Guest guest Posted August 9, 2010 Report Share Posted August 9, 2010 Hi , I too am from the Austin area and I know a patient of Dr. 's. I know that Dr. knows of Dr. Goldberg, but his methods are different enough that he would not be able to call himself a doctor. He is not as aggressive with the antiviral as Dr. Goldberg, prescribing them on an " as needed " basis, wheras Dr. Goldberg prescribes them longer term. This patient I referred to before is a friend's daughter. After quite a bit of trouble, she was determined to need long term antivirals (all these kids do, in my opinion) and is finally getting the meds she needs. My friend's daughter has had trouble with Dr. 's office returning phone calls as they are very disorganized. She has also been told that her daughter needs ongoing labwork, but they do not send lab orders, leaving her to remember for herself and have to call the office, which as I mentioned before, she's been having trouble hearing back. (week long waits for a callback!) With her being a type case herself, she is not organized enough herself to have charge of realizing when her daughter needs medications or lab orders. In the case of Dr. Goldberg, you send weekly updates and he and his wonderful staff stay on top of whether medications are being effective and when labwork is required. So long story short, Dr. 's office may get you the care you need and they are closer to home. You would need to stay on top of them to make sure that your child is getting the care they need. Also Dr. Goldberg does not recommend most supplements as there could very likely be ingredients that cause allergic reactions in those with compromised immune systems, so there is some basic treatment disagreement there. We choose Dr. Goldberg and have not regretted it, but you need to make the decision that best fits your family's needs. My best to you and yours, April On Sat, Aug 7, 2010 at 2:17 AM, <brd5@...> wrote: > > > Hey all, just joined this list after learning about Dr. Goldberg from > another parent a week or two ago. I am leaning toward this method of > treatment, but am not 100% yet. I would most likely go to see Dr. > in south Texas (we are in Ft. Worth). But there is a center > here run by Dr. Kendal (though he is mostly at the Austin > location and has limited appts at this one) called Neurosensory Center > http://www.neurosensorycenters.com/ that I think does something very > similar. > > We actually went to an initial screening with the NSC, but at the time > I wasn't that well informed about any of this stuff, so the doc (not > dr. stewart, this was a D.O.) was talking over our heads. He gave us > lab orders for testing and prescribed some antivirals. We didn't do > any of it because we weren't sure about it at the time and mostly > because we had gone there hoping to find info about our daughter > through their proprietary neurosensory testing mechanisms. She is 2.5 > and as of yet undiagnosed, but she did fall as mild/moderate on a CARS > test and has some sensory issues. Well, since she's a non-verbal 2 > year old, she won't stand on the balance platform, wear the goggles, > etc. They tried to do the cochlear test by putting earphone type > things in her ears and getting measurements. Of course, she was > crying the entire time. So we were let down that they didn't tell us > over the phone that they wouldn't be able to do any of the testing. > (I've since heard dr. stewart say on his podcast that they use the > readings from these tests to determine when they can finish the > antivirals, which makes them better than just a DAN giving antivirals) > > I haven't seen Dr. say their center does , but it seems an > awful lot like it. Antivirals + antifungals. Although they then call > for topical mb12 and maybe some other supplements. They talk about > methylation a lot. (that's mostly what made us glaze over during the > consult) And they do talk about cleaning up the GI with probiotics & > enzymes, and also gfcf and omega3's, etc. Whereas best I can tell > is antivirals, antifungals, + SSRI with maybe diet? > > I tried searching the archives, but didn't come up with anything but a > few posts from 2003'ish. Does anyone here have experience with or > know about the NSC and Dr. ? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I know several people who have taken their children to Dr. with varying results. While he does use some of the same medicines, his approach is not . doctors do prescribe antiviral, antifungal and SSRI meds, but also work to " cool down " the immune system by reducing exposures to things that individuals over-react to (foods, inhalants, supplements) and treat some other things (ie: strep) on a case by case basis depending on what is messing with the immune system. Gaylen In a message dated 8/9/2010 10:38:21 A.M. Central Daylight Time, april@... writes: Hi , I too am from the Austin area and I know a patient of Dr. 's. I know that Dr. knows of Dr. Goldberg, but his methods are different enough that he would not be able to call himself a doctor. He is not as aggressive with the antiviral as Dr. Goldberg, prescribing them on an " as needed " basis, wheras Dr. Goldberg prescribes them longer term. This patient I referred to before is a friend's daughter. After quite a bit of trouble, she was determined to need long term antivirals (all these kids do, in my opinion) and is finally getting the meds she needs. My friend's daughter has had trouble with Dr. 's office returning phone calls as they are very disorganized. She has also been told that her daughter needs ongoing labwork, but they do not send lab orders, leaving her to remember for herself and have to call the office, which as I mentioned before, she's been having trouble hearing back. (week long waits for a callback!) With her being a type case herself, she is not organized enough herself to have charge of realizing when her daughter needs medications or lab orders. In the case of Dr. Goldberg, you send weekly updates and he and his wonderful staff stay on top of whether medications are being effective and when labwork is required. So long story short, Dr. 's office may get you the care you need and they are closer to home. You would need to stay on top of them to make sure that your child is getting the care they need. Also Dr. Goldberg does not recommend most supplements as there could very likely be ingredients that cause allergic reactions in those with compromised immune systems, so there is some basic treatment disagreement there. We choose Dr. Goldberg and have not regretted it, but you need to make the decision that best fits your family's needs. My best to you and yours, April On Sat, Aug 7, 2010 at 2:17 AM, <brd5@...> wrote: > > > Hey all, just joined this list after learning about Dr. Goldberg from > another parent a week or two ago. I am leaning toward this method of > treatment, but am not 100% yet. I would most likely go to see Dr. > in south Texas (we are in Ft. Worth). But there is a center > here run by Dr. Kendal (though he is mostly at the Austin > location and has limited appts at this one) called Neurosensory Center > http://www.neurosensorycenters.com/ that I think does something very > similar. > > We actually went to an initial screening with the NSC, but at the time > I wasn't that well informed about any of this stuff, so the doc (not > dr. stewart, this was a D.O.) was talking over our heads. He gave us > lab orders for testing and prescribed some antivirals. We didn't do > any of it because we weren't sure about it at the time and mostly > because we had gone there hoping to find info about our daughter > through their proprietary neurosensory testing mechanisms. She is 2.5 > and as of yet undiagnosed, but she did fall as mild/moderate on a CARS > test and has some sensory issues. Well, since she's a non-verbal 2 > year old, she won't stand on the balance platform, wear the goggles, > etc. They tried to do the cochlear test by putting earphone type > things in her ears and getting measurements. Of course, she was > crying the entire time. So we were let down that they didn't tell us > over the phone that they wouldn't be able to do any of the testing. > (I've since heard dr. stewart say on his podcast that they use the > readings from these tests to determine when they can finish the > antivirals, which makes them better than just a DAN giving antivirals) > > I haven't seen Dr. say their center does , but it seems an > awful lot like it. Antivirals + antifungals. Although they then call > for topical mb12 and maybe some other supplements. They talk about > methylation a lot. (that's mostly what made us glaze over during the > consult) And they do talk about cleaning up the GI with probiotics & > enzymes, and also gfcf and omega3's, etc. Whereas best I can tell > is antivirals, antifungals, + SSRI with maybe diet? > > I tried searching the archives, but didn't come up with anything but a > few posts from 2003'ish. Does anyone here have experience with or > know about the NSC and Dr. ? > > Thanks, > > > [Non-text portions of this message have been removed] ------------------------------------ Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute, the Parent Coalition, or the list moderator(s). Groups Links Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.