PANDAS

[Guest guest]

I am interested in hearing from any parents whose children had a PANDAS

diagnosis. Our son had a positive pandas score from Dr. Cunningham's lab in

Oklahoma (194 - very high!!). Any patients who have been treated for

PANDAS, I would greatly appreciate hearing your stories. Please email me

offline if you would prefer.

Thank you.

[Guest guest]

Why no L Rhamnosus ? This is not a strep strain is it?

I use this because it is D Lactate Free, and I thought I was avoiding the strep

strain S Therm.

>

> I can feel an improvement within 3 days of doxycycline (a lot of kids are too

> young to take that).  But it does take at least a couple of weeks to really

> start to 'wake up' out of it.  But I feel it in a reduction of anxiety - at

> least within 5 days.

> There are a few antibiotics that seemed to make my mind flicker more -

> zythromycin being the only one I can remember for sure - but in the early

days,

> even it helped, because any treatment of strep brought improvement.

> Mycoplasma pneuomonia can aggrevate pandas too, so look out for little hacky

dry

> coughs with a wheeze, too.

> Certain probiotics can set it off.  Don't give yogurt, and never ever give

> culturelle or something high in l.rhamusus.  L.bacillus is not good for me,

but

> I think some kids have probably been able to tolerate it.

> (I'm of course an adult, but been dealing with this round since 2003.)

> HTH

>

>

>

>

> ________________________________

> From: Fund <susan_fund@...>

>

> Sent: Mon, September 20, 2010 12:11:10 PM

> Subject: Pandas

>

>  

> My son is in the midst of a Pandas flare up (OCD, separation anxiety,

> aggressiveness, moody). How quickly should the antibiotic start working? I am

> wondering if I should ask for a different antibiotic. Should it take a few

days

> or weeks to begin to see a reduction in symptoms?

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Does anyone use doxycycline I wonder? We have used this for acne for our son and

wonder if it might work against strep as well. Thanks.

M.

Pandas

Date: Monday, September 20, 2010, 10:11 AM

 

My son is in the midst of a Pandas flare up (OCD, separation anxiety,

aggressiveness, moody). How quickly should the antibiotic start working? I am

wondering if I should ask for a different antibiotic. Should it take a few days

or weeks to begin to see a reduction in symptoms?

[Guest guest]

I didn't realize an adult could develop PANDAS afer a strep infection.

>

> I can feel an improvement within 3 days of doxycycline (a lot of kids are too

> young to take that).  But it does take at least a couple of weeks to really

> start to 'wake up' out of it.  But I feel it in a reduction of anxiety - at

> least within 5 days.

> There are a few antibiotics that seemed to make my mind flicker more -

> zythromycin being the only one I can remember for sure - but in the early

days,

> even it helped, because any treatment of strep brought improvement.

> Mycoplasma pneuomonia can aggrevate pandas too, so look out for little hacky

dry

> coughs with a wheeze, too.

> Certain probiotics can set it off.  Don't give yogurt, and never ever give

> culturelle or something high in l.rhamusus.  L.bacillus is not good for me,

but

> I think some kids have probably been able to tolerate it.

> (I'm of course an adult, but been dealing with this round since 2003.)

> HTH

>

>

>

>

> ________________________________

> From: Fund <susan_fund@...>

>

> Sent: Mon, September 20, 2010 12:11:10 PM

> Subject: Pandas

>

>  

> My son is in the midst of a Pandas flare up (OCD, separation anxiety,

> aggressiveness, moody). How quickly should the antibiotic start working? I am

> wondering if I should ask for a different antibiotic. Should it take a few

days

> or weeks to begin to see a reduction in symptoms?

>

>

>

>

>

>

>

>

>

>