Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. Question is: Has anyone or your child have die off last this long? I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. Thanks Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi Carole, Hang in there. I know this is hard but hold on. This is without a doubt the most difficult thing you will ever go through with the protocol. My son always went through his die off, be it viral or fungal, for way longer then Dr. G said it would last. But each time my son was always brighter on the other side. All these die off symptoms are a great sign that your grandson is releasing some really nasty things from his system that are toxic to him. They need to get out! A few things I remember that may help, aside from keeping him comfortable with Tylenol, is to keep his diet really clean. With a child’s system so sensitive and stressed right now, reactions can be exaggerated even to food that you have thought to be okay. The other thing that I think helped was Epsom salt baths. Dr. G was fine with this although he wasn’t certain it would do any good. I had heard a lot of parents talk about the detoxifying effects of these baths, using about ½ cup of Epsom salt to a full bath of warm water. Whether it helped with the kill off, or just made my son more comfortable, I am not certain, but he certainly did seem better afterward. Stay strong. It does get better, but I understand the level of stress when you think you may be going backwards. It is only temporary and he will be steps ahead when he gets through this!!! All the very best, from one who has been there, Lori _____ From: [mailto: ] On Behalf Of chocolatiluv Sent: May-24-10 6:31 PM Subject: Die Off My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. Question is: Has anyone or your child have die off last this long? I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. Thanks Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 > > Hi Carole, > > > > Hang in there. I know this is hard but hold on. This is without a doubt > the most difficult thing you will ever go through with the protocol. > > > > My son always went through his die off, be it viral or fungal, for way > longer then Dr. G said it would last. But each time my son was always > brighter on the other side. All these die off symptoms are a great sign > that your grandson is releasing some really nasty things from his system > that are toxic to him. They need to get out! > > > > A few things I remember that may help, aside from keeping him comfortable > with Tylenol, is to keep his diet really clean. With a child's system so > sensitive and stressed right now, reactions can be exaggerated even to food > that you have thought to be okay. The other thing that I think helped was > Epsom salt baths. Dr. G was fine with this although he wasn't certain it > would do any good. I had heard a lot of parents talk about the detoxifying > effects of these baths, using about ½ cup of Epsom salt to a full bath of > warm water. Whether it helped with the kill off, or just made my son more > comfortable, I am not certain, but he certainly did seem better afterward. > > > > Stay strong. It does get better, but I understand the level of stress when > you think you may be going backwards. It is only temporary and he will be > steps ahead when he gets through this!!! > > > > All the very best, from one who has been there, > > > > Lori > > > Thanks Lori I will pass this on to my daughter.This die off has also affected his appetite we cannot get him to eat he smells food then gags on everything so diet is difficult. We all watch diet closely trying follow diet best we can. He is hyproglycemic which can add to the problem. We used to do the Epsom Salts baths we may try again. Thanks again for your support. So helpful to hear from parents that have been through this. Gives us much hope through all this appreciate these response. Carole > _____ > > From: [mailto: ] On Behalf Of > chocolatiluv > Sent: May-24-10 6:31 PM > > Subject: Die Off > > > > > > My grandson has been on Acyclovir April 24 die off started 3 days later it > has been 4 wks. really has had a rough time Now were are toward the end of > May he is stll having die off. Dr. Goldberg this could last longer than 21 > days. > He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s > sandy color then also greenish color. OCD behavior, last wk.he had a low > grade fever (waiting for test) to see results. > Question is: Has anyone or your child have die off last this long? > I`vw read these antivirals can cause yeast He has been on the same > antifungal(diflucin a very long time.Probably needs changed. > Thanks > Carole > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Hi Carole, Our son has been on antiviral since early April, and antifungal was started about three weeks ago. He is just starting to come out of the die off, and we are seeing glimmers of the " brighter child " everyone refers to. It was really hard to see him regress for so many weeks: very challenging behavior, spaciness, avoidance, crabbiness, etc... I share this to hopefully encourage you to hang in there and have faith that this is temporary. Our son's die off symptoms have been going on for more than seven weeks, and I've heard of others lasting longer. Our son is getting better by the day and is now talking in ways he has never spoken before. His bright face looking up at me when he speaks is encouraging! Tammy Die Off My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. Question is: Has anyone or your child have die off last this long? I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. Thanks Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 An interesting set of posts and I see my earlier post mentioned. Our NK cells have cycled down a bit ( a series of Diet infractions on his part) but we have continued to flourish. I saw the mention of wanting things and our biggest recent gain has been a new best friend! I have endlessly fought with behavioral issues now that Connor is both finishing his first year in gen ed unassisted and hard into puberty. The new best friend has made a world of difference, not because he assists Connor, quite the opposite (The fiend is causing diet problems) but because he is soooo important to Connor. If he does anything inappropriate I just threaten to put him on restriction (no Jeffery) and he straitens up and promises to never do " That " again, just please no restriction! Way Cool! Bill > From: Ellen Jordan <e.jordan29@...> > Subject: RE: Re: Die Off > nids > Date: Tuesday, May 25, 2010, 9:00 AM > > My son is 19 and has been a patient for 9 years. His > NK cells have finally gone up to 7% after never getting > above 2% all these years. With this improvement, we > have seen more gains more quickly. I think Bill > Klimas mentioned that his son really took off when his NK > cells normalized. My son has been " a difficult case " > and has not recovered, but he has come so far. There > was a point in his life that he didn't care about toys or > anything. That sure has changed. He wants > everything now! Hang in there with Dr. G. There > is no quick fix to this illness, especially when the child > is older when beginning the protocol. I plan to keep my son > on the protocol and hope that there will be better immune > modulators soon. > > Again, trust Dr. G and stay in close contact with him. > Ellen > > > From: chocolatiluv@... > Date: Tue, 25 May 2010 00:43:53 +0000 > Subject: Re: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Yes, going back to acyclovir hit my son hard. It > took a month (maybe more) to get over die-off and he has > been on this med before. This time it was worse > die-off. We also thought it might be yeast > and asked that Dr G change his anti-fungal. He agreed > he would if my son didn't soon improve, but asked us to hang > on a few more days. He was right and we saw a brighter > young man on the other side of this. I understand how hard > it is to see them regress. I hope it resolves > soon. > > > Dr. G will do whatever it takes to get your grandson > back to his best. Keep in close contact with the > office.... > > > Best, > > > Ellen > > > > > Thanks Ellen > > How old is your son? My grandson is 11 has been on > several antivirals in the past but we never saw die off like > this. While he was with DAN on valtrex(I don`t think > this DAN dr. knew anything about viruses or the > correct dosage wasn`t right. > > We trust Dr. Golldberg my daughter is close contact with > the office through E-Mails & ph. consults. We have seen > lots of good while on this protocol We have seen > positives we are getting some speech(we get so excited he > actually ask to go to a toy store. Also ask to take a bike > ride.. He has a b-day coming this little boy never shows any > interest in toys. Praying this will work for him. > > Thanks > > Carole > > > > > > From: chocolatiluv@... > > > Date: Mon, 24 May 2010 22:31:20 +0000 > > > Subject: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My grandson has been on > Acyclovir April 24 die off started 3 days later it has been > 4 wks. really has had a rough time Now were are toward the > end of May he is stll having die off. Dr. Goldberg this > could last longer than 21 days. > > > > > > He isn`t as irritable now he is happier we are > thinking yeast & odd B.M`s sandy color then also > greenish color. OCD behavior, last wk.he had a low > grade fever (waiting for test) to see results. > > > > > > Question is: Has anyone or your child have die > off last this long? > > > > > > I`vw read these antivirals can cause yeast He has been > on the same antifungal(diflucin a very long time.Probably > needs changed. > > > > > > Thanks > > > > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > The New Busy is not the too busy. Combine all your > e-mail accounts with Hotmail. > > > http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\ T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 > > > > > > > > > > > > > > > > > > > > > Yes, going back to acyclovir hit my son hard. It > > > took a month (maybe more) to get over die-off and he has > > > been on this med before. This time it was worse > > > die-off. We also thought it might be yeast > > > and asked that Dr G change his anti-fungal. He agreed > > > he would if my son didn't soon improve, but asked us to hang > > > on a few more days. He was right and we saw a brighter > > > young man on the other side of this. I understand how hard > > > it is to see them regress. I hope it resolves > > > soon. > > > > > > > Dr. G will do whatever it takes to get your grandson > > > back to his best. Keep in close contact with the > > > office.... > > > > > > > Best, > > > > > > > Ellen > > > > > > > > > > > > > Thanks Ellen > > > > > > How old is your son? My grandson is 11 has been on > > > several antivirals in the past but we never saw die off like > > > this. While he was with DAN on valtrex(I don`t think > > > this DAN dr. knew anything about viruses or the > > > correct dosage wasn`t right. > > > > > > We trust Dr. Golldberg my daughter is close contact with > > > the office through E-Mails & ph. consults. We have seen > > > lots of good while on this protocol We have seen > > > positives we are getting some speech(we get so excited he > > > actually ask to go to a toy store. Also ask to take a bike > > > ride.. He has a b-day coming this little boy never shows any > > > interest in toys. Praying this will work for him. > > > > > > Thanks > > > > > > Carole > > > > > > > > > > > > > > From: chocolatiluv@ > > > > > > > Date: Mon, 24 May 2010 22:31:20 +0000 > > > > > > > Subject: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My grandson has been on > > > Acyclovir April 24 die off started 3 days later it has been > > > 4 wks. really has had a rough time Now were are toward the > > > end of May he is stll having die off. Dr. Goldberg this > > > could last longer than 21 days. > > > > > > > > > > > > > > He isn`t as irritable now he is happier we are > > > thinking yeast & odd B.M`s sandy color then also > > > greenish color. OCD behavior, last wk.he had a low > > > grade fever (waiting for test) to see results. > > > > > > > > > > > > > > Question is: Has anyone or your child have die > > > off last this long? > > > > > > > > > > > > > > I`vw read these antivirals can cause yeast He has been > > > on the same antifungal(diflucin a very long time.Probably > > > needs changed. > > > > > > > > > > > > > > Thanks > > > > > > > > > > > > > > Carole > > > > > > > Ellen Good to hear your your son is getting better. Love hearing these post from parents. My grandson is also having low grade fever with this die off. Did your son do this? How long has your son been on the combination of immunovir & acyclovir? My grandson has been on immunivir since Nov. 2009 the combination with acyclovir since april 24th this yr. I am reading these post all the time seeing what all is saying. did see where Bill`s son did better with this combo now your son this is great!! I know ours is a difficult case & each child reacts differently started the going on 3 yrs in july . so we will do the same hang in there too. We know we are on the what path with this protocol. What is the normal range for NK cells? I am learning about all this so could someone tell me what is CMV titers? Are your son`s T Cells at a normal range now? Thankks Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > > > > > The New Busy is not the too busy. Combine all your > > > e-mail accounts with Hotmail. > > > > > > > http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\ T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Great info, and good to know. My son has not had a die off on Famvir and just yesterday had a call with Dr. G who said my sons titers have gone up in the last month... ARGH! So he is putting him on Acyclovir, buckling my seatbelt for some possible die-off. > > My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. > He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. > Question is: Has anyone or your child have die off last this long? > I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. > Thanks > Carole > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 awesome bill! > > > > > > > > > > > > > > > > > > > > > Yes, going back to acyclovir hit my son hard. It > > > took a month (maybe more) to get over die-off and he has > > > been on this med before. This time it was worse > > > die-off. We also thought it might be yeast > > > and asked that Dr G change his anti-fungal. He agreed > > > he would if my son didn't soon improve, but asked us to hang > > > on a few more days. He was right and we saw a brighter > > > young man on the other side of this. I understand how hard > > > it is to see them regress. I hope it resolves > > > soon. > > > > > > > Dr. G will do whatever it takes to get your grandson > > > back to his best. Keep in close contact with the > > > office.... > > > > > > > Best, > > > > > > > Ellen > > > > > > > > > > > > > Thanks Ellen > > > > > > How old is your son? My grandson is 11 has been on > > > several antivirals in the past but we never saw die off like > > > this. While he was with DAN on valtrex(I don`t think > > > this DAN dr. knew anything about viruses or the > > > correct dosage wasn`t right. > > > > > > We trust Dr. Golldberg my daughter is close contact with > > > the office through E-Mails & ph. consults. We have seen > > > lots of good while on this protocol We have seen > > > positives we are getting some speech(we get so excited he > > > actually ask to go to a toy store. Also ask to take a bike > > > ride.. He has a b-day coming this little boy never shows any > > > interest in toys. Praying this will work for him. > > > > > > Thanks > > > > > > Carole > > > > > > > > > > > > > > From: chocolatiluv@ > > > > > > > Date: Mon, 24 May 2010 22:31:20 +0000 > > > > > > > Subject: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My grandson has been on > > > Acyclovir April 24 die off started 3 days later it has been > > > 4 wks. really has had a rough time Now were are toward the > > > end of May he is stll having die off. Dr. Goldberg this > > > could last longer than 21 days. > > > > > > > > > > > > > > He isn`t as irritable now he is happier we are > > > thinking yeast & odd B.M`s sandy color then also > > > greenish color. OCD behavior, last wk.he had a low > > > grade fever (waiting for test) to see results. > > > > > > > > > > > > > > Question is: Has anyone or your child have die > > > off last this long? > > > > > > > > > > > > > > I`vw read these antivirals can cause yeast He has been > > > on the same antifungal(diflucin a very long time.Probably > > > needs changed. > > > > > > > > > > > > > > Thanks > > > > > > > > > > > > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > > > > > > The New Busy is not the too busy. Combine all your > > > e-mail accounts with Hotmail. > > > > > > > http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\ T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Hey Bill, Congratulations on your new source of power!! LOL ________________________________ From: Bill klimas <klimas_bill@...> Sent: Tue, May 25, 2010 12:20:10 PM Subject: RE: Re: Die Off  An interesting set of posts and I see my earlier post mentioned. Our NK cells have cycled down a bit ( a series of Diet infractions on his part) but we have continued to flourish. I saw the mention of wanting things and our biggest recent gain has been a new best friend! I have endlessly fought with behavioral issues now that Connor is both finishing his first year in gen ed unassisted and hard into puberty. The new best friend has made a world of difference, not because he assists Connor, quite the opposite (The fiend is causing diet problems) but because he is soooo important to Connor. If he does anything inappropriate I just threaten to put him on restriction (no Jeffery) and he straitens up and promises to never do " That " again, just please no restriction! Way Cool! Bill > From: Ellen Jordan <e.jordan29@...> > Subject: RE: Re: Die Off > nids > Date: Tuesday, May 25, 2010, 9:00 AM > > My son is 19 and has been a patient for 9 years. His > NK cells have finally gone up to 7% after never getting > above 2% all these years. With this improvement, we > have seen more gains more quickly. I think Bill > Klimas mentioned that his son really took off when his NK > cells normalized. My son has been " a difficult case " > and has not recovered, but he has come so far. There > was a point in his life that he didn't care about toys or > anything. That sure has changed. He wants > everything now! Hang in there with Dr. G. There > is no quick fix to this illness, especially when the child > is older when beginning the protocol. I plan to keep my son > on the protocol and hope that there will be better immune > modulators soon. > > Again, trust Dr. G and stay in close contact with him. > Ellen > > > From: chocolatiluv@... > Date: Tue, 25 May 2010 00:43:53 +0000 > Subject: Re: Die Off > > > > > > > > > > > > > > > > > > > > > > >   > > >    >     >     >     > > > > > > > > > > > > > Yes, going back to acyclovir hit my son hard. It > took a month (maybe more) to get over die-off and he has > been on this med before. This time it was worse > die-off.   We also thought it might be yeast > and asked that Dr G change his anti-fungal. He agreed > he would if my son didn't soon improve, but asked us to hang > on a few more days. He was right and we saw a brighter > young man on the other side of this. I understand how hard > it is to see them regress. I hope it resolves > soon. > > > Dr. G will do whatever it takes to get your grandson > back to his best. Keep in close contact with the > office.... > > > Best, > > > Ellen > > > > > Thanks Ellen > > How old is your son? My grandson is 11 has been on > several antivirals in the past but we never saw die off like > this. While he was with DAN on valtrex(I don`t think > this DAN dr. knew anything about viruses or the > correct dosage wasn`t right. > > We trust Dr. Golldberg my daughter is close contact with > the office through E-Mails & ph. consults. We have seen > lots of good while on this protocol We have seen > positives we are getting some speech(we get so excited he > actually ask to go to a toy store. Also ask to take a bike > ride.. He has a b-day coming this little boy never shows any > interest in toys. Praying this will work for him. > > Thanks > > Carole > > > > > > From: chocolatiluv@... > > > Date: Mon, 24 May 2010 22:31:20 +0000 > > > Subject: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >   > > > > > > > > >    > > >     > > >     > > >     My grandson has been on > Acyclovir April 24 die off started 3 days later it has been > 4 wks. really has had a rough time Now were are toward the > end of May he is stll having die off. Dr. Goldberg this > could last longer than 21 days. > > > > > > He isn`t as irritable now he is happier we are > thinking yeast & odd B.M`s sandy color then also > greenish color. OCD behavior, last wk.he had a low > grade fever (waiting for test) to see results. > > > > > > Question is: Has anyone or your child have die > off last this long? > > > > > > I`vw read these antivirals can cause yeast He has been > on the same antifungal(diflucin a very long time.Probably > needs changed. > > > > > > Thanks > > > > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > >    > > >   > > > > > >    > > >    > > > > > > > > > > > > > > > > > > > > >     >      >       >   > > > > __________________________________________________________ > > > The New Busy is not the too busy. Combine all your > e-mail accounts with Hotmail. > > > http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\ T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Hey, Is there blue dye on the pills? Are you washing it off? We definitely had to wipe off the dye before giving it to my boys - they were very sensitive to it. Just wondering if there could be another factor besides die-off, and this one is pretty easy to remedy if your kid is sensitive. Not everyone has to wash them - but when you do, it can be pretty big. Otherwise, hope you make it to the other side and very soon! Good luck, ________________________________ From: chocolatiluv <chocolatiluv@...> Sent: Mon, May 24, 2010 7:43:53 PM Subject: Re: Die Off  > > > Yes, going back to acyclovir hit my son hard. It took a month (maybe more) to get over die-off and he has been on this med before. This time it was worse die-off. We also thought it might be yeast and asked that Dr G change his anti-fungal. He agreed he would if my son didn't soon improve, but asked us to hang on a few more days. He was right and we saw a brighter young man on the other side of this. I understand how hard it is to see them regress. I hope it resolves soon. > Dr. G will do whatever it takes to get your grandson back to his best. Keep in close contact with the office.... > Best, > Ellen > Thanks Ellen How old is your son? My grandson is 11 has been on several antivirals in the past but we never saw die off like this. While he was with DAN on valtrex(I don`t think this DAN dr. knew anything about viruses or the correct dosage wasn`t right. We trust Dr. Golldberg my daughter is close contact with the office through E-Mails & ph. consults. We have seen lots of good while on this protocol We have seen positives we are getting some speech(we get so excited he actually ask to go to a toy store. Also ask to take a bike ride.. He has a b-day coming this little boy never shows any interest in toys. Praying this will work for him. Thanks Carole > > From: chocolatiluv@... > Date: Mon, 24 May 2010 22:31:20 +0000 > Subject: Die Off > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. > > He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. > > Question is: Has anyone or your child have die off last this long? > > I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. > > Thanks > > Carole > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. > http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\ T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 > > Hi Carole, > Our son has been on antiviral since early April, and antifungal was started about three weeks ago. He is just starting to come out of the die off, and we are seeing glimmers of the " brighter child " everyone refers to. It was really hard to see him regress for so many weeks: very challenging behavior, spaciness, avoidance, crabbiness, etc... I share this to hopefully encourage you to hang in there and have faith that this is temporary. Our son's die off symptoms have been going on for more than seven weeks, and I've heard of others lasting longer. Our son is getting better by the day and is now talking in ways he has never spoken before. His bright face looking up at me when he speaks is encouraging! > Tammy > Die Off > > > Thanks Tammy for your encouraging words. So happy for you & you son is doing better. We will hang in there I am just a grandmother not actually living with this little boy but I am with him everyday & the family. As all of you know families with a sick child need lots of support so thats what I do. When my loved ones hurt so do I. Thanks Carole > > > > My grandson has been on Acyclovir April 24 die off started 3 days later it has been 4 wks. really has had a rough time Now were are toward the end of May he is stll having die off. Dr. Goldberg this could last longer than 21 days. > He isn`t as irritable now he is happier we are thinking yeast & odd B.M`s sandy color then also greenish color. OCD behavior, last wk.he had a low grade fever (waiting for test) to see results. > Question is: Has anyone or your child have die off last this long? > I`vw read these antivirals can cause yeast He has been on the same antifungal(diflucin a very long time.Probably needs changed. > Thanks > Carole > > > > > > Quote Link to comment Share on other sites More sharing options...
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