Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 We did Valtrex, and then Famvir, for about a year and a half with the infamous Goldberg (many other things too - some quite outlandish). I don't think it made a difference. What another doctor told me that Goldberg never quite had an answer to is that 85% of the population has HHV6 in their blood - it's very common. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 What type of negative effect? > Valtrex tends have negative effects during the third week which may > last for 5-7 days. The best time to assess whether it is doing > something positive for your child is four to five weeks after > commencing it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 In a message dated 7/5/2004 1:59:57 PM Central Standard Time, gstone98@... writes: My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month on- then time off for evaluation/deciding to do another round or not. He started at 2 a day, but developed headaches. That sounds like a really low dosage and kind of strange protocol. Valtrex is usually given three times a day continuously until the body kicks in enough to kill off the virus without it. If a child has headaches or feels ill during the first 21 days, it is usually a good sign meaning that the Valtrex is hitting something. Of course, if the headaches continued past the adjustment period, perhaps another antiviral would be indicated. My son, age 12 and a skinny 68 lbs, takes 500mg Valtrex twice a day and an extra 375mg mid-day. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month on- then time off for evaluation/deciding to do another round or not. He started at 2 a day, but developed headaches. -GA Re: [ ] Tics- or PANDAS - Is my son needing specialized doctors? another EBV cite Here's another citation, noting that " Events considered to predispose to or cause recurrent tonsillitis (RT) include the misuse of antibiotic therapy in acute bouts, alterations in the microflora, structural changes in crypt epithelium and certain viral infections. Epstein-Barr Virus (EBV) infection usually occurs in early childhood and can persist in palatine tonsil lymphocytes to induce tonsillitis at a later date. " (1) Ruling out EBV seems important for your son. Amalgam-fogged memory tells me that this can be done w/o surgery. If surgery occurs, you can stridently demand that a tissue sample be saved and evaluated for EBV. 'Tis a nasty virus if persistently festering. 1: Int J Pediatr Otorhinolaryngol. 2001 Apr 6;58(1):9-15. Detection of Epstein-Barr virus in tonsillar tissue of children and the relationship with recurrent tonsillitis. Endo LH, Ferreira D, Montenegro MC, Pinto GA, Altemani A, Bortoleto AE Jr, Vassallo J. Pediatric Otorhinolaryngology Service, State University of Campinas, Campinas, Sao o, Brazil. luiza_endo@...<mailto:luiza_endo@...> Recurrent tonsillitis has been the subject of much investigation. Events considered to predispose to or cause recurrent tonsillitis (RT) include the misuse of antibiotic therapy in acute bouts, alterations in the microflora, structural changes in crypt epithelium and certain viral infections. Epstein-Barr Virus (EBV) infection usually occurs in early childhood and can persist in palatine tonsil lymphocytes to induce tonsillitis at a later date. We have examined the presence of EBV in palatine tonsils in order to assess the relationship between this virus and recurrent acute tonsillitis. Tonsils were obtained from 85 patients, 2--14 years old (mean 5.6 years old) who underwent tonsils and adenoid (T & A) removal because of recurrent tonsillitis (RT) or T & A hypertrophy (TH). Tissues specimens were processed for non-isotopic in situ hybridization (ISH) using EBER 1/2 oligonucleotides (EBER RNA). The indications for surgery were RT in 42 patients and TH in 43 patients. In 25 out of 85 cases (29.4%) a positive EBER RNA reaction (15 RT and 33 TH) was found. The chi(2)-test showed no statistically significant difference in frequency of positive results between RT and TH group. We conclude that tonsils of children can be colonized by EBV and that the virus may be implicated in RT and TH. Publication Types: Clinical Trial PMID: 11249975 [PubMed - indexed for MEDLINE] Asmus wrote: >Hi all, > >Hope everyone is well. We have been really struggling over here, so I >havent been online much... quick update. > >le (7) - My previous " NT " daughter, just diagnosed bipolar and >PDD. Armor thyroid helping food cravings with hypoglycemia somewhat~ >but frustration and explosive behavior a major problem. >Diet-enzymes-suppliments show no noticable effects to date. I am having >here krytopyrroles tested to see if she has pyrroloria(sp). > >Devon (5) - HFA - I cant believe this- but he now has tics. For a while >I thought it was a stim. I realise now- no way. He cant control them. >Whats wierd is they are primarily oral (although I think his >eyeblinking may be one as well)- and they evolve. For instance- the >first one was a quick/deep inhale while holding his mouth a certain >way. Then it seemed to switch to holding his mouth open for a very long >time, and then exhaling and saying " hey " . He would also grunt >occasionally. Now he is growling really loud- almost like clearing your >throat. We asked him if his throat hurt, and he did say no. Also- if >you copy his tic, he will get upset. If he is walking or running, he >will suddenly stop, and have a tic. Depending on the day, they rangle >from every 5 seconds to once an hour. They are getting bad! I even did >the vitamin A protocol just to see if the eyeblinking was related to >that. I thought I saw some >improvement- but I guess thats a whole other post. > >Some of you may remember me talking about his chronic tonsilitis- and >how they wanted to take is tonsils out- well that never happened and >the tonsilits hasn't gone away. This issue did arise a few months after >back to back strep infections. We have tried different things- nothing >is helping yet. I am getting close to trying homeopathy. > >I think my doctor would be willing to order whatever tests, but I dont >know if he can interpret them. Anyone out there have this happen? Have >any ideas what tests are appropriate to determine PANDAS and what >treatment works- if any? > >Thanks much, > > > > > > > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 He is a poor metabolizer of medication. And the headaches were unbelievable and about month 4. He does best with low dosages of most everything, and anything time release specific he has problems with also. His Dr is Megson- she has seen him for enough years that we together have found what dosage works for him. He flares with physical & emotional stress certain times of year and then recedes. Just was posting his info- every kid is different & as well as every doctor's protocol it seems -GA Re: [ ] Valtrex In a message dated 7/5/2004 1:59:57 PM Central Standard Time, gstone98@... writes: My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month on- then time off for evaluation/deciding to do another round or not. He started at 2 a day, but developed headaches. That sounds like a really low dosage and kind of strange protocol. Valtrex is usually given three times a day continuously until the body kicks in enough to kill off the virus without it. If a child has headaches or feels ill during the first 21 days, it is usually a good sign meaning that the Valtrex is hitting something. Of course, if the headaches continued past the adjustment period, perhaps another antiviral would be indicated. My son, age 12 and a skinny 68 lbs, takes 500mg Valtrex twice a day and an extra 375mg mid-day. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 All kids are individual. With our son, if we try to stop the Valtrex, he starts to have regressive symptoms again. Jennfer Ruston, Louisiana Re: [ ] Tics- or PANDAS - Is my son needing specialized doctors? another EBV cite Here's another citation, noting that " Events considered to predispose to or cause recurrent tonsillitis (RT) include the misuse of antibiotic therapy in acute bouts, alterations in the microflora, structural changes in crypt epithelium and certain viral infections. Epstein-Barr Virus (EBV) infection usually occurs in early childhood and can persist in palatine tonsil lymphocytes to induce tonsillitis at a later date. " (1) Ruling out EBV seems important for your son. Amalgam-fogged memory tells me that this can be done w/o surgery. If surgery occurs, you can stridently demand that a tissue sample be saved and evaluated for EBV. 'Tis a nasty virus if persistently festering. 1: Int J Pediatr Otorhinolaryngol. 2001 Apr 6;58(1):9-15. Detection of Epstein-Barr virus in tonsillar tissue of children and the relationship with recurrent tonsillitis. Endo LH, Ferreira D, Montenegro MC, Pinto GA, Altemani A, Bortoleto AE Jr, Vassallo J. Pediatric Otorhinolaryngology Service, State University of Campinas, Campinas, Sao o, Brazil. luiza_endo@...<mailto:luiza_endo@...<mailto:luiza_endo@...\ om<mailto:luiza_endo@...>> Recurrent tonsillitis has been the subject of much investigation. Events considered to predispose to or cause recurrent tonsillitis (RT) include the misuse of antibiotic therapy in acute bouts, alterations in the microflora, structural changes in crypt epithelium and certain viral infections. Epstein-Barr Virus (EBV) infection usually occurs in early childhood and can persist in palatine tonsil lymphocytes to induce tonsillitis at a later date. We have examined the presence of EBV in palatine tonsils in order to assess the relationship between this virus and recurrent acute tonsillitis. Tonsils were obtained from 85 patients, 2--14 years old (mean 5.6 years old) who underwent tonsils and adenoid (T & A) removal because of recurrent tonsillitis (RT) or T & A hypertrophy (TH). Tissues specimens were processed for non-isotopic in situ hybridization (ISH) using EBER 1/2 oligonucleotides (EBER RNA). The indications for surgery were RT in 42 patients and TH in 43 patients. In 25 out of 85 cases (29.4%) a positive EBER RNA reaction (15 RT and 33 TH) was found. The chi(2)-test showed no statistically significant difference in frequency of positive results between RT and TH group. We conclude that tonsils of children can be colonized by EBV and that the virus may be implicated in RT and TH. Publication Types: Clinical Trial PMID: 11249975 [PubMed - indexed for MEDLINE] Asmus wrote: >Hi all, > >Hope everyone is well. We have been really struggling over here, so I >havent been online much... quick update. > >le (7) - My previous " NT " daughter, just diagnosed bipolar and >PDD. Armor thyroid helping food cravings with hypoglycemia somewhat~ >but frustration and explosive behavior a major problem. >Diet-enzymes-suppliments show no noticable effects to date. I am having >here krytopyrroles tested to see if she has pyrroloria(sp). > >Devon (5) - HFA - I cant believe this- but he now has tics. For a while >I thought it was a stim. I realise now- no way. He cant control them. >Whats wierd is they are primarily oral (although I think his >eyeblinking may be one as well)- and they evolve. For instance- the >first one was a quick/deep inhale while holding his mouth a certain >way. Then it seemed to switch to holding his mouth open for a very long >time, and then exhaling and saying " hey " . He would also grunt >occasionally. Now he is growling really loud- almost like clearing your >throat. We asked him if his throat hurt, and he did say no. Also- if >you copy his tic, he will get upset. If he is walking or running, he >will suddenly stop, and have a tic. Depending on the day, they rangle >from every 5 seconds to once an hour. They are getting bad! I even did >the vitamin A protocol just to see if the eyeblinking was related to >that. I thought I saw some >improvement- but I guess thats a whole other post. > >Some of you may remember me talking about his chronic tonsilitis- and >how they wanted to take is tonsils out- well that never happened and >the tonsilits hasn't gone away. This issue did arise a few months after >back to back strep infections. We have tried different things- nothing >is helping yet. I am getting close to trying homeopathy. > >I think my doctor would be willing to order whatever tests, but I dont >know if he can interpret them. Anyone out there have this happen? Have >any ideas what tests are appropriate to determine PANDAS and what >treatment works- if any? > >Thanks much, > > > > > > > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 A Heads up for a;; these kids do not metabolize well!!!!!!!--- Cj <gstone98@...> wrote: > He is a poor metabolizer of medication. And the > headaches were unbelievable and about month 4. He > does best with low dosages of most everything, and > anything time release specific he has problems with > also. His Dr is Megson- she has seen him for > enough years that we together have found what dosage > works for him. He flares with physical & emotional > stress certain times of year and then recedes. > Just was posting his info- every kid is different & > as well as every doctor's protocol it seems > -GA > Re: [ ] Valtrex > > > In a message dated 7/5/2004 1:59:57 PM Central > Standard Time, > gstone98@... writes: > My son is 12, and 105 pounds. He takes Valtrex > 200mg once a day- one month > on- then time off for evaluation/deciding to do > another round or not. He started > at 2 a day, but developed headaches. > That sounds like a really low dosage and kind of > strange protocol. Valtrex > is usually given three times a day continuously > until the body kicks in enough > to kill off the virus without it. If a child has > headaches or feels ill > during the first 21 days, it is usually a good > sign meaning that the Valtrex is > hitting something. Of course, if the headaches > continued past the adjustment > period, perhaps another antiviral would be > indicated. > > My son, age 12 and a skinny 68 lbs, takes 500mg > Valtrex twice a day and an > extra 375mg mid-day. > Gaylen > > > [Non-text portions of this message have been > removed] > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi , My son Colin is 8 and regressed after a bout with the chicken pox at age 2. He also had high viral titers for Herpes 6 and Epstein Barr Virus. He has been on Valtrex for quite a long time. He is quite affected with Autism and did become more alert and focused while taking the Valtrex. If we try and take him off he becomes very spacey and not as focused. It has helped us. In retrospect though I would really investigate the natural antivirals that are out there before trying a drug. I wasn't aware of Laurcidin when we started Colin on the Valtrex. A word of advice would be to investigate the natural ways first. Now we are having a hard time getting him off the Valtrex!! Good luck and hope this helps!!! Kathy [ ] valtrex > > Hi, > > I am looking for parents who have used valtrex, or zovirax o tehir > children for the viral issues- herpes 6 etc. I am interested in hearing > your stories. you can feel free to email me privately. My son -9 has > viral issues and we are looking into it. > > Thank you for all your responses in advance. > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 on 11/1/04 10:47 PM, lkccpbuckley@... at lkccpbuckley@... wrote: > > Hi , > My son Colin is 8 and regressed after a bout with the chicken pox at age 2. > He also had high viral titers for Herpes 6 and Epstein Barr Virus. He has > been on Valtrex for quite a long time. He is quite affected with Autism and > did become more alert and focused while taking the Valtrex. If we try and > take him off he becomes very spacey and not as focused. It has helped us. > In retrospect though I would really investigate the natural antivirals that > are out there before trying a drug. I wasn't aware of Laurcidin when we > started Colin on the Valtrex. A word of advice would be to investigate the > natural ways first. Now we are having a hard time getting him off the > Valtrex!! Good luck and hope this helps!!! Kathy > [ ] valtrex > > >> >> Hi, >> >> I am looking for parents who have used valtrex, or zovirax o > tehir >> children for the viral issues- herpes 6 etc. I am interested in hearing >> your stories. you can feel free to email me privately. My son -9 > has >> viral issues and we are looking into it. >> >> Thank you for all your responses in advance. >> >> >> >> >> ======================================================= >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 > on 11/1/04 10:47 PM, lkccpbuckley@s... at > Hi, Thank you for your response to my mail. We used lauricidin and olive > leaf extract and saw nothing. had vry high measles titers and herpes 6 > antibodies too. I guess I would like to try to see if there is a > difference. So far as I know, high dose vitamin A is the only thing that will address measles virus. If you use Valtrex and this eliminates your child's measles virus issue, please let me know. http://www.danasview.net/vitamina.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Valtrex has been extremely helpful in treating my son's viral issues. At first, he couldn't tolerate it well -- got more hyperactive and very mouthy -- but after about 9 months on Famvir, which he did tolerate well, he was able to switch back to Valtrex with no problems and continued improvements, especially with motor problems and higher order thinking skills. He also responded well to Lauricidin with a three-week period of a die-off sort of thing followed by improvement but not nearly the improvement he's had with the rx anti-virals. He continues to take both Lauricidin and Valtrex. Prior to the lauricidin trial, he took oil of oregano for a few weeks but didn't tolerate it well. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 I believe my son's problems are more viral than anything else and this applies to all Australian autistics born after Jan 2000, so I am interested in any results with anti virals. I think Valtrex would be more effective if also combined with natural anti-virals and parents having trouble weaning their kids off Valtrex should look at adding in natural anti-virals then reducing Valtrex. There was an intersting posting re anti-viral enzymes a couple of weeks ago. I was surpised it got no response. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 , I have taken valtrex as an adult and it has worked wonders on my cold sores (HVI). I've had no side effects whatsoever, but for HVI, if I remember correctly (I haven't had a cold sore in years, yippee), you only take two pills in one day. on this list has done a lot of research into Valtrex. I believe her son was on it for a time when they were seeing Dr. Godberg and they saw improvement, though you'd have to ask her about details. Maybe attention her in your next subject line? HTH, > > Hi all, > > My son's doctor has prescribed Valtrex for EBV. I would welcome any > comments from those who have used this with what to expect - good or > bad. > > Thank you, > > Holland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 , Thank you very much. His dose is two capsules each day. I'm hoping to see some positive results - I'm just not really sure what to expect. I will search the archives to find anything might have posted about Valtrex. Thanks for mentioning her name. Blessings, > > , > > I have taken valtrex as an adult and it has worked wonders on my > cold sores (HVI). I've had no side effects whatsoever, but for HVI, > if I remember correctly (I haven't had a cold sore in years, > yippee), you only take two pills in one day. > > on this list has done a lot of research into Valtrex. I > believe her son was on it for a time when they were seeing Dr. > Godberg and they saw improvement, though you'd have to ask her about > details. Maybe attention her in your next subject line? > > HTH, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Hi Anne-Marie, Thanks for the info - I'll definitely join his group and check out other's experiences as we're also on the nasal spray. Can I ask what weight and dose of valtrex your son is on? How long do you intend to keep him on it and which doctor is overseeing it? Dr Mc has suggested 1500mg per day for Jack - split into 3 doses. With best wishes On 17/01/06, amvsi <amsife@...> wrote: Hello all and a big welcome back to Mandi!Haven't got time to post details as I have a deadline to meet BUT has been on valtrex since just after Xmas and is doingEXTREMELY well on it. No hard signs - elevated titres or anything - Itrialled it because his big crash came at 2 yrs after v nasty chickenpox. Will update later.I'd say it's worth a try if you suspect viral issues - and join StanKurtz's MB12 VALTREX group. He's a mine of information onvaltrex, nasal MB12 as well as diet.Take care Anne-MarieDISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 In a message dated 17/01/2006 12:15:28 GMT Standard Time, amsife@... writes: Hello all and a big welcome back to Mandi! >>>and hi back to you too Haven't got time to post details as I have a deadline to meet BUT has been on valtrex since just after Xmas and is doing EXTREMELY well on it. No hard signs - elevated titres or anything - I trialled it because his big crash came at 2 yrs after v nasty chicken pox. >>Sam had nasty chicken pox at 5 months...................I wnat some! Exciting about gains - be sure to keep us updated Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 If you just read a bit in the files section or in the regular posts you'll see a lot of information from people who are trying Valtrex. - Stan > > can someone give me some background on this. I actually heard about it from joining the LDN group as i am just searching around for something better than what I am doing now We did diflucan years ago after we chelated with oral DMSA-on and off for a while-saw lots of toxins come out-never seen mercury also did 6 months of DMPS-TD-never saw toxins come out from that. Limited number of tests we've done on him in years- a lot due to lack of funds. No longer have a DAN doctor I know I need to start somewhere again-I jut don't know where to start. thanks. Maurine My grandson is now 8. > > --------------------------------- > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 If you just read a bit in the files section or in the regular posts you'll see a lot of information from people who are trying Valtrex. - Stan > > can someone give me some background on this. I actually heard about it from joining the LDN group as i am just searching around for something better than what I am doing now We did diflucan years ago after we chelated with oral DMSA-on and off for a while-saw lots of toxins come out-never seen mercury also did 6 months of DMPS-TD-never saw toxins come out from that. Limited number of tests we've done on him in years- a lot due to lack of funds. No longer have a DAN doctor I know I need to start somewhere again-I jut don't know where to start. thanks. Maurine My grandson is now 8. > > --------------------------------- > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 If you just read a bit in the files section or in the regular posts you'll see a lot of information from people who are trying Valtrex. - Stan > > can someone give me some background on this. I actually heard about it from joining the LDN group as i am just searching around for something better than what I am doing now We did diflucan years ago after we chelated with oral DMSA-on and off for a while-saw lots of toxins come out-never seen mercury also did 6 months of DMPS-TD-never saw toxins come out from that. Limited number of tests we've done on him in years- a lot due to lack of funds. No longer have a DAN doctor I know I need to start somewhere again-I jut don't know where to start. thanks. Maurine My grandson is now 8. > > --------------------------------- > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Alison-- > > We have just started a 3 month course of Valtrex (Acyclovir) and > Sporanox under Dr Usman. So far, so interesting. > Has anyone else done this, and if so, > a.what did they see Only good things. It really stabilised his mood and made his speech more 'his' -- starting to move away at last from ABA style statements, repetition, and talking about things he learns sees and reads. Something more subtle than just 'increased spontaneity'. > b.what were the side effects He was tired in the beginning -- not as droopy as he gets when he chelates but somewhat drained. The only regression we saw was after 10 days on 500mg when we upped it to full dose, 750mg. Big time behavioural regression: hyper/ tongue hanging out all the time BUT it was Christmas holidays so I didn't have to worry about school AND it lasted for only a matter of days. > c.any tips on how to help the roller coaster ride. > As I said, not really a roller coaster for . No rashes, illness, just nice things. Having said that, I did take him up to full dose LDN at the same time, so Valtrex may have nothing to do with it at all! Dr H says we should break off for a while and see what happens. > I am hopeful that this will help us to tip out the viral load that our > son is carrying and therefore help chelation more effectively. We had no viral markers - just a hunch based on chicken pox as the watershed episode for us and repeated mouth ulcers. Lab work did not indicate any need for it. > He is nearly 8 so we need a big push at the moment. Read Stan Kurtz's group's posts [if you don't already ---valtrexmb12 group]. He talked me through the whole thing. Good Luck!!!! Not everybody goes through a regressive healing phase - lots of kids sail through it, or only experience a few glitches along the way. > Thanks, Alison >Take care, Anne-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Alison-- > > We have just started a 3 month course of Valtrex (Acyclovir) and > Sporanox under Dr Usman. So far, so interesting. > Has anyone else done this, and if so, > a.what did they see Only good things. It really stabilised his mood and made his speech more 'his' -- starting to move away at last from ABA style statements, repetition, and talking about things he learns sees and reads. Something more subtle than just 'increased spontaneity'. > b.what were the side effects He was tired in the beginning -- not as droopy as he gets when he chelates but somewhat drained. The only regression we saw was after 10 days on 500mg when we upped it to full dose, 750mg. Big time behavioural regression: hyper/ tongue hanging out all the time BUT it was Christmas holidays so I didn't have to worry about school AND it lasted for only a matter of days. > c.any tips on how to help the roller coaster ride. > As I said, not really a roller coaster for . No rashes, illness, just nice things. Having said that, I did take him up to full dose LDN at the same time, so Valtrex may have nothing to do with it at all! Dr H says we should break off for a while and see what happens. > I am hopeful that this will help us to tip out the viral load that our > son is carrying and therefore help chelation more effectively. We had no viral markers - just a hunch based on chicken pox as the watershed episode for us and repeated mouth ulcers. Lab work did not indicate any need for it. > He is nearly 8 so we need a big push at the moment. Read Stan Kurtz's group's posts [if you don't already ---valtrexmb12 group]. He talked me through the whole thing. Good Luck!!!! Not everybody goes through a regressive healing phase - lots of kids sail through it, or only experience a few glitches along the way. > Thanks, Alison >Take care, Anne-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Alison This is answering your post with another question! Sorry! We recently saw Dr Usman and initially she thought viral and then not. I'm intrigued as to what your tests showed? Our measles and rubella were both fine on titres - i.e. immune, not fighting but polio was slightly high. I am all for eliminating something from our enquiries but not totally sure on what basis you do that. There is an mb12 valtrex group mb12 valtrex/ where they all seem to know LOADS Steph x > > We have just started a 3 month course of Valtrex (Acyclovir) and > Sporanox under Dr Usman. So far, so interesting. > Has anyone else done this, and if so, > a.what did they see > b.what were the side effects > c.any tips on how to help the roller coaster ride. > > I am hopeful that this will help us to tip out the viral load that our > son is carrying and therefore help chelation more effectively. > He is nearly 8 so we need a big push at the moment. > Thanks, Alison > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Alison This is answering your post with another question! Sorry! We recently saw Dr Usman and initially she thought viral and then not. I'm intrigued as to what your tests showed? Our measles and rubella were both fine on titres - i.e. immune, not fighting but polio was slightly high. I am all for eliminating something from our enquiries but not totally sure on what basis you do that. There is an mb12 valtrex group mb12 valtrex/ where they all seem to know LOADS Steph x > > We have just started a 3 month course of Valtrex (Acyclovir) and > Sporanox under Dr Usman. So far, so interesting. > Has anyone else done this, and if so, > a.what did they see > b.what were the side effects > c.any tips on how to help the roller coaster ride. > > I am hopeful that this will help us to tip out the viral load that our > son is carrying and therefore help chelation more effectively. > He is nearly 8 so we need a big push at the moment. > Thanks, Alison > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 No, I just usually have an antifungal in the same concoction with the Valtrex, so I’m keeping the probiotic at least 2 hours away from the antifungal. Sorry for the confusion. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Sent: Wednesday, July 12, 2006 4:17 PM mb12 valtrex Subject: Valtrex Should Valtrex be dosed away from enzymes as well as probiotics? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 No, I just usually have an antifungal in the same concoction with the Valtrex, so I’m keeping the probiotic at least 2 hours away from the antifungal. Sorry for the confusion. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Sent: Wednesday, July 12, 2006 4:17 PM mb12 valtrex Subject: Valtrex Should Valtrex be dosed away from enzymes as well as probiotics? Thanks, Quote Link to comment Share on other sites More sharing options...
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