IVIG

[Guest guest]

Have any patients opted for IVIG, particularly with kids with PANDAS?

If so, what has been the outcome? What is the view of Dr. and Dr. G

on IVIG?

[Guest guest]

I am also interested in IVIG for my son. We will be seeing our neurologist in a

few weeks and I would like to ask more about it. I would like to hear from

others who have tried it, especially those who had success

I am reading that typically children with autism have low NK cells.but my son

has high T cells and NK cells. T Cells 2753 (normal range 1200-2600) NK 614

(normal 100-480) CD8 Suppressor Cells 1372 (normal 370-1100) What are his cells

fighting? Are they fighting infections and yeast but not able to complete the

job because of an immune system problem?

I think I read that low T cells and NK cells would maybe show a need for IVIG?

Does having HIGH T cells and NK cells mean he wouldn't benefit from IVIG?

We have tried just about EVERYTHING else with no real improvement in cognitive

functioning. (ABA therapy, listening therapy, DAN, , anti fungals, special

diets, etc.) I feel like we are stuck and can't get past whatever is causing

his brain to shut down. He is 10 and functions at a 2 year old level. At age

5, he was delayed, but functioning like a 4-5 year old in most developmental

areas and after age 5, he regressed to about age 2. He used to talk in full 5-6

word sentences and ask questions. Now, he uses one word utterances to get what

he wants.

We have been with Dr. for almost a year now. Dr said we should

stop the Valtrex now since we haven't seen much improvement from that. We plan

to start an SSRI if our local neurologist has nothing else to offer.

We have noticed an improvement on Diflucan and will continue taking that. I

really believe he had yeast issues from the start...even before birth. I saw

the greatest regression in him when he was 4 and starting taking yet another

round of antibiotics. At that time, I believed the antibiotic was doing

something to make him regress, or maybe the bacteria or virus he maybe had at

that time, but now I think it was just too many antibiotics and the yeast took

over.

If yeast goes systemic...if it gets in the blood and to the brain....HOW do we

get it out? Is there anything a medical doctor can do for that besides

Difulcan? Would an immunologist be able to help with this?

I read that candida possesses proteins on its surface that are similar to many

types of human tissue. When the body mounts an immune response against the

Candida, some of the antibodies may react against placenta, ovary, adrenal,

thymus, liver, pancreas, spleen, brain, and liver. Is it possible that my son's

immune system is fighting his brain?

We had a test done a few years ago to look for candida. At that time, the

neurologist didn't see anything to indicate a yeast problem or immune system

dysfunction.

One test showed Candida Albicans IgG <0.1 (Antibody not detected)

Does this mean his body does not know how to fight candida IgG? He has no

antibody for it? Or does it mean he doesn't have a yeast problem and an

antibody didn't show up on the test because he doesn't have yeast to fight?

I'd love to hear any of your ideas or suggestions! Thanks

Tammy K