CFS action campaign seems to be working!

[Guest guest]

this was posted by organisers:

http://www.mecfsforums.com/index.php/topic,2677.15.html

hey, folks, keep the faxes and calls coming! bob and others who are at

the CFSAC meeting in Wash DC are telling us that the campaign is having

a big impact, and we'll hear more about that today during Bob's live

testimony. sending emails, too, are great! but they are less powerful

(but still helpful) than calling and faxing. if you call, don't let

them send you off elsewhere (like the Office of Research on Women's

Health) -- make sure yr message is left with the exact office you are

calling. if you are motivated, tell them your story of illness and ask

our key question, " what have you done for cfs today? patients and their

families are waiting! " THE CAMPAIGN IS WORKING!!! DON'T STOP NOW. -- in

ME/CFS solidarity, Rivka

On the heels of the September 7, 2010, historic NIH meeting with ME/CFS

patients and their families, now is the time to let our federal health

agencies know we are expecting big changes. The more they hear from us

now, the more they'll listen to us next time we meet. Our " Time for

Action " campaign is advocacy made easy -- yet it will have a huge

impact. We ask patients, their families and friends to email, call

and/or fax NIH Director and NIAID Director Fauci with this

simple question every day, starting today.

(Please click " Add Cc " in your email and put Bob s email address

- hebs1reel@...- in the Cc: box of your email - so he can keep

track of how many emails are sent. )

Dear Directors and Fauci,

What have you done for ME/CFS today? Patients and their families are

waiting.

Name: Doe (or )

Location: Miami, FL

Time: Sick 12 years

Contact info:

1) National Institutes of Health

Director Francis

Email: collinsf@...

Cc to: hebs1reel@...

Phone: 301-496-2433

Fax: 301-402-2700

2) National Institutes of Allergy and Infectious Disease

Director Fauci

Email: afauci@...

Cc to: hebs1reel@...

Phone: 301-496-2263

Fax: 301-402-3573

For more Inspiration Check Out Our " How To " video:

Organizers: , Rivka , Charlotte von Salis

Contact: bobmiller42@...