Re: Fw: [mb12valtrex] Topics for the mb12valtrex list

[Guest guest]

Most of us are independants and on many lists. I certainly don't consider

myself DAN (nor ), but find the mb12 valtrex to have many useful contacts.

I think the big confusion was an initial post that was perceived as negative

toward parents doing anything other than -- where I am sure that this was

not the intent. Now it is just crazy sensitive over there with a few.

I think 90% of us want to see all posts and opinions.

Caryn

>

> Marcia is stirring up a DAN list!

>

>

>

> ----- Forwarded Message ----

> From: and Marcia Hinds <hindssite@...>

> mb12 valtrex

> Sent: Wed, August 25, 2010 9:18:30 AM

> Subject: [mb12 valtrex] Topics for the mb12 valtrex list

>

>

> Cheryl,

> Your post concerns me. Aren’t we all here for the same thing? To find

answers

> for kids with Autism. Bill is simply stating research and what worked for his

> kid and has no financial incentive for doing so. I can’t say the same for

Stan

> Kurtz (who also was a patient of Goldberg). He is making a living off his

kid’s

> autism. It infuriates me that he is not a medical doctor and yet I’m told

> charges $200/hour for a consult with parents. What is wrong with this

picture?

> Those of us following the protocol have nothing to gain by posting here.

> We just want to help kids. I once made a promise to God. You make mine

better

> and I will work to make them all better. So I have to live up to my end of

the

> bargain. McCarthy in her own book admitted that her son was not doing

> well but she was going on TV promoting her parenting book to bring in the

bacon.

>

> You openly admit that Dr. G helped your kid. I understand why you left. Dr.

G

> can be difficult to work with. I left myself for several years after getting

> tired of arguing with Dr.G. But the reality is, he is right in his medical

> protocol and the best at the medical issues. I still don’t agree with him

> behaviorally or educationally. But if even one kid benefits from what Bill

said

> it should be posted. Open discussion and dialogue and difference of opinion

is

> the how things should work on any list.

> Marcia Hinds

>

>

> I'm going to have to say that I'm going to have to defer to the title of the

> list here. Everyone that joins this list has an opportunity to read the home

> page description. This list is to discuss biomedical treatment options and is

> for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here is that

> this is not the place for this discussion. Please take it to the list or

> offlist.

>

> Just in case anyone has forgotten, here is an excerpt from the message on the

> Home Page:

>

> This private research group, started by Stan Kurtz, a parent of a recovered

> child, offers parent support for people who are interested in the new

Revitapop

> Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex, natural

antivirals,

> virastop, Olive Leaf Extract (OLE), LDM100, antifungal therapy, bacterial

> therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for anti-infectious

therapy

> and chronic illness including autism, ADHD, fibromyalgia, asthma, eczema,

> chronic fatigue, hypotonia, mitochondrial dysfunction or disorder, sensory

> integration dysfunction, dyslexia and other chronic illness.

>

>

> If these things do not apply to you, I'm not sure what made you join the list.

>

> I don't want to hear any more about how supps are bad, b12 is bad, chelation

is

> bad, etc. If there's something constructive to say regarding any of these

> things, feel free to do so, if you have experience with these things, feel

free

> to say it. But no more discussion of how everything is wrong but . I'm

done

> moderating it, I'm done getting the complaints. This list is for those that

are

> actually doing those things and I'm not going to continue reminding people of

> that. If you are looking to discuss , there's a list for that and

they

> are very supportive and willing to help and answer questions. I know because I

> used to be on it.

>

> There was nothing particularly wrong with Bill's post. I'm not mad, I'm just

> tired of dealing with this. I'm tired of having to remind people that while

> may not like these things, this is not a list and I would appreciate it

if

> the attempt to turn it into one would end. I'm not killing my son by giving

him

> Vitamin C, thankyouverymuch.

>

> It's over. No mas. Anyone interested can join the list, there's no law

that

> says people can't join multiple lists (I myself belong to about 20). But take

> the discussion there or offlist.

>

> I will start moderating people and deleting posts. If I have to delete too

many

> posts, I will start removing members. I repeat, this is *not* a list.

Take

> it there, please.

>

>

> But I did appreciate Dr. Klimas's explanation, very informative. I wish it had

> been left at that and this e-mail didn't have to be written.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com <http://www.gryffins-tail.blogspot.com>

>

>

>

>

>

>

>

>

[Guest guest]

Wow Marcia, I am scared to even go there! But you say it very well. I know how

much you care about kids and helping parents get through this. I totally agree

with what you say, I believe its absolutely wrong for someone like Stan Kurtz to

charge what he does when he is not even a doctor. There are way too many

autism-charletons out there not using real science and experimenting on our kids

and making a killing selling us tons of overpriced supps. Its so hard for me to

watch these newbie-parents making these expensive decisions and wasting precious

developmental time making their children worse or not helping them at all.

If it turns out our kids have XMRV (a retrovirus in the same family as HIV), how

in the world will supplements help such a serious infection? It will not fix

such a dire medical issue our kids most likely have. Would we shove a bunch of

vitamins in the face of an AIDS patient and send them on their way? I hope that

soon people will see and understand that our kids are VERY sick and need real

medical help. Lets put those autism-entrepreneurs out of business!

-Jen

>

> Marcia is stirring up a DAN list!

>

>

>

> ----- Forwarded Message ----

> From: and Marcia Hinds <hindssite@...>

> mb12 valtrex

> Sent: Wed, August 25, 2010 9:18:30 AM

> Subject: [mb12 valtrex] Topics for the mb12 valtrex list

>

>

> Cheryl,

> Your post concerns me. Aren’t we all here for the same thing? To find

answers

> for kids with Autism. Bill is simply stating research and what worked for his

> kid and has no financial incentive for doing so. I can’t say the same for

Stan

> Kurtz (who also was a patient of Goldberg). He is making a living off his

kid’s

> autism. It infuriates me that he is not a medical doctor and yet I’m told

> charges $200/hour for a consult with parents. What is wrong with this

picture?

> Those of us following the protocol have nothing to gain by posting here.

> We just want to help kids. I once made a promise to God. You make mine

better

> and I will work to make them all better. So I have to live up to my end of

the

> bargain. McCarthy in her own book admitted that her son was not doing

> well but she was going on TV promoting her parenting book to bring in the

bacon.

>

> You openly admit that Dr. G helped your kid. I understand why you left. Dr.

G

> can be difficult to work with. I left myself for several years after getting

> tired of arguing with Dr.G. But the reality is, he is right in his medical

> protocol and the best at the medical issues. I still don’t agree with him

> behaviorally or educationally. But if even one kid benefits from what Bill

said

> it should be posted. Open discussion and dialogue and difference of opinion

is

> the how things should work on any list.

> Marcia Hinds

>

>

> I'm going to have to say that I'm going to have to defer to the title of the

> list here. Everyone that joins this list has an opportunity to read the home

> page description. This list is to discuss biomedical treatment options and is

> for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here is that

> this is not the place for this discussion. Please take it to the list or

> offlist.

>

> Just in case anyone has forgotten, here is an excerpt from the message on the

> Home Page:

>

> This private research group, started by Stan Kurtz, a parent of a recovered

> child, offers parent support for people who are interested in the new

Revitapop

> Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex, natural

antivirals,

> virastop, Olive Leaf Extract (OLE), LDM100, antifungal therapy, bacterial

> therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for anti-infectious

therapy

> and chronic illness including autism, ADHD, fibromyalgia, asthma, eczema,

> chronic fatigue, hypotonia, mitochondrial dysfunction or disorder, sensory

> integration dysfunction, dyslexia and other chronic illness.

>

>

> If these things do not apply to you, I'm not sure what made you join the list.

>

> I don't want to hear any more about how supps are bad, b12 is bad, chelation

is

> bad, etc. If there's something constructive to say regarding any of these

> things, feel free to do so, if you have experience with these things, feel

free

> to say it. But no more discussion of how everything is wrong but . I'm

done

> moderating it, I'm done getting the complaints. This list is for those that

are

> actually doing those things and I'm not going to continue reminding people of

> that. If you are looking to discuss , there's a list for that and

they

> are very supportive and willing to help and answer questions. I know because I

> used to be on it.

>

> There was nothing particularly wrong with Bill's post. I'm not mad, I'm just

> tired of dealing with this. I'm tired of having to remind people that while

> may not like these things, this is not a list and I would appreciate it

if

> the attempt to turn it into one would end. I'm not killing my son by giving

him

> Vitamin C, thankyouverymuch.

>

> It's over. No mas. Anyone interested can join the list, there's no law

that

> says people can't join multiple lists (I myself belong to about 20). But take

> the discussion there or offlist.

>

> I will start moderating people and deleting posts. If I have to delete too

many

> posts, I will start removing members. I repeat, this is *not* a list.

Take

> it there, please.

>

>

> But I did appreciate Dr. Klimas's explanation, very informative. I wish it had

> been left at that and this e-mail didn't have to be written.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com <http://www.gryffins-tail.blogspot.com>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for the hug. I needed that. You are right it makes me crazy when

people like Stan Kurtz are taking advantage of our desperation to help our

kids. Sorry for the confusion this created. This is the list. Bill

posted something about what happened on the Valtrex list here. I just

wanted to tell you the rest of the story. I think I might have to retire

from that list too. The only reason I was even on that list is I just

wanted to help the new parents find answers to help their kids.

[Guest guest]

Dear Marcia,

Don't retire from that list...be a ray of hope in a confusing place!

God bless you!

Argei

On Aug 28, 2010, at 6:57 AM, and Marcia Hinds wrote:

> Thanks for the hug. I needed that. You are right it makes me crazy

> when

> people like Stan Kurtz are taking advantage of our desperation to

> help our

> kids. Sorry for the confusion this created. This is the list.

> Bill

> posted something about what happened on the Valtrex list here. I just

> wanted to tell you the rest of the story. I think I might have to

> retire

> from that list too. The only reason I was even on that list is I just

> wanted to help the new parents find answers to help their kids.

>

>

[Guest guest]

Jen,

And chelation helps how with viruses?

Kathy

[mb12 valtrex] Topics for the mb12 valtrex list

>

>

> Cheryl,

> Your post concerns me. Aren’t we all here for the same thing? To find

answers

> for kids with Autism. Bill is simply stating research and what worked for his

> kid and has no financial incentive for doing so. I can’t say the same

for Stan

> Kurtz (who also was a patient of Goldberg). He is making a living off his

kid’s

> autism. It infuriates me that he is not a medical doctor and yet I’m

told

> charges $200/hour for a consult with parents. What is wrong with this picture?

> Those of us following the protocol have nothing to gain by posting here.

> We just want to help kids. I once made a promise to God. You make mine better

> and I will work to make them all better. So I have to live up to my end of the

> bargain. McCarthy in her own book admitted that her son was not doing

> well but she was going on TV promoting her parenting book to bring in the

bacon.

>

> You openly admit that Dr. G helped your kid. I understand why you left. Dr. G

> can be difficult to work with. I left myself for several years after getting

> tired of arguing with Dr.G. But the reality is, he is right in his medical

> protocol and the best at the medical issues. I still don’t agree with

him

> behaviorally or educationally. But if even one kid benefits from what Bill

said

> it should be posted. Open discussion and dialogue and difference of opinion is

> the how things should work on any list.

> Marcia Hinds

>

>

> I'm going to have to say that I'm going to have to defer to the title of the

> list here. Everyone that joins this list has an opportunity to read the home

> page description. This list is to discuss biomedical treatment options and is

> for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here is that

> this is not the place for this discussion. Please take it to the list or

> offlist.

>

> Just in case anyone has forgotten, here is an excerpt from the message on the

> Home Page:

>

> This private research group, started by Stan Kurtz, a parent of a recovered

> child, offers parent support for people who are interested in the new

Revitapop

> Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex, natural

antivirals,

> virastop, Olive Leaf Extract (OLE), LDM100, antifungal therapy, bacterial

> therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for anti-infectious

therapy

> and chronic illness including autism, ADHD, fibromyalgia, asthma, eczema,

> chronic fatigue, hypotonia, mitochondrial dysfunction or disorder, sensory

> integration dysfunction, dyslexia and other chronic illness.

>

>

> If these things do not apply to you, I'm not sure what made you join the list.

>

> I don't want to hear any more about how supps are bad, b12 is bad, chelation

is

> bad, etc. If there's something constructive to say regarding any of these

> things, feel free to do so, if you have experience with these things, feel

free

> to say it. But no more discussion of how everything is wrong but . I'm

done

> moderating it, I'm done getting the complaints. This list is for those that

are

> actually doing those things and I'm not going to continue reminding people of

> that. If you are looking to discuss , there's a list for that and

they

> are very supportive and willing to help and answer questions. I know because I

> used to be on it.

>

> There was nothing particularly wrong with Bill's post. I'm not mad, I'm just

> tired of dealing with this. I'm tired of having to remind people that while

> may not like these things, this is not a list and I would appreciate it

if

> the attempt to turn it into one would end. I'm not killing my son by giving

him

> Vitamin C, thankyouverymuch.

>

> It's over. No mas. Anyone interested can join the list, there's no law

that

> says people can't join multiple lists (I myself belong to about 20). But take

> the discussion there or offlist.

>

> I will start moderating people and deleting posts. If I have to delete too

many

> posts, I will start removing members. I repeat, this is *not* a list.

Take

> it there, please.

>

>

> But I did appreciate Dr. Klimas's explanation, very informative. I wish it had

> been left at that and this e-mail didn't have to be written.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com <http://www.gryffins-tail.blogspot.com>

>

>

>

>

>

>

>

>

[Guest guest]

FYI- all- supplements and treatments that increase glutathione are an

accepted therapy for HIV (and other retrovurses). No one gets liver

failure from vitamin C and N-Acetyl Cysteine (together which boost GSH).

---> Here's 3 study titles- (one abstract) you can look up them

up...etc:

******************************

Glutathione inhibits HIV replication by acting at late stages of the

virus life cycle.

Palamara AT, Perno CF, Aquaro S, Buè MC, Dini L, Garaci E.

Department of Experimental Medicine and Biochemical Sciences, University

of Rome, Italy.

Abstract

We investigated the effect of glutathione on the replication of human

immunodeficiency virus (HIV) in chronically infected macrophages, a

known reservoir of the virus in the body. We found that exogenous GSH

strongly suppresses the production of p24gag protein as well as the

virus infectivity. This is related to a dramatic decrease in both

budding and release of virus particles from chronically infected cells

(either macrophages or lymphocytes), together with a selective decrease

in the expression of gp120, the major envelope glycoprotein, rich in

intrachain disulfide bonds and thus potentially sensitive to the effect

of a reducing agent such as GSH. Overall data suggest that GSH can

interfere with late stages of virus replication. This would be in

agreement with data obtained in cells exposed to herpesvirus type 1 (a

DNA virus) or to Sendai (an RNA virus), showing that the suppression of

virus replication by GSH is related to the selective inhibition of

envelope glycoproteins. These results suggest a potential role of GSH in

combination with other antivirals in the treatment of virus-related

diseases.

PMID: 8911579 [PubMed - indexed for MEDLINE]

********************************************************************

Herzenberg, L.A., De , S.C., Dubs, J.G., Roederer, M., ,

M.T., Ela, S.W., Deresinski, S.C., Herzenberg, L.A.,

Glutathione deficiency is associated with impaired survival in HIV

disease. Proc Natl Acad Sci U S A 1997 Mar 4;94(5):1967-72.

************************************************************************\

**********

Sachan, A.S., Kannan, G.M., Kumar, P., Flora, S.J.,

Effects of chelation therapy on hepatic glutathione, lipid peroxidation

and phospholipid contents in lead-poisoned rats, Indian J Physiol

Pharmacol 1996 Apr;40(2):180-2.

-- In , JOSKAT95@... wrote:

>

>

> Jen,

> And chelation helps how with viruses?

> Kathy

>

>

>

>

>

>

> [mb12 valtrex] Topics for the mb12 valtrex list

> >

> >

> > Cheryl,

> > Your post concerns me. Aren’t we all here for the same

thing? To find answers

> > for kids with Autism. Bill is simply stating research and what

worked for his

> > kid and has no financial incentive for doing so. I can’t

say the same for Stan

> > Kurtz (who also was a patient of Goldberg). He is making a living

off his kid’s

> > autism. It infuriates me that he is not a medical doctor and yet

I’m told

> > charges $200/hour for a consult with parents. What is wrong with

this picture?

> > Those of us following the protocol have nothing to gain by

posting here.

> > We just want to help kids. I once made a promise to God. You make

mine better

> > and I will work to make them all better. So I have to live up to my

end of the

> > bargain. McCarthy in her own book admitted that her son was

not doing

> > well but she was going on TV promoting her parenting book to bring

in the bacon.

> >

> > You openly admit that Dr. G helped your kid. I understand why you

left. Dr. G

> > can be difficult to work with. I left myself for several years after

getting

> > tired of arguing with Dr.G. But the reality is, he is right in his

medical

> > protocol and the best at the medical issues. I still

don’t agree with him

> > behaviorally or educationally. But if even one kid benefits from

what Bill said

> > it should be posted. Open discussion and dialogue and difference of

opinion is

> > the how things should work on any list.

> > Marcia Hinds

> >

> >

> > I'm going to have to say that I'm going to have to defer to the

title of the

> > list here. Everyone that joins this list has an opportunity to read

the home

> > page description. This list is to discuss biomedical treatment

options and is

> > for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here

is that

> > this is not the place for this discussion. Please take it to the

list or

> > offlist.

> >

> > Just in case anyone has forgotten, here is an excerpt from the

message on the

> > Home Page:

> >

> > This private research group, started by Stan Kurtz, a parent of a

recovered

> > child, offers parent support for people who are interested in the

new Revitapop

> > Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex, natural

antivirals,

> > virastop, Olive Leaf Extract (OLE), LDM100, antifungal therapy,

bacterial

> > therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for

anti-infectious therapy

> > and chronic illness including autism, ADHD, fibromyalgia, asthma,

eczema,

> > chronic fatigue, hypotonia, mitochondrial dysfunction or disorder,

sensory

> > integration dysfunction, dyslexia and other chronic illness.

> >

> >

> > If these things do not apply to you, I'm not sure what made you join

the list.

> >

> > I don't want to hear any more about how supps are bad, b12 is bad,

chelation is

> > bad, etc. If there's something constructive to say regarding any of

these

> > things, feel free to do so, if you have experience with these

things, feel free

> > to say it. But no more discussion of how everything is wrong but

. I'm done

> > moderating it, I'm done getting the complaints. This list is for

those that are

> > actually doing those things and I'm not going to continue reminding

people of

> > that. If you are looking to discuss , there's a list for

that and they

> > are very supportive and willing to help and answer questions. I know

because I

> > used to be on it.

> >

> > There was nothing particularly wrong with Bill's post. I'm not mad,

I'm just

> > tired of dealing with this. I'm tired of having to remind people

that while

> > may not like these things, this is not a list and I would

appreciate it if

> > the attempt to turn it into one would end. I'm not killing my son by

giving him

> > Vitamin C, thankyouverymuch.

> >

> > It's over. No mas. Anyone interested can join the list, there's

no law that

> > says people can't join multiple lists (I myself belong to about 20).

But take

> > the discussion there or offlist.

> >

> > I will start moderating people and deleting posts. If I have to

delete too many

> > posts, I will start removing members. I repeat, this is *not* a

list. Take

> > it there, please.

> >

> >

> > But I did appreciate Dr. Klimas's explanation, very informative. I

wish it had

> > been left at that and this e-mail didn't have to be written.

> >

> > Cheryl

> > ~http://www.gryffins-tail.blogspot.com

<http://www.gryffins-tail.blogspot.com>

> >

> >

> >

> >

> >

> >

> >

> >