Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 Whoops! Did I just send a blank message? Sorry - I fat-fingered the keyboard. Becky - you mentioned meningiomas: << It seems that meningomas are not a popular topic on the Crew. Perhaps not many people have them. No one has really filled me in on what I can expect from those tumors (only one person whose son has them). >> I've got one on the left side of my head. I'm not sure how big it is but it apparently has not changed much over the years. The docs don't seem too worried about it. I think the effects of a meningioma vary from one person to another. For me, it doesn't bother me except once in a while I have a quick sharp pain on that side of my head - it's there, it hurts like a %$#(@, and then it's gone. I think (not sure - anyone else care to comment?) Liz had a meningioma and she was really sick - nausea, vomiting, headaches, etc. But compared to the ANs and spinal tumors, my meningioma is nothing to worry about. ) I hope this was useful info... Mike A in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 Mike and Becky, I have had meningiomas removed and I suspect there are a few lingering around still too. A meningioma is just a more specific name for a tumor. My doctor once told me that tumors are named by the type of cell they grow on. I think meningiomas and schwannamas are the most common types for us NF2 types. I would think a large percentage of us have meningiomas. I guess it is a dirty word but then again, so is tumor. > > >Whoops! Did I just send a blank message? Sorry - I fat-fingered the >keyboard. > >Becky - you mentioned meningiomas: > ><< It seems that meningomas are not a popular topic on the >Crew. Perhaps not many people have them. No one has really filled me in on >what I can expect from those tumors (only one person whose son has them). >> > >I've got one on the left side of my head. I'm not sure how big it is but it >apparently has not changed much over the years. The docs don't seem too >worried about it. I think the effects of a meningioma vary from one person >to another. For me, it doesn't bother me except once in a while I have a >quick sharp pain on that side of my head - it's there, it hurts like a >%$#(@, and then it's gone. > >I think (not sure - anyone else care to comment?) Liz had a >meningioma and she was really sick - nausea, vomiting, headaches, etc. > >But compared to the ANs and spinal tumors, my meningioma is nothing to worry >about. ) > >I hope this was useful info... > >Mike A in FL >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 >Becky - you mentioned meningiomas: > ><< It seems that meningomas are not a popular topic on the >Crew. Perhaps not many people have them. No one has really filled me in on >what I can expect from those tumors (only one person whose son has them). >> >________________ Becky: Somehow I must have missed your post. I have two meningiomas located at the top of my skull. They are just being watched. I, too, have been told that they are not as serious as other brain tumors, yet I am sure location has a lot to do with the seriousness of the meningioma. Besides monitoring the growth rate of mine, I am watching for symptoms such as getting weakness and/or numbness in my arms and legs. If you have anymore questions, feel free to yell! Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 I had one removed when I had my first AN operation. Mikey A in PITTSburgh At 04:20 PM 11/8/1999 -0500, you wrote: > > >Many if not most NF2ers have meningiomas; I have one or two, I know > has had one, etc. Mine doesn't seem to be causing problems and >doc pay no attention to it; as a matter of fact it was mentioned in previous >MRIs, but lately they haven't even mentioned it (I doubt that it >disappeared). marie > Re: Meningiomas > > >> >> >>Whoops! Did I just send a blank message? Sorry - I fat-fingered the >>keyboard. >> >>Becky - you mentioned meningiomas: >> >><< It seems that meningomas are not a popular topic on the >>Crew. Perhaps not many people have them. No one has really filled me in >on >>what I can expect from those tumors (only one person whose son has them). >>> >> >>I've got one on the left side of my head. I'm not sure how big it is but it >>apparently has not changed much over the years. The docs don't seem too >>worried about it. I think the effects of a meningioma vary from one person >>to another. For me, it doesn't bother me except once in a while I have a >>quick sharp pain on that side of my head - it's there, it hurts like a >>%$#(@, and then it's gone. >> >>I think (not sure - anyone else care to comment?) Liz had a >>meningioma and she was really sick - nausea, vomiting, headaches, etc. >> >>But compared to the ANs and spinal tumors, my meningioma is nothing to >worry >>about. ) >> >>I hope this was useful info... >> >>Mike A in FL >>------------------------------------------------------------------------ >>See what's happening for NF2Con 2000! >>http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 Many if not most NF2ers have meningiomas; I have one or two, I know has had one, etc. Mine doesn't seem to be causing problems and doc pay no attention to it; as a matter of fact it was mentioned in previous MRIs, but lately they haven't even mentioned it (I doubt that it disappeared). marie Re: Meningiomas > > >Whoops! Did I just send a blank message? Sorry - I fat-fingered the >keyboard. > >Becky - you mentioned meningiomas: > ><< It seems that meningomas are not a popular topic on the >Crew. Perhaps not many people have them. No one has really filled me in on >what I can expect from those tumors (only one person whose son has them). >> > >I've got one on the left side of my head. I'm not sure how big it is but it >apparently has not changed much over the years. The docs don't seem too >worried about it. I think the effects of a meningioma vary from one person >to another. For me, it doesn't bother me except once in a while I have a >quick sharp pain on that side of my head - it's there, it hurts like a >%$#(@, and then it's gone. > >I think (not sure - anyone else care to comment?) Liz had a >meningioma and she was really sick - nausea, vomiting, headaches, etc. > >But compared to the ANs and spinal tumors, my meningioma is nothing to worry >about. ) > >I hope this was useful info... > >Mike A in FL >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 Yes Marie you are right I had a meningioma..I believe the only reason they removed it was because they were already in the area doing the AN and the implant.All of the doctors that we talked to about it said it was small and would " probably " not grow but it was better to remove it so if it did grow later would not have to have another operation in the same area. I always hate when they say probably won't do this or that because sure enough it does do whatever. > Re: Meningiomas > > > > > >> > >> > >>Whoops! Did I just send a blank message? Sorry - I fat-fingered the > >>keyboard. > >> > >>Becky - you mentioned meningiomas: > >> > >><< It seems that meningomas are not a popular topic on the > >>Crew. Perhaps not many people have them. No one has really > filled me in > >on > >>what I can expect from those tumors (only one person whose son > has them). > >>> > >> > >>I've got one on the left side of my head. I'm not sure how big > it is but it > >>apparently has not changed much over the years. The docs don't seem too > >>worried about it. I think the effects of a meningioma vary from > one person > >>to another. For me, it doesn't bother me except once in a while I have a > >>quick sharp pain on that side of my head - it's there, it hurts like a > >>%$#(@, and then it's gone. > >> > >>I think (not sure - anyone else care to comment?) Liz had a > >>meningioma and she was really sick - nausea, vomiting, headaches, etc. > >> > >>But compared to the ANs and spinal tumors, my meningioma is nothing to > >worry > >>about. ) > >> > >>I hope this was useful info... > >> > >>Mike A in FL > >>------------------------------------------------------------------------ > >>See what's happening for NF2Con 2000! > >>http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > >------------------------------------------------------------------------ > >See what's happening for NF2Con 2000! > >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > > > > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 ï have one in my spinel( a big one if we are talking...) meningumas are tumors that involve with lots of blood cails, that why it is so hard to remove them sometime , in the spine they grow quiet slow . shwanoma is tumor (the most common one) that surrounded and can be very easily remove netta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 Hi Marie, I may seem naive but what is a meningioma? I've had tumors, but they weren't of that kind. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 Been there with the meningioma. Had it out 13 years ago a few weeks before the AN. It was pretty straight forward brain surgery ( Ha HA ) It didn't bother me, but it was there and they wanted it out to relieve pressure. It was all over in 6 hrs, and I checked out of hospital in a few days. I was told that they are usually non invasive, and common with NF2. I haven't had any more since. I have the feeling it wasn't doing too much, but I was young and easily influenced by knife wielding surgeons way back then. Reminiscing Down Under Marcus Re: Meningiomas > > >Whoops! Did I just send a blank message? Sorry - I fat-fingered the >keyboard. > >Becky - you mentioned meningiomas: > ><< It seems that meningomas are not a popular topic on the >Crew. Perhaps not many people have them. No one has really filled me in on >what I can expect from those tumors (only one person whose son has them). >> > >I've got one on the left side of my head. I'm not sure how big it is but it >apparently has not changed much over the years. The docs don't seem too >worried about it. I think the effects of a meningioma vary from one person >to another. For me, it doesn't bother me except once in a while I have a >quick sharp pain on that side of my head - it's there, it hurts like a >%$#(@, and then it's gone. > >I think (not sure - anyone else care to comment?) Liz had a >meningioma and she was really sick - nausea, vomiting, headaches, etc. > >But compared to the ANs and spinal tumors, my meningioma is nothing to worry >about. ) > >I hope this was useful info... > >Mike A in FL >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 I have 4 and for the last several years my doctoer says they are insignificant, not a problem and he wouldnt take them out unless they grew to humongous proportions. There is a book called " When the Air hit your brain " by a neuro surgeon, it is an excellent read! A few referneces to meningiomas in it and tto a neuro these are childs play when t comes to removing. I would recommend this book to anyone. Marie Drew wrote: > > > Many if not most NF2ers have meningiomas; I have one or two, I know > has had one, etc. Mine doesn't seem to be causing problems and > doc pay no attention to it; as a matter of fact it was mentioned in previous > MRIs, but lately they haven't even mentioned it (I doubt that it > disappeared). marie > Re: Meningiomas > > > > > > >Whoops! Did I just send a blank message? Sorry - I fat-fingered the > >keyboard. > > > >Becky - you mentioned meningiomas: > > > ><< It seems that meningomas are not a popular topic on the > >Crew. Perhaps not many people have them. No one has really filled me in > on > >what I can expect from those tumors (only one person whose son has them). > >> > > > >I've got one on the left side of my head. I'm not sure how big it is but it > >apparently has not changed much over the years. The docs don't seem too > >worried about it. I think the effects of a meningioma vary from one person > >to another. For me, it doesn't bother me except once in a while I have a > >quick sharp pain on that side of my head - it's there, it hurts like a > >%$#(@, and then it's gone. > > > >I think (not sure - anyone else care to comment?) Liz had a > >meningioma and she was really sick - nausea, vomiting, headaches, etc. > > > >But compared to the ANs and spinal tumors, my meningioma is nothing to > worry > >about. ) > > > >I hope this was useful info... > > > >Mike A in FL > >------------------------------------------------------------------------ > >See what's happening for NF2Con 2000! > >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 If you guys are into books, I highly recommend reading a book by P. Harvey called, " Oddessy of Hearing Loss " . I found it very interesting. Another book I liked was called, " A deaf adult speaks out " by Leo s. Cheers! Mark ----Original Message Follows---- Reply-To: NF2_Crewonelist To: <NF2_Crewonelist> Subject: Re: Meningiomas Date: Tue, 9 Nov 1999 09:49:01 -0700 Hi , I've looked around a few libraries and bookstores for this book " when the air hit your brain, " but I couldn't come up with anything. Can you give me anything else on it? > > > proportions. There is a book called " When the Air hit your brain " by a neuro > surgeon, it is an excellent read! ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 Hi , I've looked around a few libraries and bookstores for this book " when the air hit your brain, " but I couldn't come up with anything. Can you give me anything else on it? > > > proportions. There is a book called " When the Air hit your brain " by a neuro > surgeon, it is an excellent read! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 Geez, as much as I know about acoustics, I don't know much about meningiomas, except that in relation to acoustics they usually aren't a problem, unless they happen to be in a problem area. Lots of NF2 folks have them, an dkeep them! marie Re: Meningiomas >From: ManelyCat@... > >Hi Marie, > >I may seem naive but what is a meningioma? I've had tumors, but they weren't >of that kind. > >June >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 I've gotten into afew books.Yep,yep,yep.You don't walk around looking this handsome without getting into a book or two. Jimmy Re: Meningiomas > Date: Tue, 9 Nov 1999 09:49:01 -0700 > > > > Hi , > > I've looked around a few libraries and bookstores for this book " when the air > hit your brain, " but I couldn't come up with anything. Can you give me > anything else on it? > > > > > > > > > > proportions. There is a book called " When the Air hit your brain " by a > neuro > > surgeon, it is an excellent read! > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 Becky, I think we've had discussions of meningiomas in the past. I know I have " lots " currently in my head whatever " lots " means! LOL Sound like Clinton here, and I still claim to only be half crazy. Like Mike A. in Florida said, they are very slow growing. The problem arises when they get too big and start to put pressure on the brain--there's only so much room inside our skulls! I already have a ventricle shunt to ease the hydrocephlus, but when a meningioma gets too big, I start getting nauseated just from trying to shop both sides of the isle! I've shopped many times down one side and then back up the other. I've also thrown up inside the car because I could not stop in time! You will find yourself sleeping A LOT and still you're tired. I tend to have worse problems judging time when another one needs to be removed, too. MRI's and CAT scans should keep you and your dr. on top of the matter. There were 3 or 4 others identified in '80 when I had my first CT Scan. They are still in my head--still no real problem. Yes, I had a large " cluster " of meningiomas removed from my left temple first before the AN's in Nov. '80, and 3 clusters removed from the divide between the brain halves in '91. Mine seem to cause problems when they become clusters of small meningiomas! MRI's do not show them as clusters, however. I read somewhere that we women tend to have the meningioma problem more often than the men. They are definitely a " wait and see " problem! And neither removal of mine was a problem for me. I don't worry about mine but I do keep a record of any and all strange occurances--but then, I do not get regular MRI's! If you've slept for 10 to 12 hrs and you still don't want to get up and can roll over and go back to sleep, regularly; get another scan. Otherwise, keep telling those little " warts " to just keep sleeping! Hugs, ie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 1999 Report Share Posted November 9, 1999 I had a meningioma the size of a baseball removed from my noggin. My symptoms before surgery? Loss of balance and a weakness in my left leg that also made it feel kind of strange (tingly) knothead Don Re: Meningiomas From: ffusca@... ( A. Fusca) Mike and Becky, I have had meningiomas removed and I suspect there are a few lingering around still too. A meningioma is just a more specific name for a tumor. My doctor once told me that tumors are named by the type of cell they grow on. I think meningiomas and schwannamas are the most common types for us NF2 types. I would think a large percentage of us have meningiomas. I guess it is a dirty word but then again, so is tumor. > > >Whoops! Did I just send a blank message? Sorry - I fat-fingered the >keyboard. > >Becky - you mentioned meningiomas: > ><< It seems that meningomas are not a popular topic on the >Crew. Perhaps not many people have them. No one has really filled me in on >what I can expect from those tumors (only one person whose son has them). >> > >I've got one on the left side of my head. I'm not sure how big it is but it >apparently has not changed much over the years. The docs don't seem too >worried about it. I think the effects of a meningioma vary from one person >to another. For me, it doesn't bother me except once in a while I have a >quick sharp pain on that side of my head - it's there, it hurts like a >%$#(@, and then it's gone. > >I think (not sure - anyone else care to comment?) Liz had a >meningioma and she was really sick - nausea, vomiting, headaches, etc. > >But compared to the ANs and spinal tumors, my meningioma is nothing to worry >about. ) > >I hope this was useful info... > >Mike A in FL >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 In a message dated 11/10/99 7:48:29 AM Pacific Standard Time, NF2_Crewonelist writes: << I had a meningioma the size of a baseball removed from my noggin. My symptoms before surgery? Loss of balance and a weakness in my left leg that also made it feel kind of strange (tingly) knothead Don >> after your surgery to remove the meningioma did your balance improve?? I am dealing with a balance issue and although I can get around have become more and more dependant on a cane to help.I was asking DonnaHut abt this just last nite. I have heard abt the balance nerve and wud like to hear from any Crewbie that had dual AN's removed and suffered balance problems.Is there such a thing as a balance nerve and if so how close does it run to the auditory nerve? ....................Thaanks!! Jim in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 I have several meningiomas, but none that are causing problems. They took one out when I had my first a.n. surgery in '82. I'm more concerned about the tumor inside my cord from C1 to T something. The pathology report said it was either an astrocytoma or epindimoma. So far its been asymptomatic (knock on wood) but my doctor has been a little alarmed because its grown in the last few scans I've had. I can remember when all I thought I had to worry about was acoustic neuromas. After I found out they could be taken out fairly easy, I thought " this isn't so bad. " But a tumor in the cord in the neck is SCARY!!! na Re: Meningiomas Becky, I think we've had discussions of meningiomas in the past. I know I have " lots " currently in my head whatever " lots " means! LOL Sound like Clinton here, and I still claim to only be half crazy. Like Mike A. in Florida said, they are very slow growing. The problem arises when they get too big and start to put pressure on the brain--there's only so much room inside our skulls! I already have a ventricle shunt to ease the hydrocephlus, but when a meningioma gets too big, I start getting nauseated just from trying to shop both sides of the isle! I've shopped many times down one side and then back up the other. I've also thrown up inside the car because I could not stop in time! You will find yourself sleeping A LOT and still you're tired. I tend to have worse problems judging time when another one needs to be removed, too. MRI's and CAT scans should keep you and your dr. on top of the matter. There were 3 or 4 others identified in '80 when I had my first CT Scan. They are still in my head--still no real problem. Yes, I had a large " cluster " of meningiomas removed from my left temple first before the AN's in Nov. '80, and 3 clusters removed from the divide between the brain halves in '91. Mine seem to cause problems when they become clusters of small meningiomas! MRI's do not show them as clusters, however. I read somewhere that we women tend to have the meningioma problem more often than the men. They are definitely a " wait and see " problem! And neither removal of mine was a problem for me. I don't worry about mine but I do keep a record of any and all strange occurances--but then, I do not get regular MRI's! If you've slept for 10 to 12 hrs and you still don't want to get up and can roll over and go back to sleep, regularly; get another scan. Otherwise, keep telling those little " warts " to just keep sleeping! Hugs, ie ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 > > >I had a meningioma the size of a baseball removed from my noggin. My >symptoms before surgery? Loss of balance and a weakness in my left leg >that also made it feel kind of strange (tingly) This is very interesting Don. A mengioma in your head caused a left leg problem? I'm having a hard time with my left leg, which is my better leg (scary!) and thought maybe it was a lumbar tumor. In fact, I was planning to see my nuero tmrw and tell me its time to yank that thing out. Now, gosh, what if its one of the mengiomas in my head doing this? I'm confused, where exactly was this mengioma located? And did this weakness and tingly you experienced go away? Jennette [Oregon] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 ie, It is so difficult to symptomize things. From what I have been through it is hard to know what is really a symptom. I have just gotton so used to things and adapt. Yes I am tired alot but then again I have very strange and poor sleep patterns. I have always had motion sickness but this summer I got sick when I was driving! It seemed to depend on whether or not I ate and what I ate. For example, one morning I ate strawberries and had to drive an hour to a meeting. I was incredibly nauseous when I got there and had to have a scone (something solid for my stomach). another time was even worse! I did not eat but drank a diet snapple lemonade. I almost threw up that time but fortunately made it their and had a mocha to settle my stomach (has milk in it). When I was a kid I was always puking on car trips. As for the sleep and tiredness, I never did regain my energy after chemotherapy. I used to be able to pull all-nighters with ease (but then I slept it off on the weekend). I can't quite seem to recover from all-nighters anymore. Also, when I was a teen my mom was really worried because I slept a very unusual amount. I did not seem to have much energy even though I was relatively fit. I had mono at 16. So when I was finally diagnosed with cancer when I was 21, we assumed that is what caused me to sleep so much. I guess you have the best method: to keep a daily journal of how you feel. On top of that I should make a goal to try to get into a normal sleeping pattern so I can judge it better. I do have a strange thing that has been happening to me though. First thing in the morning usually I get nauseated at my first bite to eat (no I can assure you that I am not pregnant! LOL). I get this sort of awful taste in my mouth which remind me of the metallic taste I had when I was in chemo. It happens at other parts of the day and I do not recall it really happening until recently. I hate the feeling though. It is kind of repulsive. Does it sound familiar? Well thank you so much with all the great info you have provided. The doctors have never told me the symptoms (and again I asked). They just seem to think everything is ok as long as I do not mention symtoms. Well I do not know the damn symptoms! They are more focused on the ANs at this time. They are kind of fooled because I am a very young and healthy looking person. My oncologist was completely baffled when he found out I had these tumors (even though I told him how bad my hearing had gotton and the ringing). They just like to " look " and evaluate. Maybe I should start going in my sweats and not do my hair and makeup. LOL Take care and thanks! -Beck ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 , Thanks for your reply. I'm sure you are right! My understanding also is that meningiomas arise by definition from the meningeal lining of the brain, however because of the physiology of the brain it is possible for meningiomas to grow deep into the brain. The upper part of the brain is made up of two lobes (am I right .. I'm no doctor!!) which allows the lining of the brain to penetrate between the two lobes. I keep all my scans (and scan reports) at home .. this tumour is described as a " meningioma in the pineal region). I also think that a tumour measuring 3x3x3cms is very likely to be symptomatic .. but what I trying to work out at the moment is what symptoms this tumour would manifest. I have so many brain tumours .. two ANs plus numerous meningioms (thankfully only two are of a significant size) I don't know which are causing which symptoms. This tumour will only be removed if it is considered symptomtatic .. but I don't know if it is! I would not let a surgeon near me unless I was convinced I seriously needed the surgery. Thanks again Gill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 ie, I found your post interesting! You say you had 3 clusters of tumours removed from the divide between the brain .. I wonder if that is the area I've been talking about. What I find really intriguing is that you mention sleeping for 10 to 12 hours and could still go back for more! That is definitely me!! That is what I would describe as a 'weird and wonderful' symptom because sleeping is one of the few releases I get nowadays (from all the worries I'm sure we are all familiar with). What is particularly interesting is that (I understand) the pineal gland is thought to be responsible for controlling the secretion of melatonin ( a sleep hormone) ... I could be going up a 'blind alley' here, but I find it a facinating idea ….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 Been there, done that, it does indeed suck. :-) " Finch, na L. " wrote:But a tumor in the cord in > the neck is SCARY!!! > > na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 , Do you still have yours? Did you ever have surgery on it? na Re: Meningiomas Been there, done that, it does indeed suck. :-) " Finch, na L. " wrote:But a tumor in the cord in > the neck is SCARY!!! > > na ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 I thought astrocytomas were cancer???? " Finch, na L. " wrote: > The pathology report said > it was either an astrocytoma or epindimoma. Quote Link to comment Share on other sites More sharing options...
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