Guest guest Posted July 15, 2006 Report Share Posted July 15, 2006 I've been told not to give calcium with zinc as they compete for absorption. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 A) Yes, some autistic kids improve on Valtrex Many of us from the ME/CFIDS epidemic in the 80s had a sudden viral onset C) Many of us with ME/CFIDS had or have high antibodies to several Herpes viruses...EBV,CMV,HHV6 D) The CFIDS Specialist who diagnosed me in 1990 1st put me on high dose Acyclovir (same as or near Valtrex). It stopped the daily sore throat I had had for several years. E) Valtrex, low dose has many times " broken through " a relapse that nothing else will touch. F) HHV6A is still studied as a major player in ME/CFIDS (and some other diseases) G) The anti-viral Kutapressin helped alot of ME/CFIDS patients in the 90s. It has returned as Nexavir and is helping some now. Katrina > > Some autistic kids improve on valtrex, I hear. Haven't heard this > firsthand yet. > > Some on this list may have chronic upregulation of some bad viruses, > such as herpes family. Where is Sue lately? I wonder if > antivirals would help . I have a hunch they would. And there > was that article we saw a few months ago about the gancyclovir--or the > oral derivative--helping CFS. > > Once everything is out of control (the total collapse of chronic lyme > or chronic CFIDS or let's just say, chronic infection/inflammation), > viruses could play a significant role in some folks. And they are > harder to fight than bacteria once they're active, I think. You can't > 'kill' a virus that has incorporated itself into yoru DNA without > killing that particular cell too. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 See http://cfids-cab.org/MESA/Lern <http://cfids-cab.org/MESA/Lerner.html> er.html <http://cfids-cab.org/MESA/Lerner.html> under " Lerner Articales and Patent " for more info re: antivirals and CFS. On 8/11/06, kattemayo <kattemayo@...> wrote: > > A) Yes, some autistic kids improve on Valtrex > > Many of us from the ME/CFIDS epidemic in the 80s had a sudden viral onset > > C) Many of us with ME/CFIDS had or have high antibodies to several Herpes viruses...EBV,CMV,HHV6 > > D) The CFIDS Specialist who diagnosed me in 1990 1st put me on high dose Acyclovir (same as or near Valtrex). It stopped the daily sore throat I had had for several years. > > E) Valtrex, low dose has many times " broken through " a relapse that nothing else will touch. > > F) HHV6A is still studied as a major player in ME/CFIDS (and some other diseases) > > G) The anti-viral Kutapressin helped alot of ME/CFIDS patients in the 90s. It has returned as Nexavir and is helping some now. > > Katrina > > > > > > > > Some autistic kids improve on valtrex, I hear. Haven't heard this > > firsthand yet. > > > > Some on this list may have chronic upregulation of some bad viruses, > > such as herpes family. Where is Sue lately? I wonder if > > antivirals would help . I have a hunch they would. And there > > was that article we saw a few months ago about the gancyclovir--or the > > oral derivative--helping CFS. > > > > Once everything is out of control (the total collapse of chronic lyme > > or chronic CFIDS or let's just say, chronic infection/inflammation), > > viruses could play a significant role in some folks. And they are > > harder to fight than bacteria once they're active, I think. You can't > > 'kill' a virus that has incorporated itself into yoru DNA without > > killing that particular cell too. > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 How do you kill the cells with the virus in it? Is that what the antivirals do? jill1313 <jenbooks13@...> wrote: Some autistic kids improve on valtrex, I hear. Haven't heard this firsthand yet. Some on this list may have chronic upregulation of some bad viruses, such as herpes family. Where is Sue lately? I wonder if antivirals would help . I have a hunch they would. And there was that article we saw a few months ago about the gancyclovir--or the oral derivative--helping CFS. Once everything is out of control (the total collapse of chronic lyme or chronic CFIDS or let's just say, chronic infection/inflammation), viruses could play a significant role in some folks. And they are harder to fight than bacteria once they're active, I think. You can't 'kill' a virus that has incorporated itself into yoru DNA without killing that particular cell too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 I have taken both Famvir and Acyclovir in the same family. I was glad to read they cross the blood-brain barrier, where I'm sure I have virus residing. Unfortunately, I think a lot of us with CFS also have latent or active sackie viruses and enteroviruses, and I don't believe the current antivirals are effective against them. Please correct me if I am wrong. Thus the glutathione antiviral activity is attractive as a better all-around solution, possibly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 When I started the Dantini protocol in 2003, Dr. Dantini put me on Valtrex (1 mg tabs three times a day with Zantaz one hour before the am and pm tabs). I did this for about six months along with the food allergy rotation diet. The seventh month I felt like I was alive again and was able to do more than I had the previous two years. I tested positive for EBV, herpes simplex, herpes six and parvo virus. If my glands under my throat feel sore and swollen, I take the Valtrex for 2-3 days to give my body a boost and I am over whatever was bothering me. I could always tell in the past when I felt the EBV was reactivating with the swollen glands. in La Selva Beach CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 Well, I'm not sure, but I assume, viruses multiply and spill out of cells to infect new cells, and I'm assuming the antivirals somehow stop that process? Some autistic kids improve on valtrex, I hear. Haven't heard this > firsthand yet. > > Some on this list may have chronic upregulation of some bad viruses, > such as herpes family. Where is Sue lately? I wonder if > antivirals would help . I have a hunch they would. And there > was that article we saw a few months ago about the gancyclovir--or the > oral derivative--helping CFS. > > Once everything is out of control (the total collapse of chronic lyme > or chronic CFIDS or let's just say, chronic infection/inflammation), > viruses could play a significant role in some folks. And they are > harder to fight than bacteria once they're active, I think. You can't > 'kill' a virus that has incorporated itself into yoru DNA without > killing that particular cell too. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 -did u have any heart symptoms like rapid heart rate and post exertional fatigue prior to taking the Valtrex? If so, did you notice that these symptoms improved after starting the Valtrex? Thanks, Mike C > > When I started the Dantini protocol in 2003, Dr. Dantini put me on Valtrex (1 mg tabs three times a day with Zantaz one hour before the am and pm tabs). I did this for about six months along with the food allergy rotation diet. The seventh month I felt like I was alive again and was able to do more than I had the previous two years. I tested positive for EBV, herpes simplex, herpes six and parvo virus. > > If my glands under my throat feel sore and swollen, I take the Valtrex for 2-3 days to give my body a boost and I am over whatever was bothering me. I could always tell in the past when I felt the EBV was reactivating with the swollen glands. > > in La Selva Beach CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 I think that what we need to do is to determine what symptoms people had prior to being helped by Valtrex. I know that not everyone benefits from it. For example, if a PWC's problems are bacterial in nature, any antiviral shouldn't help at all. We should realize that CFS is caused by several different things, and that only a subset of us will be helped by Valtrex. For me, I had two courses of Acyclovir in the early part of my illness. While I still have post exertional fatigue, I am still working, although at about 65% of my pre-morbitiy level. I have always wondered if the antiviral (as well as IM GG) was responsible for the fact that I am not as sick as many on this list. Mike C (The reason for the second round of Acyclovir was that I had a prominent rash just below my ribs, which complicates things in that the rash may have indicated Lyme (bacterial)) > > Well, I'm not sure, but I assume, viruses multiply and spill out of > cells to infect new cells, and I'm assuming the antivirals somehow > stop that process? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 I took Valtrex for almost a year,2 per day. It did nothing to help any of my CFS symptoms but it did prevent me from getting cold sores. Since I have stopped taking it I get them worse than ever.I'm going back on it. Very expensive here. Cheers A) Yes, some autistic kids improve on Valtrex Many of us from the ME/CFIDS epidemic in the 80s had a sudden viral onset C) Many of us with ME/CFIDS had or have high antibodies to several Herpes viruses...EBV,CMV,HHV6 D) The CFIDS Specialist who diagnosed me in 1990 1st put me on high dose Acyclovir (same as or near Valtrex). It stopped the daily sore throat I had had for several years. E) Valtrex, low dose has many times " broken through " a relapse that nothing else will touch. F) HHV6A is still studied as a major player in ME/CFIDS (and some other diseases) G) The anti-viral Kutapressin helped alot of ME/CFIDS patients in the 90s. It has returned as Nexavir and is helping some now. Katrina > > Some autistic kids improve on valtrex, I hear. Haven't heard this > firsthand yet. > > Some on this list may have chronic upregulation of some bad viruses, > such as herpes family. Where is Sue lately? I wonder if > antivirals would help . I have a hunch they would. And there > was that article we saw a few months ago about the gancyclovir--or the > oral derivative--helping CFS. > > Once everything is out of control (the total collapse of chronic lyme > or chronic CFIDS or let's just say, chronic infection/inflammation), > viruses could play a significant role in some folks. And they are > harder to fight than bacteria once they're active, I think. You can't > 'kill' a virus that has incorporated itself into yoru DNA without > killing that particular cell too. > ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.10.9/417 - Release Date: 11/08/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Mike: I am fortunate to never have had any type of heart problems that I'm aware of. Yes, I did have post-exertional fatigue before I took the Valtrex, big time. I was exhausted all the time, sleeping so much I wasn't awake most of the day (part of this was also food allergy reactions). I don't remember the Valtrex helping that aspect so much except for the viral part of the equation for me, but I do know that Recuperation helped it a lot. Recup helped with energy levels, being able to sleep less at night and shorter naps, my hair and nails are stronger and grow faster, I have more desire to do things, I can work harder and longer than before, my memory is better. What I remember the Valtrex helping with is the sore throats, swollen glands, and lethargy of feeling like a virus was working on my body. That's why I take it for 2-3 days if my glands feel sore or swollen. The food allergy rotation diet helped with weight loss (but I'm gaining weight again as I eat more foods now) and the brain fog. Interesting, I rarely get sick anymore. I did have a bout of bronchial pneumonia in 2002 for three months and now have asthma and use the Advair diskus. I've tried going off it but can't do without it anymore. I cleaned my sister-in-law's house when we moved her stuff out and it was full of old dust, mold and cat hair. I live and work at a boarding high school, so am exposed to lots of stuff all year round. It's rare to get a cold or flu, when everyone around me is sick. I wash my hands lots since I work in the school cafeteria and it's a habit that may be keeping me healthier. Or is it the enhanced immune system we have with CFS/FMS? in La Selva Beach CA 50 degrees tonight on the coast of California Re: Valtrex -did u have any heart symptoms like rapid heart rate and post exertional fatigue prior to taking the Valtrex? If so, did you notice that these symptoms improved after starting the Valtrex? Thanks, Mike C > > When I started the Dantini protocol in 2003, Dr. Dantini put me on Valtrex (1 mg tabs three times a day with Zantaz one hour before the am and pm tabs). I did this for about six months along with the food allergy rotation diet. The seventh month I felt like I was alive again and was able to do more than I had the previous two years. I tested positive for EBV, herpes simplex, herpes six and parvo virus. > > If my glands under my throat feel sore and swollen, I take the Valtrex for 2-3 days to give my body a boost and I am over whatever was bothering me. I could always tell in the past when I felt the EBV was reactivating with the swollen glands. > > in La Selva Beach CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 acyclovir is almost the same as valtrex (slightly different chemical and you need to take it more times per day) and has gone generic so it should be a lot cheaper. - Bob Niederman On 8/12/06, Riley <runningwild@...> wrote: > I took Valtrex for almost a year,2 per day. > It did nothing to help any of my CFS symptoms but it did prevent me from getting > cold sores. > Since I have stopped taking it I get them worse than ever.I'm going back on it. > Very expensive here. > > Cheers > > > A) Yes, some autistic kids improve on Valtrex > > Many of us from the ME/CFIDS epidemic in the 80s had a sudden viral onset > > C) Many of us with ME/CFIDS had or have high antibodies to several Herpes viruses...EBV,CMV,HHV6 > > D) The CFIDS Specialist who diagnosed me in 1990 1st put me on high dose Acyclovir (same as or near Valtrex). It stopped the daily sore throat I had had for several years. > > E) Valtrex, low dose has many times " broken through " a relapse that nothing else will touch. > > F) HHV6A is still studied as a major player in ME/CFIDS (and some other diseases) > > G) The anti-viral Kutapressin helped alot of ME/CFIDS patients in the 90s. It has returned as Nexavir and is helping some now. > > Katrina > > > > > > Some autistic kids improve on valtrex, I hear. Haven't heard this > > firsthand yet. > > > > Some on this list may have chronic upregulation of some bad viruses, > > such as herpes family. Where is Sue lately? I wonder if > > antivirals would help . I have a hunch they would. And there > > was that article we saw a few months ago about the gancyclovir--or the > > oral derivative--helping CFS. > > > > Once everything is out of control (the total collapse of chronic lyme > > or chronic CFIDS or let's just say, chronic infection/inflammation), > > viruses could play a significant role in some folks. And they are > > harder to fight than bacteria once they're active, I think. You can't > > 'kill' a virus that has incorporated itself into yoru DNA without > > killing that particular cell too. > > > > > > > > > ------------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.405 / Virus Database: 268.10.9/417 - Release Date: 11/08/2006 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 >>Has anyone used other > anti-virals in addition to Valtrex? For example the Olive Leaf Extract, > etc.? I have never used Valtrex. For anti-virals, I have used vitamins A and C, Virastop enzyme, olive leaf extract, and Lauricidin. Be sure you have a good yeast protocol in place, because viral " die off " tends to cause a lot of yeast overgrowth. > If I may ask another question? What are you all using for immune boosters. I have used lots of vitamin A and especially vitamin C, astralagus root, and colostrum. Plus the anti-virals I listed above. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 It is a prescription anti-viral. It is normally rx'd to treat the Herpes Simplex Virus. Roe ~ Roe www.roe.cellularhealthplan.com v | The greatest gift one can give is the gift of health! v | U U U U U U ~ God is GOOD and Jesus is coming! ~ I am living to Live AGAIN! Are you? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Prescription antiviral used in the us for herpes viruses. It is marketed to treat genital herpes infection but has uses for other viruses. > > What is Valtrex? > > Mandy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 I wish I could do that but I found that high doses of melissa off., just like chamomile, spiked my hormones. Chamomile was great for putting me to sleep but bad for my hormonal status (aggravated PMS greatly). I found it had apigenin--which worked as a plant hormone as well as a quasi benzo molecule I'm not sure if melissa off. has the same but unfortunately I can't take it. There may be others though. For instance eldeberry is a good antiviral. And ech. purpurea root is a daily supplement of mine. > > Instead of Valtrex with its high cost and side effects, I used ample doses > of officinalis tincture (some storebought, some homemade) from fresh > with excellent results. I started my protocol in September 2000 > before being tested in February 2001. I have often posted details on this group. > > mjh > > > > ************************************** See what's free at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 hi what R the side effects of taking Valtrex? louella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Hi Louella, It's your old friend dncn from immunesupport. Do you mean side effects while taking it or potential side effects after the fact? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Echinacea is not good for people with autoimmune issues like Lupus. I can't take it. I do grow a whole lot of it. Echinacea should not be taken daily. It is not a nutritive herb. Meliissa officinalis is one of just a few herbs that specifically target the Herpes family of viruses. I am very thankful that in the years of my illness prior to adequate diagnosis and finding that Lerner research that (lemon balm) had gone wild in the garden, so I had fresh plant material on hand to experiment with. Its anti-viral properties are lost when dried. I do not recell that Elderberry is an effective agent with Herpes viruses. I have a couple of gallons of Elderbery tinctures in the kitchen. It is great for things like colds and flu. As well as a dessert topping, yoghurt flavoring, etc. The Elderberry I tinctures with brandy. mjh And ech. purpurea root is a daily supplement of mine. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 well both. I guess I hadn't heard of either. > > Hi Louella, It's your old friend dncn from immunesupport. Do you mean > side effects while taking it or potential side effects after the fact? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 This is just one of the links a google search for Valtrex hit. Google Valtrex, browse around, then under the first listing refine your search by clicking 'side effects.' http://www.rxlist.com/cgi/generic/valacyclovir_wcp.htm One of the things this link states is: " There are no data on the safety or effectiveness of chronic suppressive therapy of more than 1 year's duration in otherwise healthy patients. .... 6 months' duration in HIV-infected patients. " That appear to imply f/up testing for adverse side effects stopped at a year. The link above, like a lot of others, says it shouldn't be used for immunocompromised patients. Duh. The other thing that only just dawned on me is -- I never had a cold sore in my life, nor do I have genital herpes. So why in the heck was I prescribed Valtrex??? (rhetorical question, sorry) Re side effects while taking it - I didn't seem to have any, no herxing, really didn't notice anything. Tho it's fair to say that when starting it, I felt pretty much like one foot was in the grave, maybe both up to the knees, so I wouldn't necessarily have noticed feeling worse. I'll see if I have any product insert sheets that tell more, will let you know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I looked at this site. Does anyone know if valtrex or valcyte is one of the drugs effected by snps on the Genovations Detoxigenomic panel? Thanks, Kathy <txlabwrangler@...> wrote: > > This is just one of the links a google search for Valtrex hit. > Google Valtrex, browse around, then under the first listing refine > your search by clicking 'side effects.' > > http://www.rxlist.com/cgi/generic/valacyclovir_wcp.htm ....... > I'll see if I have any product insert sheets that tell more, will let you know. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 And another thing, now that you've got me thinking (thanks a lot, I'm meant to be sleeping right now lol). I tested neg for HHV6 before the doc put me on Valtrex; I didn't test pos til earlier this year. Still haven't had an outbreak (good, I'm fine with that), but it makes me wonder why the doc started me on it at all after testing neg. My assumption when finally testing pos earlier this year was the virus had gone stealth into my spinal fluid and wasn't showing in blood tests. Now I'm not so sure. Was I actually neg then and no clinical evidence i.e. cold sores? Am I pos now and not having outbreaks b/c of the lysine started pre-emptively b/c hub gets cold sores and it stops him getting them? Hmm. Well, you've really gone and done it now, my friend, got me thinking way too hard, too late at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I've been taking echinacea purpurea root from Eclectic Institute daily for years. IT is really helpful to me. The leaf doesn't do much. I didn't know you needed the fresh root of melissa. Hmmm. The reason I like Eclectic is they freeze dry many herbs, retaining most of the active fresh herb constituents. So where does one get fresh melissa? But anyway I can't tolerate the hormonal part and I have more problems with fungal issues anyway. Buhner recently noted about an herb combination I hadn't heard of for fungal issues so I may try it. I assume elderberry would work well on various viruses, if you google " elderberry viruses " you'll see fairly wide application. I was told by a researcher from Israel years ago that it actually coats the spiky protrusions of the virus so it can't penetrate the cell. Who knows. -- In , foxhillers@... wrote: > > Echinacea is not good for people with autoimmune issues like Lupus. I can't > take it. I do grow a whole lot of it. > > Echinacea should not be taken daily. It is not a nutritive herb. > > Meliissa officinalis is one of just a few herbs that specifically target the > Herpes family of viruses. I am very thankful that in the years of my > illness prior to adequate diagnosis and finding that Lerner research that > (lemon balm) had gone wild in the garden, so I had fresh plant material on > hand to experiment with. Its anti-viral properties are lost when dried. > > I do not recell that Elderberry is an effective agent with Herpes viruses. > I have a couple of gallons of Elderbery tinctures in the kitchen. It is > great for things like colds and flu. As well as a dessert topping, yoghurt > flavoring, etc. The Elderberry I tinctures with brandy. > > > mjh > > > > And ech. purpurea root is > a daily supplement of mine. > > > > > ************************************** See what's free at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2007 Report Share Posted December 29, 2007 > > Hi Everyone, > Our Dan Doctor wants us to give Valtrex a whirl for our 9 yr old son. > I'm a bit uncomfortable stirring up any viral infections that may be > learking about. I have not idea if he has any viral issues. I don't know anything about Valtrex. I eliminated viruses at my house with vitamin C, lysine, olive leaf extract, and Virastop. Those were very effective for my kids, and my son was very high virus child. Dana Quote Link to comment Share on other sites More sharing options...
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