Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 To all on and SCIA: This ranting and raving on the groups has gone on long enough. If you feel the urge to continue, PLEASE take it off line. This is NOT the Dr. Phil group. Lastly, I don't ever want to hear/read about someone " bagging " on someone else's child; ie: " I feel sorry for his son. " . We ALL want the SAME *?!# thing..........healthy children!! Dot.....period!! Come on now..........!! That is my two cents worth!! - Sent on the Sprint® Now Network from my BlackBerry® Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Kill the Drama! No need! Bill From: erikadyan71@... <erikadyan71@...> Subject: Re: Re: SCIA issues Date: Monday, June 21, 2010, 6:22 PM To all on and SCIA: This ranting and raving on the groups has gone on long enough. If you feel the urge to continue, PLEASE take it off line. This is NOT the Dr. Phil group. Lastly, I don't ever want to hear/read about someone " bagging " on someone else's child; ie: " I feel sorry for his son. " . We ALL want the SAME *?!# thing..........healthy children!! Dot.....period!! Come on now..........!! That is my two cents worth!! - Sent on the Sprint® Now Network from my BlackBerry® Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Censoring doesn't lead to diversity of thought and ideas, so please keep the sharing coming, so that a common vision can be reached: a world where autism is truly recognized for the medical disorder that it is, and parents get help sooner for their children, rather than later! ~Marilyn Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Marcia-we also were censured on the site! The idea of censure on an open forum site is contrary to the purpose of it in the first place. The open exchange of ideas is the point! Re: SCIA issues Sally, Thanks for letting me know Jen and I were the only ones censured on the Stop Calling it Autism List. I hope succeeds, he is just going about it the wrong way. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 I do not look to this board only for parental support (I find that elsewhere), but primarily, I look to this board for SOUND medical advice regarding my child and his recovery. Not all paths are leading to recovery from the “A-Word†and for my son, the protocol IS. This board is about the protocol, and tangents about other treatments should not cloud that focus. I feel sorry for any child who is not recovering from “autismâ€, regardless what the family is doing for them. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Driver Sent: Monday, June 21, 2010 5:33 PM Subject: Re: Re: SCIA issues Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 Kristy I agree and I was working with the SCIA but as the goals and mission was being built there was an endless need to confuse the issues with HBOT, celation and various groups that have not embraced the immune concept and truthfully the " entire board did not fully understand the Immune concept as the root issue. Hence the failure to reach a quorum. I still believe an appropriately motivated group needs to reach out on a non-profit level and do what we set out to do. The parent group can not because the environment is too controlled and SCIA board is not fully informed of the science nor understanding of the political environment. Just my thoughts. Bill From: Kristy Nardini <knardini@...> Subject: RE: Re: SCIA issues Date: Monday, June 28, 2010, 7:57 PM  I do not look to this board only for parental support (I find that elsewhere), but primarily, I look to this board for SOUND medical advice regarding my child and his recovery. Not all paths are leading to recovery from the “A-Word†and for my son, the protocol IS. This board is about the protocol, and tangents about other treatments should not cloud that focus. I feel sorry for any child who is not recovering from “autismâ€, regardless what the family is doing for them. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Driver Sent: Monday, June 21, 2010 5:33 PM Subject: Re: Re: SCIA issues Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 hi Billi know i am in Oz, but quite liked the idea of the SCIA,as i believe only thu myself and now my son that the immune system dysfunction has a very big role in autsim. huge impact. we do not have nids here in austrlia, and we only have the biomed/dan approach here. i have gone thru a Dr that threats CFS and i now have that diagnosis along with aspergers, and thru Dr and now Prof De Mierlier (CFS) my son is also being tested and treated for an underlying immune system dysfunction. i was looking forward to have the forum that delves into the immune side of things. i am on another forum here in Oz, but that is basically based on DAN and the biomedical approach, which i guess is ok if thats the way you are going, been there done that with little affect, and the treatments not really based on any tests etc i hope that The SCIA pulls together and gets going as a forum based in immune system concepts From: klimas_bill@... Date: Mon, 28 Jun 2010 18:38:13 -0700 Subject: RE: Re: SCIA issues Kristy I agree and I was working with the SCIA but as the goals and mission was being built there was an endless need to confuse the issues with HBOT, celation and various groups that have not embraced the immune concept and truthfully the " entire board did not fully understand the Immune concept as the root issue. Hence the failure to reach a quorum. I still believe an appropriately motivated group needs to reach out on a non-profit level and do what we set out to do. The parent group can not because the environment is too controlled and SCIA board is not fully informed of the science nor understanding of the political environment. Just my thoughts. Bill From: Kristy Nardini <knardini@...> Subject: RE: Re: SCIA issues Date: Monday, June 28, 2010, 7:57 PM I do not look to this board only for parental support (I find that elsewhere), but primarily, I look to this board for SOUND medical advice regarding my child and his recovery. Not all paths are leading to recovery from the “A-Word†and for my son, the protocol IS. This board is about the protocol, and tangents about other treatments should not cloud that focus. I feel sorry for any child who is not recovering from “autismâ€, regardless what the family is doing for them. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Driver Sent: Monday, June 21, 2010 5:33 PM Subject: Re: Re: SCIA issues Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 The list does discuss immune system. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Mel J Sent: Monday, June 28, 2010 11:46 PM nids Subject: RE: Re: SCIA issues hi Billi know i am in Oz, but quite liked the idea of the SCIA,as i believe only thu myself and now my son that the immune system dysfunction has a very big role in autsim. huge impact. we do not have nids here in austrlia, and we only have the biomed/dan approach here. i have gone thru a Dr that threats CFS and i now have that diagnosis along with aspergers, and thru Dr and now Prof De Mierlier (CFS) my son is also being tested and treated for an underlying immune system dysfunction. i was looking forward to have the forum that delves into the immune side of things. i am on another forum here in Oz, but that is basically based on DAN and the biomedical approach, which i guess is ok if thats the way you are going, been there done that with little affect, and the treatments not really based on any tests etc i hope that The SCIA pulls together and gets going as a forum based in immune system concepts <mailto:%40> From: klimas_bill@... <mailto:klimas_bill%40> Date: Mon, 28 Jun 2010 18:38:13 -0700 Subject: RE: Re: SCIA issues Kristy I agree and I was working with the SCIA but as the goals and mission was being built there was an endless need to confuse the issues with HBOT, celation and various groups that have not embraced the immune concept and truthfully the " entire board did not fully understand the Immune concept as the root issue. Hence the failure to reach a quorum. I still believe an appropriately motivated group needs to reach out on a non-profit level and do what we set out to do. The parent group can not because the environment is too controlled and SCIA board is not fully informed of the science nor understanding of the political environment. Just my thoughts. Bill From: Kristy Nardini <knardini@... <mailto:knardini%40roadrunner.com> > Subject: RE: Re: SCIA issues <mailto:%40> Date: Monday, June 28, 2010, 7:57 PM I do not look to this board only for parental support (I find that elsewhere), but primarily, I look to this board for SOUND medical advice regarding my child and his recovery. Not all paths are leading to recovery from the “A-Word†and for my son, the protocol IS. This board is about the protocol, and tangents about other treatments should not cloud that focus. I feel sorry for any child who is not recovering from “autismâ€, regardless what the family is doing for them. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... <mailto:kristy%40tazzini.com> Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Driver Sent: Monday, June 21, 2010 5:33 PM <mailto:%40> Subject: Re: Re: SCIA issues Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 oops sorry, just replying to other posts on this site re scia my mistake From: knardini@... Date: Tue, 29 Jun 2010 08:18:15 -0700 Subject: RE: Re: SCIA issues The list does discuss immune system. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Mel J Sent: Monday, June 28, 2010 11:46 PM nids Subject: RE: Re: SCIA issues hi Billi know i am in Oz, but quite liked the idea of the SCIA,as i believe only thu myself and now my son that the immune system dysfunction has a very big role in autsim. huge impact. we do not have nids here in austrlia, and we only have the biomed/dan approach here. i have gone thru a Dr that threats CFS and i now have that diagnosis along with aspergers, and thru Dr and now Prof De Mierlier (CFS) my son is also being tested and treated for an underlying immune system dysfunction. i was looking forward to have the forum that delves into the immune side of things. i am on another forum here in Oz, but that is basically based on DAN and the biomedical approach, which i guess is ok if thats the way you are going, been there done that with little affect, and the treatments not really based on any tests etc i hope that The SCIA pulls together and gets going as a forum based in immune system concepts <mailto:%40> From: klimas_bill@... <mailto:klimas_bill%40> Date: Mon, 28 Jun 2010 18:38:13 -0700 Subject: RE: Re: SCIA issues Kristy I agree and I was working with the SCIA but as the goals and mission was being built there was an endless need to confuse the issues with HBOT, celation and various groups that have not embraced the immune concept and truthfully the " entire board did not fully understand the Immune concept as the root issue. Hence the failure to reach a quorum. I still believe an appropriately motivated group needs to reach out on a non-profit level and do what we set out to do. The parent group can not because the environment is too controlled and SCIA board is not fully informed of the science nor understanding of the political environment. Just my thoughts. Bill From: Kristy Nardini <knardini@... <mailto:knardini%40roadrunner.com> > Subject: RE: Re: SCIA issues <mailto:%40> Date: Monday, June 28, 2010, 7:57 PM I do not look to this board only for parental support (I find that elsewhere), but primarily, I look to this board for SOUND medical advice regarding my child and his recovery. Not all paths are leading to recovery from the “A-Word†and for my son, the protocol IS. This board is about the protocol, and tangents about other treatments should not cloud that focus. I feel sorry for any child who is not recovering from “autismâ€, regardless what the family is doing for them. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... <mailto:kristy%40tazzini.com> Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Driver Sent: Monday, June 21, 2010 5:33 PM <mailto:%40> Subject: Re: Re: SCIA issues Yes, over and done please. We look to this board for parental support. Nothing else. Negative comments do not belong here, especially ones involving another's kid. Not okay! Its become almost political on here. Supporting one another with experiences and encouragement is why we are here. Sent via MOTOBLURâ„¢ on Verizon Wireless Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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