Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Marcia is stirring up a DAN list! ----- Forwarded Message ---- From: and Marcia Hinds <hindssite@...> mb12 valtrex Sent: Wed, August 25, 2010 9:18:30 AM Subject: [mb12 valtrex] Topics for the mb12 valtrex list Cheryl, Your post concerns me. Aren’t we all here for the same thing? To find answers for kids with Autism. Bill is simply stating research and what worked for his kid and has no financial incentive for doing so. I can’t say the same for Stan Kurtz (who also was a patient of Goldberg). He is making a living off his kid’s autism. It infuriates me that he is not a medical doctor and yet I’m told charges $200/hour for a consult with parents. What is wrong with this picture? Those of us following the protocol have nothing to gain by posting here. We just want to help kids. I once made a promise to God. You make mine better and I will work to make them all better. So I have to live up to my end of the bargain. McCarthy in her own book admitted that her son was not doing well but she was going on TV promoting her parenting book to bring in the bacon. You openly admit that Dr. G helped your kid. I understand why you left. Dr. G can be difficult to work with. I left myself for several years after getting tired of arguing with Dr.G. But the reality is, he is right in his medical protocol and the best at the medical issues. I still don’t agree with him behaviorally or educationally. But if even one kid benefits from what Bill said it should be posted. Open discussion and dialogue and difference of opinion is the how things should work on any list. Marcia Hinds I'm going to have to say that I'm going to have to defer to the title of the list here. Everyone that joins this list has an opportunity to read the home page description. This list is to discuss biomedical treatment options and is for those looking at MB12, HBOT, Chelation, etc. Sooo, my point here is that this is not the place for this discussion. Please take it to the list or offlist. Just in case anyone has forgotten, here is an excerpt from the message on the Home Page: This private research group, started by Stan Kurtz, a parent of a recovered child, offers parent support for people who are interested in the new Revitapop Methylcobalamin (MB12) Lollipop, nasal spray MB12, Valtrex, natural antivirals, virastop, Olive Leaf Extract (OLE), LDM100, antifungal therapy, bacterial therapy, Hyperbaric Oxygen Therapy (HBOT), and diet for anti-infectious therapy and chronic illness including autism, ADHD, fibromyalgia, asthma, eczema, chronic fatigue, hypotonia, mitochondrial dysfunction or disorder, sensory integration dysfunction, dyslexia and other chronic illness. If these things do not apply to you, I'm not sure what made you join the list. I don't want to hear any more about how supps are bad, b12 is bad, chelation is bad, etc. If there's something constructive to say regarding any of these things, feel free to do so, if you have experience with these things, feel free to say it. But no more discussion of how everything is wrong but . I'm done moderating it, I'm done getting the complaints. This list is for those that are actually doing those things and I'm not going to continue reminding people of that. If you are looking to discuss , there's a list for that and they are very supportive and willing to help and answer questions. I know because I used to be on it. There was nothing particularly wrong with Bill's post. I'm not mad, I'm just tired of dealing with this. I'm tired of having to remind people that while may not like these things, this is not a list and I would appreciate it if the attempt to turn it into one would end. I'm not killing my son by giving him Vitamin C, thankyouverymuch. It's over. No mas. Anyone interested can join the list, there's no law that says people can't join multiple lists (I myself belong to about 20). But take the discussion there or offlist. I will start moderating people and deleting posts. If I have to delete too many posts, I will start removing members. I repeat, this is *not* a list. Take it there, please. But I did appreciate Dr. Klimas's explanation, very informative. I wish it had been left at that and this e-mail didn't have to be written. Cheryl ~http://www.gryffins-tail.blogspot.com <http://www.gryffins-tail.blogspot.com> Quote Link to comment Share on other sites More sharing options...
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