Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Well said Marcia! I agree 100%! Sent via BlackBerry by AT & T Dan vs. Nids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I am with you Marcia and Bill. My comments were " moderated " out of the SCIA list too. - > > , > > It is inappropriate to get into a discussion of what happened at SCIA on any > list. However as moderator of the SCIA list, you did not allow me to post > an answer to help a parent who had a question. That's when you crossed the > line. So I posted it on the list. > > > > I still believe in SCIA's mission. Autism needs to be recognized for what > it is, a medical disease rather than psychiatric problem. But the issue was > that you wanted total control of the organization without any checks and > balances. You came up with bylaws and asked the board to sign off on them. > We would not approve bylaws that had one person in the position of > founder/executive director/chairman with veto power over virtually > everything. Your solution was to replace the entire board of directors > without notifying any of us. After months of hard work, you fired us. This > is an act of someone with neither ethics nor fortitude. To replace us with > family members is, quite frankly, a bit scary. > > > > No one individual is more important than the mission or the organization. > This organization isn't yours, it belongs to the kids we were trying to > help. I'm sure your wife and sister are great people. However, it is > diversity of ideas and coming to consensus that helps an organization > accomplish great things. A leader who is insecure needs everyone to agree > with him will not get this done. I thought we were friends and was so > excited about what we were trying to accomplish. I'm sorry things ended > this way, but I must caution others they may be wasting their time. If they > disagree with you, they too can be replaced. > > > > Marcia Hinds > > > > P.S. > > Did you really mean it when you say in your post that, " It doesn't matter > what medical protocol is used to treat autism, we all agree that our > children are medically ill " ? > > It does matter. There are desperate parents out there who unknowingly do > " medical " things that may hurt their children in hopes of helping them out > of this nightmare. > > > > > > > <stopcallingitautism/message/646;_ylc=X3oDMTJx > NmdpdjV0BF9TAzk3MzU5NzE1BGdycElkAzQ0MzQ3MTUyBGdycHNwSWQDMTcwNTA2MTYxNgRtc2dJ > ZAM2NDYEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI3Njg2MTYxMQ--> Re: Dan vs. > Nids > > > Posted by: " " > <mailto:jrodrig6605@...?Subject=%20Re%3A%20%5B%5D%20Dan%20vs%2E% > 20Nids> jrodrig6605@... <jrodrig6605> > jrodrig6605 > > > Fri Jun 18, 2010 3:39 am (PDT) > > > > > > Dear Marcia, > > You know we all love you for the great person you are, because all of you > have done to help so many people over the years. We love and we are so > proud of everything he has accomplished in his life, we all also wish him > the greatest success anybody could ever have. > > It is true that Kathy on, Bill Klimas and you are an exceptional > group of individuals, but we couldn't pull it together as a team. Bill and > Kathy just don't have the time needed to launch and make Stop Calling It > Autism! a successful organization. Kathy told me that she doesn't believe > that building a medical disease registry would not work after she said that > she want to joining SCIA. Bill Klimas told us multiple times that he would > quit every single time we didnt agree on something. You told me that we > should write down in the SCIA's rules that you could fire me from the > organization if things didnt go as planned. I am a newcomer representing the > new generation of parents affected by autism and I brought a great idea to > the table and I couldnt believe my ears when you said that to me. All I did > and I have all the records of it is to make things work and be a mediator to > make everybody happy. I worked endlessly for over a month and half trying to > make things work. Bill and Kathy even treated me mean and I have emails to > prove it. It really saddened me and brought a lot of stress in my life > thinking that this great idea that could help so many children and families > around the world would be ruined. > > I am just one person with a vision and a mission. I am a person that feels > constantly heartbroken when I see the dreams of so many families chattered. > I am one person that gets humbled and brings tears down my eyes when I see > so many people willing to help the cause, because they know this medical > epidemic which people call " Autism " and they believe in their hearts that > together we can change the world. My dream is that using studies like the > ones published by s Hopkins Medicine and by the Nobel Prize winner > Capecchi and building an Autism medical disease registry with 1000, 5000 or > even 10000 entries showing that children with " Autism " suffer from Immune > System Dysfunction will give all these children and their families an > undeniable voice. If we can build this medical disease registry who will be > able to deny that autism is a set of symptoms caused by a medical illness? > There are many people out there with loved ones affected by " Autism " that > can really help the cause. Politicians, attorneys, doctors, scientists, > people in the media, advertising, CEOs of large companies, etc... If all of > us contribute to build this medical disease registry we can together easily > get our entry pass to The White House. If we can build the medical disease > registry we can probably get the folks at s Hopkins and the Nobel Prize > Winner Capecchi to represent us when we go to the White House and meet > with The President. If we can build the medical disease registry the media > will fight over getting our story published. Just think about it and this is > a plan that can 100% be achieved in a short period of time. > > Nobel winner ties mental illness to immune defect > > By Nobel Prize-winning University of Utah geneticist Capecchi > > > <http://esciencenews.com/articles/2010/05/27/nobel.winner.ties.mental.illnes > s.immune.defect> > http://esciencenews.com/articles/2010/05/27/nobel.winner.ties.mental.illness > .immune.defect > > Brains Immune System Triggered in Autism > > By s Hopkins Medicine > > <http://www.hopkinsmedicine.org/Press_releases/2004/11_15a_04.html> > http://www.hopkinsmedicine.org/Press_releases/2004/11_15a_04.html > > I don't want to make any money out of this, I just want the satisfaction > that we our efforts we can change the world. I believe in the Stop Calling > It Autism!s mission 100% and I am committed to it and know there are many > people out there that are willing to dedicate their lives for this noble > cause. > > I have been reaching many other groups of people, DAN, etc... I have been > showing them how Autism is caused by an immune system dysfunction and we can > prove it by running blood tests. They are so excited about it because they > have never seen this side of autism before and how it explains it all. If we > talk about medical treatment protocols and we start comparing vs DAN vs > Amy Yasko vs homeopathy vs many treatments out there all its going to do is > cause controversy and it will continue dividing all of us. The Stop Calling > It Autism! nonprofit organization wants to create unity because we believe > unity will give us the strength we need to accomplish our goals. It doesn't > matter what medical protocol is used to treat autism, we all agree that our > children are medically ill. We have to use what we all agree on and build on > top of that. We all in this list knows that even though is great we > still don't have the right immune modulating agents to help all children get > better the same way. Stop Calling It Autism! wants to build a strong > foundation and create the sense of urgency that this medical epidemic > deserves. > > The new members of the board of directors are great in my opinion. Myself > you know who I am, my wife which is a great mother and wife and a woman that > I deeply admire. She also suffered together with me, we cried together, one > day I would have to give comfort and the next three days she would have to > give me comfort. We've been together since the moment our son was > born, we enjoyed all the precious moments like when he started smiling, > playing, talking and interacting like any other healthy child and when > suffered together when he regressed until becoming severely autistic. She > also has been there during the past three years while I spent endless hours > at night doing medical research to find out what happened to . She has > been very patient and has always been there to take care of me. She has been > there every day during 's recovery and she is still here and will be > for the rest of our lives now that looks almost like if never > suffered from autism. You have seen videos so you know what I am talking > about. My sister is a great human being, has an amazing heart, her feelings > are just in the right place. She is also a brilliant human being and she is > waaaaaay smarter than I am and she has a masters degree in business > administration which she finished with almost 4.0 GPA. And best of all we > work great as a team and our goal is to empower as many people out there to > believe they can make a positive difference in this world which is the most > honest truth I can give all of you. > > You are all welcome to help Stop Calling It Autism! help change the world > for so many great families around the globe. We are a team and as a team we > can end this medical epidemic. > > Regards, > > > > Founder and President of Stop Calling It Autism! > > s Story Stop Calling It Autism! > > <http://www.stopcallingitautism.net> http://www.stopcallingitautism.net > > <mailto:randy.191%40sympatico.ca> randy.191@...; > <mailto:%40> ; > <mailto:stopcallingitautism%40> > stopcallingitautism > From: <mailto:hindssite%40verizon.net> hindssite@... > Date: Thu, 17 Jun 2010 11:34:22 -0700 > Subject: Dan vs. Nids > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 I agree as well. The children and the mission are what's important. All the best, Robyn ________________________________ From: " pegcabrera@... " <pegcabrera@...> Sent: Fri, June 18, 2010 8:34:15 AM Subject: Re: SCIA issues  Well said Marcia! I agree 100%! Sent via BlackBerry by AT & T Dan vs. Nids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 My post was not allowed either too back we can't let others know they are only being told what wants. I feel sorry for his son Sally > > > > , > > > > It is inappropriate to get into a discussion of what happened at SCIA on any > > list. However as moderator of the SCIA list, you did not allow me to post > > an answer to help a parent who had a question. That's when you crossed the > > line. So I posted it on the list. > > > > > > > > I still believe in SCIA's mission. Autism needs to be recognized for what > > it is, a medical disease rather than psychiatric problem. But the issue was > > that you wanted total control of the organization without any checks and > > balances. You came up with bylaws and asked the board to sign off on them. > > We would not approve bylaws that had one person in the position of > > founder/executive director/chairman with veto power over virtually > > everything. Your solution was to replace the entire board of directors > > without notifying any of us. After months of hard work, you fired us. This > > is an act of someone with neither ethics nor fortitude. To replace us with > > family members is, quite frankly, a bit scary. > > > > > > > > No one individual is more important than the mission or the organization. > > This organization isn't yours, it belongs to the kids we were trying to > > help. I'm sure your wife and sister are great people. However, it is > > diversity of ideas and coming to consensus that helps an organization > > accomplish great things. A leader who is insecure needs everyone to agree > > with him will not get this done. I thought we were friends and was so > > excited about what we were trying to accomplish. I'm sorry things ended > > this way, but I must caution others they may be wasting their time. If they > > disagree with you, they too can be replaced. > > > > > > > > Marcia Hinds > > > > > > > > P.S. > > > > Did you really mean it when you say in your post that, " It doesn't matter > > what medical protocol is used to treat autism, we all agree that our > > children are medically ill " ? > > > > It does matter. There are desperate parents out there who unknowingly do > > " medical " things that may hurt their children in hopes of helping them out > > of this nightmare. > > > > > > > > > > > > > > <stopcallingitautism/message/646;_ylc=X3oDMTJx > > NmdpdjV0BF9TAzk3MzU5NzE1BGdycElkAzQ0MzQ3MTUyBGdycHNwSWQDMTcwNTA2MTYxNgRtc2dJ > > ZAM2NDYEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI3Njg2MTYxMQ--> Re: Dan vs. > > Nids > > > > > > Posted by: " " > > <mailto:jrodrig6605@?Subject=%20Re%3A%20%5B%5D%20Dan%20vs%2E% > > 20Nids> jrodrig6605@ <jrodrig6605> > > jrodrig6605 > > > > > > Fri Jun 18, 2010 3:39 am (PDT) > > > > > > > > > > > > Dear Marcia, > > > > You know we all love you for the great person you are, because all of you > > have done to help so many people over the years. We love and we are so > > proud of everything he has accomplished in his life, we all also wish him > > the greatest success anybody could ever have. > > > > It is true that Kathy on, Bill Klimas and you are an exceptional > > group of individuals, but we couldn't pull it together as a team. Bill and > > Kathy just don't have the time needed to launch and make Stop Calling It > > Autism! a successful organization. Kathy told me that she doesn't believe > > that building a medical disease registry would not work after she said that > > she want to joining SCIA. Bill Klimas told us multiple times that he would > > quit every single time we didnt agree on something. You told me that we > > should write down in the SCIA's rules that you could fire me from the > > organization if things didnt go as planned. I am a newcomer representing the > > new generation of parents affected by autism and I brought a great idea to > > the table and I couldnt believe my ears when you said that to me. All I did > > and I have all the records of it is to make things work and be a mediator to > > make everybody happy. I worked endlessly for over a month and half trying to > > make things work. Bill and Kathy even treated me mean and I have emails to > > prove it. It really saddened me and brought a lot of stress in my life > > thinking that this great idea that could help so many children and families > > around the world would be ruined. > > > > I am just one person with a vision and a mission. I am a person that feels > > constantly heartbroken when I see the dreams of so many families chattered. > > I am one person that gets humbled and brings tears down my eyes when I see > > so many people willing to help the cause, because they know this medical > > epidemic which people call " Autism " and they believe in their hearts that > > together we can change the world. My dream is that using studies like the > > ones published by s Hopkins Medicine and by the Nobel Prize winner > > Capecchi and building an Autism medical disease registry with 1000, 5000 or > > even 10000 entries showing that children with " Autism " suffer from Immune > > System Dysfunction will give all these children and their families an > > undeniable voice. If we can build this medical disease registry who will be > > able to deny that autism is a set of symptoms caused by a medical illness? > > There are many people out there with loved ones affected by " Autism " that > > can really help the cause. Politicians, attorneys, doctors, scientists, > > people in the media, advertising, CEOs of large companies, etc... If all of > > us contribute to build this medical disease registry we can together easily > > get our entry pass to The White House. If we can build the medical disease > > registry we can probably get the folks at s Hopkins and the Nobel Prize > > Winner Capecchi to represent us when we go to the White House and meet > > with The President. If we can build the medical disease registry the media > > will fight over getting our story published. Just think about it and this is > > a plan that can 100% be achieved in a short period of time. > > > > Nobel winner ties mental illness to immune defect > > > > By Nobel Prize-winning University of Utah geneticist Capecchi > > > > > > <http://esciencenews.com/articles/2010/05/27/nobel.winner.ties.mental.illnes > > s.immune.defect> > > http://esciencenews.com/articles/2010/05/27/nobel.winner.ties.mental.illness > > .immune.defect > > > > Brains Immune System Triggered in Autism > > > > By s Hopkins Medicine > > > > <http://www.hopkinsmedicine.org/Press_releases/2004/11_15a_04.html> > > http://www.hopkinsmedicine.org/Press_releases/2004/11_15a_04.html > > > > I don't want to make any money out of this, I just want the satisfaction > > that we our efforts we can change the world. I believe in the Stop Calling > > It Autism!s mission 100% and I am committed to it and know there are many > > people out there that are willing to dedicate their lives for this noble > > cause. > > > > I have been reaching many other groups of people, DAN, etc... I have been > > showing them how Autism is caused by an immune system dysfunction and we can > > prove it by running blood tests. They are so excited about it because they > > have never seen this side of autism before and how it explains it all. If we > > talk about medical treatment protocols and we start comparing vs DAN vs > > Amy Yasko vs homeopathy vs many treatments out there all its going to do is > > cause controversy and it will continue dividing all of us. The Stop Calling > > It Autism! nonprofit organization wants to create unity because we believe > > unity will give us the strength we need to accomplish our goals. It doesn't > > matter what medical protocol is used to treat autism, we all agree that our > > children are medically ill. We have to use what we all agree on and build on > > top of that. We all in this list knows that even though is great we > > still don't have the right immune modulating agents to help all children get > > better the same way. Stop Calling It Autism! wants to build a strong > > foundation and create the sense of urgency that this medical epidemic > > deserves. > > > > The new members of the board of directors are great in my opinion. Myself > > you know who I am, my wife which is a great mother and wife and a woman that > > I deeply admire. She also suffered together with me, we cried together, one > > day I would have to give comfort and the next three days she would have to > > give me comfort. We've been together since the moment our son was > > born, we enjoyed all the precious moments like when he started smiling, > > playing, talking and interacting like any other healthy child and when > > suffered together when he regressed until becoming severely autistic. She > > also has been there during the past three years while I spent endless hours > > at night doing medical research to find out what happened to . She has > > been very patient and has always been there to take care of me. She has been > > there every day during 's recovery and she is still here and will be > > for the rest of our lives now that looks almost like if never > > suffered from autism. You have seen videos so you know what I am talking > > about. My sister is a great human being, has an amazing heart, her feelings > > are just in the right place. She is also a brilliant human being and she is > > waaaaaay smarter than I am and she has a masters degree in business > > administration which she finished with almost 4.0 GPA. And best of all we > > work great as a team and our goal is to empower as many people out there to > > believe they can make a positive difference in this world which is the most > > honest truth I can give all of you. > > > > You are all welcome to help Stop Calling It Autism! help change the world > > for so many great families around the globe. We are a team and as a team we > > can end this medical epidemic. > > > > Regards, > > > > > > > > Founder and President of Stop Calling It Autism! > > > > s Story Stop Calling It Autism! > > > > <http://www.stopcallingitautism.net> http://www.stopcallingitautism.net > > > > <mailto:randy.191%40sympatico.ca> randy.191@; > > <mailto:%40> ; > > <mailto:stopcallingitautism%40> > > stopcallingitautism > > From: <mailto:hindssite%40verizon.net> hindssite@ > > Date: Thu, 17 Jun 2010 11:34:22 -0700 > > Subject: Dan vs. Nids > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 Sally, Thanks for letting me know Jen and I were the only ones censured on the Stop Calling it Autism List. I hope succeeds, he is just going about it the wrong way. Marcia Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.