Re: Re: east coast drs

[Guest guest]

Dear doris,

I understand that you have been following the protocol for 10 years, yet

his anxiety is so high.

I have just begun the program for my son, I want to know, what are the benefits

you have seen

Regards

Sunira

Sent from BlackBerry® on Airtel

RE: east coast drs

Other than Kathy's Clinic in upper state NY, I know of no other Dr

on the East Coast willing

to follow the line of thinking and treat our kids. I've talked

with a variety of specialists up/down

the coast to include the folks at Hopkins and Univ of Md (think: Dr

Pardu)

They all admit to an interest but without 'proof' they aren't willing to

commit. yes yes yes

I know there are dozens of articles out there supporting Dr G's work but

the Drs just aren't willing

to connect the dots...

I do have plans to approach at some time Dr Teitelbaum's clinic in

polis.

Dr T is known for his work with CFIDS. He at least believes in the

viral portion of the illness esp

where herpes viruses come into play.

We've have my son Spect'd at Dr Amen's facility in N VA and were very

disappointed

in how they do business. This was about 3-4 yrs ago. They didn't take

personal insurance

at the time; but they did take our money ($3000). There techs had no

idea how to work

with behaviorally charged kids and they had no idea how to read the

scans once they were done.

Dr G has indicated in the telephone consults that he has 'contacts' on

the East Coast who suppose his

work and efforts. But so far, I haven't been able to squeeze a name from

him.

Personally I would love to have someone on the East Coast that we could

take my son to for

a visual. He's been a patient of Dr G for 10 yrs. We used to visit Dr G

every year.

But my son's anxiety is such at this point that traveling to Calif. will

be difficult if not impossible.

We do have a local Dr who watches over my son - she gives us

prescriptions that so that we can do

mail order thus reducing some of the $$$ costs of the prescriptions like

Valtrex, Effexor and antifungals.

But she will only help us as long as we work with Dr G.

Doris

sville, MD

.................................................................................\

...............................................................

Posted by: " rglaurella@... " rlaurella@...

<mailto:rlaurella@...?Subject=%20Re%3A%20Protocol%20Doctors%20-East%20\

Coast%3F>

rglaurella@...

<rglaurellaymail>

Wed Jul 28, 2010 1:42 pm (PDT)

Please, we are very interested in the protocol for our son. Are

there any doctors following

the protocol on the east coast? Is Dr. G the only doctor? In

advance, thanks for your help.

[Guest guest]

Hey Doris,

It feels to me that the OCD/anxiety stuff can be vastly improved by , but

only time helps it.  It hasn't been a quick fix but it was a lot worse.

Unfortunately if it gets triggered by something, it will still go off, even on

the meds.  I wonder if something in his diet is doing it.

Is he taking any probiotics?  If he is, I'd urge you to pull them out right now

and see if this helps....

HTH

________________________________

From: Doris and Steve <sjsmith@...>

< >

Sent: Mon, August 2, 2010 6:00:40 PM

Subject: Re: east coast drs

 

Hi Sunira

's anxiety ebbs and flows. If we try and change his SSRI, it might

work this time and it might not.

An SSRI that should work might contain a form of casein which will set

him off.

Perhaps the mold and pollen in land is higher this spring than last

spring ...

perhaps his changing hormones are coming into play.

The protocol isn't cut and dry for every child. My son is one of

the ones Dr G refers to

as an 'interesting and challenging case' :-)

Sometimes he'll react to a medicine change the way you want him to and

sometimes he doesn't.

's history is listed on the group somewhere - but in a nutshell:

- healthy progressing child until ~18-20 mths. Lost what speech he had;

behavior increased.

- Paternal history of immune disorders (GBS, MS, IBS); possible Maternal

history of serontonin disorder.

- Started ABA at age 3. Followed DAN protocol for 1 yrs. No change.

Found Dr G at age 4 (thank you sharryl and john hemry!).

White cell count 3x the normal. Severely Anemic. Antibodies to myelin.

Bloodworkup all over the place.

- Valtrex did wonders for . His eyes became clear. SSRI helped him

to start sleeping thru the night.

Kutapressin regulated his immune system for 2-3 yrs.

- Put into public school system at age 6.5, reading and doing math at a

2nd gr level. Local autism program with 1:1 aides, slps, ots, peer

interaction.

But what always looks good isn't what it appears. When entered 4th

grade, we worked with a lawyer due

to 'severe problems in services or lack thereof'. A wonderful testing

period at Hannah school showed that had

regressed to a 1st gr level in just 3 yrs. We were given the golden

ticket to Kennedy Krieger. So far they

have turned out to be wonderful.

We used to be able to take any where. But then this OCD thing

started with flushing toilets.

Then I think an 'incident' happened somewhere. When something like this

happens, it seems to imprint

on the brain. 's SPECT scans show hyperfusion in an area I've seen

refd as 'the control stick'.

has high and low -- nothing really in between.

Overall he's an enjoyable child err teenager. He loves the

computer,reading and numbers. His memory is pretty awesome when he's on

track.

He'll turn 15 in Sept. He's my height, has a size 9 shoe and wears a

men's small/medium.Yep I'm feeling pretty old :-)

I guess I'll have to be resigned to being the shortest member in the

family (my husband is 6'5'')

Where will be in 5-10-25 yrs?

Will be ever be cured? But what is cured? Before you can cure, you have

to know how he got sick ....

doris

land

****************************************************************

Dear doris,

I understand that you have been following the protocol for 10

years, yet his anxiety is so high.

I have just begun the program for my son, I want to know, what are the

benefits you have seen

Regards

Sunira

Sent from BlackBerry® on Airtel

RE: east coast drs

Other than Kathy's Clinic in upper state NY, I know of no other Dr

on the East Coast willing

to follow the line of thinking and treat our kids. I've talked

with a variety of specialists up/down

the coast to include the folks at Hopkins and Univ of Md (think: Dr

Pardu)

They all admit to an interest but without 'proof' they aren't willing to

commit. yes yes yes

I know there are dozens of articles out there supporting Dr G's work but

the Drs just aren't willing

to connect the dots...

I do have plans to approach at some time Dr Teitelbaum's clinic in

polis.

Dr T is known for his work with CFIDS. He at least believes in the

viral portion of the illness esp

where herpes viruses come into play.

We've have my son Spect'd at Dr Amen's facility in N VA and were very

disappointed

in how they do business. This was about 3-4 yrs ago. They didn't take

personal insurance

at the time; but they did take our money ($3000). There techs had no

idea how to work

with behaviorally charged kids and they had no idea how to read the

scans once they were done.

Dr G has indicated in the telephone consults that he has 'contacts' on

the East Coast who suppose his

work and efforts. But so far, I haven't been able to squeeze a name from

him.

Personally I would love to have someone on the East Coast that we could

take my son to for

a visual. He's been a patient of Dr G for 10 yrs. We used to visit Dr G

every year.

But my son's anxiety is such at this point that traveling to Calif. will

be difficult if not impossible.

We do have a local Dr who watches over my son - she gives us

prescriptions that so that we can do

mail order thus reducing some of the $$$ costs of the prescriptions like

Valtrex, Effexor and antifungals.

But she will only help us as long as we work with Dr G.

Doris

sville, MD