Tenex

[Guest guest]

Leighanne,

My son took Tenex at one time. It made him so sleepy that we had to

discontinue it.

Liz

On Mar 8, 2006, at 3:11 PM, Leighanne Ratliff wrote:

> Hi everyone,

> I was just wondering if anyone else's child was on or had used Tenex

> before? I'm going to be getting 's perscription for this filled

> tomorrow and he'll start taking it tomorrow also. The Dev Ped said

> that it would reduce his impulse reactions and would calm him down a

> little so he's not running from me all the time and scaring me half to

> death. He'll be taking a 1/4 tablet 2 times a day and so we'll see how

> it goes.

>

> Leighanne

[Guest guest]

My 9 yo just started Tenex on February 17th--the day he was suspended.

He takes .5 mg each morning and night. He slept really well the

first week.

He said he doesn't feel angry all the time anymore. I don't know

how long term

this will be. I think the Zoloft is starting to kick in, too. He

started that Feb. 6th.

>

Jackie

[Guest guest]

Was Tenex the pill they used for acne, maybe 15 years ago?

Leighanne Ratliff <a_cute_tx_cowgirl@...> wrote: Hi everyone,

I was just wondering if anyone else's child was on or had used Tenex before?

I'm going to be getting 's perscription for this filled tomorrow and he'll

start taking it tomorrow also. The Dev Ped said that it would reduce his impulse

reactions and would calm him down a little so he's not running from me all the

time and scaring me half to death. He'll be taking a 1/4 tablet 2 times a day

and so we'll see how it goes.

Leighanne

---------------------------------

Use Photomail to share photos without annoying attachments.

[Guest guest]

Well it was either Tenex or Clonidine which basically does the same thing but

there are a few differences.

Leighanne

Liz Bohn <lbohn@...> wrote:

Leighanne,

My son took Tenex at one time. It made him so sleepy that we had to

discontinue it.

Liz

On Mar 8, 2006, at 3:11 PM, Leighanne Ratliff wrote:

> Hi everyone,

> I was just wondering if anyone else's child was on or had used Tenex

> before? I'm going to be getting 's perscription for this filled

> tomorrow and he'll start taking it tomorrow also. The Dev Ped said

> that it would reduce his impulse reactions and would calm him down a

> little so he's not running from me all the time and scaring me half to

> death. He'll be taking a 1/4 tablet 2 times a day and so we'll see how

> it goes.

>

> Leighanne

[Guest guest]

Tenex works great for impulsivity, just

make sure the school or you keep a blood pressure log on him since it is a

blood pressure medication.

-Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Leighanne Ratliff

Sent: Wednesday, March 08, 2006

6:12 PM

To:

children_with_autism

Subject: Tenex

Hi everyone,

I was just wondering if anyone else's child was on or had used Tenex

before? I'm going to be getting 's perscription for this filled tomorrow

and he'll start taking it tomorrow also. The Dev Ped said that it would reduce

his impulse reactions and would calm him down a little so he's not running from

me all the time and scaring me half to death. He'll be taking a 1/4 tablet 2

times a day and so we'll see how it goes.

Leighanne

Use

Photomail to share photos without annoying attachments.

[Guest guest]

Tenex works great for impulsivity, just

make sure the school or you keep a blood pressure log on him since it is a

blood pressure medication.

-Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Leighanne Ratliff

Sent: Wednesday, March 08, 2006

6:12 PM

To:

children_with_autism

Subject: Tenex

Hi everyone,

I was just wondering if anyone else's child was on or had used Tenex

before? I'm going to be getting 's perscription for this filled tomorrow

and he'll start taking it tomorrow also. The Dev Ped said that it would reduce

his impulse reactions and would calm him down a little so he's not running from

me all the time and scaring me half to death. He'll be taking a 1/4 tablet 2

times a day and so we'll see how it goes.

Leighanne

Use

Photomail to share photos without annoying attachments.

[Guest guest]

Leighanne,

My son has been on Tenex for a little over a year and a half now, and he has really made so much progress since taking it. Just be sure to check his blood pressure and keep a log to make sure it stays in the normal range. My son has had no health-related problems with it, and it really helped with his impulse control. Good luck!

BeckyI . . .

>> Hi everyone,> I was just wondering if anyone else's child was on or had used Tenex before? I'm going to be getting 's perscription for this filled tomorrow and he'll start taking it tomorrow also. The Dev Ped said that it would reduce his impulse reactions and would calm him down a little so he's not running from me all the time and scaring me half to death. He'll be taking a 1/4 tablet 2 times a day and so we'll see how it goes. > > Leighanne> > > ---------------------------------> > Use Photomail to share photos without annoying attachments.>

[Guest guest]

Leighanne,

My son has been taking Tenex for a little over a year and a half now,

and it has really helped with his impulse control issues. No

health-related concerns. Just keep checking the blood pressure. Good

luck!

>

> Hi everyone,

> I was just wondering if anyone else's child was on or had used Tenex

before? I'm going to be getting 's perscription for this filled

tomorrow and he'll start taking it tomorrow also. The Dev Ped said that

it would reduce his impulse reactions and would calm him down a little

so he's not running from me all the time and scaring me half to death.

He'll be taking a 1/4 tablet 2 times a day and so we'll see how it goes.

>

> Leighanne

>

>

> ---------------------------------

>

> Use Photomail to share photos without annoying attachments.

>

[Guest guest]

What's considered "normal" range on a child's BP. I know that an adult anything over 80 for the bottom number is considered borderline hypertensive. Is this true for children as well. Should I make sure it stays below 80? Leighannesurreal43life <surreal43life@...> wrote: Leighanne, My son has been on Tenex for a little over a year and a half now, and he has really made so much progress since taking it. Just be sure to check his blood pressure and keep a log to make sure it stays in the normal range. My son has had no health-related problems with it, and it really helped with his impulse control. Good luck! BeckyI . . . >> Hi everyone,> I was just wondering if anyone else's child was on or had used Tenex before? I'm going to be getting 's perscription for this filled tomorrow and he'll start taking it tomorrow also. The Dev Ped said that it would reduce his impulse reactions and would calm him down a little so he's not running from me all the time and scaring me half to death. He'll be taking a 1/4 tablet 2 times a day and so we'll see how it goes. > > Leighanne> > > ---------------------------------> > Use Photomail to share photos without annoying attachments.>

Brings words and photos together (easily) with PhotoMail - it's free and works with .

[Guest guest]

>>What's considered " normal " range on a child's BP. I know that an adult

>>anything over 80 for the bottom number is considered borderline

>>hypertensive. Is this true for children as well. Should I make sure it

>>stays below 80?<<

Normal average BP for adults is 120/80. It is less for children.

in England

[Guest guest]

We started Tenex on my son. We started with 1/8 th tab twice per day then

increased to 1/4 tab per Dr G. is much more irritable. He seems fine

until we want him to do something. I want to know if this passes?

[Guest guest]

Did you get the white or pink tabs? If your son is really sensitive, maybe

the red dye is the problem? Also, my son gets 1/2 tab in the am and 1/4 in

the pm.maybe your son needs less than 1/4 twice/day?

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of

Googahly@...

Sent: Monday, March 22, 2010 7:47 AM

Subject: Re: Tenex

My son had to stop Tenex because of the irritability. He was on it for

more than a year.

Gaylen

In a message dated 3/22/2010 12:41:12 A.M. Central Daylight Time,

neidhardtashley@... <mailto:neidhardtashley%40> writes:

We started Tenex on my son. We started with 1/8 th tab twice per day then

increased to 1/4 tab per Dr G. is much more irritable. He seems fine

until we want him to do something. I want to know if this passes?

[Guest guest]

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

 

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

I love Tenex for Noah. It really helps with hyperactivity and is very calming.

We recently switched to Intuniv, which is basically the extended release version

developed for kids with ADHD. It worked even better.

All the best,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

 

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

 

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

Does anyone know how to get Tenex in Canada? I have heard a doctor can do a

special request (?) or something like that....Our son cannot take meth drugs

because of the underlying tics (PANDAS/PITANDS), can’t do Strattera as it

makes him angry, clonidine makes him too dozey...I think Tenex might help but I

am not aware of how to get it here in Canada. Our dr would help but I am not

sure of the process to get it here. Any help would be appreciated.

From: [mailto: ] On Behalf Of Robyn &

Greg Coggins

Sent: December-20-10 8:01 PM

Subject: Re: Re: Tenex

I love Tenex for Noah. It really helps with hyperactivity and is very calming.

We recently switched to Intuniv, which is basically the extended release version

developed for kids with ADHD. It worked even better.

All the best,

Robyn

From: Horalia Holmes <horaliaholmes@... <mailto:horaliaholmes%40ymail.com>

>

Subject: Re: Tenex

<mailto:%40>

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...

<mailto:nicolewallaceouaf%40> >

<mailto:%40>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

Robyn,

What is the hyperactivity due to that Tenex/Intuniv works- is it sensory seeking

behavior?

Thanks,

Kay

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Mon, December 20, 2010 4:01:03 PM

Subject: Re: Re: Tenex

I love Tenex for Noah. It really helps with hyperactivity and is very calming.

We recently switched to Intuniv, which is basically the extended release version

developed for kids with ADHD. It worked even better.

All the best,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

I notice a calmer, more focused child. The issue with regular Tenex is he seemed

to metabolize the morning dose quite fast. It wouldn't last through the school

day. Intuniv gives us a calmer, more focused child throughout the day. I also

don't hear him in his room late at night, which I used to before Intuniv. He

still has moments of self stim behavior, but there more in direct response to

stimuli, mostly electronic, such as a video. Other than that, it's mostly gone.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

Thanks Robyn!

We have some sensory seeking (mostly pressure seeking) behavior that seems to be

less with Tenex although not totally gone. I will ask the doctor about Intuniv.

I understand it may reduce sensory behavior as it dilates the blood vessels

hence increasing the blood flow in the brain stem. Do you know if Intuniv works

in a similar way?

Thanks,

Kay

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Mon, December 20, 2010 8:26:44 PM

Subject: Re: Re: Tenex

I notice a calmer, more focused child. The issue with regular Tenex is he seemed

to metabolize the morning dose quite fast. It wouldn't last through the school

day. Intuniv gives us a calmer, more focused child throughout the day. I also

don't hear him in his room late at night, which I used to before Intuniv. He

still has moments of self stim behavior, but there more in direct response to

stimuli, mostly electronic, such as a video. Other than that, it's mostly gone.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

My understanding is that Intuniv is a extended release version of Tenex

(guanfacine). Guanficine is the main ingredient.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

My husband said that they use tenex for patients with high blood pressure as

well and so that was his concern if we gave that medicine to our daughter. He

also worry about the heart rate.

he is an ICU nurse  supervisor and so he has a different opinion and he see

trauma everyday.

I know some kids that are taking tenex and they are doing fine.

Horalia-

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Mon, December 20, 2010 11:41:17 PM

Subject: Re: Re: Tenex

 

My understanding is that Intuniv is a extended release version of Tenex

(guanfacine). Guanficine is the main ingredient.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

That is definitely a valid concern. I brought that up with the first doc who

prescribed it. He reassured me that it was safe and has been used quite

extensively (he did address BP but I don't remember what he said). It is usually

given in very low doses. Before the switch to Intuniv, Noah was getting 1/2 of a

1mg tablet, twice per day.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

Hi ,

We are in Canada and have used Tenex for the past 4 years or so. It is not

available in Canada so we cross the closest border and pick it up at a

Walgreens that Dr. G`s office faxes into for us. It is not an expensive

drug at all and at a dose of one quarter of a tablet in the am and one

eighth of a tablet just before dinner, it only costs us, I believe in the

range of about $30 for 3 months. I am sure you could get a US pharmacy to

ship it to you, however you do need a US doc to write the prescription.

I however need to caution you that this is all part of Dr. G`s protocol and

not something that you should be piece mealing together or adding in with

other medications or supplements without following the protocol. Dr. G

monitors each childs health so closely and carefully that it really is not

right to take little pieces of what has worked from the whole of what other

parents have used to help their kids. This s a whole big picture and not

medication by symptom.`

I feel obligated to cautiously write this as the whole underlying immune

system correction, that is at the heart of the philosophy of Dr.

Goldberg is very complicated and not something that a parent advocate could

reproduce for themselves without the expertise of either Dr. Goldberg, Dr.

or Kathy on who have all been at this clinically for some

time now.

In order to be successful parents need to either commit to the philosophies

and success of Dr. Goldberg completely or not do the protocol. A bit of this

and a piece of that will NOT work and will not assist the child`s immune

system to heal their body and brain. Then folks think that the protocol

doesn`t work because they have not followed his diet accurately, or given

all the medications that he recommends, or done the therapies that he also

suggests. It is a whole complex package and each part is as important as

the other.

Lori

_____

From: [mailto: ] On Behalf Of

and Freeman

Sent: December-20-10 8:54 PM

Subject: RE: Re: Tenex

Does anyone know how to get Tenex in Canada? I have heard a doctor can do a

special request (?) or something like that....Our son cannot take meth drugs

because of the underlying tics (PANDAS/PITANDS), can't do Strattera as it

makes him angry, clonidine makes him too dozey...I think Tenex might help

but I am not aware of how to get it here in Canada. Our dr would help but I

am not sure of the process to get it here. Any help would be appreciated.

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Robyn & Greg Coggins

Sent: December-20-10 8:01 PM

<mailto:%40>

Subject: Re: Re: Tenex

I love Tenex for Noah. It really helps with hyperactivity and is very

calming. We recently switched to Intuniv, which is basically the extended

release version developed for kids with ADHD. It worked even better.

All the best,

Robyn

--- On Mon, 12/20/10, Horalia Holmes <horaliaholmes@...

<mailto:horaliaholmes%40ymail.com> <mailto:horaliaholmes%40ymail.com> >

wrote:

From: Horalia Holmes <horaliaholmes@...

<mailto:horaliaholmes%40ymail.com> <mailto:horaliaholmes%40ymail.com> >

Subject: Re: Tenex

<mailto:%40>

<mailto:%40>

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not

given

to her yet.

________________________________

From: W <nicolewallaceouaf@...

<mailto:nicolewallaceouaf%40>

<mailto:nicolewallaceouaf%40> >

<mailto:%40>

<mailto:%40>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only

protocol

I know of that uses it. Some people have great results with NeuroSensory

center,

others don't.

--- In <mailto:%40>

<mailto:%40> , " rhondamasengale " <rhondamasengale@...>

wrote:

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA

viruses? I

>was thinking it might help with the measles virus. My son regressed after

his

>MMR.

>

[Guest guest]

Thank you, Lori. When I received 's CamKinase score (PANDAS), I was

told to treat him here. This came from the NNY Autism Clinic. We were set to

leave to see Dr. that coming week. We lost a lot of money in airline

tickets, rooms booked, etc. In a way, I wish we did not have the PANDAS

score and possibly we would have seen Dr. and have more information

to go on. That is not the way it turned out and we paid the monetary price

for it. Here in NS he saw a research immunologist who did not believe he had

PANDAS/PITANDS or any other serious infection even though he is chronically

neutropenic. He has had a positive IGeneX for Lyme which was not taken

seriously here in NS either. Our family doctor does believe he has PITANDs

and is currently treating with Azithromycin. We are set to check

co-infections this week (Bartonella, Rocky Mountain Spotted Fever,

Ehrlichiosis - already tested neg for Babesia). We have been through hell -

as all of you have. Sometimes circumstances don't allow you to get to a

certain doctor but that doesn't mean that you can't continue to try to help

your child using any means you have. Our son has comes leaps and bounds

since antibiotic treatment. Hopefully we will be able to help him even

further mostly be talking to others (other parents, doctors and other

groups) to find out how best to help our son. BTW: We have consulted with

Dr. Bouboulis in CT ($500/ .5 hr), Dr. Miranda in CA ($500/hr), and many

others along the way. Some have given us great advice (Dr. B told us to test

for Mycoplasm pneumonia which had!) and others not so great...

From: [mailto: ] On Behalf Of Lori

Sent: December-21-10 4:21 PM

Subject: Re: Tenex

Hi ,

We are in Canada and have used Tenex for the past 4 years or so. It is not

available in Canada so we cross the closest border and pick it up at a

Walgreens that Dr. G`s office faxes into for us. It is not an expensive

drug at all and at a dose of one quarter of a tablet in the am and one

eighth of a tablet just before dinner, it only costs us, I believe in the

range of about $30 for 3 months. I am sure you could get a US pharmacy to

ship it to you, however you do need a US doc to write the prescription.

I however need to caution you that this is all part of Dr. G`s protocol and

not something that you should be piece mealing together or adding in with

other medications or supplements without following the protocol. Dr. G

monitors each childs health so closely and carefully that it really is not

right to take little pieces of what has worked from the whole of what other

parents have used to help their kids. This s a whole big picture and not

medication by symptom.`

I feel obligated to cautiously write this as the whole underlying immune

system correction, that is at the heart of the philosophy of Dr.

Goldberg is very complicated and not something that a parent advocate could

reproduce for themselves without the expertise of either Dr. Goldberg, Dr.

or Kathy on who have all been at this clinically for some

time now.

In order to be successful parents need to either commit to the philosophies

and success of Dr. Goldberg completely or not do the protocol. A bit of this

and a piece of that will NOT work and will not assist the child`s immune

system to heal their body and brain. Then folks think that the protocol

doesn`t work because they have not followed his diet accurately, or given

all the medications that he recommends, or done the therapies that he also

suggests. It is a whole complex package and each part is as important as

the other.

Lori

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

and Freeman

Sent: December-20-10 8:54 PM

<mailto:%40>

Subject: RE: Re: Tenex

Does anyone know how to get Tenex in Canada? I have heard a doctor can do a

special request (?) or something like that....Our son cannot take meth drugs

because of the underlying tics (PANDAS/PITANDS), can't do Strattera as it

makes him angry, clonidine makes him too dozey...I think Tenex might help

but I am not aware of how to get it here in Canada. Our dr would help but I

am not sure of the process to get it here. Any help would be appreciated.

From: <mailto:%40>

<mailto:%40>

[mailto: <mailto:%40>

<mailto:%40> ] On Behalf Of

Robyn & Greg Coggins

Sent: December-20-10 8:01 PM

<mailto:%40>

<mailto:%40>

Subject: Re: Re: Tenex

I love Tenex for Noah. It really helps with hyperactivity and is very

calming. We recently switched to Intuniv, which is basically the extended

release version developed for kids with ADHD. It worked even better.

All the best,

Robyn

--- On Mon, 12/20/10, Horalia Holmes <horaliaholmes@...

<mailto:horaliaholmes%40ymail.com>

<mailto:horaliaholmes%40ymail.com> <mailto:horaliaholmes%40ymail.com> >

wrote:

From: Horalia Holmes <horaliaholmes@...

<mailto:horaliaholmes%40ymail.com>

<mailto:horaliaholmes%40ymail.com> <mailto:horaliaholmes%40ymail.com> >

Subject: Re: Tenex

<mailto:%40>

<mailto:%40>

<mailto:%40>

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not

given

to her yet.

________________________________

From: W <nicolewallaceouaf@...

<mailto:nicolewallaceouaf%40>

<mailto:nicolewallaceouaf%40>

<mailto:nicolewallaceouaf%40> >

<mailto:%40>

<mailto:%40>

<mailto:%40>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only

protocol

I know of that uses it. Some people have great results with NeuroSensory

center,

others don't.

--- In <mailto:%40>

<mailto:%40>

<mailto:%40> , " rhondamasengale " <rhondamasengale@...>

wrote:

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA

viruses? I

>was thinking it might help with the measles virus. My son regressed after

his

>MMR.

>

[Guest guest]

Hi,

My son is 6 years old and Dr g asked us to start tenex recently ,when we started

his dosage was 1/8 of a tab twice a day and after some time he incresed the

dosage to 1/4 of tab twice a day then we saw some negatives like hurting and he

is tired sleeping in the afternoon etc so now back to1/4 in morning and 1/8

before bed , All together he is not very hyper still he cant focus for long or

do any activity more than 10 mins.

Before Dr G we were seeing a dan then he was taking lots of supplements and b12

now it's all most 8 months we r seeing Dr G and we stopped all his earlier

medication and started nids diet and valtrex,celexa,tenex,nizoral.it was very

scary for us to stop all his other medications because we were not sure he will

sleep with out his b12 anyway that wasnt a problem he stated sleeping more time

after stopping other medication even after starting valtrex and other stuff.

When i think back that's the only good thing we saw after starting nids that he

is getting a good 9 t0 10 hours sleep every day.

I dont see any huge gains he had some words before nids that is improving

slowly . Earlier he was on gfcf now acco to nids diet he can have some white

bread and i can give goat milk,yogurt,cheese etc.. is anyone of you feeding your

kids goat milk ? reason iam asking is Dr G still complaints that his allergy

levels are up it was 9% now it's 7% he is not happy now ia mnot sure may be

this goat milk and white bread causing this ? Acco to nids diet Dr g wants me

me limit rice even if it's white processed can anyone tell me what are the

safest snacks as per nids diet we can give to kids ?

Thanks

Anitha

From: rngcoggs@...

Date: Tue, 21 Dec 2010 08:04:11 -0800

Subject: Re: Re: Tenex

That is definitely a valid concern. I brought that up with the first doc who

prescribed it. He reassured me that it was safe and has been used quite

extensively (he did address BP but I don't remember what he said). It is usually

given in very low doses. Before the switch to Intuniv, Noah was getting 1/2 of a

1mg tablet, twice per day.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>

[Guest guest]

Goat milk appears not to work for us - hyper & some changes in BM. We are

staying away from Goat milk & also processed wheat.

Re: snacks: Potato snack are an options instead of rice based. Veggie straws

(like chips)/french fries is an option. There is a lentil chips (Crunchy curls)

that is available in Trader Joes that can make a good snack.

Good luck.

Kay

From: Shyam Nair <shyam_k_nair@...>

nids

Sent: Thu, December 23, 2010 6:19:04 AM

Subject: RE: Re: Tenex

Hi,

My son is 6 years old and Dr g asked us to start tenex recently ,when we started

his dosage was 1/8 of a tab twice a day and after some time he incresed the

dosage to 1/4 of tab twice a day then we saw some negatives like hurting and he

is tired sleeping in the afternoon etc so now back to1/4 in morning and 1/8

before bed , All together he is not very hyper still he cant focus for long or

do any activity more than 10 mins.

Before Dr G we were seeing a dan then he was taking lots of supplements and b12

now it's all most 8 months we r seeing Dr G and we stopped all his earlier

medication and started nids diet and valtrex,celexa,tenex,nizoral.it was very

scary for us to stop all his other medications because we were not sure he will

sleep with out his b12 anyway that wasnt a problem he stated sleeping more time

after stopping other medication even after starting valtrex and other stuff.

When i think back that's the only good thing we saw after starting nids that he

is getting a good 9 t0 10 hours sleep every day.

I dont see any huge gains he had some words before nids that is improving

slowly . Earlier he was on gfcf now acco to nids diet he can have some white

bread and i can give goat milk,yogurt,cheese etc.. is anyone of you feeding your

kids goat milk ? reason iam asking is Dr G still complaints that his allergy

levels are up it was 9% now it's 7% he is not happy now ia mnot sure may be

this goat milk and white bread causing this ? Acco to nids diet Dr g wants me

me limit rice even if it's white processed can anyone tell me what are the

safest snacks as per nids diet we can give to kids ?

Thanks

Anitha

From: rngcoggs@...

Date: Tue, 21 Dec 2010 08:04:11 -0800

Subject: Re: Re: Tenex

That is definitely a valid concern. I brought that up with the first doc who

prescribed it. He reassured me that it was safe and has been used quite

extensively (he did address BP but I don't remember what he said). It is usually

given in very low doses. Before the switch to Intuniv, Noah was getting 1/2 of a

1mg tablet, twice per day.

HTH,

Robyn

From: Horalia Holmes <horaliaholmes@...>

Subject: Re: Tenex

Date: Monday, December 20, 2010, 8:44 AM

What do you think about Tenex?

Doctor Rao thinks that it might help her being more calm, but I have not given

to her yet.

________________________________

From: W <nicolewallaceouaf@...>

Sent: Mon, December 20, 2010 7:56:01 AM

Subject: Re: Do nids docs use Amantadine?

doesn't use amantadine but NeuroSensory Center does. Its the only protocol

I know of that uses it. Some people have great results with NeuroSensory center,

others don't.

>

> I was wondering if anyone has had their kiddos on Amantadine for RNA viruses?

I

>

>

>

>

>was thinking it might help with the measles virus. My son regressed after his

>MMR.

>