book- I suggest you check out the book The Late Talker that

I co authored with neuroMD Dr. Agin as there is a wealth of information on what

to do when your child isn't talking yet -including traditional as well as

alternative therapies.

Some of the therapies to do at home can even be fun! We used to have a great

time exploring the toys stores for things that could help Tanner motor plan or

in therapy in general

=====

[Guest guest]

I have read the late talker but think I will review it again. Thanks for all the

info I will read up on the articles you sent me. Im just scared because he is 10

now.

 

thank you so much

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: APRAXIA

Date: Sunday, April 25, 2010, 12:28 AM

 

Tapping, clapping, moving fingers, pushing two object together- these are all

suggestions of motor planning strategies. I always found it best to provide

Tanner with a number of therapies, strategies, to best help him overcome. As he

got older for example I taught Tanner to keep his hand near his thigh and to

motor plan if he had to he could move his fingers lightly on his leg where

people wouldn't notice. I also suggested to him to use his toes because nobody

would notice that!

Here is a page I wrote for Contemporary Pediatrics on things we can do to help

at home

http://contemporary pediatrics. modernmedicine. com/contpeds/ data/articlestan

dard//contpeds/ 492004/136315/ article.pdf

and here is the article in full which explains a bit more about " the late

talker " and apraxia (this article was a front cover article after the book The

Late Talker came out)

http://www.cherabfo undation. org/2004/ when-silence- isnt-golden/

http://drgreene. mediwire. com/main/ Default.aspx? P=Content & ArticleID= 132720

and speaking of the book- I suggest you check out the book The Late Talker that

I co authored with neuroMD Dr. Agin as there is a wealth of information on what

to do when your child isn't talking yet -including traditional as well as

alternative therapies.

Some of the therapies to do at home can even be fun! We used to have a great

time exploring the toys stores for things that could help Tanner motor plan or

in therapy in general

=====

[Guest guest]

kimmy,

what are some of the things you've tried so far if you don't mind me asking?

sandy

________________________________

From: Kimmy Heil <kimberly19ray@...>

Sent: Sun, April 25, 2010 11:18:36 AM

Subject: Re: [ ] Re: APRAXIA

 

I have read the late talker but think I will review it again. Thanks for all the

info I will read up on the articles you sent me. Im just scared because he is 10

now.

 

thank you so much

From: kiddietalk <kiddietalk (DOT) com>

Subject: [childrensapraxiane t] Re: APRAXIA

@groups. com

Date: Sunday, April 25, 2010, 12:28 AM

 

Tapping, clapping, moving fingers, pushing two object together- these are all

suggestions of motor planning strategies. I always found it best to provide

Tanner with a number of therapies, strategies, to best help him overcome. As he

got older for example I taught Tanner to keep his hand near his thigh and to

motor plan if he had to he could move his fingers lightly on his leg where

people wouldn't notice. I also suggested to him to use his toes because nobody

would notice that!

Here is a page I wrote for Contemporary Pediatrics on things we can do to help

at home

http://contemporarypediatrics.modernmedicine.com/contpeds/data/articlestandard//\

\

contpeds/492004/136315/article.pdf

and here is the article in full which explains a bit more about " the late

talker " and apraxia (this article was a front cover article after the book The

Late Talker came out)

http://www.cherabfoundation.org/2004/when-silence-isnt-golden/

http://drgreene.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720

and speaking of the book- I suggest you check out the book The Late Talker that

I co authored with neuroMD Dr. Agin as there is a wealth of information on what

to do when your child isn't talking yet -including traditional as well as

alternative therapies.

Some of the therapies to do at home can even be fun! We used to have a great

time exploring the toys stores for things that could help Tanner motor plan or

in therapy in general

=====

[Guest guest]

Kimmy I agree with Sandy that it's important to know what you have done up till

now in regards to therapy. I searched the archives and found that your 10 year

old is diagnosed with apraxia and autism, wants desperately to speak and tries

very hard, and for the past 6 (7?) years you have been doing biomedical

approaches and last I read at 10 your son is nonverbal with just " guttural "

noises he tries for 3 simple sounds -think hi and da? But what type of speech

therapy? Any occupational therapy? Any other issues affected -tone, motor

planning, sensory in the body?

When I posted I was not aware of your son's background or I wouldn't have

pointed you to these simple " things to do at home " type strategies as for your

son I believe there are a few things you should look into as soon as possible:

1. No progress in 6 months means reevaluation of therapy, therapists, and/or

diagnosis. Your son is now 10 so years have gone by with little or no progress.

2. I would seek diagnosis from a professional outside of any your son has been

working with. I would make sure at least one is an SLP and one a neuroMD

(pediatric neurologist or developmental pediatrician) you can probably seek

suggestions here for those that other parents were happy with. Make sure for

second opinion on medical (if he's been diagnosed by a neuroMD) you even go

outside the same hospital system. If you start noticing progress with a

different strategy, therapy, I would also reconsider sticking with any of the

professionals he is currently working with.

3. Due to his age I would seek augmentative communication to help reduce

frustration if he doesn't already have something- probably the itouch/iPhone

since that's cool for an older kid

from an archive:

My daughter just sent me some information on a new product many in the group

might be interested in reading about.

I thought you may like to read about these two amazing young people using

Proloquo2Go, AAC on the iPhone, iPod touch, and iPad.

Eight-year-old

Patitucci now has an easier time communicating with his family

because of Proloquo2Go, a new iPhone application he uses on his iPod.

http://abcnews.go.com/Technology/proloquo2go-iphone-app-helps-andrew-patitucci-g\

\

enetic-disorder/story?id=9778504

and

Kelton

was born with fragile X syndrome, a common form of inherited mental

retardation, and was diagnosed with autism at a young age. The

Proloquo2Go program allows Kelton to construct and vocalize full

phrases and sentences, as well as assisting him in his daily school

work.

http://www.hamptons.com/news/top-stories/9775/a-twist-on-a-useful-gadget-gives-t\

\

he-gift-of.html

Sincerely,

Sennott

co-creator of Proloquo2Go

PhD Student, Penn State

www.proloquo2go.com

4. I would reevaluate his current school placement and make sure he is being

educated on his ability and not his disability. To me it's ringing pretty clear

that either your child has been misdiagnosed or the professionals currently

working with him - including those in the school - are overlooking his lack of

progress. What has been written into his IEP to help him academically and has

he been able to keep up with mainstream work in spite of being nonverbal? And

since you may have or get the app above:

IEP Checklist' iPhone App Aims To Level Playing Field

By Shaun Heasley

February 12, 2010

Forget the pen and paper at your next IEP meeting. A new iPhone app is

designed to organize the process, providing legal tips and a place for

notes all in the palm of your hand.

The app for iPhone or iPod Touch organizes the individualized education

plan, or IEP, meeting into categories such as " current

performance " and " annual goals. " When a category is

selected, there is a brief description of the legal requirements and an

opportunity for the user to insert a goal or notes.

The free app, known as IEP Checklist, was developed by the Parent

Educational Advocacy Training Center, a Virginia center that's part

of a national network

<http://www.taalliance.org/ptidirectory/pclist.asp> of special

education parent information and training centers funded by the

Department of Education.

" This application can empower families and equalize the relationship

between families and professionals, " said a Goldberg, executive

director of the PACER Center, a Minnesota training center. " I can

also visualize young people working on their own IEPs, being able to

reference the federal regulations that say that their transition goals

are supposed to be based on their strengths, needs, preferences and

interests. "

The IEP Checklist app can be downloaded at the iTunes store.

~~~~~~~~~~~~

The brain responds to multiple stimuli- so while recently our group has focused

on nutriiveda (ayurveda and the essential amino acids) and previous to that the

fish oils (essential fatty acids) almost all of us also make sure our child is

appropriately diagnosed, in appropriate therapy and placement and making

progress by providing what we believe to be the best possible chance of success.

Or since what I read in the archives has your child made progress? (I know he's

been on the right formula of fish oils for years...but did you start

nutriiveda??? That would probably be the only thing that you could try that

wouldn't shock me it would work even without all the appropriate therapies he

would still need- that's what happened with

http://littlemermaidmelanie.wordpress.com/about )

What state or country do you live in and do let us know if you are happy with

the professionals he is currently working with? I'd be happy to speak with you

too if you wanted. Our boys are too close in age and would love to help you get

your son up to speed -especially reading how much he really wants to talk and

how profoundly impaired he still is.

=====

[Guest guest]

WE have done speech ther plus he gets it at school . He has a dynavox. he gets

fish oil

we have done dan and now are doing yasko also. He knows what he wants to say 

and he atempts it but he cant say  sounds like K G  he can say da & ma he

calls me Mom but breaks the letters up he cant say mom together which you would

think would be easier than breaking it up could we share emails instead of

posting on here would that be ok?

 

Thanks for asking

[Guest guest]

Kimmy I learned from this group that not all speech therapy is going to help my

son with apraxia. I never heard of yasko speech therapy you are using but you

should find a therapist that does prompt therapy which many apraxia children are

given. That is what we are doing and my son has made so much progress. Kate

>

> WE have done speech ther plus he gets it at school . He has a dynavox. he gets

fish oil

> we have done dan and now are doing yasko also. He knows what he wants to say 

and he atempts it but he cant say  sounds like K G  he can say da & ma he

calls me Mom but breaks the letters up he cant say mom together which you would

think would be easier than breaking it up could we share emails instead of

posting on here would that be ok?

>  

> Thanks for asking

>

[Guest guest]

Thank you for sharing the iep checklist iphone app. Very interesting. Does

anyone here use it? Kate

>

> Kimmy I agree with Sandy that it's important to know what you have done up

till now in regards to therapy. I searched the archives and found that your 10

year old is diagnosed with apraxia and autism, wants desperately to speak and

tries very hard, and for the past 6 (7?) years you have been doing biomedical

approaches and last I read at 10 your son is nonverbal with just " guttural "

noises he tries for 3 simple sounds -think hi and da? But what type of speech

therapy? Any occupational therapy? Any other issues affected -tone, motor

planning, sensory in the body?

>

> When I posted I was not aware of your son's background or I wouldn't have

pointed you to these simple " things to do at home " type strategies as for your

son I believe there are a few things you should look into as soon as possible:

>

> 1. No progress in 6 months means reevaluation of therapy, therapists, and/or

diagnosis. Your son is now 10 so years have gone by with little or no progress.

>

> 2. I would seek diagnosis from a professional outside of any your son has

been working with. I would make sure at least one is an SLP and one a neuroMD

(pediatric neurologist or developmental pediatrician) you can probably seek

suggestions here for those that other parents were happy with. Make sure for

second opinion on medical (if he's been diagnosed by a neuroMD) you even go

outside the same hospital system. If you start noticing progress with a

different strategy, therapy, I would also reconsider sticking with any of the

professionals he is currently working with.

>

> 3. Due to his age I would seek augmentative communication to help reduce

frustration if he doesn't already have something- probably the itouch/iPhone

since that's cool for an older kid

>

> from an archive:

> My daughter just sent me some information on a new product many in the group

> might be interested in reading about.

>

> I thought you may like to read about these two amazing young people using

> Proloquo2Go, AAC on the iPhone, iPod touch, and iPad.

>

> Eight-year-old

> Patitucci now has an easier time communicating with his family

> because of Proloquo2Go, a new iPhone application he uses on his iPod.

>

http://abcnews.go.com/Technology/proloquo2go-iphone-app-helps-andrew-patitucci-g\

\

> enetic-disorder/story?id=9778504

>

> and

>

> Kelton

> was born with fragile X syndrome, a common form of inherited mental

> retardation, and was diagnosed with autism at a young age. The

> Proloquo2Go program allows Kelton to construct and vocalize full

> phrases and sentences, as well as assisting him in his daily school

> work.

>

http://www.hamptons.com/news/top-stories/9775/a-twist-on-a-useful-gadget-gives-t\

\

> he-gift-of.html

>

> Sincerely,

>

> Sennott

> co-creator of Proloquo2Go

> PhD Student, Penn State

> www.proloquo2go.com

>

> 4. I would reevaluate his current school placement and make sure he is being

educated on his ability and not his disability. To me it's ringing pretty clear

that either your child has been misdiagnosed or the professionals currently

working with him - including those in the school - are overlooking his lack of

progress. What has been written into his IEP to help him academically and has

he been able to keep up with mainstream work in spite of being nonverbal? And

since you may have or get the app above:

>

> IEP Checklist' iPhone App Aims To Level Playing Field

>

> By Shaun Heasley

> February 12, 2010

> Forget the pen and paper at your next IEP meeting. A new iPhone app is

> designed to organize the process, providing legal tips and a place for

> notes all in the palm of your hand.

>

> The app for iPhone or iPod Touch organizes the individualized education

> plan, or IEP, meeting into categories such as " current

> performance " and " annual goals. " When a category is

> selected, there is a brief description of the legal requirements and an

> opportunity for the user to insert a goal or notes.

>

> The free app, known as IEP Checklist, was developed by the Parent

> Educational Advocacy Training Center, a Virginia center that's part

> of a national network

> <http://www.taalliance.org/ptidirectory/pclist.asp> of special

> education parent information and training centers funded by the

> Department of Education.

>

> " This application can empower families and equalize the relationship

> between families and professionals, " said a Goldberg, executive

> director of the PACER Center, a Minnesota training center. " I can

> also visualize young people working on their own IEPs, being able to

> reference the federal regulations that say that their transition goals

> are supposed to be based on their strengths, needs, preferences and

> interests. "

>

> The IEP Checklist app can be downloaded at the iTunes store.

> ~~~~~~~~~~~~

>

> The brain responds to multiple stimuli- so while recently our group has

focused on nutriiveda (ayurveda and the essential amino acids) and previous to

that the fish oils (essential fatty acids) almost all of us also make sure our

child is appropriately diagnosed, in appropriate therapy and placement and

making progress by providing what we believe to be the best possible chance of

success.

>

> Or since what I read in the archives has your child made progress? (I know

he's been on the right formula of fish oils for years...but did you start

nutriiveda??? That would probably be the only thing that you could try that

wouldn't shock me it would work even without all the appropriate therapies he

would still need- that's what happened with

http://littlemermaidmelanie.wordpress.com/about )

>

> What state or country do you live in and do let us know if you are happy with

the professionals he is currently working with? I'd be happy to speak with you

too if you wanted. Our boys are too close in age and would love to help you get

your son up to speed -especially reading how much he really wants to talk and

how profoundly impaired he still is.

>

>

> =====

>

[Guest guest]

Thanks Kate I will check around!

From: mykitkate <mykitkate@...>

Subject: [ ] Re: APRAXIA

Date: Monday, April 26, 2010, 8:09 AM

 

Kimmy I learned from this group that not all speech therapy is going to help my

son with apraxia. I never heard of yasko speech therapy you are using but you

should find a therapist that does prompt therapy which many apraxia children are

given. That is what we are doing and my son has made so much progress. Kate

>

> WE have done speech ther plus he gets it at school . He has a dynavox. he gets

fish oil

> we have done dan and now are doing yasko also. He knows what he wants to

say  and he atempts it but he cant say  sounds like K G  he can say da

& ma he calls me Mom but breaks the letters up he cant say mom together which

you would think would be easier than breaking it up could we share emails

instead of posting on here would that be ok?

>  

> Thanks for asking

>

[Guest guest]

Hi could you call me? (number sent)

>

> Kimmy I agree with Sandy that it's important to know what you have done up

till now in regards to therapy. I searched the archives and found that your 10

year old is diagnosed with apraxia and autism, wants desperately to speak and

tries very hard, and for the past 6 (7?) years you have been doing biomedical

approaches and last I read at 10 your son is nonverbal with just " guttural "

noises he tries for 3 simple sounds -think hi and da? But what type of speech

therapy? Any occupational therapy? Any other issues affected -tone, motor

planning, sensory in the body?

>

> When I posted I was not aware of your son's background or I wouldn't have

pointed you to these simple " things to do at home " type strategies as for your

son I believe there are a few things you should look into as soon as possible:

>

> 1. No progress in 6 months means reevaluation of therapy, therapists, and/or

diagnosis. Your son is now 10 so years have gone by with little or no progress.

>

> 2. I would seek diagnosis from a professional outside of any your son has

been working with. I would make sure at least one is an SLP and one a neuroMD

(pediatric neurologist or developmental pediatrician) you can probably seek

suggestions here for those that other parents were happy with. Make sure for

second opinion on medical (if he's been diagnosed by a neuroMD) you even go

outside the same hospital system. If you start noticing progress with a

different strategy, therapy, I would also reconsider sticking with any of the

professionals he is currently working with.

>

> 3. Due to his age I would seek augmentative communication to help reduce

frustration if he doesn't already have something- probably the itouch/iPhone

since that's cool for an older kid

>

> from an archive:

> My daughter just sent me some information on a new product many in the group

> might be interested in reading about.

>

> I thought you may like to read about these two amazing young people using

> Proloquo2Go, AAC on the iPhone, iPod touch, and iPad.

>

> Eight-year-old

> Patitucci now has an easier time communicating with his family

> because of Proloquo2Go, a new iPhone application he uses on his iPod.

>

http://abcnews.go.com/Technology/proloquo2go-iphone-app-helps-andrew-patitucci-g\

\

\

> enetic-disorder/story?id=9778504

>

> and

>

> Kelton

> was born with fragile X syndrome, a common form of inherited mental

> retardation, and was diagnosed with autism at a young age. The

> Proloquo2Go program allows Kelton to construct and vocalize full

> phrases and sentences, as well as assisting him in his daily school

> work.

>

http://www.hamptons.com/news/top-stories/9775/a-twist-on-a-useful-gadget-gives-t\

\

\

> he-gift-of.html

>

> Sincerely,

>

> Sennott

> co-creator of Proloquo2Go

> PhD Student, Penn State

> www.proloquo2go.com

>

> 4. I would reevaluate his current school placement and make sure he is being

educated on his ability and not his disability. To me it's ringing pretty clear

that either your child has been misdiagnosed or the professionals currently

working with him - including those in the school - are overlooking his lack of

progress. What has been written into his IEP to help him academically and has

he been able to keep up with mainstream work in spite of being nonverbal? And

since you may have or get the app above:

>

> IEP Checklist' iPhone App Aims To Level Playing Field

>

> By Shaun Heasley

> February 12, 2010

> Forget the pen and paper at your next IEP meeting. A new iPhone app is

> designed to organize the process, providing legal tips and a place for

> notes all in the palm of your hand.

>

> The app for iPhone or iPod Touch organizes the individualized education

> plan, or IEP, meeting into categories such as " current

> performance " and " annual goals. " When a category is

> selected, there is a brief description of the legal requirements and an

> opportunity for the user to insert a goal or notes.

>

> The free app, known as IEP Checklist, was developed by the Parent

> Educational Advocacy Training Center, a Virginia center that's part

> of a national network

> <http://www.taalliance.org/ptidirectory/pclist.asp> of special

> education parent information and training centers funded by the

> Department of Education.

>

> " This application can empower families and equalize the relationship

> between families and professionals, " said a Goldberg, executive

> director of the PACER Center, a Minnesota training center. " I can

> also visualize young people working on their own IEPs, being able to

> reference the federal regulations that say that their transition goals

> are supposed to be based on their strengths, needs, preferences and

> interests. "

>

> The IEP Checklist app can be downloaded at the iTunes store.

> ~~~~~~~~~~~~

>

> The brain responds to multiple stimuli- so while recently our group has

focused on nutriiveda (ayurveda and the essential amino acids) and previous to

that the fish oils (essential fatty acids) almost all of us also make sure our

child is appropriately diagnosed, in appropriate therapy and placement and

making progress by providing what we believe to be the best possible chance of

success.

>

> Or since what I read in the archives has your child made progress? (I know

he's been on the right formula of fish oils for years...but did you start

nutriiveda??? That would probably be the only thing that you could try that

wouldn't shock me it would work even without all the appropriate therapies he

would still need- that's what happened with

http://littlemermaidmelanie.wordpress.com/about )

>

> What state or country do you live in and do let us know if you are happy with

the professionals he is currently working with? I'd be happy to speak with you

too if you wanted. Our boys are too close in age and would love to help you get

your son up to speed -especially reading how much he really wants to talk and

how profoundly impaired he still is.

>

>

> =====

>

[Guest guest]

Chrissy,

All of our kids are different and progress at different rates. Your child is

further along than my child was at your child's age. My daughter is now six and

functioning at an age appropriate level in a regular kindergarten class.

Someone else recommended a PROMPT therapist - I am a huge fan of the technique.

You can read about it at www.promptinstitute.com. They also have a referral

service. My daughter had a PROMPT certified therapist and made huge gains with

this approach. You can also look for therapists in your area at

www.therapistratingz.com. It is fairly new in its development, but there are

some rated therapists. The best advice I can give is find a therapist that

knows what they are doing. Hopefully this helps!

>

> Hi I am new to the group, My 2 1/2 year old was just diagnosed with apraxia,

and I have a lot of questions and would like to speak to someone who has been

through this with there child. Some of the things I would like to know are will

she overcome this she only says about 30 words and just started putting 2 words

together well the only ones are up there and right there. I just want to be able

to say that my child will be able to hold a conversation, have freinds, and lead

a normal life. Any information would be helpful.

>

> Thank you

> Chrissy

>

[Guest guest]

Snady- when you say your child didn't talk until first word at 4.5...was there

another DX involved? thank you.

>

> well Chrissy,  yes, we've all been going through this and the one important

thing i can say is. We were told my son would never talk.  He only said his

first word " momma " at 4.5 years old. He is now 10 years old and while he doesn't

talk age appropriate yet, he can get along with his peers in school.

> Did you read the book " the late talker " yet?  if not, it's worth getting.

> sandy

>

>

>

>

> ________________________________

> From: chrisym05 <chrisym05@...>

>

> Sent: Fri, April 23, 2010 8:52:50 AM

> Subject: [ ] APRAXIA

>

>  

> Hi I am new to the group, My 2 1/2 year old was just diagnosed with apraxia,

and I have a lot of questions and would like to speak to someone who has been

through this with there child. Some of the things I would like to know are will

she overcome this she only says about 30 words and just started putting 2 words

together well the only ones are up there and right there. I just want to be able

to say that my child will be able to hold a conversation, have freinds, and lead

a normal life. Any information would be helpful.

>

> Thank you

> Chrissy

>

>

>

>

>

>

>

[Guest guest]

What is the Yasko protocol? I can't actually find it online anywhere.

>

> WE have done speech ther plus he gets it at school . He has a dynavox. he gets

fish oil

> we have done dan and now are doing yasko also. He knows what he wants to say 

and he atempts it but he cant say  sounds like K G  he can say da & ma he

calls me Mom but breaks the letters up he cant say mom together which you would

think would be easier than breaking it up could we share emails instead of

posting on here would that be ok?

>  

> Thanks for asking

>

[Guest guest]

my son had been a pickle to dx.  he had, since birth, lots of sensory issues. 

we knew he wasn't autistic, so they dx'd severe apraxia as well as global

delays. i remember feeling like a total failure as a parent, when at 3.5 years

old we discovered he couldn't stick out his tongue(and he wasnt tongue tied).

But this was something that the professionals missed as well. At the speech

clinic that we go to, he's still the most severe they've ever seen.

________________________________

From: lucy4gets <lucy2max@...>

Sent: Mon, April 26, 2010 6:09:03 PM

Subject: [ ] Re: APRAXIA

 

Snady- when you say your child didn't talk until first word at 4.5...was there

another DX involved? thank you.

>

> well Chrissy,  yes, we've all been going through this and the one important

thing i can say is. We were told my son would never talk.  He only said

his first word " momma " at 4.5 years old. He is now 10 years old and while he

doesn't talk age appropriate yet, he can get along with his peers in school.

> Did you read the book " the late talker " yet?  if not, it's worth getting.

> sandy

>

>

>

>

> ____________ _________ _________ __

> From: chrisym05 <chrisym05@. ..>

> @groups. com

> Sent: Fri, April 23, 2010 8:52:50 AM

> Subject: [childrensapraxiane t] APRAXIA

>

>  

> Hi I am new to the group, My 2 1/2 year old was just diagnosed with apraxia,

and I have a lot of questions and would like to speak to someone who has been

through this with there child. Some of the things I would like to know are will

she overcome this she only says about 30 words and just started putting 2 words

together well the only ones are up there and right there. I just want to be able

to say that my child will be able to hold a conversation, have freinds, and lead

a normal life. Any information would be helpful.

>

> Thank you

> Chrissy

>

>

>

>

>

>

>

[Guest guest]

Just type in Dr Amy Yasko and info will come up.

From: mandpgregory@... <mandpgregory@...>

Subject: [ ] Re: APRAXIA

Date: Monday, April 26, 2010, 10:24 PM

 

What is the Yasko protocol? I can't actually find it online anywhere.

>

> WE have done speech ther plus he gets it at school . He has a dynavox. he gets

fish oil

> we have done dan and now are doing yasko also. He knows what he wants to

say  and he atempts it but he cant say  sounds like K G  he can say da

& ma he calls me Mom but breaks the letters up he cant say mom together which

you would think would be easier than breaking it up could we share emails

instead of posting on here would that be ok?

>  

> Thanks for asking

>

[Guest guest]

Hi Kimmy!

Cheryl suggests you go to a teaching hospital with a speech and language

department, or a small university with a very good speech and language

department to help you secure an appropriate evaluation. I let Cheryl know that

your child is 10 years old, essentially nonverbal and that the apraxia and

autism diagnosis is not formal. She believes that would probably be the best

place that you can get a thorough evaluation for the money.

This is our Cheryl -I called her a life saver and asked her what flavor she is

today

http://www.cherabfoundation.org/about/advisoryboard/cheryl-bennett-johnson-m-a-s\

lseducational-consultant/

=====