Valtrex

[Guest guest]

Valtrex is way too strong a medication to " just give it a whirl " . Did you know

there are no long term studies done on the effects of giving this medication to

children? Herpes 6 is a common virus that doctors treat with Valtrex, in

children. However, I think the blood work should be run first to verify what

virus is an issue and which antiviral should be used. I'm not a doctor, just a

parent, but I've been down this road and it is a lot easier to make these kids

worse than it is to make them better. They're so fragile to begin with, even if

Herpes 6 is an issue, there are much gentler antivirals that can be used, and

they have higher success rates.

Valtrex

Hi Everyone,

Our Dan Doctor wants us to give Valtrex a whirl for our 9 yr old son.

I'm a bit uncomfortable stirring up any viral infections that may be

learking about. I have not idea if he has any viral issues.

Does this med come in a liquid, capsule, pill form? Can it be crushed?

[Guest guest]

My EBV reactivated in July. Started Valtrex 1 GM three times a day for 2 months

in August. No untoward side effects noted.

I am presently fairly symptom free. CFIDS symptoms minimal, FM symptoms ---

still achy and stiff in AM when I wake up, but nothing like before. IGG / IGA

deficiencies still show up in lab work so I presume this little break in

symptoms is just that and if I get overwhelmed with stressors one of the

infections could reactivate...I have 5 to choose from , Borrelia, mycoplasma,

EBV, CMV and HHV-6.

I'll just be glad for the time I have feeling well and doing normal activities

and deal with the crash when it comes.

Diane in MI

Valtrex

What is the recommended Valtrex dosage if one is showing a possible

reactivation with EBV? I found the dosage for Valcyte, but not Valtrex.

Thank you!

Also, do you need the same CBC follow up if on valtrex vs. vaclyte?

Does valtrex have the same potential risks and side effects?

.

[Guest guest]

I have reported before that I did the Dr. Dantini from Florida

protocol, which included taking Valtrex 1 gm three times daily with

Zantac one hour before the AM and PM dose to buffer the stomach. I

started this in 2003, also did a food allergy rotation diet with Dr.

Dantini. It took six months before I noticed a great improvement, and I

was able to do more in that seventh month than the two years prior. If

I feel sick (I can tell my throat glands hurt, feel swollen, etc.) I

take Valtrex for 2-3 days (and usually only 2 doses/day AM and PM) and

it kicks whatever is " bugging " me, perhaps a reactivation of the

numerous viruses I tested positive for (EBV, herpes simplex and six,

parvo). I am grateful for insurance as Valtrex at this high dose would

have been $600-800/month without insurance. I didn't do a lot of CBC

followup, just regular stuff but I never had problems with medications.

in La Selva Beach CA

now age 55 years young (sigh!) but CFS/FMS issues since childhood, now

FMS mostly

laurel3655 wrote:

>

> What is the recommended Valtrex dosage if one is showing a possible

> reactivation with EBV? I found the dosage for Valcyte, but not Valtrex.

> Thank you!

>

> Also, do you need the same CBC follow up if on valtrex vs. vaclyte?

> Does valtrex have the same potential risks and side effects?

>

> Have those on it seen any improvement?

>

> Would appreciate any input. Thanks!

>

>

[Guest guest]

Have you had your EBV levels checked recently? I ask because

mine have always shown 'not normal, possibly a recent infection',

but the doc says " well, we see people walking around w/ this levels

who are normal " .

Mike C

>

> I have reported before that I did the Dr. Dantini from

Florida

> protocol, which included taking Valtrex 1 gm three times daily with

> Zantac one hour before the AM and PM dose to buffer the stomach. I

> started this in 2003, also did a food allergy rotation diet with

Dr.

> Dantini. It took six months before I noticed a great improvement,

and I

> was able to do more in that seventh month than the two years

prior. If

> I feel sick (I can tell my throat glands hurt, feel swollen, etc.)

I

> take Valtrex for 2-3 days (and usually only 2 doses/day AM and PM)

and

> it kicks whatever is " bugging " me, perhaps a reactivation of the

> numerous viruses I tested positive for (EBV, herpes simplex and

six,

> parvo). I am grateful for insurance as Valtrex at this high dose

would

> have been $600-800/month without insurance. I didn't do a lot of

CBC

> followup, just regular stuff but I never had problems with

medications.

>

> in La Selva Beach CA

[Guest guest]

I have all the infections you mention except the borrelia (I've never

been tested for that one). My doc it interested in the Valcyte studies

but in the meantime wanted to try me on monthly injections of Gamma

Globulin. I had my first shot a few days ago. Today I have felt sooo

good. I went shopping and when I came home I didn't drop into my

recliner exhausted and in pain. I am wondering if the GG shot could be

that affective that fast. I also begin taking an iodine supplement which

he recommended to give my thyroid a boost. Of course this is one day and

we all have a good day now and then but this seems different... I mean I

feel mentally more clear and really quite " Normal " . I sure hope it

lasts. BTW I have been taking 5000mg of Vt D for some time now as well.

Gail

iane wrote:

>

> My EBV reactivated in July. Started Valtrex 1 GM three times a day for

> 2 months in August. No untoward side effects noted.

>

> I am presently fairly symptom free. CFIDS symptoms minimal, FM

> symptoms --- still achy and stiff in AM when I wake up, but nothing

> like before. IGG / IGA deficiencies still show up in lab work so I

> presume this little break in symptoms is just that and if I get

> overwhelmed with stressors one of the infections could reactivate...I

> have 5 to choose from , Borrelia, mycoplasma, EBV, CMV and HHV-6.

>

> I'll just be glad for the time I have feeling well and doing normal

> activities and deal with the crash when it comes.

> Diane in MI

> Valtrex

>

> What is the recommended Valtrex dosage if one is showing a possible

> reactivation with EBV? I found the dosage for Valcyte, but not Valtrex.

> Thank you!

>

> Also, do you need the same CBC follow up if on valtrex vs. vaclyte?

> Does valtrex have the same potential risks and side effects?

> .

>

>

[Guest guest]

Gail Ilse-Mayberry wrote:

> but in the meantime wanted to try me on monthly injections of Gamma

> Globulin. I had my first shot a few days ago. Today I have felt sooo

> good. I went shopping and when I came home I didn't drop into my

> recliner exhausted and in pain. I am wondering if the GG shot could be

> that affective that fast. I also begin taking an iodine supplement which

> he recommended to give my thyroid a boost. Of course this is one day and

> we all have a good day now and then but this seems different... I mean I

> feel mentally more clear and really quite " Normal " . I sure hope it

> lasts. BTW I have been taking 5000mg of Vt D for some time now as well.

>

What goes around comes around...

When I was first dx'd with " Chronic EBV " in 1981, I was treated with

gamma globulin and B12 shots. They helped alot, but only for a while.

In less than a year, they lost their effect (sigh). I hope you have

better luck with them than I did!

--

el (andreafrankel at sbcglobal dot net)

" wake now! Discover that YOU are the song that the morning brings... "

[Guest guest]

I took the GG shots for a number of months as well. The last I took was in

November. I think they helped me get where I am today too.

diane in MI

Valtrex

>

> What is the recommended Valtrex dosage if one is showing a possible

> reactivation with EBV? I found the dosage for Valcyte, but not Valtrex.

> Thank you!

>

> Also, do you need the same CBC follow up if on valtrex vs. vaclyte?

> Does valtrex have the same potential risks and side effects?

> .

>

>

[Guest guest]

-Dear MJH--I read your post about melissa tincture with interest. I

have high levels of various herpes viruses causing CFS. I wonder

what the dosage should be? How long did you take it before you were

better? Any information will be of great interest.

Thank-you,

-- In , foxhillers@... wrote:

>

> Instead of Valtrex with its high cost and side effects, I used

ample doses

> of officinalis tincture (some storebought, some homemade)

from fresh

> with excellent results. I started my protocol in September

2000

> before being tested in February 2001. I have often posted details

on this group.

>

> mjh

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

[Guest guest]

Jim-we are all waiting on the Valcyte (Valgancyclovir) trial being done

by Dr. Montoya in CA. I think the results should be out within the

next six weeks unless there has been a delay. Valcyte is another

antiviral with some potentially worse side effects than Valtrex.

But, Valcyte may kill some serious virii like HHV6.

Valtrex has been discussed on this list, so you may want to search

the previous posts. But stay tuned for the Valcyte news.

Mike C

>

> has anyone tried valtrex, and if so, any side-effects?

>  

> thanks,

>  

> jim

[Guest guest]

I took Valtrex, 1 gm 3 times daily (with Zantac I think 200 mg one hour

before the AM and PM doses to buffer the stomach), for my viruses that I

tested positive for through Dr. Dantini. I found him on the

internet, and even though he's in Florida and I live in California, he

does phone consults and works with your doctor. I had high levels of 4

viruses (herpes simplex, six, parvo and EBV). I took Valtrex for six

months at the high dose, then maybe for another six months at 2 per day,

now when I feel my throat glands swell and hurt I take it for 2-3 days

1-2 per day just to boost my immune system. He started taking Valtrex

when it was being tested in Europe as he had the Yuppie Flu way back

when. It helped him get over the viruses. I do know my viruses are

pretty much dormant, just reactivate when stressed or get sick with

something that's going around. I've had sore throat, swollen glands

pretty much all my life (tonsillitis back when child) and had a bad flu

(mono?) in 1970 in college, which was a problem in later years, now very

rare after taking Valtrex.

I did NOT have any problems that I know of from the Valtrex. I also did

a food allergy rotation diet at the same time (another of Dr. Dantini's

protocol) and did well the seventh month but it took that long to clean

up my system.

Hope this helps a bit.

in La Selva Beach CA

jim wrote:

>

> has anyone tried valtrex, and if so, any side-effects?

>

> thanks,

>

> jim

>

E-mail message checked by Spyware Doctor (5.5.1.322)

Database version: 5.10230e

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[Guest guest]

Yes and no side affects that I know of.

m wrote:

>

> has anyone tried valtrex, and if so, any side-effects?

>

> thanks,

>

> jim

>

>

[Guest guest]

Jim,

I took Acyclovir in high doses in early 90s, and lower doses Valtrex ever since,

as described. I've not noticed any problems.

Katrina

>

> has anyone tried valtrex, and if so, any side-effects?

>  

> thanks,

>  

> jim

>

>

>

>

>

[Guest guest]

I loved the help I got from Valtrex but am no longer on health insurance

so can't afford it. My FMS doctor, Dr. Dantini from Florida,

prescribed 1 gm taken three times a day. I took Valtrex at this level

for over a year (in 2003), then used it as a maintenance whenever I felt

like I was getting sick, took 2-3 a day for 2-3 days, especially when I

felt my throat glands getting sore. It helped a lot. I also found

great help thru my food allergy rotation diet. The first six months

were hard but that seventh month I felt so much better that I got more

done in that month than I had in two years prior. Now I am doing lysine

but it is not quite as effective for me. I don't know anything about it

being " safe, " just know I did fine with it. Dr. Dantini also has his

patients take Zantac 300 mg with the AM and PM doses to buffer the stomach.

in La Selva Beach CA

laurel3655 wrote:

>

> I was on Valcyte for about 6 months, then switched to Valtrex and will

> soon be coming up on 6 months on that as well. I might like to ask my

> doctor if I can continue on it as I did see some very slight cognitive

> improvement, I think. I wonder, though, if it is safe to be on Valtrex

> (1000mg) for longer than 6 months? Thanks.

> Laurel

>

>

[Guest guest]

From my understanding, Valtrex is safe to use for an extended period

of time. Additionally, the first patents on Valtrex expire in 2009,

which will open the window to generics and dramatically reduce prices.

[Guest guest]

I have taken Valtrex alternating with Famvir for about 10 years

continually.

Gail

bradkitt wrote:

>

> From my understanding, Valtrex is safe to use for an extended period

> of time. Additionally, the first patents on Valtrex expire in 2009,

> which will open the window to generics and dramatically reduce prices.

>

>

[Guest guest]

In a message dated 04/06/2009 10:15:13 GMT Daylight Time, editorial.hillbury@... writes:

Dr Yeoh at the Breakspeare is suggesting we give Finn a trial of Valtrex.Has anyone had any bad side effects with this. Would love to hear anypositive stories as well.

>>Sam was doing fine and dandy for 3 weeks, rash came out and then he turned very aggressive, different from gut bugs, school transport refused to take him, teacher got her glasses broken, while they were still on her face.............so we stopped at week 4 and will go again in summer hols. Commonly the first 2 or 3 weeks you don;t see much, trial per Kurtz is 6 weeks.

I am going to pre- do Zeolites (are biggest viral + so far) and LDM-100 and then add the Valtrex last week of term and hang on tight

Mandi x

[Guest guest]

In a message dated 04/06/2009 12:09:20 GMT Daylight Time, neno@... writes:

mandi, have you tried transfer factor for sam?

>>Nope but just signed up to keep the 4Life so will trey it when it gets here

also other things to boost immunity beforehand, like black cumin oil and also maybe consider Engystol homeopathic by Heel – I posted about it recently, it is available here through biopathica.com

>>Nope

few things that others have found useful for reducing valtrex negatives: gaba, serotonin (hp5 or tryptophan even), then I've also heard niacin and l-carnitine – these last are recommended to ween kids off who had problems getting off after a long time.

>>we do GABA, L-trytophan and Niacindmaide already, L-carnitine makes him bonkers, going to do the ONE test in hols, should have done it this time but 23 pages of intake form for JT is doing my head in

Mandi x

[Guest guest]

In a message dated 04/06/2009 12:16:56 GMT Daylight Time, neno@... writes:

I would second that. The doctors (who first introduced antivirals to autism) are doing these LONG term. I mean years! Sometimes antivirals are changed according to lab results or kid’s symptoms or some other things, don’t know details, but I have never heard of anyone there using these for 3 months only.

>>I was planning 9-12 months, if we can get over the hump in the holidays - fingers crossed, it was doing summat anyways

Mandi x

[Guest guest]

In a message dated 04/06/2009 14:13:45 GMT Daylight Time, editorial.hillbury@... writes:

Thanks for that Mandi, what antifungal would you use to keep the yeast under control. Reading Kurtz’s site and it talks about antivirals stirring up yeast.

>>I was using Diflucan, started a week before even though I thought he was clean, no die off so I musta been right on that one

Mandi x

[Guest guest]

Hi Alison,

Jay's been on it for a week and a half. We have had little side effects that we

can see. We have a lovely connected, gleam in the eye, talking up a storm so

far.

We got a huge push on Immunovir, wonderful results, and he is on this alongside

Valtrex. We think the presence of the Immunovir might be the reason why he's

not showing little on the negative side, but mindful of what Mandi said, it is

early days.

If you go to Stan Kurtz's website you'll see Valtrex does more in some kids than

just deal with viruses. Many kids with autism have problems with adenosine. He

explains the connection between Valtrex and adenosine in the Methylation cycle

perfectly and understandably. Here's the link.

http://www.stankurtz.com/biomedical/comprehensive-antiviral-approach.html

Adenosine is a neurotransmitter, methylator and anti-inflammatory substance

crucial in the methylation detox cycle.

Because of this, I am mindful of the rest of the balance in my son's system and

the back/forth of effect of putting in Valtrex. Researching this at the

moment.

All best and hope you get wonderful results for your little boy,

Eileen

>

> We have just started a 3 month course of Valtrex (Acyclovir) and

> Sporanox under Dr Usman. So far, so interesting.

> Has anyone else done this, and if so,

> a.what did they see

> b.what were the side effects

> c.any tips on how to help the roller coaster ride.

>

> I am hopeful that this will help us to tip out the viral load that our

> son is carrying and therefore help chelation more effectively.

> He is nearly 8 so we need a big push at the moment.

> Thanks, Alison

>

[Guest guest]

Sorry! I meant to add that a lot of kids on it (read MB12 group) and also the

DAN Doctors I have consulted say that the kids end up on it for longer than 3

months to get the real effect of it.

E x

>

> We have just started a 3 month course of Valtrex (Acyclovir) and

> Sporanox under Dr Usman. So far, so interesting.

> Has anyone else done this, and if so,

> a.what did they see

> b.what were the side effects

> c.any tips on how to help the roller coaster ride.

>

> I am hopeful that this will help us to tip out the viral load that our

> son is carrying and therefore help chelation more effectively.

> He is nearly 8 so we need a big push at the moment.

> Thanks, Alison

>

[Guest guest]

mandi, have you tried transfer factor for sam?

also other things to boost immunity beforehand, like black cumin oil and also maybe consider Engystol homeopathic by Heel – I posted about it recently, it is available here through biopathica.com

few things that others have found useful for reducing valtrex negatives: gaba, serotonin (hp5 or tryptophan even), then I've also heard niacin and l-carnitine – these last are recommended to ween kids off who had problems getting off after a long time.

nxx

In a message dated 04/06/2009 10:15:13 GMT Daylight Time, editorial.hillbury@... writes:

Dr Yeoh at the Breakspeare is suggesting we give Finn a trial of Valtrex.

Has anyone had any bad side effects with this. Would love to hear any

positive stories as well.

>>Sam was doing fine and dandy for 3 weeks, rash came out and then he turned very aggressive, different from gut bugs, school transport refused to take him, teacher got her glasses broken, while they were still on her face.............so we stopped at week 4 and will go again in summer hols. Commonly the first 2 or 3 weeks you don;t see much, trial per Kurtz is 6 weeks.

I am going to pre- do Zeolites (are biggest viral + so far) and LDM-100 and then add the Valtrex last week of term and hang on tight

Mandi x

[Guest guest]

I would second that. The doctors (who first introduced antivirals to autism) are doing these LONG term. I mean years! Sometimes antivirals are changed according to lab results or kid’s symptoms or some other things, don’t know details, but I have never heard of anyone there using these for 3 months only. There is no way a virus would be silenced enough in 3 months. Even Sta’ns kid, who had the most rapid recover ever, was on it for 9 months. He is saying the positives started to level off after about 6 months, but the doc kept him on for a little longer just in case.

Natasa x

Sorry! I meant to add that a lot of kids on it (read MB12 group) and also the DAN Doctors I have consulted say that the kids end up on it for longer than 3 months to get the real effect of it.

E x

>

> We have just started a 3 month course of Valtrex (Acyclovir) and

> Sporanox under Dr Usman. So far, so interesting.

> Has anyone else done this, and if so,

> a.what did they see

> b.what were the side effects

> c.any tips on how to help the roller coaster ride.

>

> I am hopeful that this will help us to tip out the viral load that our

> son is carrying and therefore help chelation more effectively.

> He is nearly 8 so we need a big push at the moment.

> Thanks, Alison

>

[Guest guest]

Thanks for that Mandi, what antifungal would you use to keep the yeast under control. Reading Kurtz’s site and it talks about antivirals stirring up yeast.

Thanks

Gillian

On 4/6/09 12:07, " Neno/Natasa " <neno@...> wrote:

mandi, have you tried transfer factor for sam?

also other things to boost immunity beforehand, like black cumin oil and also maybe consider Engystol homeopathic by Heel – I posted about it recently, it is available here through biopathica.com

few things that others have found useful for reducing valtrex negatives: gaba, serotonin (hp5 or tryptophan even), then I've also heard niacin and l-carnitine – these last are recommended to ween kids off who had problems getting off after a long time.

nxx

In a message dated 04/06/2009 10:15:13 GMT Daylight Time, editorial.hillbury@... writes:

Dr Yeoh at the Breakspeare is suggesting we give Finn a trial of Valtrex.

Has anyone had any bad side effects with this. Would love to hear any

positive stories as well.

>>Sam was doing fine and dandy for 3 weeks, rash came out and then he turned very aggressive, different from gut bugs, school transport refused to take him, teacher got her glasses broken, while they were still on her face.............so we stopped at week 4 and will go again in summer hols. Commonly the first 2 or 3 weeks you don;t see much, trial per Kurtz is 6 weeks.

I am going to pre- do Zeolites (are biggest viral + so far) and LDM-100 and then add the Valtrex last week of term and hang on tight

Mandi x

[Guest guest]

Thanks Mandi, Breakspear is suggesting Caprylic acid as a way to keep yeast under control. Finn’s yeast way down now. Do you think this will do the trick with Valtrex.

Gillian

On 4/6/09 14:26, " Mum231ASD@... " <Mum231ASD@...> wrote:

In a message dated 04/06/2009 14:13:45 GMT Daylight Time, editorial.hillbury@... writes:

Thanks for that Mandi, what antifungal would you use to keep the yeast under control. Reading Kurtz’s site and it talks about antivirals stirring up yeast.

>>I was using Diflucan, started a week before even though I thought he was clean, no die off so I musta been right on that one

Mandi x