Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 In a message dated 10/28/2000 6:57:16 PM Pacific Daylight Time, lbinujrsy@... writes: << << PS: Unfortunately, treatments for active HHV6 infections appear to be limited. Ganciclovir is supposed to have potential but can be toxic. Some people have claimed Lysine, Cayenne, Cell Forte IP6, Apple Cider Vinegar may be useful in suppressing. Prof. Alan Cochetto thinks Genisten, NAC, a combination of sodium selenite added to heparin, Elmiron or cayenne may be useful, as well as phyllanthus amarus/niuri, luaric acid (monlaurin), octocoasanol, barley grass, resveratol, tumeric, Efamol, Rhu Toxidendron (homeopathic), probiotics, and Listerine may be be useful in suppressing HHV6-A. >> >> Don't forget the whey proteins. I have active hhv6, and aside from kutapressin, this has been the most helpful thing (happy with both Imuplus and Immunepro).. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Could any one tell me where Dr Ablashi's office is? and his #, > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 I had this test done a month ago at the suggestion of another lymie. I had a very high positive for past infection. But no current infection. My llmd, was not concerned. Thanks for the web site, its very interesting. But I wonder if I had the infection during the time I had all my other problems that has led to my neurolical problems. So much to worry about and no real answers or reliable testing. Roe in NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 In a message dated 2/24/2002 11:29:18 PM Eastern Standard Time, dmthompson4@... writes: > they also use interferon and IgG injections, on top of the antivirals like > Valtrex. Nurse Deb- YOU ARE EXACTLY CORRECT~~ one has to address ALL co-infections....babesia, ehrlichia, bartonella, mycoplasma, HHV-6, Epstein barr, whatever before you can get better. I have said many times over~~ PLEASE do the Transfer Factor Plus, you CAN do the " Plus " because lyme is NOT an auto-immune disease!!! Please call 4-Life Co. @ 1-888-454-3374 and tell them you want to be a customer (unless you want to join and become a distributor and get $$ back). Give them my distributor # which is #5079297. It costs about $55/bottle for 60 pills (you can stretch it out for 2 mos by taking 1 pill before bed) or you can take 1 in the am, 1 before bed. Do I make $$ off of this? yes, about $5/bottle. What do I do with that $$?? Well, I donated $1,200 recently to lymenet.org because they had to close the website otherwise. Why am I telling you this?? Because I am NOT looking to profit off of anybody....if you would like, I WOULD BE MORE THAN HAPPY TO REFUND THE DIFFERENCE TO WHOMEVER. It has cost me alot of $$$ out-of-pocket to be an advocate for lyme......mailings (tons of info mailed snail mail), trips to Albany, NYC, Gettysburg, long distance phone calls, etc. I AM HERE TO HELP YOU ALL ACHIEVE WHAT I HAVE DONE. IF you could have seen me in 1998-99, even 2000, you would NOT believe I am the same person today. sue in nj sue massie PS- Sorry, the above statement about IGG---NO. It is an artificial immune builder and my LLMD says just do the Transfer Factor Plus. I have many ALS/lyme patients that DID go the IGG and did not help at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Deb: Thanks for all the valuable info you gave in your email. It makes total sense to treat the whole thing but my liver has been in a delicate position since all the meds even though I take liver enhancing supplements. I don't know how I could take all those meds at once and not slide down another hill, unknown at this moment. I want very much to try homeopathy because it is so geared to strengthening the defense of the body. Unfortunately, there is a money issue at this point in time but soon as I see blue skies ahead, I found a pretty great homeopath right in my area. Taxes are upon us and we had a major move from Ca. to Texas so I will have to wait till the storm passes and then proceed to this homeopath MD's office. I think this will be my only chance of seeing my body function once again before this lifetime is through. I think the antibiotics are so important but antibiotics won't work if the immune system is pooped out...which I think is my case. Just my take on all these miserable and yet informative years of this illness. Best wishes for blue skies ahead, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 In a message dated 7/22/2002 9:48:02 PM Eastern Daylight Time, GoodLittleDobee@... writes: > Hi! > > Just a question regarding PrincessKiara's posting regarding HHV-6. Our LLMD > just suggested my son be tested for it. What, basically, are the symptoms? > Did you already test positive for Lyme prior to the HHV-6 diagnosis? I am > just wondering how difficult HHV-6 is to treat, how tough it is to get a > positive test..in other words, if it comes back negative, should we > consider > re-testing (as we did literally dozens of times before finally getting a > positive Lyme test, though he had every symptom, plus a known tick bite.) > > Any info on HHV-6 would help me out. Thanks in advance! > > ~Judie > Hi Judie, I don't know if there are any symptoms of this to be honest. I've been sick with Lyme, Erlichia and babesia since 1992 this was just something my doctor decided to test for durring routine blood work and it happen to come back positive... As for false negatives, I don't " think " there are any of those with this.. Sorry I couldn't be more help .. Robyn In SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Robyn, Thanks for your post == actually, even THIS much info is helpful! This is the great thing about for people in my shoes...every little bit of feedback is informative. Thanks so much! Judie in Ohio, where Lyme disease does not exist... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 In a message dated 7/23/2002 8:03:27 AM Eastern Daylight Time, GoodLittleDobee@... writes: > Robyn, > > Thanks for your post == actually, even THIS much info is helpful! This is > the > great thing about for people in my shoes...every little bit of > feedback is informative. Thanks so much! > > Judie in Ohio, where Lyme disease does not exist... > uggh Judie I SO identify.. I just moved from NJ where Lyme is rampant to SC where they say " Oh we see Lyme but not alot of it state " .... I am APPAULED at the health care here.. I never realized what hell people go through in states where they don't recognize it until now I " m starting to go through it.. Good Luck to you..... Robyn In SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 In a message dated 7/23/2002 7:34:23 AM Eastern Daylight Time, PrincessKiara70@... writes: > I am > > just wondering how difficult HHV-6 is to treat, how tough it is to get a > > positive test. Dear Judee, I remember reading (I think the name of the book was " The Virus Within " ) that about 90% of the population has HHV-6, with most being asymptomatic. Hugs, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Hi a, Gosh, it makes you wonder...if that high of a percentage have HHV-6, why even test for it? Hmmm....another thing to wonder about!!!! One thing I do remember being revealed over the course of many years of expensive testing (I'm sure everyone on this list can relate to THAT!) is that my son had an extremely high parvo virus count, which was never addressed, though I brought it up several times with no real answer. Anyone else have any experience with that? Thanks, once again, Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Sue, You had it right. Dr. Lapp got it switched. Here's an abstract that talks about it (note that exanthema subitum is roseola): " Infect Agents Dis 1996 Oct;5(4):203-14 Distribution of HHV-6 variants in human tissues. Di Luca D, Mirandola P, Ravaioli T, Bigoni B, Cassai E. Institute of Microbiology, University of Ferrara, Italy. Human herpesvirus (HHV)-6 strains segregate into two variants (HHV- 6A and HHV-6B), closely related to each other but clearly and easily distinguishable. These two HHV-6 variants differ in their ability to grow in T-cell lines, have distinctive patterns of DNA restriction fragments, and show specific reactivities with some monoclonal antibodies. The degree of DNA homology between variants ranges from 97% in the most conserved region to 75% in the immediate early region 1. HHV-6B is the etiologic agent of exanthema subitum but HHV- 6A has not yet been clearly associated with any human pathology. HHV- 6 sequences are frequently detected by the polymerase chain reaction (PCR) in healthy and pathological tissues. HHV-6B is more prevalent in peripheral blood mononuclear cells and in lymphatic tissue. The prevalence of HHV-6A may be greater in some pathological conditions such as Kaposi's sarcoma, and in skin biopsies. Results so far available support the hypothesis that HHV-6 variants may have different epidemiologies. Rich > Hi all, > > Now I'm confused about HHV-6. > > According to Dr. Lapp, Dan said, " ...HHV6 subtype " a " is common in > infants (roseola) and has been associated with MS, while subtype " b " is > highly associated with CFS. " > > I had thought it was the other way around. So I chose a random google site, > and this is what it said: > > " ...Primary infection of HHV-6B is the cause of roseola in children and > greater than 95% of the population has antibodies to this variant. " > <http://www.viracor.com/HHV6/what_is.html> > > So which causes Roseola in children--A or B? > > Sue B. > upstate NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Hi all, I am new here so i need some help. I have a 12 year old son with severe autism who is non verbal, i have done most DAN protocol(except HBOT and Valtrex )with no success. I am ready to start the Valtrex for my son, 3 *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, his HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my sons blood test and found out he had positive HHV-6 in 2003 and once he had HHV-1 positive in 2004.He also had Immunoscience lab immino panel test which showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. He has a history of out of range of Neutrophilis and history of low white blood cell. I did natural anti virus with no improvement. My question is , is it worth trying Valtrex ? Any information much appreciated Bei Quote Link to comment Share on other sites More sharing options...
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