coloboma/vision question

[Guest guest]

: usually retina coloboma will mean a loss of the upper visual field.

Usually with just the coloboma in

the retina, there is not aquity or fine detail loss. It will be important to

prop baby up as they cannot see

as much laying flat. They will not see medical intervention coming, to

anticipate. So everyone needs to make

the little one aware they are there, touch and explore what " tools " they are

going to use before things are

" done " to them. (even if it is a diaper change) There can also be size

differences in the coloboma, some

larger or some smaller. It is possible that he is only using one eye at a

time, ...his right...for

distance, and not be that he doesn't have as much vision in left. Also, cranial

nerves do effect movement of

the eyes, so often children with CHARGE have problems with eye movement--the

ability of eyes to work together

to scan, track, etc. Often they end up using only one eye at a time.

Don't be afraid of the term " deafblind " as it may help in the future for

educational purposes, therapy and

available Interventions. It should mean a combination of visual and auditory

problems (which is why in

Canada we join the word together). The awareness of the combination of problems

will make sure that all

sensory ability are considered during aspects of therapy, education and

development.

ANN GLOYN, Deafblind and Spec.Ed. Specialist, Canada

maryechick12@... wrote:

> geees I don know where to start!!!!!first of al are you completely blind

> ? I dont understand about this colobomas they said billy was completely

> blind because of them (his are in his retinas only and his left eye is

> much smaller )he cant see that well out of his left eye but his right I

> think he sees better than me with (I am just about blind without

> glasses)just wondeing what the world looks like to you ???

>