Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 We had this done last spring because we were exasperated with the diet. Basically our son is so reactive that the eosinophils and IEG were off the charts even on the strictest of diets. (We were down to 4 foods at one point) Dr. G was puzzled as well and really couldn't figure out what else to pull out of the diet. We asked Dr. G about P/N several times in the last year and he kindly said no. Finally we just did it anyway and found that our son was indeed allergic to one of the most benign foods that even our local allergist said to eat on the elimination diet. However, we do not believe we went to the right P/N allergist and spent a ton of money on the testing. She tested for foods that our son hasn't eaten in over two years. (Apparently you won't get an accurate result unless the food is already a part of the child's diet) All that said . . . we did try the shots and told Dr. G what we had done. He was thankful to know the food culprit but asked us to stop the P/N shots which we did. We believe the P/N shots caused his eosinophils to jump back up to astronomical ranges again and we were already doubting the accuracy of the tests. Hope this helps. On Tue, Jun 15, 2010 at 9:27 PM, and Freeman < freemanbk@...> wrote: > > > What is the view on Provocation and Neutralization allergy treatments > - > the kind given by Dr. Doris Rapp. > > Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Martha I looked at P/N testing and did not go there either. I did regiment avoidance of environmental allergens much more pro actively with success. We use nasal chrome and I started having Connor use it more frequently and specifically when he was likely to be exposed to a potential allergen. Additionally I upgraded flooring, bedding and " Stuff " in his environment to reduce the potential for allergens or the retention of potential allergens.Just realizing and embracing the concept, then logically sorting through his day to day environment and reducing exposure to common stuff made a huge difference. Question, what was the food that was the culprit? What did the IEG do when you finally removed it? Bill You can respond off list if you like. > > > What is the view on Provocation and Neutralization allergy treatments > - > the kind given by Dr. Doris Rapp. > > Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 The main culprit was sweet potato. He may have actually developed an allergy to it since he had it so much. P/n also revealed reaction/ allergy to white rice, beef, and banana which were surprising as well. Our next lab draw will let us know if removing the new foods makes a difference. The labs we had done in may were high but likely affected by the p/n shots. We have done all the environmental changes you mentioned except new flooring. We hope the labs change. Our sons diet is the hardest part of mods for us. I'll keep you posted if you like. Martha Sent from my iPhone On Jun 17, 2010, at 7:49 AM, Bill klimas <klimas_bill@...> wrote: > Martha > I looked at P/N testing and did not go there either. I did regiment > avoidance of environmental allergens much more pro actively with > success. We use nasal chrome and I started having Connor use it more > frequently and specifically when he was likely to be exposed to a > potential allergen. Additionally I upgraded flooring, bedding and > " Stuff " in his environment to reduce the potential for allergens or > the retention of potential allergens.Just realizing and embracing > the concept, then logically sorting through his day to day > environment and reducing exposure to common stuff made a huge > difference. > Question, what was the food that was the culprit? > What did the IEG do when you finally removed it? > Bill > You can respond off list if you like. > > > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Hi Martha, This is of great interest to me as my son too has had a VERY high IgE. It has slowly come down in our 7 years with Dr. G, but we just can’t get it any lower then the 400ish ( RR <140) that it is sitting at now, no matter what we eliminate. I get when you said at one point he was only eating 4 things….been there, done that too. Interestingly, my son’s EOS have never been too bad, but lately have been climbing. Not sure if it is because we finally introduced processed wheat as we have removed all “GF” things from his diet. I do see his behaviour more stabilized however. It used to be so obvious that he would become a different person if he had a strawberry for example. Now he is even keel in behaviour, which is bittersweet as I can only tell food intolerances through bloodwork and by then he could have consumed a lot of the culprit. As my boy is now 11, I am really having a hard time filling him up. He is always hungry and there is only so much meat and veggies a guy can eat… He is dead serious about his diet and won’t put anything in his mouth without asking if is okay. Poor kid has almost become paranoid as he wants to get healthy so bad, he won’t even try something new if I say he can. He won’t take ANY chances when it comes to his diet…I only wish I had ¼ of his self control and discipline!!!! LOL!?! I appreciate your updates, as the diet is the hardest part of the protocol for us as well. Sometimes I feel as though if I have to take one more thing away from my son, I am going to have a melt down. All the while his friends eat more junk then I would EVER allow any of my kids to even look at and these kids are all fine and healthy…no behavioural issues, school problems and so on… Best of luck. I think sometimes it helps to vent so we don’t feel so alone! Lori _____ From: [mailto: ] On Behalf Of Martha Wood Sent: June-17-10 11:30 AM Subject: Re: PN allergy testing The main culprit was sweet potato. He may have actually developed an allergy to it since he had it so much. P/n also revealed reaction/ allergy to white rice, beef, and banana which were surprising as well. Our next lab draw will let us know if removing the new foods makes a difference. The labs we had done in may were high but likely affected by the p/n shots. We have done all the environmental changes you mentioned except new flooring. We hope the labs change. Our sons diet is the hardest part of mods for us. I'll keep you posted if you like. Martha Sent from my iPhone On Jun 17, 2010, at 7:49 AM, Bill klimas <klimas_bill@... <mailto:klimas_bill%40> > wrote: > Martha > I looked at P/N testing and did not go there either. I did regiment > avoidance of environmental allergens much more pro actively with > success. We use nasal chrome and I started having Connor use it more > frequently and specifically when he was likely to be exposed to a > potential allergen. Additionally I upgraded flooring, bedding and > " Stuff " in his environment to reduce the potential for allergens or > the retention of potential allergens.Just realizing and embracing > the concept, then logically sorting through his day to day > environment and reducing exposure to common stuff made a huge > difference. > Question, what was the food that was the culprit? > What did the IEG do when you finally removed it? > Bill > You can respond off list if you like. > > > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Pleae do > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Lori It is interesting what you said about his self control. For quite a while my son desperately wanted what the other kids had, Dorito's and cheetos and such. Several months ago I had a long conversation about how the foods mad him ill and created the behaviors that were getting him in trouble. we discussed what made him feel bad and how he felt when he ate bad food. Since then he has taken several foods out of his diet himself. the biggest was peanut butter he ate regularly. Others like Ore's had been OK and I never saw a reaction but he says no way. He does eats tons of meat, veggies and potatoes are OK here so we do a lot of varieties of potatoes. We have corn as well and I an do a lot with various corn dishes. Regardless you might talk to your son how e feels after eating certain foods, he may be able to sort out the foods he is allergic to himself. > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I think there is another side not being told here. I have done P/N TREATMENT not testing for over 1 year and I couldn't be without it. Martha, your allergist didn't know what they were doing. You can only test what your child has been exposed to within the last few days and I don't understand why they didn't do sublingual immunotherapy that alleviates the allergies. Bill, its not just avoidance, you have to do the treatment for it to work. The reason our children come out allergic to the most " benign " and safe foods is because their immune system is firing off at everything they are exposed to repeatedly. And for some nasalcrom is not enough to cure the SYSTEMIC inflammation and cytokine cascade that results from the constant barrage of " allergens " ingested in food and inhaled in the environment. This includes pollens and chemicals such as formaldehyde. This source of inflammation is real. Here are before and after videos of my daughter. This is NOT about a runny nose, she gets depressed and beligerant: Before- After- http://www.youtube.com/watch?v=VYRvoH44kA8 & feature=related My child became so sensitive to everything she couldn't be on her meds anymore. Not every child is this way but mine was. Her life was literally unlivable and P/N saved her. I hate doing it, its damn hard work and I would rather not but I have no other choice. Now it has been a year and her immune system has cooled down considerably. Her reactions are not so extreme and she needs less treatment. Well that's my side of the story, people should hear both. You can't just see any doctor for this. There are good ones and bad ones, just like in any field. - > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > treatments > > > - > > > the kind given by Dr. Doris Rapp. > > > > > > Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 , I agree that our doctor messed up and it makes me sick that we wasted so much time and money on this. I am not at all suggesting that P/N is a bad thing. I just think our experience was bad I assume you are looking at the EOS and IEG for P/N effectiveness as well as behavioral changes. Did you find that your lab levels skyrocketed like ours did after starting the shots? How in the heck do I find a good P/N doctor? I located ours through the website you mentioned awhile back. (Can't recall the name right off.) Thanks for posting your thoughts. Very helpful. Martha On Fri, Jun 18, 2010 at 9:26 AM, <jlhank80@...> wrote: > > > I think there is another side not being told here. I have done P/N > TREATMENT not testing for over 1 year and I couldn't be without it. Martha, > your allergist didn't know what they were doing. You can only test what your > child has been exposed to within the last few days and I don't understand > why they didn't do sublingual immunotherapy that alleviates the allergies. > Bill, its not just avoidance, you have to do the treatment for it to work. > The reason our children come out allergic to the most " benign " and safe > foods is because their immune system is firing off at everything they are > exposed to repeatedly. And for some nasalcrom is not enough to cure the > SYSTEMIC inflammation and cytokine cascade that results from the constant > barrage of " allergens " ingested in food and inhaled in the environment. This > includes pollens and chemicals such as formaldehyde. This source of > inflammation is real. > > Here are before and after videos of my daughter. This is NOT about a runny > nose, she gets depressed and beligerant: > > Before- > > > After- > http://www.youtube.com/watch?v=VYRvoH44kA8 & feature=related > > My child became so sensitive to everything she couldn't be on her meds > anymore. Not every child is this way but mine was. Her life was literally > unlivable and P/N saved her. I hate doing it, its damn hard work and I would > rather not but I have no other choice. Now it has been a year and her immune > system has cooled down considerably. Her reactions are not so extreme and > she needs less treatment. > > Well that's my side of the story, people should hear both. You can't just > see any doctor for this. There are good ones and bad ones, just like in any > field. > > - > > > > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Bill, You make a great point although I am still in shock that your son could eat Oreo’s???? I thought sugar and chocholate were no-nos??? My son has never touched a cookie, a Dorito, a Cheeto, nothing but a plain potato chips and on occasion a Rice Krispie square for treats. It drives me crazy that he doesn’t get treats but he is too afraid (and so am I for that matter!). It was my son however that came to the conclusion that he couldn’t have corn as he did not feel well afterward. It is something that I have periodically had to take away with good results and on occasion I reintroduce it just to see what happens and to throw the kid a bone since he loves corn so much. You are right though. Once the kids get old enough, they are the best barometer for what works for them and doesn`t. It is important to include them in any case, so that they realize the consequences of food infractions. My son is still on such a limited diet trying to get his IgE to within a normal range. We have made tremendous progress as when we started with Dr. G many years ago he was in the 1700’s! That being said, unless it is something like chicken or potatoes, which Dr. G feels isn`t likely, then I need to focus more on the environmental aspect.,,,ripping up the carpet is next but again Dr. G still feels it is not external but a food… The frustration lies in the fact that he only eats a handful of things. Dr. G has gone over the diet again and again and we keep taking more things away. While still making progress, 7 years into the protocol I hate to still remove, remove, remove more things from what the kid can eat. As I said, he is hungry. When he eats an apple as it is only one of 3 fruits he can he, he is hungry enough to eat 3 of them. There goes the 2 fruit servings a day thing for fear of excess sugar in his diet…. Thus the cycle continues to go for us. While I hate that any parent is in the same position, it does give me comfort to hear how other families try and solve this problem. I appreciate your input. This has been the hardest part of the journey for us and when I say the kid doesn`t cheat….he really doesn`t. At least if he did, it would be an easier `fix`!!! Warm regards, Lori _____ From: [mailto: ] On Behalf Of Bill klimas Sent: June-17-10 3:51 PM Subject: RE: PN allergy testing Lori It is interesting what you said about his self control. For quite a while my son desperately wanted what the other kids had, Dorito's and cheetos and such. Several months ago I had a long conversation about how the foods mad him ill and created the behaviors that were getting him in trouble. we discussed what made him feel bad and how he felt when he ate bad food. Since then he has taken several foods out of his diet himself. the biggest was peanut butter he ate regularly. Others like Ore's had been OK and I never saw a reaction but he says no way. He does eats tons of meat, veggies and potatoes are OK here so we do a lot of varieties of potatoes. We have corn as well and I an do a lot with various corn dishes. Regardless you might talk to your son how e feels after eating certain foods, he may be able to sort out the foods he is allergic to himself. > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Lori, are there any symptoms associated with eating a forbidden food? Besides a high IgE? - > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I don't say much on this list but the children who have chemical sensitivities are going to react to the nasal inhibitors and also to the antihistamines.  I also believe that many of our children have many more sensitivities than others may think. I believe that each child is unique and that we as parents have to take the time to determine which foods or other things that our children are reacting too because testing does not give the whole picture.   Sheri > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Lori and Bill, You both have made some excellent points in these posts and I'm really intrigued by the entire IgE issue. Last year, my son's IgG, IgA, IgM were all in good normal range, but his IgE was 1754. We were told that it was either food allergy inflammation or parasitic. So we did what any newbie parent would do, made a million changes in all areas. Well, something worked because as of last week, my son's IgE is 6. I'm in shock, but more so confused on what really helped it go down that drastically!?! So now, if it ever climbed again....I'm back to square one to figure out what worked! An even bigger issue that we have now, his IgG, IgA, IgM are all so very low now. We helped one area and 3 others went completely down hill!! We avoided every item listed on his food allergy test and did a four day rotation diet, then eventually went SCD minus all IgG food allergies.  Because his metametrix came up positive for parasites and we started a lyme protocol, we treated with Alinia for parasites. Lastly, we cleaned up his environment as much as we could; removed carpet, flame resistant clothes / bedding, purchased pine furniture, added an air purifier and water filter system. I have to watch all his lotions, sunblocks, shampoos and body washes because some chemicals caused a reaction on contact.  We haven't seen Dr. G, but have an appointment next month. Anyhow, thanks for your postings. They've been great reads and learning tools for me! Velma   ________________________________ From: Bill klimas <klimas_bill@...> Sent: Fri, June 18, 2010 12:16:20 PM Subject: RE: PN allergy testing  Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I think Dr. G is concerned, too, that too much sugar or carbs can create diabetes, too, right? Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Bill klimas Sent: Friday, June 18, 2010 12:16 PM Subject: RE: PN allergy testing Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi again Bill, Again you make some great points. I have been so anal about the diet that I didn`t EVER think my kid could ever have a mainstream bone like an Oreo! I do understand about chocolate and the milk vs. dark issue, however I still thought chocolate was a no no. I do make some great brownies as a real treat for Bday parties, but I really need to keep my son`s diet clean around that occasion as I know he can be reactive to even cocoa powder. Basically my son is hyper reactive to anything that is ever considered to be allergic or cause intolerances. I think the fact that his Eosinophils have remained low in spite of such a high IgE is part of his immune dysfunction. The fact that we are starting to see them go up, as the IgE comes down is interesting, to say the least. At one point Galen suggested that I look into my son being allergic to his own myelin. That was an interesting suggestion as we do have an immediate family history of MS. I often think that while I have saved my son from a world of isolation being formerly considered in ``the`` spectrum, we have also saved him from a future of very serious health issues in his adulthood. I am not sure what you mean by the protocol being ``designed to artificially keep our kids immune system under control and them healthy in order for them to develop normally``. I have been with the understanding that by eliminating common triggers that their immune systems were cooling off. How is that ``artificial``. To me it just seems like a long drawn out approach because that is all there is now. It is still real though, is it not… I agree with you whole heartedly about chemical sensitivities and have always been a ``green`` person, even before it was in vogue! My husband affectionately refers to me as a bark eater, so I shutter to think where my children would be had I invited Sponge Bob into their bedroom in the first place. While I can`t always afford organic cottons, I keep it pure and simple, keep the dyes to a minimum, have always used scent free, phosphate and chemical free detergents, cleaners etc…Scent in EVERYTHING, including body products was something I was so cautious of even when my kids were new borns as I feared them being overloaded with scent as I held them and nursed them. I wouldn`t even let people hold my child if they were wearing noticeable perfume or cologne…Yes, I was a neurotic new mother (LOL!), but I think it paid off as my poor boy would have really had some far more serious problems, I believe, if I hadn`t followed my instincts before there were even any problems! Yet that natural mentality perhaps caused me to overload his digestive system too early with only whole grains and organic cows milk by the cup full whenever he wanted…oh if only I knew THEN what I know NOW!!!!! Now if I could just find an easy solution for dust… I did want to say however that you give me tremendous inspiration to not be so black and white about diet! There is hope that my son could become main stream with his diet and be like any other kid and come home after school and have a cookie (after a hearty meal as you mentioned!) on occasion, just because they are good!!!!! Many thanks for taking the time to share your experience and opinion with me. All this talk of cookies is making me crave an Oreo!!! (Good thing the kids are in bed!) LOL!!!!!! Lori _____ From: [mailto: ] On Behalf Of Bill klimas Sent: June-18-10 3:16 PM Subject: RE: PN allergy testing Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi , Dr. G always said to watch for a kid that is either spacey or hyper when they have had a food that they are reacting to. We also watch for red ears and skin issues like eczema. When my son was young and his IgE was waaaay over the top it was just a major freak out…screaming, non-compliance, not listening, stimming. He would look like a wild child and be completely out of control within a short time of consuming the offending food…except for chocolate, which for some reason had a delayed effect. It was so obvious to anyone who knew my son, it became common for them to ask what he had eaten when they saw him climb the walls, throw things etc…This was really unusual behaviour for my guy who was always so sweet and accommodating, always trying to please. He just couldn`t help himself and would appear ``possessed`` As we have eliminated foods and eliminated more foods these reactions are no longer discernable. It could be because he is healthier, or older. Whatever the case, it is harder to see an infraction now. However when it is really something that he shouldn`t have had, or he has eaten too many borderline things, he gets silly. It is harder for him to edit his behaviour, even though he knows he shouldn`t be acting that way, he can`t help it. Hope this helps. Lori _____ From: [mailto: ] On Behalf Of Sent: June-18-10 3:04 PM Subject: Re: PN allergy testing Lori, are there any symptoms associated with eating a forbidden food? Besides a high IgE? - > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Lori, You described my son’s reactions to foods he should not eat exactly. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Lori Sent: Friday, June 18, 2010 7:06 PM Subject: RE: Re: PN allergy testing Hi , Dr. G always said to watch for a kid that is either spacey or hyper when they have had a food that they are reacting to. We also watch for red ears and skin issues like eczema. When my son was young and his IgE was waaaay over the top it was just a major freak out…screaming, non-compliance, not listening, stimming. He would look like a wild child and be completely out of control within a short time of consuming the offending food…except for chocolate, which for some reason had a delayed effect. It was so obvious to anyone who knew my son, it became common for them to ask what he had eaten when they saw him climb the walls, throw things etc…This was really unusual behaviour for my guy who was always so sweet and accommodating, always trying to please. He just couldn`t help himself and would appear ``possessed`` As we have eliminated foods and eliminated more foods these reactions are no longer discernable. It could be because he is healthier, or older. Whatever the case, it is harder to see an infraction now. However when it is really something that he shouldn`t have had, or he has eaten too many borderline things, he gets silly. It is harder for him to edit his behaviour, even though he knows he shouldn`t be acting that way, he can`t help it. Hope this helps. Lori _____ From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: June-18-10 3:04 PM <mailto:%40> Subject: Re: PN allergy testing Lori, are there any symptoms associated with eating a forbidden food? Besides a high IgE? - > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Kristy, I think it is fairly text book for kids with sensitive systems and food reactions. I see a lot of kids in my neighbourhood and at my kids school that could use some dietary modifications to help their behaviour. Unfortunately the changes are hard and many parents do not want to entertain the idea that food reactions are causing their child to be ``spirited``, or non compliant or hyper. It is easier and faster to open a package to feed their kids then it is to break it down and get o the root of the problem. A lot of this stuff dates back to the 60`s and the Feingold diet. When you think of it for NT kids, it is garbage in garbage out. However the frustration arises when it is ``normal`` supposedly healthy food that is causing the ``garbage out``. There is a lot to be said for observing kids and how they react after eating certain foods. It used to be so clear with my son, there was never any question because his behaviour was so dramatically different from his usual personality. When you observe a change in behaviour, trace it back to something they ate. For us more often then not, that was the culprit, not some far out theory that he was frustrated that he wasn`t fitting in the world around him. He could fit in just fine most of the time. Fill him up with the wrong food, send his system haywire and sure enough, he would not fit into the world around him…he could barely fit into his own skin! Lesson is - take the clue from the kids. Verbal or not, their repeated behaviour after certain foods isn`t fabricated. Take away the culprit and take away the inflammatory reaction and the behaviour that goes along with it. It is not rocket science. I hope your son continues on his road to good health and recovery! Lori _____ From: [mailto: ] On Behalf Of Kristy Nardini Sent: June-18-10 10:39 PM Subject: RE: Re: PN allergy testing Lori, You described my son’s reactions to foods he should not eat exactly. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... <mailto:kristy%40tazzini.com> Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Lori Sent: Friday, June 18, 2010 7:06 PM <mailto:%40> Subject: RE: Re: PN allergy testing Hi , Dr. G always said to watch for a kid that is either spacey or hyper when they have had a food that they are reacting to. We also watch for red ears and skin issues like eczema. When my son was young and his IgE was waaaay over the top it was just a major freak out…screaming, non-compliance, not listening, stimming. He would look like a wild child and be completely out of control within a short time of consuming the offending food…except for chocolate, which for some reason had a delayed effect. It was so obvious to anyone who knew my son, it became common for them to ask what he had eaten when they saw him climb the walls, throw things etc…This was really unusual behaviour for my guy who was always so sweet and accommodating, always trying to please. He just couldn`t help himself and would appear ``possessed`` As we have eliminated foods and eliminated more foods these reactions are no longer discernable. It could be because he is healthier, or older. Whatever the case, it is harder to see an infraction now. However when it is really something that he shouldn`t have had, or he has eaten too many borderline things, he gets silly. It is harder for him to edit his behaviour, even though he knows he shouldn`t be acting that way, he can`t help it. Hope this helps. Lori _____ From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Sent: June-18-10 3:04 PM <mailto:%40> <mailto:%40> Subject: Re: PN allergy testing Lori, are there any symptoms associated with eating a forbidden food? Besides a high IgE? - > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Sheri that was so well said. We can't use antihistamines but nasal sprays are a must for us. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Hi Lori and Bill, You both have made some excellent points in these posts and I'm really intrigued by the entire IgE issue. Last year, my son's IgG, IgA, IgM were all in good normal range, but his IgE was 1754. We were told that it was either food allergy inflammation or parasitic. So we did what any newbie parent would do, made a million changes in all areas. Well, something worked because as of last week, my son's IgE is 6. I'm in shock, but more so confused on what really helped it go down that drastically!?! So now, if it ever climbed again....I'm back to square one to figure out what worked! An even bigger issue that we have now, his IgG, IgA, IgM are all so very low now. We helped one area and 3 others went completely down hill!! We avoided every item listed on his food allergy test and did a four day rotation diet, then eventually went SCD minus all IgG food allergies. Because his metametrix test came up positive for parasites and we started a lyme protocol, we treated with Alinia for parasites. Lastly, we cleaned up his environment as much as we could; removed carpet, flame resistant clothes / bedding, purchased pine furniture, added an air purifier and water filter system. I have to watch all his lotions, sunblocks, shampoos and body washes because some chemicals caused a reaction on contact. We haven't seen Dr. G, but have an appointment next month. Anyhow, thanks for your postings. They've been great reads and learning tools for me! Velma > > > > > > > > > > > > > > > What is the view on Provocation and Neutralization allergy > > > treatments > > > > - > > > > the kind given by Dr. Doris Rapp. > > > > > > > > Thanks. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 HiAll , noticed that someone mentioned the Metametrix test which I have done and the Protozoan parasities came back on his tests . Any thoughts how to treat this or has anyone treated this parasites Virginia ( downunder) > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Hi Velma, You must be absolutely thrilled to see yours and your son’s hard work pay off and have his IgE get within a normal RR. Fantastic! Typical of us involved parents - we barely stop to celebrate one accomplishment before we start to worry about the next thing. I do not think you have to worry about the other’s being too low (what is ”so very low”?). Many of the RR that I have seen for these tests do not have a low or bottom range, it is just indicated as less then (<). Did someone indicate there was a concern that the IgG, IgA and IgM values are unhealthy? Dr. G will target them if he is concerned when you see him next month. For now, keep doing what you are doing because you are obviously doing something very right! I am so very happy for you and your son!!! Enjoy the success and feel really proud at the changes you have made that will give your child a healthier future. When my son was 3 his IgE was just under 2800. When we removed dairy and gluten, it went down to the 1700’s and then we saw Dr. G who said my son had one of the highest IgE’s he had ever seen. He had an 18 year old patient in the 1980’s with an IgE in the 800’s and he sent him to UCLA for a full work up because he was concerned and had never seen one so high before and didn’t know what was causing it. We have continued to work very hard on diet and some environmental changes for nearly 8 years and I cannot get my son’s IgE to anything less then the low 400’s. Where did you find out about the idea that it could be a parasite if it wasn’t a food allergy inflammation? That is one road that we have not gone down although I think I do recall Dr. G testing my son for parasites early in our treatment with him, and nothing extraordinary came up. I would also like to ask what you mean by “SCD”, when you say, “then eventually went SCD minus all IgG food allergies”? What exactly did the lyme protocol entail and did your son test positive for Lyme disease or was that your chosen treatment for parasites in general. Forgive my naivety, I really don’t know much about parasites at all, including symptoms, diagnosis and treatment. One more question if you don’t mind, what sort of reaction did you see with sunblocks, body washes, lotions etc…? My son has never had a reaction to body products, but has also never reacted on a traditional skin prick test either, even at his highest IgE! I think I will tighten back up on those products next and see if we see any change at all on our next blood draw. I used to be hyper vigilant about these things but have let it slide lately because I have been too focused on diet and dust. Thanks for the reminder. Is there a line of body products that you can recommend that your son has not reacted to that perhaps I could try? I appreciate your note and I too have learned a lot from your experience as well. Thanks for sharing. Good luck at your appointment with Dr. G next month. You will be so glad that you made this decision for your son and yourself. He will continue to lead your son on the path to good health and a bright future. Don’t forget to take a tape recorder!!!! Lori _____ From: [mailto: ] On Behalf Of Velma Rodrigues Sent: June-18-10 5:16 PM Subject: Re: PN allergy testing Hi Lori and Bill, You both have made some excellent points in these posts and I'm really intrigued by the entire IgE issue. Last year, my son's IgG, IgA, IgM were all in good normal range, but his IgE was 1754. We were told that it was either food allergy inflammation or parasitic. So we did what any newbie parent would do, made a million changes in all areas. Well, something worked because as of last week, my son's IgE is 6. I'm in shock, but more so confused on what really helped it go down that drastically!?! So now, if it ever climbed again....I'm back to square one to figure out what worked! An even bigger issue that we have now, his IgG, IgA, IgM are all so very low now. We helped one area and 3 others went completely down hill!! We avoided every item listed on his food allergy test and did a four day rotation diet, then eventually went SCD minus all IgG food allergies. Because his metametrix came up positive for parasites and we started a lyme protocol, we treated with Alinia for parasites. Lastly, we cleaned up his environment as much as we could; removed carpet, flame resistant clothes / bedding, purchased pine furniture, added an air purifier and water filter system. I have to watch all his lotions, sunblocks, shampoos and body washes because some chemicals caused a reaction on contact. We haven't seen Dr. G, but have an appointment next month. Anyhow, thanks for your postings. They've been great reads and learning tools for me! Velma ________________________________ From: Bill klimas <klimas_bill@... <mailto:klimas_bill%40> > <mailto:%40> Sent: Fri, June 18, 2010 12:16:20 PM Subject: RE: PN allergy testing Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Lori, You are totally right about stopping to celebrate one accomplishment before worrying about the next. But I have to say that I was extra proud of this one. When we tested his immune panel at age 2 and got a 1754 for IgE, our pediatrician said " Might as well put him in a bubble. He's reacting to everything! " What an encouragement that was! All they recommended was allergy shots at that point. I didn't want to take that route just yet. It was actually a nurse practitioner that told me high IgE could be related to a parasitic infection. A lot of websites talk about parasites and elevated IgE being correlated. Here's one: http://kidshealth.org/parent/system/medical/test_immunoglobulin_e.html It was our lyme specialist who wanted us to start the Rx Alinia, which is fairly new. He uses it in his protocol to treat lyme. But since we were positive for parasites, it was like knocking out 2 birds with 1 stone. Not a whole lot of studies done, but our pharmacists said it was pretty new and he had already heard good reviews for parasite treatments. I personally didn't care for the ingredients, but I gave it a shot. I was even warned - that I might see worm looking bugs in his poop. Oh joy! But we didn't...however, no more itchy, red or raw rectum only Olympic size formed stools! TMI - sorry. (I was told that the fluffy and loose stools he had been having were all signs of parasites and/or inflammation.) No more constipation either. Oh and no more teeth grinding - completely resolved. We started the Specific Carbohydrate Diet (SCD) / GAPS diet at the same time. High protein, minimal carb. Anything that came up flagged on his Food IgG test, we avoided. I tested completely positive for lyme disease with Igenex labs. My son tested " indeterminate " but had all the same bands that I did, only not as strong. We've been treating with herbals and antibiotics. In doing this, my son is no longer light sensitive, no more headaches, tremors, or rashes. Then we added in an anti-viral (got a few rashes / pimples) but we seen gains in different areas. Then, after watching Dr. Goldberg's you tube videos, I kept saying " that's totally my kid! " Our recent tests showed: IgG @ 354 (LOW) Range is 533-1078 IgA @ <20 (LOW) Range is 24 - 21 IgM @ 50 Range is 26 - 218 IgE @ 6 Range is <52 IgG SUBCLASSES IgG 1 213 (LOW) Range is 315 - 945 IgG 2 83 IgG 3 19 IgG 4 6.4 IGG SERUM 357 (LOW) Range is 533 - 1078 Last year, all these lows were in normal range. Not exactly sure what happened. But hopefully Dr. G will be able to tell?! My Aunt worked for a Lab and said my son's levels are too low and I should speak to an Immunologist?!?! As for lotions, shampoos and sunblocks.... my kid would scratch himself raw until he bled sometimes. Or he'd break out in hives - especially with sunblock. Cheeks and Ears would flair up bright red sometimes. There were times where nothing was evident, but he would keep grabbing my hand to wipe his arms and legs off after I put something on him. Initially thought it was sensory issues. I realized it wasn't sensory when he didn't do it with certain products. I started using products by Nature's Paradise Organics. They are Gluten, Dairy, Wheat, and Chemical Free Products. I still use the Baby Organics line. I hope I was able to answer your questions. We are excited to see Dr. Goldberg next month!! Thanks again! I'll be in touch! Velma ________________________________ From: Lori <lbharris@...> Sent: Tue, June 22, 2010 7:36:26 PM Subject: RE: PN allergy testing Hi Velma, You must be absolutely thrilled to see yours and your son’s hard work pay off and have his IgE get within a normal RR. Fantastic! Typical of us involved parents - we barely stop to celebrate one accomplishment before we start to worry about the next thing. I do not think you have to worry about the other’s being too low (what is â€so very lowâ€?). Many of the RR that I have seen for these tests do not have a low or bottom range, it is just indicated as less then (<). Did someone indicate there was a concern that the IgG, IgA and IgM values are unhealthy? Dr. G will target them if he is concerned when you see him next month. For now, keep doing what you are doing because you are obviously doing something very right! I am so very happy for you and your son!!! Enjoy the success and feel really proud at the changes you have made that will give your child a healthier future. When my son was 3 his IgE was just under 2800. When we removed dairy and gluten, it went down to the 1700’s and then we saw Dr. G who said my son had one of the highest IgE’s he had ever seen. He had an 18 year old patient in the 1980’s with an IgE in the 800’s and he sent him to UCLA for a full work up because he was concerned and had never seen one so high before and didn’t know what was causing it. We have continued to work very hard on diet and some environmental changes for nearly 8 years and I cannot get my son’s IgE to anything less then the low 400’s. Where did you find out about the idea that it could be a parasite if it wasn’t a food allergy inflammation? That is one road that we have not gone down although I think I do recall Dr. G testing my son for parasites early in our treatment with him, and nothing extraordinary came up. I would also like to ask what you mean by “SCDâ€, when you say, “then eventually went SCD minus all IgG food allergiesâ€? What exactly did the lyme protocol entail and did your son test positive for Lyme disease or was that your chosen treatment for parasites in general. Forgive my naivety, I really don’t know much about parasites at all, including symptoms, diagnosis and treatment. One more question if you don’t mind, what sort of reaction did you see with sunblocks, body washes, lotions etc…? My son has never had a reaction to body products, but has also never reacted on a traditional skin prick test either, even at his highest IgE! I think I will tighten back up on those products next and see if we see any change at all on our next blood draw. I used to be hyper vigilant about these things but have let it slide lately because I have been too focused on diet and dust. Thanks for the reminder. Is there a line of body products that you can recommend that your son has not reacted to that perhaps I could try? I appreciate your note and I too have learned a lot from your experience as well. Thanks for sharing. Good luck at your appointment with Dr. G next month. You will be so glad that you made this decision for your son and yourself. He will continue to lead your son on the path to good health and a bright future. Don’t forget to take a tape recorder!!!! Lori _____ From: [mailto: ] On Behalf Of Velma Rodrigues Sent: June-18-10 5:16 PM Subject: Re: PN allergy testing Hi Lori and Bill, You both have made some excellent points in these posts and I'm really intrigued by the entire IgE issue. Last year, my son's IgG, IgA, IgM were all in good normal range, but his IgE was 1754. We were told that it was either food allergy inflammation or parasitic. So we did what any newbie parent would do, made a million changes in all areas. Well, something worked because as of last week, my son's IgE is 6. I'm in shock, but more so confused on what really helped it go down that drastically!?! So now, if it ever climbed again....I'm back to square one to figure out what worked! An even bigger issue that we have now, his IgG, IgA, IgM are all so very low now. We helped one area and 3 others went completely down hill!! We avoided every item listed on his food allergy test and did a four day rotation diet, then eventually went SCD minus all IgG food allergies. Because his metametrix came up positive for parasites and we started a lyme protocol, we treated with Alinia for parasites. Lastly, we cleaned up his environment as much as we could; removed carpet, flame resistant clothes / bedding, purchased pine furniture, added an air purifier and water filter system. I have to watch all his lotions, sunblocks, shampoos and body washes because some chemicals caused a reaction on contact. We haven't seen Dr. G, but have an appointment next month. Anyhow, thanks for your postings. They've been great reads and learning tools for me! Velma ________________________________ From: Bill klimas <klimas_bill@... <mailto:klimas_bill%40> > <mailto:%40> Sent: Fri, June 18, 2010 12:16:20 PM Subject: RE: PN allergy testing Lori I go by Dr G's advice with a grain of salt. Milk Chocolate is a no no but there are many Chocolates that have no dairy. We seldom have them due to sugar but yes we need to throw a bone when needed. Connor's IgE is sometimes high and I look for the cause. In my opinion the protocol is designed to artificially keep our kids immune system under control and them healthy in order allow them to develop normally. As the science behind this progresses there will be better treatment and possibly a silver bullet-XMRV? -Stem cell? - Could be fairly soon! The root cause of the immune dysfunction is still unknown (part of the argument at SCIA) but I monitor Connors recovery based on the the ability to work at grade level, have friends,-Generally develop normally. I watch the Ige but if he is happy and getting it done is most important. Mind you we are still catching up in some areas and are just screaming through great stuff in other areas. Good days, bad days but over all we are sooo far ahead of anything I have ever dreamed of- I am in heaven. Back to Oreo's- The sugar in not an allergy, to much and you get gut issues (t can cause fermentation and alcohol) creates bad behavior and wild fluctuations in blood sugar that cause him to crash and get pissy! But if the diet gets sufficient protein he can handle some sugar. WE control the amount of many foods but don't go black and white over treats because of sugar, we use them minimally and use them to get social behavior! (I believe the problem with the oreo's was wheat not sugar.) One or two after a hearty healthy meal never seemed to be a problem. Not true with candy (Dye) or Dairy but occasional small amounts of non dairy chocolate (coco based) have not been a problem, too much is! I believe Dr G looks at environmental allergies as less problematic because they can be blocked with nasal inhibitors.In reality not all environmental stuff is an inhalant. I find chemical sensitivity is an issue as well and they can be a problem just from contact. I hate to say it but I killed sponge bob! Chinese made bedding with vibrant colors is generally set with formaldehyde. It can cause immune reaction on contact! White cotton sheets and NO synthetic spreads with dyes in them! Towels, Stuffed animals, all can carry problems from chemicals. When I cleaned up his bedding ( & PJ's) things improved as well. Bill > > > > > > > What is the view on Provocation and Neutralization allergy > treatments > > - > > the kind given by Dr. Doris Rapp. > > > > Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.