Re: When do the children come off the SSRI

[Guest guest]

no one has answered my question about dr. G ever finding labs to be

normal in a child. any known cases of this?

On Jul 14, 2010, at 5:43 PM, and Freeman wrote:

> I have seen many parents ask the same question (including myself)

> and I have

> never seen a reply - the question is, when do these kids come off

> the ssri

> and other meds...or is this an indefinite period?

>

>

[Guest guest]

It just depends on the kid ... I think that because it is so neuroprotective and

helps with the blood flow according to SPECT, it is supposed to be one of the

most beneficial things we can do for them - along with diet.  Dr G said he has

seen kids that have just been on the diet and SSRI and that their SPECTs looked

so much better than kids that had been thru all sorts of DAN! treatments and

therapies.

My son came off the ssri for a couple of years and seemed fine, but when we

started back on it, I could see how it helped him, so we stick to a very low

dose (because any higher he seems to have a hard time), and I feel safe with it.

HTH

________________________________

From: and Freeman <freemanbk@...>

Sent: Wed, July 14, 2010 5:43:19 PM

Subject: When do the children come off the SSRI

 

I have seen many parents ask the same question (including myself) and I have

never seen a reply - the question is, when do these kids come off the ssri

and other meds...or is this an indefinite period?

[Guest guest]

I am also still waiting on someone to respond to this question. Has

anyone come off some or all of the meds or do they taper down at some

point? Marcia, is your son still on medication? I do believe the

meds are necessary, but my husband and I are wondering if this is a

life long thing.

Thanks,

Colleen

[Guest guest]

Colleen,

So far for us my son is still on the meds although I know some kid's

systems have kicked in and they can do without some of them. We tried to

eliminate the antifungal this summer but it didn't work for . Dr. G

thinks he has agents that will right the immune system permanently. But

they must go through FDA testing and development before they can be

developed for this purpose. He still is trying to procure the funding to do

this. Until then we will take meds realizing the alternative for our kid

won't work. Some people with diabetes have to take meds their entire lives

to stay healthy. I guess for our kids it might be the same.

Best,

Marcia

[Guest guest]

This is the answer Ive gotten from Dr. G when Ive asked the same thing. Until we

have the proper drugs that will FIX this disease, we will have to use drugs that

can manage it.

>

> Colleen,

>

> So far for us my son is still on the meds although I know some kid's

> systems have kicked in and they can do without some of them. We tried to

> eliminate the antifungal this summer but it didn't work for . Dr. G

> thinks he has agents that will right the immune system permanently. But

> they must go through FDA testing and development before they can be

> developed for this purpose. He still is trying to procure the funding to do

> this. Until then we will take meds realizing the alternative for our kid

> won't work. Some people with diabetes have to take meds their entire lives

> to stay healthy. I guess for our kids it might be the same.

>

> Best,

>

> Marcia

>

>

>

>

[Guest guest]

Without her meds, Dr. Temple Grandin would be " incapacitated by constant

anxiety and stress-related health problems " . She has been taking Norpramin

for the last 25 + years and will be on meds for life.

_____

From: [mailto: ] On Behalf Of

and Marcia Hinds

Sent: July 30, 2010 9:20 AM

colleendesigns@...;

Subject: Re: When do the children come off the SSRI

Colleen,

So far for us my son is still on the meds although I know some kid's

systems have kicked in and they can do without some of them. We tried to

eliminate the antifungal this summer but it didn't work for . Dr. G

thinks he has agents that will right the immune system permanently. But

they must go through FDA testing and development before they can be

developed for this purpose. He still is trying to procure the funding to do

this. Until then we will take meds realizing the alternative for our kid

won't work. Some people with diabetes have to take meds their entire lives

to stay healthy. I guess for our kids it might be the same.

Best,

Marcia

[Guest guest]

Thank you for this response. I think this and Randy's were very

helpful. I would never want to be back where he was

without the meds. We started with Dr. Goldberg in November and I

only wish I had a documentary follow us from that time forward

because we have seen such significant changes these last six months.

is learning at a pace he never learned at before seeing

Dr. G not to mention because his awareness of what is going on around

him has increased so significantly, he is learning more naturally and

on his own rather than forcing him to learn everything. It's a small

question to someone who hasn't walked in our shoes, but every time I

hear him ask me- Mommy, what was that?- I pause- I never thought he'd

have enough interest in anything to ask me questions on his own about

it. On a side note, we started immunovir this week so if anyone is

starting at the same time and wants to keep in touch on this, let me

know.

Thanks again,

Colleen

On Jul 30, 2010, at 8:20 AM, and Marcia Hinds wrote:

> Colleen,

> So far for us my son is still on the meds although I know some

> kid’s systems have kicked in and they can do without some of them.

> We tried to eliminate the antifungal this summer but it didn’t work

> for . Dr. G thinks he has agents that will right the immune

> system permanently. But they must go through FDA testing and

> development before they can be developed for this purpose. He

> still is trying to procure the funding to do this. Until then we

> will take meds realizing the alternative for our kid won’t work.

> Some people with diabetes have to take meds their entire lives to

> stay healthy. I guess for our kids it might be the same.

> Best,

> Marcia

[Guest guest]

Hi Marcia,

I am interested, if you wouldn't mind sharing, what symptoms or behaviour,

you saw that would indicate that was not ready to stay off the

antifungal meds?

We are just about to do the same with my son, age 11, after being on either

of the antifungals Dr. G prescribes for 7 years.

At first suggestion of eliminating it from Dr. G I was very excited.

However after reading tried unsuccessfully, I am reluctant to do

anything that is going to take away all the progress my son has made.

I would really appreciate any more info you would be willing to share.

Warm regards,

Lori

_____

From: [mailto: ] On Behalf Of

and Marcia Hinds

Sent: July-30-10 9:20 AM

colleendesigns@...;

Subject: Re: When do the children come off the SSRI

Colleen,

So far for us my son is still on the meds although I know some kid's

systems have kicked in and they can do without some of them. We tried to

eliminate the antifungal this summer but it didn't work for . Dr. G

thinks he has agents that will right the immune system permanently. But

they must go through FDA testing and development before they can be

developed for this purpose. He still is trying to procure the funding to do

this. Until then we will take meds realizing the alternative for our kid

won't work. Some people with diabetes have to take meds their entire lives

to stay healthy. I guess for our kids it might be the same.

Best,

Marcia

[Guest guest]

Hi lori,

I am a new parent on nids. Would love to know how your child progressed , as you

seem to be on the protocol for some time!

Thanks

Sunira

Sent from BlackBerry® on Airtel

Re: When do the children come off the SSRI

Colleen,

So far for us my son is still on the meds although I know some kid's

systems have kicked in and they can do without some of them. We tried to

eliminate the antifungal this summer but it didn't work for . Dr. G

thinks he has agents that will right the immune system permanently. But

they must go through FDA testing and development before they can be

developed for this purpose. He still is trying to procure the funding to do

this. Until then we will take meds realizing the alternative for our kid

won't work. Some people with diabetes have to take meds their entire lives

to stay healthy. I guess for our kids it might be the same.

Best,

Marcia