Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Martha, We are here to support each other and to also, from time to time, keep each other on track! I hear you about the frustrations of a constantly strict diet with little affect on the labs. I deal with that all the time for my son and have really been encouraged by list mates who have also been there and have got their child's IgE, eosinophils etc...down to within a decent RR. Most of us would not be here and have our kids patients of Dr. G's or Dr. R's if we didn't question, think, research, think, research and question some more in the first place and throughout this journey on behalf of our kids. However, if you really believe that Dr. Goldberg is on the right track, if your child has made progress, albeit slow...but forward, and he has been right in his advise for you in the past, then you have to continue to give it your all. That is the thing with this protocol...you can't do it half way in combination with some DAN concepts and some other advice from other parents who have had certain things helpful for a specific need of their own child. We are treating the whole child with Dr. G's expertise and experience. One thing may help a bit of " this " , but damage a lot of " that " , so to speak! Nothing outside of your healthcare practitioners advice is going to speed things up. We just have to constantly work hard to get our kids bodies homeostatic and for most of our kids that means lowering inflammation through pharmaceuticals and diet. We live in a society of quick fixes and for our children who have already missed out on some things, we pressure ourselves and perhaps our kids to speed up recovery. But when you really think about how far our kids have come and how often Dr. G was right, then you know this is the right choice. You need to continue to follow his advice and be disciplined, and not look for a quick fix for a very severe and complicated illness! Hang in there and talk to Dr. G again if you need to. Use this list for ongoing support and to help get back on track on days that you feel discouraged. We have all been there!! Warm regards, Lori Re: HHV-6 > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com> > <mailto:cotter.mary1%40gmail.com <cotter.mary1%2540gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
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