PANDAS and

[Guest guest]

Can anyone tell me if the protocol is still used if the child has

PANDAS? If so, how is this treated under the protocol?

Thanks!

[Guest guest]

Thank you, .

is now being tested for his anticardiolipin antibodies because of

neutropenia and high lymphs. The immune specialist here does not believe in Dr.

Cunningham’s CamKinase test mostly because he did not test positive for strep

titers. Their lab confirms that the levels can be elevated by many factors

including viral, bacterial infections and Lyme. He is currently on Azithromycin

250mg daily and low dose Lexapro. He did well on low dose Risperidone but had to

discontinue because it made his neutrophils go even lower.

From: [mailto: ] On Behalf Of

Sent: November-30-10 9:53 PM

Subject: Re: PANDAS and NIDs

Hi ,

The protocol does treat PANDAS. Mostly the same meds, but also long-term

antibiotics - whichever work better for the child (often erythromycin or

ery-ped), depending on the ASO titers.

He never recommends IVIG except in extreme cases of immune deficiencies that

demand it. He has used IMGG (intramuscular shots) but I haven't heard anyone

asking about it for some time, so I don't know if he does anymore - except maybe

in cases of low IgG...

He has also started using Immunovir, and I believe many (most?) PANDAS kids have

low natural killer cells, and immunovir helps increase them. These are some of

the immune cells that down-regulate the immune system. I know studies have been

published associating low NKs to OCD and anxiety - but I don't know if the

general researchers who study PANDAS are looking into that aspect or not. They

tend to look at PANDAS under the paradigm of an autoimmune attack, whereas

is addressing the immune dysfunction associated with it, and possibly the

triggers. Strep may be a trigger, but how much do viruses impact it by their

suppression of proper immune function and proper down-regulation from the

production of ASO? Diet can exacerbate it too. (I have PANDAS too.)

HTH

________________________________

From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca> >

<mailto:%40>

Sent: Thu, November 25, 2010 5:01:29 PM

Subject: PANDAS and NIDs

How does Dr. G treat children who are PANDAS kids? Does he recommend ivig or

does he use other ways?

Thank you.