Strattera

March 17, 2003

> I am looking to put my son onto this med - he is ten and we just

> found out that he may have Aspergers. All this time we thought he

> was only ADHD, and no one could figure out why he acted sooo

weird.

> It was really frusterating. We live in a smaller town, and the

> schools do not have Emotionally impaired classrooms (where he does

> the best) He is in what they call - Alternative Ed - where all of

> the different and bad kids go - it makes me very upset and I am

> hoping that once we get a proper diagnosis -= I can get something

> out of this stinking school. It makes sooo much sense - now that

we

> have heard the descriptions of children with Aspergers. He is very

> antisocial when it comes to other children and I feel sooo bad - he

> wants to participate in things but he feels like a third wheel. I

> can see it - he had a pinewood derby with the Cub scouts and when

> his group went to set in the middle of the gym to watch their race,

> he just stood there looking like he didn't know what to do or where

> to sit. I wanted soo to help but I cannot rescue him from all of

> these situaions - he will have to learn on his own. I was sooo

> worried because I helped him build his car and it was my first

one.

> I was afraid that it would not race well and that he would feel bad

> and left out. Thank GOD!!!! It ran real well - he didn't get a

> trophy but out of 6 races he had 3 first place and 2 second place.

> I was so relieved.

>

> April

April,

Congratulations on the Pinewood Derby. We have a few of those cars

around from our cubscout years. I hope you get more support from the

school now that you have a diagnosis.

Kathy

March 18, 2003

In a message dated 3/16/03 10:38:07 PM Eastern Standard Time,

aprilochoa@... writes:

> We live in a smaller town, and the

> schools do not have Emotionally impaired classrooms (where he does

> the best) He is in what they call - Alternative Ed - where all of

> the different and bad kids go - it makes me very upset and I am

> hoping that once we get a proper diagnosis -= I can get something

> out of this stinking school.

Here is a good article on this subject --> <A

HREF= " http://www.aspennj.org/klin.html " >Asperger Syndrome " Perfect

Misplacement " : Ami Klin, Ph.D. and Fred R. Volkmar, M.D.</A>

Roxanna ô¿ô

Autism Happens...

April 3, 2003

SafetyAlerts

April 2, 2003

Eli Lilly and Company Has Recalled Strattera Capsules

(SafetyAlerts) - The Food and Drug Administration (FDA) has released

the following information.

PRODUCT

Strattera Capsules (atomoxetine HC1) 40mg, 24 count bottle, Rx only,

Adult Sample Pack. Recall # D-188-3.

CODE

6AE95B.

RECALLING FIRM/MANUFACTURER

Eli Lilly and Company, Indianapolis, IN, by fax on January 10, 2003.

Firm initiated recall is ongoing.

REASON

Misbranded; bottle label is incorrectly printed as " First use

blister " .

VOLUME OF PRODUCT IN COMMERCE

89,360 bottles.

DISTRIBUTION

Nationwide.

--- In , " syklone5 " <syklone5@j...>

wrote:

> My son has been undergoing chelation for 2 1/2 years, dumping

massive

> amounts of mercury along the way. This, and a small doasge of

> tenex/clonidine have been our best interventions, along with CLO.

> Recently (a week ago) began Strattera, and once we reduced the dose

> to 9 mg a day (more caused high anxiety), we have begun to see a

net

> gain. Receptive improving, verbal approximations increasing, aba

> scores up 20-30%. Is anyone else using this med (sorry--it is Eli

> Lilly's!) and what have you seen over time? Thanks! ,

Wesley's

> mom

May 1, 2003

In a message dated 5/1/03 9:08:28 AM Central Daylight Time,

writes:

> hello all,

> has anyone heard of or used the new drug straterra? supposedly used for

> adhd

> but its a nonstimulant.???????? if so please let me know.....

>

> thanks leah

>

Heard of it Leah. Mixed reviews from the people I know that have tried it.

Karyn

June 3, 2003

In a message dated 6/2/03 4:47:10 PM Pacific Daylight Time,

writes:

> A friend of mine just put her son on Strattera this weekend. She hasn't

> seen any change but no side effects either. I'll keep you informed if you'd

> like. He has a dx of adhd, ocd, and Aspergers

Thanks, I'd appreciate it. The doc had told me it could take 2-3 wks. to see

any change for the better, if it works. Major side effect for is loss

of appetite....big time.

June 3, 2003

In a message dated 6/3/2003 8:10:12 AM Eastern Daylight Time, Ltb3105@...

writes:

> Thanks, I'd appreciate it. The doc had told me it could take 2-3 wks. to

> see

> any change for the better, if it works. Major side effect for is loss

> of appetite....big time.

Hi ,

I also have a friend that recently put her son on this drug. He had

previously been on Tenex and she saw a difference in a few days. The child came

home

from school and was able to tell her that he had a wonderful day and was

actually able to do his art. He hasn't experienced any side effects yet.

Charlyne

Mom to Zeb 10 DS/OCD ?

June 3, 2003

In a message dated 6/3/03 12:02:17 PM Pacific Daylight Time,

writes:

> I also have a friend that recently put her son on this drug. He had

> previously been on Tenex and she saw a difference in a few days. The child

> came home

> from school and was able to tell her that he had a wonderful day and was

> actually able to do his art.

Maybe it works better for the AD part, not the HD!!!

June 3, 2003

In a message dated 6/3/03 12:02:17 PM Pacific Daylight Time,

writes:

> I would start of on the well known med which people with the

> autim, parents have experienced, etc. whom I have heard of and many

> medical professional which have found the actual Risperdal drug a

> life saver. The other 2 drugs which I have heard of where the Buspar

> and Clonidine along with the first med. One drug at a time, ok?

Irma, I know what you mean! But the Risperdal had to be stopped as

started having facial tics and involuntary movements!!! This is why Dr. Capone

is

suggesting these other things.

They told me to call ish Rite Hosp. in Dallas.........'s psych will

NOT treat him any more!

June 3, 2003

In a message dated 6/3/03 12:02:17 PM Pacific Daylight Time,

writes:

> Apparently the drug has to build up in the system for at least 48 hours.

> After 8 days they will up the dose.

was on 25 mg starter dose for 4 days, then 40 mg, which made him more

hyper! We went back down to 25 mg and haven't seen anything.

June 3, 2003

Apparently the drug has to build up in the system for at least 48 hours. After 8

days they will up the dose. They started really really low because of past

sensitivies to other drugs.

Diane

>

> From: Ltb3105@...

> Date: 2003/06/03 Tue AM 08:08:50 EDT

>

> Subject: Re: Strattera

>

> Thanks, I'd appreciate it. The doc had told me it could take 2-3 wks. to see

any change for the better, if it works. Major side effect for is loss

of appetite....big time.>>

June 3, 2003

In a message dated 6/3/2003 3:17:26 PM Eastern Daylight Time, Ltb3105@...

writes:

> Maybe it works better for the AD part, not the HD!!!

Hi ,

This child certainly has the HD part. Like anything it may work great for one

child but not another. I hope you find that perfect combo soon.

Charlyne

Mom to Zeb 10 DS/OCD ?

June 14, 2003

In a message dated 6/13/03 5:41:40 AM Pacific Daylight Time,

writes:

> Now that school is

> out, we are trying Straterra for Ben and discontinuing his focalin.

> (Focalin is a sort of " pure " form of ritalin.)

MB,

Please let me know what you think of Strattera......give it about 2-3 wks.

before you draw any conclusions. was on 25 mg. for 4 days, then tried

40mg, was too much so we cut back down to 25 mg. along with 0.1 mg. Clonidine.

I am anxious to hear of any kid that's on this new med.

Thanks,

June 17, 2003

What is strattera?

----- Original Message -----

Hi all,

Wondering if any of you out there are trying strattera for your

adhd/apraxia kids? Need to try something different for our grandson--

Thanks,

Hankins

hankinshome@...

June 17, 2003

yes,Lindsey takes it. She is much calmer.

Jennie

June 18, 2003

Dear Kim, thanks for that link to the stattera forum, it gave me just the

info I was looking for.

regards, n

June 18, 2003

: I hope this helps. I have a daughter with adhd, in

addition to my apraxic son. I have signed onto the children-with-

adhd@.com....another group for the discussion of adhd

alone.

I recently got an update from that group that listed all of the mom's

opinions about strattera, such as dosing, trials, side effects,

literally thousands of " posts " about Strattera. I know that I am

calling my neuro-ped about getting strattera for my daughter. Here

is that link, again, I hope it helps. If not, you may want to try

looking into the group I mentioned above.

http://www.adhd.com/ubb/Forum1/HTML/002053.html

Finally, I know many parents who also use Pro-EFA's for adhd kids in

addition to their apraxic kids. In fact, Dr. Stordy talks about

EFA's for ADHD/Dyslexia/Dyspraxia. Unfortunately, I have not been

very consistent with my daughter and using EFA's, probably because I

was SO concerned about my son. Many parents do not use medication

when treating their adhd kids, again, they use a combination of

EFA's. I am not saying that you should not use meds....I am! Just

another route to explore.

Good luck! Kim in Illinois

> Hi all,

>

> Wondering if any of you out there are trying strattera for your

> adhd/apraxia kids? Need to try something different for our grandson-

-

>

> Thanks,

>

> Hankins

> hankinshome@o...

June 18, 2003

Strattera... Is it only for the tx of ADHD or does also help with

Apraxia/Dyspraxia?

June 19, 2003

To the best of my knowledge, it is used for ADD/ADHD only. It is the

first non-stimulant drug for this, as opposed to all of the ritalin.

Kim

> Strattera... Is it only for the tx of ADHD or does also help with

> Apraxia/Dyspraxia?

July 22, 2003

--- I tried Strattera for my son...put it off for a long time because

he had not been on any meds since he had a reaction to Dexadrine that

put him in the emergency room in 1998, finally tried it for about 3-4

weeks. I also did not like the effect it had on my

son...irritability, attention span, attention getting, anger, etc.

My son doesn't atlk, so I guess it would be hard for him to be rude,

mean, etc. but I did see anger.

I guess we are again reminded that Autism is not caused by a

shortage of some drug.

Lindy

______________________________________________________________________

In , pjand3kids <pjand3kids@j...> wrote:

>

> I had a lot of mail from some people on the list who wanted updates

on how Strattera was affecting my son. Initially, I had high hopes

for this medication. It appeared to help my son's impulsiveness and

his attention. However, around the 6th week I began to see a decline

in those areas. I began to see nastiness, irritability, rudeness,

meanness, etc... My son is generally quite cooperative for me, but

not for others. However, this is beyond compare! He even started

being nasty to me. Needless to say, I am stopping the Stattera, and

never considering meds again... You would think I would have learned

my lesson by now. This stuff made the Clonidine trip look like a

piece of cake.

>

> a

July 23, 2003

Well, I think it can be a shortage of something, for some, but not a once size

fits all protocol. My son use to have horrible anxiety and OCD, and we tried

Celexa. He has remained on a very low dose since January 2001. It definitely

helped improve both of those problems. However, the ADHD like symptoms have not

improved on anything.

The Strattera definitely caused more aggressive behavior and an overall bad,

unpredictable temper. I also saw a lot of up and down mood swings, excessive

sleepiness, insomnia, and a poor appetite.

a

--- " readjoshua19 " <readjoshua19@...> wrote:

--- I tried Strattera for my son...put it off for a long time because

he had not been on any meds since he had a reaction to Dexadrine that

put him in the emergency room in 1998, finally tried it for about 3-4

weeks. I also did not like the effect it had on my

son...irritability, attention span, attention getting, anger, etc.

My son doesn't atlk, so I guess it would be hard for him to be rude,

mean, etc. but I did see anger.

I guess we are again reminded that Autism is not caused by a

shortage of some drug.

July 26, 2003

My son has Asperger's Ritalan and Concerta has helped with his attention

span. When Ritalan wears off he becomes himself agan. Concerta lasts a little

longer than Ritalan for him.

September 21, 2003

Thank you so much for your reply..... Our Pediatrician told us that the

Strattera would make him sleepy - and so to give it to him at night. Well,

it had the opposite effect for us....

Main issues are the focus and distractibility -- hyperness as well

though.... Guess I should have tried giving it to him in the

morning.......

Maybe I'll try it again -- during a period of time he is not in school

though! That way we can get the 'kinks' worked out....

Adderall XR works great for our son - but he is on the skinny side and the

effects for us are stomach problems and decreased appetite..... I was

hoping the strattera would help with that -- but in our case, it didn't ---

or I didnt' give it enough time to........

With the strattera do you have to do continual dosing? Like with the

adderall -- we skip summers, breaks, and weekends. He really only needs it

for school.

-----Original

September 21, 2003

Thank you so much for your reply..... Our Pediatrician told us that the

Strattera would make him sleepy - and so to give it to him at night. Well,

it had the opposite effect for us....

Main issues are the focus and distractibility -- hyperness as well

though.... Guess I should have tried giving it to him in the

morning.......

Maybe I'll try it again -- during a period of time he is not in school

though! That way we can get the 'kinks' worked out....

Adderall XR works great for our son - but he is on the skinny side and the

effects for us are stomach problems and decreased appetite..... I was

hoping the strattera would help with that -- but in our case, it didn't ---

or I didnt' give it enough time to........

With the strattera do you have to do continual dosing? Like with the

adderall -- we skip summers, breaks, and weekends. He really only needs it

for school.

-----Original

September 22, 2003

It would probably take at least 2 weeks on being on the therapeutic

level dose to see if it's going to work. The best results we have seen

in our office (probably 30-40 kids so far) have been in the kids who

could not take stimulants either because they did not work or they had

very negative side effects. We tried my son on Strattera during the

summer so I could really monitor any positive or negative effects and

so we would have him ready for school. Strattera actually has more

risk of stomach upset than the stimulants and must be taken with food,

at least in the first several weeks and we saw a decrease in appetite

with it at therapeutic levels-the drug rep says that usually goes away

after the first couple of months. They do not recommend skipping short

breaks like weekends, but you can skip the summer as long as you

remember is may take a few weeks to get back to where you were. It is

more like Prozac or other drugs were blood levels need to be maintained

better vs stimulants that are in and out of your system in a few hours.

On Sunday, September 21, 2003, at 10:01 PM, Todd Guppy wrote:

> Thank you so much for your reply..... Our Pediatrician told us that

> the

> Strattera would make him sleepy - and so to give it to him at night.

> Well,

> it had the opposite effect for us....

> Main issues are the focus and distractibility -- hyperness as well

> though.... Guess I should have tried giving it to him in the

> morning.......

>

> Maybe I'll try it again -- during a period of time he is not in school

> though! That way we can get the 'kinks' worked out....

>

> Adderall XR works great for our son - but he is on the skinny side and

> the

> effects for us are stomach problems and decreased appetite..... I was

> hoping the strattera would help with that -- but in our case, it

> didn't ---

> or I didnt' give it enough time to........

>

> With the strattera do you have to do continual dosing? Like with the

> adderall -- we skip summers, breaks, and weekends. He really only

> needs it

> for school.

>

> -----Original

>

September 22, 2003