Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 That was on the pathology report. They may not have taken into account that I have NF2. Ok, I just found a letter in my desk (I'm at work) from a doctor at the Baylor College of Medicine in Houston that says that tumor is " most likely a glioma. " That sounds a little better, eh? na Re: Meningiomas I thought astrocytomas were cancer???? " Finch, na L. " wrote: > The pathology report said > it was either an astrocytoma or epindimoma. ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 Jim, unfortunately I don't know much about whether there is a balance nerve or not. I can tell you my own experiences though. After my meningioma surgery it took a while but my balance did come back little by little (kind of the same way it did after my AN surgeries). But after having 3 brain surgeries (2 ANs and a meningioma) my balance never returned to normal. Especially if I have to walk in the dark (I look like a drunk). Now I have 4 tumors within the C1,2 & 4 areas that are screwing up my balance so bad that I need to use a walker to steady myself. I'm currently waiting for my docs final word on surgey for these. Don (the thing that goes BUMP! in the night) Re: meningiomas From: JIM1GTE@... In a message dated 11/10/99 7:48:29 AM Pacific Standard Time, NF2_Crewonelist writes: << I had a meningioma the size of a baseball removed from my noggin. My symptoms before surgery? Loss of balance and a weakness in my left leg that also made it feel kind of strange (tingly) knothead Don >> after your surgery to remove the meningioma did your balance improve?? I am dealing with a balance issue and although I can get around have become more and more dependant on a cane to help.I was asking DonnaHut abt this just last nite. I have heard abt the balance nerve and wud like to hear from any Crewbie that had dual AN's removed and suffered balance problems.Is there such a thing as a balance nerve and if so how close does it run to the auditory nerve? ....................Thaanks!! Jim in FL ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 Jenette, when I went to my doc I figured one of the many tumors in my leg was the culprit of my problems. (NOT!) I don't know the technical name for the location of the tumor but it was basically laying on top of my brain and pressing down on it which caused the symptoms I described. My doc said meningioma surgery isn't nearly as dangerous as AN surgery which put my mind at ease. The weakness and tingling with a loss of balance didn't totally go away after surgery, but I'd say it was 80-90% better Don (who obviously has a small brain if he has enough room to store a baseball in his head) Re: Meningiomas > > >I had a meningioma the size of a baseball removed from my noggin. My >symptoms before surgery? Loss of balance and a weakness in my left leg >that also made it feel kind of strange (tingly) This is very interesting Don. A mengioma in your head caused a left leg problem? I'm having a hard time with my left leg, which is my better leg (scary!) and thought maybe it was a lumbar tumor. In fact, I was planning to see my nuero tmrw and tell me its time to yank that thing out. Now, gosh, what if its one of the mengiomas in my head doing this? I'm confused, where exactly was this mengioma located? And did this weakness and tingly you experienced go away? Jennette [Oregon] ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 When I had my first MRI. It was to find out what was causing me to have horrible migraines. I was told that I had a meningioma the size of a small potato that was causing me to have the migraines. My second meningioma was starting to grow into the artery that goes between the left and right side of the brain. It was the size of a golf ball. Then I was told I had a head full of them and they stopped counting at 10. So far I have been real lucky to not have any of them to start growing. I had the two above removed in 91. They were back to back. Jan. and Feb. of that year. I lost my smell due to the one that was giving me the migraines and my taste has been altered. Pat B from San Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 AHHHHHHHHHH Beck, don't drink or eat anything with nutrasweet. Safe or not, the stuff is bad news in my book and it gives me incredible bad reactions. DAYOOPER25@... wrote:. another time was even worse! I did not eat but drank a diet snapple lemonade. I almost threw up that time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 I had a whopper surgery on my upper neck spinal cord when i was 14. My doc at the time told me parent I would very likely be paralyzed, but I wasnt :-) This was in 84 and Im sure they have improved techniques now. I dont have any tumors there now, but the scar tissue itself has caused weakness in my hands. " Finch, na L. " wrote: > > > , > > Do you still have yours? Did you ever have surgery on it? > > na > > Re: Meningiomas > > > > Been there, done that, it does indeed suck. :-) > > > > " Finch, na L. " wrote:But a tumor in the cord in > > > the neck is SCARY!!! > > > > na > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 Yes, Big Whew here!!! astrocytoma is bad news! btw, I am getting a pocket vco, your post sold me, too cool!! " Finch, na L. " wrote: > Baylor College of Medicine in Houston that says that tumor is " most likely a > glioma. " That sounds a little better, eh? > > na > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 In a message dated 11/11/99 9:53:23 PM Eastern Standard Time, cinnyd@... writes: << a meningioma did this?? I am floored because my doctor says they are so harmless and easily removed. I guess it may have to do with the postion of it >> Well I dont mean to put the fear of anyone <g> But My mother has NF2, she also had a meningioma (several actually) she had a few removed over the years without incidient, the last one (I dont know details of where it was positioned or size) caused full left hemiparaysis like a stroke victim. Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 1999 Report Share Posted November 11, 1999 Jayne, I met you in '94 in FL at the ANA Symposium in clearwater, you were not in a wheel chair then. I am sorry to hear that you had a surgery in 96 that resulted in you having to use a wheelcahir, my qq to you is, a meningioma did this?? I am floored because my doctor says they are so harmless and easily removed. I guess it may have to do with the postion of it? Scary. How are you doing otherwise? Do you even remember me, it was me you and Kramer, we ate dinner together one night, we were the only nf2 and deafies there and we kept saying how the whole room was staring at us as if they were terrified it would happen to them! Anyhow, take care!! Henrion, clearwater, Fl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Thanks Pete, feel much better now :-) who is sitting here thinking of getting her naval peirced while I still am able to wear a midriff shirt and look half way decent :-) PeteEMT@... wrote: > From: PeteEMT@... > > In a message dated 11/11/99 9:53:23 PM Eastern Standard Time, cinnyd@... > writes: > > << a meningioma > did this?? I am floored because my doctor says they are so harmless and > easily removed. I guess it may have to do with the postion of it >> > > Well I dont mean to put the fear of anyone <g> But My mother has NF2, she > also had a meningioma (several actually) she had a few removed over the years > without incidient, the last one (I dont know details of where it was > positioned or size) caused full left hemiparaysis like a stroke victim. > > Pete > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 1999 Report Share Posted November 13, 1999 Yes , you still are able to get away with this. Ahh, to be sooo young and skinny. Just don't let that Dal get one of those claws hooked into it, that could hurt. OUCH! Mikey A in Pittsburgh At 08:28 PM 11/12/1999 -0500, you wrote: > > >Thanks Pete, feel much better now :-) > > who is sitting here thinking of getting her naval peirced while I still am >able to wear a midriff shirt and look half way decent :-) > >PeteEMT@... wrote: > >> From: PeteEMT@... >> >> In a message dated 11/11/99 9:53:23 PM Eastern Standard Time, cinnyd@... >> writes: >> >> << a meningioma >> did this?? I am floored because my doctor says they are so harmless and >> easily removed. I guess it may have to do with the postion of it >> >> >> Well I dont mean to put the fear of anyone <g> But My mother has NF2, she >> also had a meningioma (several actually) she had a few removed over the years >> without incidient, the last one (I dont know details of where it was >> positioned or size) caused full left hemiparaysis like a stroke victim. >> >> Pete >> ------------------------------------------------------------------------ >> See what's happening for NF2Con 2000! >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > Quote Link to comment Share on other sites More sharing options...
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