Re: Understanding change in behaviors

[Guest guest]

It sounds like it could be yeast. You can add an antifungal like diflucan but or

pharmacist told us you can not take diflucan w/ Ery Ped. You can use

azithromycyin and diflucan.

 

From: chocolatiluv <chocolatiluv@...>

Subject: Understanding change in behaviors

Date: Sunday, October 10, 2010, 1:49 PM

 

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

This sounds like what is often described on these boards as PANDAS but our child

took tenex for a couple of weeks and it caused blurry vision and constipation

(see side effects)

Sent from my iPhone

On Oct 10, 2010, at 1:49 PM, " chocolatiluv " <chocolatiluv@...> wrote:

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

I use Diflucan and Ery Ped together with no problems, and my pharmacist didn't

say anything about possible drug interactions. I couldn't find any

containdications on the Internet either. I know that you should take antifungals

and antibiotics at different times.

 

If anyone knows more about this, I would be interested in researching it some

more.

 

TIA,

 

Robyn 

From: chocolatiluv <chocolatiluv@...>

Subject: Understanding change in behaviors

Date: Sunday, October 10, 2010, 1:49 PM

 

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

Seems for some reason I remember Dr G explained why he can give diflucan and

ery

ped - don't remember any details though.  The question of ery ped's interaction

with diflucan and nizoral have come up several times over the years - there

might be an explanation in the old posts...

________________________________

From: Fund <susan_fund@...>

Sent: Sun, October 10, 2010 12:53:23 PM

Subject: Re: Understanding change in behaviors

 

It sounds like it could be yeast. You can add an antifungal like diflucan but or

pharmacist told us you can not take diflucan w/ Ery Ped. You can use

azithromycyin and diflucan.

 

From: chocolatiluv <chocolatiluv@...>

Subject: Understanding change in behaviors

Date: Sunday, October 10, 2010, 1:49 PM

 

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

>

> From: chocolatiluv <chocolatiluv@...>

> Subject: Understanding change in behaviors

>

> Date: Sunday, October 10, 2010, 1:49 PM

>

>  

>

> To anyone who have had this with their child or anyone with imput.

> My grandson for 3 wks. has been doing great all the positives more

focused,very happy, smiling(even though not sleeping)great interaction with

everyone, some ind. speech,eating always is off & on doing good work at school.

> Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

> The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the

eve. dose is the same 1/4 tab.

> Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

> Thanks

> Carole

>

>

[Guest guest]

Why should you take antifungals and antibiotics at different times---had not

been told this????

Understanding change in behaviors

>

> Date: Sunday, October 10, 2010, 1:49 PM

>

> Â

>

> To anyone who have had this with their child or anyone with imput.

> My grandson for 3 wks. has been doing great all the positives more

focused,very happy, smiling(even though not sleeping)great interaction with

everyone, some ind. speech,eating always is off & on doing good work at school.

> Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

> The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the

eve. dose is the same 1/4 tab.

> Lots of flu in our area maybe this is a cause but normally he is more

focused when sick. The other thing is a PANDAS flare test never show anything

although he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for

many months which has helped.

> Thanks

> Carole

>

>

[Guest guest]

Thanks, . I'll check it out!

From: chocolatiluv <chocolatiluv@...>

Subject: Understanding change in behaviors

Date: Sunday, October 10, 2010, 1:49 PM

 

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

HI Carol. 

 Sounds like those problems might be caused for a medical reason, but I thought

I would add the following.  We are throwing a lot at our children, trying to

heal their bodies and catch them up with the various therapies.  Over the

years, my son probably two times per year slips up again and starts doing things

that he had not done for a long time.  It always seems to happen after he gets

possibly burned out from working hard or senses my stress.  So finally, after

eight years of pulling my hair out when this happened, I try to back off on some

of my demands and go easy and do mostly things that he likes until it passes.

Also now, even though we have to work very hard to try to catch up, I work more

on balance and doing things he enjoys. An example is he recently got a set of

drums and really enjoys doing concerts for us.  Having something he likes is a

good carrot for having him get his work done.

 

I hope this helps, but you might also want to talk to Dr. Goldberg.  Hang in

there, I think it will pass. 

 

Lynn

From: chocolatiluv <chocolatiluv@...>

Subject: Understanding change in behaviors

Date: Sunday, October 10, 2010, 1:49 PM

 

To anyone who have had this with their child or anyone with imput.

My grandson for 3 wks. has been doing great all the positives more focused,very

happy, smiling(even though not sleeping)great interaction with everyone, some

ind. speech,eating always is off & on doing good work at school.

Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the eve.

dose is the same 1/4 tab.

Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

Thanks

Carole

[Guest guest]

> Thanks Lynn I agree with what your saying We really try to help him enjoy &

experience everything. The last 4-5 days he is not interested in anything or

us.I guess it was such a drastic change from doing so good for the 3 wks. then

back to where he was trying to understand what is going on.

Had blood drawn today hopefully this will give us some answers. I will pass

this on to my daughter.

Thanks so much for your imput

Carole

>

> From: chocolatiluv <chocolatiluv@...>

> Subject: Understanding change in behaviors

>

> Date: Sunday, October 10, 2010, 1:49 PM

>

>

>  

>

>

>

> To anyone who have had this with their child or anyone with imput.

> My grandson for 3 wks. has been doing great all the positives more

focused,very happy, smiling(even though not sleeping)great interaction with

everyone, some ind. speech,eating always is off & on doing good work at school.

> Then 4 days ago all changed he is aggressive toward others, sensory issues

again, self abusivive, sleeps issues continues having difficulty going back to

sleep this has been going on forever for this child. It is so difficult to

understand why he is having these problems now after doing so well for 3 wks.

> The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the

eve. dose is the same 1/4 tab.

> Lots of flu in our area maybe this is a cause but normally he is more focused

when sick. The other thing is a PANDAS flare test never show anything although

he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

which has helped.

> Thanks

> Carole

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Lynn,

Great advice. Sometimes we are so busy " fixing " our kids we forget they are

children that just need to be loved. When things got too crazy, we

sometimes would cancel all the therapy for a week, so I could be mommy

instead of his case manager.

Marcia

[Guest guest]

I just had a thought - don't know if it will be connected or the same for

yours... my 9yr old son has CFS (being diagnosed w/PDD now but it's just the

cognitive dysfunction and some social issues resulting from it I believe - he

was typical prior to 5 when this happened after stopping Goldberg's protocol).

We went to Disney at the beginning of this year.  My son had been feeling good,

seemed great, hadn't had any real concerns for some time.  Within 2 hrs of

walking the first day, he was begging to go back to the hotel.  By the second

day, he was crying a lot, and by the end of that day, the boy who is always the

sweetest child had punched me in the face in a rage and had several public

tantrums.  We put him in a wheelchair for the rest of the week.  He didn't

look

up or around him for a day and a half before he finally started observing

anything around him and finally having any fun.  He recovered pretty well and

was perky by the end of the week (but riding in that chair and only walking to

the ride) but it took time to get back to where he had been.

I just wonder if your son felt so good, and since is considered the same as

CFS, if he didn't have a much higher activity level?  And if he did, then up

the

tenex dose near the same time, it all tanked?  Like having a CFS crash?  I

could

suspect that a kid who is 'newer' on the protocol could take longer to recover

too.

Anyway, I do actually believe something else has set him back, likely an

illness, but I just thought of our experience in a kid who had been doing great

until he walked casually for two hours, and then just lost it for days.  And if

it isn't related to your child, thought I'd still throw it out there for kids

who seem tired that head out to Disney - those tantrums might not just be

sensory overload - might always consider a wheelchair if your kid has lower

energy or has been ill and just totally regresses.  They're worth the rental

price anyday.

________________________________

From: chocolatiluv <chocolatiluv@...>

Sent: Mon, October 11, 2010 10:25:50 PM

Subject: Re: Understanding change in behaviors

 

> Thanks Lynn I agree with what your saying We really try to help him enjoy &

>experience everything. The last 4-5 days he is not interested in anything or

>us.I guess it was such a drastic change from doing so good for the 3 wks. then

>back to where he was trying to understand what is going on.

Had blood drawn today hopefully this will give us some answers. I will pass this

on to my daughter.

Thanks so much for your imput

Carole

>

> From: chocolatiluv <chocolatiluv@...>

> Subject: Understanding change in behaviors

>

> Date: Sunday, October 10, 2010, 1:49 PM

>

>

>  

>

>

>

> To anyone who have had this with their child or anyone with imput.

> My grandson for 3 wks. has been doing great all the positives more

focused,very

>happy, smiling(even though not sleeping)great interaction with everyone, some

>ind. speech,eating always is off & on doing good work at school.

> Then 4 days ago all changed he is aggressive toward others, sensory issues

>again, self abusivive, sleeps issues continues having difficulty going back to

>sleep this has been going on forever for this child. It is so difficult to

>understand why he is having these problems now after doing so well for 3 wks.

> The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the

eve.

>dose is the same 1/4 tab.

>

> Lots of flu in our area maybe this is a cause but normally he is more focused

>when sick. The other thing is a PANDAS flare test never show anything although

>he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many months

>which has helped.

> Thanks

> Carole

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

> > Thanks Lynn I agree with what your saying We really try to help him enjoy &

> >experience everything. The last 4-5 days he is not interested in anything or

> >us.I guess it was such a drastic change from doing so good for the 3 wks.

then

> >back to where he was trying to understand what is going on.

> Had blood drawn today hopefully this will give us some answers. I will pass

this

> on to my daughter.

> Thanks so much for your imput

> Carole

> >

> > From: chocolatiluv <chocolatiluv@>

> > Subject: Understanding change in behaviors

> >

> > Date: Sunday, October 10, 2010, 1:49 PM

> >

> >

> >  

> >

> >

> >

> > To anyone who have had this with their child or anyone with imput.

> > My grandson for 3 wks. has been doing great all the positives more

focused,very

> >happy, smiling(even though not sleeping)great interaction with everyone, some

> >ind. speech,eating always is off & on doing good work at school.

> > Then 4 days ago all changed he is aggressive toward others, sensory issues

> >again, self abusivive, sleeps issues continues having difficulty going back

to

> >sleep this has been going on forever for this child. It is so difficult to

> >understand why he is having these problems now after doing so well for 3 wks.

> > The only change is the inc. in tenex Sept. 24 from 1/8 to 1/2 tab a.m. the

eve.

> >dose is the same 1/4 tab.

> >

> > Lots of flu in our area maybe this is a cause but normally he is more

focused

> >when sick. The other thing is a PANDAS flare test never show anything

although

> >he has been on Erped 1 tsp 2/day. he is 12 yrs. weighs 73 llbs. for many

months

> >which has helped.

> > Thanks

> > Carole

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >