Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 Hi LeeAnn, I have taken valtrex in the past, but it did absolutely nothing for me. Saturday I got a prescription for FAMVIR. I only had one big cold sore and it was in my nose - very painful. I took one pill on Saturday - filled the prescription sunday - and today,Monday, it feels like the cold sore is almost gone, at least it doesn't hurt anymore. WOW. I can hardly believe it worked that fast. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Did not hurt or help me. It's a safe medication so there is little risk. Regards, . Valtrex > I have been placed on valtrex an anti-viral. has anyone had > experience > with such a medication? ONe gram a day, which is 1000 mgs. Thom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Hi Thom It won't do any harm to give it a try. It did nothing for me but every now and then I hear from someone who was helped by it. So give it a try and see what happeneds. & please let us know the outcome take care Steve Thom on wrote: > I have been placed on valtrex an anti-viral. has anyone had > experience > with such a medication? ONe gram a day, which is 1000 mgs. Thom > > ------------------------------------------------------------------------ > Get 3 months FREE and a chance to WIN a trip to London, England when > you receive, manage and pay your bills online with Paytrust.com! > Stamps, checks and bills in your mailbox are history. Enroll Today! > 1/3556/2/_/531724/_/956620547/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 I have tried it & so have a million other people -- most say it does nothing for CFS. Once in a while I find someone who says it helps. If it clearly helped we would know it by now. Steve Peggomatic@... wrote: > I just got a prescription for Valtrex because I was reading that it seems to > be good in initial tests for HHV-6 suppression and prevention of HHV-6 > reactivation. Then I went to pick up the drug and was shocked to find out > that it costs about $3.75 a pill - $7.50 a day to take it. It's really too > expensive for me right now, so I didn't get it, but I'm wondering if anyone > has had a positive result with this drug. If so, how long before you > noticed? > > Thanks! > Peggy > > ------------------------------------------------------------------------ > Find long lost high school friends: > 1/4056/4/_/531724/_/959282403/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 In a message dated 01/24/2002 12:03:43 PM Pacific Standard Time, jfloyd123@... writes: << I have tried Valtrex, Isoprinosine, Acyclovir, and Kutapressin for anti-viral action, and feel by far the best when I take Valtrex. >> Jennie, Thanks so much for the reply. Are you still on Valtrex, and at what dose? I am interested if it has helped anyone else on the list with EBV. Take Care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Who are you seeing that is prescribing all of this for you ? Valtrex Hi there - I have tried Valtrex, Isoprinosine, Acyclovir, and Kutapressin for anti-viral action, and feel by far the best when I take Valtrex. I don't notice much with Isoprinosine or Acyclovir, but Kutapressin gives me painful welts on my thighs, and makes me feel exhausted, so I stopped it after a one month trial. Hope this helps - Jennie Floyd __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Jennie, You may be interested to note that Isoprinosine is relatively weak as an antiviral in terms of any direct action, but can help be boosting the immune system. I also believe, from personal experience that it takes a long time for it to achieve any significant benefit. Valtrex is simply Aciclovir delivered with the aid of the Amino Acid Valine, hence the drug also being called Valaciclovir, that is Valine and Aciclovir. However, what using Valtrex tablets does achieve is blood concentrations of Aciclovir that can only be achieved with pure Aciclovir using the IV route. This means Valtrex tablets will be more effective than Aciclovir tablets. I hope this helps to answer the question as to why Isoprinosine and Aciclovir are send to be less effective than Valtrex. Regards, Andy Valtrex > Hi there - > I have tried Valtrex, Isoprinosine, Acyclovir, and > Kutapressin for anti-viral action, and feel by far the > best when I take Valtrex. I don't notice much with > Isoprinosine or Acyclovir, but Kutapressin gives me > painful welts on my thighs, and makes me feel > exhausted, so I stopped it after a one month trial. > > Hope this helps - Jennie Floyd > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 In a message dated 01/27/2002 6:31:40 PM Pacific Standard Time, jfloyd123@... writes: << I take 500 mg of Valtrex twice a day for two months, then one month off, per the Cheney protocol. My internist, who has been treating my CFIDS since 1999, prescribes all my meds, although isoprinosine can be obtained legally through Pharmex without a prescription. We have been rotating these over several months, also per the Cheney protocol. >> Jennie, Where can I find the protocol for this? I looked on the DFW support group website and can't find anything on anti-viral protocols. I am very interested in what he thinks about Valtrex and EBV. I take it that it's helping you. I see my doctor on Tuesday and am going to bring this subject up. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Andy - thanks for your explanation of why Valtrex works better thank acyclovir. For those who asked, I take 500 mg of Valtrex twice a day for two months, then one month off, per the Cheney protocol. My internist, who has been treating my CFIDS since 1999, prescribes all my meds, although isoprinosine can be obtained legally through Pharmex without a prescription. We have been rotating these over several months, also per the Cheney protocol. My internist is Beth McDougall, San Francisco, 415-566-1000. She treats many patients with CFS, though that is not her specialty. Hope this helps - Jennie F. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 He prescribed Acyclovir for me two months ago when I couldn't tolerate the Famvir he prescribed. I'll ask about Valtrex when I need to call his office for a refill. Seems like it would work better all around. Does it carry the same side effects as Acyclovir or more/different ones? I certainly don't feel any different since starting the acyclovir. Donna in NC Re: Valtrex > > > Andy - thanks for your explanation of why Valtrex > works better thank acyclovir. > > For those who asked, I take 500 mg of Valtrex twice a > day for two months, then one month off, per the Cheney > protocol. My internist, who has been treating my > CFIDS since 1999, prescribes all my meds, although > isoprinosine can be obtained legally through Pharmex > without a prescription. We have been rotating these > over several months, also per the Cheney protocol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Are you saying Chenny is prescibing VALTREX ????? Re: Valtrex Andy - thanks for your explanation of why Valtrex works better thank acyclovir. For those who asked, I take 500 mg of Valtrex twice a day for two months, then one month off, per the Cheney protocol. My internist, who has been treating my CFIDS since 1999, prescribes all my meds, although isoprinosine can be obtained legally through Pharmex without a prescription. We have been rotating these over several months, also per the Cheney protocol. My internist is Beth McDougall, San Francisco, 415-566-1000. She treats many patients with CFS, though that is not her specialty. Hope this helps - Jennie F. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Donna, Valtrex, also known as Valaciclovir, is simply a more effective method of delivering Aciclovir where Valtrex in tablet form achieves blood concentrations of Aciclovir that can only be achieved with Aciclovir through the IV route. This means Valtrex is a cheaper, easier to deliver method of achieving the required blood levels of Aciclovir, and removes the pain and risks associated with intravenous infusion. The side effects of Valtrex are reported as being the same as Aciclovir with the addition of nausea in some cases. Valtrex is simply known as a pro-drug of Aciclovir. I hope this helps to answer your question. Regards, Andy Re: Valtrex > > > > > > Andy - thanks for your explanation of why Valtrex > > works better thank acyclovir. > > > > For those who asked, I take 500 mg of Valtrex twice a > > day for two months, then one month off, per the Cheney > > protocol. My internist, who has been treating my > > CFIDS since 1999, prescribes all my meds, although > > isoprinosine can be obtained legally through Pharmex > > without a prescription. We have been rotating these > > over several months, also per the Cheney protocol. > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 I don't know what to make of the fact that Dr. Klimas at the University Of Miami says that these type of anti-virals " are completely inappropriate " for CFS and M.E. Re: Valtrex Donna, Valtrex, also known as Valaciclovir, is simply a more effective method of delivering Aciclovir where Valtrex in tablet form achieves blood concentrations of Aciclovir that can only be achieved with Aciclovir through the IV route. This means Valtrex is a cheaper, easier to deliver method of achieving the required blood levels of Aciclovir, and removes the pain and risks associated with intravenous infusion. The side effects of Valtrex are reported as being the same as Aciclovir with the addition of nausea in some cases. Valtrex is simply known as a pro-drug of Aciclovir. I hope this helps to answer your question. Regards, Andy Re: Valtrex > > > > > > Andy - thanks for your explanation of why Valtrex > > works better thank acyclovir. > > > > For those who asked, I take 500 mg of Valtrex twice a > > day for two months, then one month off, per the Cheney > > protocol. My internist, who has been treating my > > CFIDS since 1999, prescribes all my meds, although > > isoprinosine can be obtained legally through Pharmex > > without a prescription. We have been rotating these > > over several months, also per the Cheney protocol. > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Thanks Andy Donna Re: Valtrex > Donna, > <snip> The side effects of Valtrex are reported as being the same as Aciclovir with the addition of nausea in some cases. Valtrex is simply known as a pro-drug of Aciclovir. I hope this helps to answer your question. > > Regards, > > Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 we prefer not to go on and off of the valtex every couple of monts. We stay on it for as long as a year per our bloodwork and symptoms, then switch to famvir if still needed. it can be more detremental to the body to go on and off like that. Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 , check this websit for antiviral protocol <A HREF= " www.neuroimmunedr.com " >www.neuroimmunedr.com</A>. click on articles than CFS . I can also send you some protocol info if you e-mail me privately Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Donna, how can i get ahold of Cheney? Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Donna, thank you so much! Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Tina, The new phone number in Asheville is 828-274-6665. His address is One Vanderbilt Park Drive, Suite 230, Asheville, NC 28801. Donna in NC Re: Valtrex > Donna, > how can i get ahold of Cheney? > > Tina M. Hendrix > Cure2000@... > Vice-President, California Coalition > Neuro-Immune Dysfunction Syndromes > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, > etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 What kind of positive effects are you gettin from the Valtrex/Famvir? Is your bloodwork better? Do you feel better, etc. Sorry if you have answered this already, but I haven't been following lately due to new ISP. TIA Mike > we prefer not to go on and off of the valtex every couple of monts. We stay > on it for as long as a year per our bloodwork and symptoms, then switch to > famvir if still needed. it can be more detremental to the body to go on and > off like that. > > Tina M. Hendrix > Cure2000@a... > Vice-President, California Coalition > Neuro-Immune Dysfunction Syndromes > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, > etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Mike, not sure who you were asking, but both blood work and symptoms much better for my Autistic daughter, my ADD/learnign disabled/CFS daughter, and CFS?Dyslexic me. Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hello KAthy, just one thing that you may wish to try. Vitamins B2 and B6 - if you are low in them it is difficult to get rid of the sores. Red and sometimes itching tongue is also a sign of deficit (as well as headaches and cramps, though this is not the only cause). Some meds and hyperthyroidism can cause the deficit too. Stania ----- Original Message ----- From: " Kathy ADSL Net " <kathryn@...> " " <groups> > My doctor has suggested that I may need to stay on Valtrex > for one year if the massive cold sores I get on my lips, > nostrils and even in my eye continue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Kathy, I have Meniere's Disease, a herpes disease of the ear. Doc has me on Valtrex, same dose as you for a year. Just be sure to eat something with it or it will irritate your stomach. Beck Kathy ADSL Net wrote: > My doctor has suggested that I may need to stay on Valtrex > for one year if the massive cold sores I get on my lips, > nostrils and even in my eye continue. > > I have had CFS for 12 years, also Chronic Bronchitis, Asthma > and Allergies. > > I have tolerated the 5 day 500 mg. 2x daily courses of > Valtrex well. > > Any comments? No specialized testing available for me her. > > Thanks so much, > > Kathy > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Beck, That's really interesting. I didn't realize that Meniere's falls under this type of medical category. And it's interesting to note that you have been able to use Valtrex long-term. Thanks for sharing. I feel like such a rookie with so much to learn! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 In a message dated 1/13/03 1:59:42 PM Central Standard Time, annabel@... writes: > Valtrex tends have negative effects during the third week which may > last for 5-7 days. The best time to assess whether it is doing > something positive for your child is four to five weeks after > commencing it. > Our doc (Dr. Goldberg) said that negative effects or " die-off " can happen anywhere from day 1 until day 21 but he said this was mostly increased emotionality, paleness, not feeling well in general or acting drunk/silliness. My son has had periods of all of those plus the strange hand thing. Have you ever heard of a temporary loss of motor function due to killing off a virus? Today is day 18 and he has had no problems at all. The doc's nurse said the doc didn't think the weak and " funny " feeling hand could be related to a viral thing but I wonder especially since all three times the problem happened a few hours after his first dose of Valtrex for the day and on the first day when I delayed the second dose by a few hours, it improved about the time you'd expect the first dose to wear off. This doc mainly deals with younger and lower-functioning kids so I'm thinking he just may have not had the opportunity to see what it does to a kid who writes. I'm hoping this is a sign that the virus is affecting his motor function like my gut says it is and that we'll see big improvements in that area but who knows. Overall, he's been significantly calmer on the Valtrex but that could be because he isn't feeling very well. He had a three-week " die-off " period of extreme emotionality and tantrums (very strange for him) with Lauricidin followed by big improvements in focus and overall health. He's still taking two scoops a day of Lauricidin along with 375mg 3x per day of the Valtrex. I'm looking forward to a few days from now when the " die-off " period is supposed to be over and we will hopefully see some improvements. Gaylen Quote Link to comment Share on other sites More sharing options...
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