Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 > My name is Angelia, and I'm new here. > Could someone give me any suggestions as to what I can do. Hi Angelina. Try the files section of this group and look at Guidelines. 's book Enzymes for Autism and Other Neurological Conditions is very good. Peptizyde worked very well for both my daughters who used to have chronic constipation. It targets proteins and works for gluten since your daughter eats a lot of wheat. Serena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi There are a few different protocols for AP. I know for me the hands did not get better on minocin alone.You are on the protocol a short time though. Are you on 3x aweek or ev day..and how much? That can be altered according to each person.There is no one size fits all with ap. When I added the flagyl, the hands and feet did very well. The docs are prescribing as low as 250 mg per day of flagyl.I took 500mg a day but that just may be the little edge you need. If you need any articles about the use of flagyl and minocin together I have 2 I can share with you. Just email me. Marge > Hello, > > I have been on antibiotic therapy for 9 months and love it, I feel > like I got a life again. Just had new hand/wrist x-rays taken and it > seems the progression has stopped and there are no changes compared > to the ones 15 months ago. Although I do not show destruction in the > wrists yet (other than some intra-carpal cysts) that is still the > place that bothers me. I still cannot put any weight on my > outstreched hands (such as to lift myself up from the floor or a > chair, etc) this is particularly disturbing since I am a > chiropractor and need my wrists. Any thought or experience as to > whether that may change in the future? Everything else seems stable > (fingers and other joints) and having reached a plateau where I am > actually considering cutting down the AB... > Any thoughts or experience? > By the way, I have been taking Florastor which does not need to be > refrigerated and have no GI problems at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 I now also use ONLY Flagyl, and see a world of difference. I had run out of Minocin, and had purchased Flagyl over the Internet, as people were talking about the " cocktail " . Within a month I noticed my hyperpigmentation disappearing, and my swelling is starting to disappear as well. Prior to Flagyl, I was going in for Rocphien IVs , and celation w/H202 once a month, and taking minocin 3 times a day. Now I just take Flagyl twice a day mon, weds, and Fri., and the other days just once a day. I can now see a marked improvement. elfmarge <Elfmarge@...> wrote: Hi There are a few different protocols for AP. I know for me the hands did not get better on minocin alone.You are on the protocol a short time though. Are you on 3x aweek or ev day..and how much? That can be altered according to each person.There is no one size fits all with ap. When I added the flagyl, the hands and feet did very well. The docs are prescribing as low as 250 mg per day of flagyl.I took 500mg a day but that just may be the little edge you need. If you need any articles about the use of flagyl and minocin together I have 2 I can share with you. Just email me. Marge > Hello, > > I have been on antibiotic therapy for 9 months and love it, I feel > like I got a life again. Just had new hand/wrist x-rays taken and it > seems the progression has stopped and there are no changes compared > to the ones 15 months ago. Although I do not show destruction in the > wrists yet (other than some intra-carpal cysts) that is still the > place that bothers me. I still cannot put any weight on my > outstreched hands (such as to lift myself up from the floor or a > chair, etc) this is particularly disturbing since I am a > chiropractor and need my wrists. Any thought or experience as to > whether that may change in the future? Everything else seems stable > (fingers and other joints) and having reached a plateau where I am > actually considering cutting down the AB... > Any thoughts or experience? > By the way, I have been taking Florastor which does not need to be > refrigerated and have no GI problems at all. To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Be sure to get liver tests! I started Flagyl but had to stop because of elevated liver enzymes. -Mike- Re: rheumatic Re: New to the group... I now also use ONLY Flagyl, and see a world of difference. I had run out of Minocin, and had purchased Flagyl over the Internet, as people were talking about the " cocktail " . Within a month I noticed my hyperpigmentation disappearing, and my swelling is starting to disappear as well. Prior to Flagyl, I was going in for Rocphien IVs , and celation w/H202 once a month, and taking minocin 3 times a day. Now I just take Flagyl twice a day mon, weds, and Fri., and the other days just once a day. I can now see a marked improvement. elfmarge <Elfmarge@...> wrote: Hi There are a few different protocols for AP. I know for me the hands did not get better on minocin alone.You are on the protocol a short time though. Are you on 3x aweek or ev day..and how much? That can be altered according to each person.There is no one size fits all with ap. When I added the flagyl, the hands and feet did very well. The docs are prescribing as low as 250 mg per day of flagyl.I took 500mg a day but that just may be the little edge you need. If you need any articles about the use of flagyl and minocin together I have 2 I can share with you. Just email me. Marge > Hello, > > I have been on antibiotic therapy for 9 months and love it, I feel > like I got a life again. Just had new hand/wrist x-rays taken and it > seems the progression has stopped and there are no changes compared to > the ones 15 months ago. Although I do not show destruction in the > wrists yet (other than some intra-carpal cysts) that is still the > place that bothers me. I still cannot put any weight on my outstreched > hands (such as to lift myself up from the floor or a chair, etc) this > is particularly disturbing since I am a chiropractor and need my > wrists. Any thought or experience as to whether that may change in the > future? Everything else seems stable (fingers and other joints) and > having reached a plateau where I am actually considering cutting down > the AB... > Any thoughts or experience? > By the way, I have been taking Florastor which does not need to be > refrigerated and have no GI problems at all. To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 how often do you recommend getting the liver test, as I had heard it could elevate the liver enzymes? Mike Stahl <mstahl@...> wrote:Be sure to get liver tests! I started Flagyl but had to stop because of elevated liver enzymes. -Mike- Re: rheumatic Re: New to the group... I now also use ONLY Flagyl, and see a world of difference. I had run out of Minocin, and had purchased Flagyl over the Internet, as people were talking about the " cocktail " . Within a month I noticed my hyperpigmentation disappearing, and my swelling is starting to disappear as well. Prior to Flagyl, I was going in for Rocphien IVs , and celation w/H202 once a month, and taking minocin 3 times a day. Now I just take Flagyl twice a day mon, weds, and Fri., and the other days just once a day. I can now see a marked improvement. elfmarge wrote: Hi There are a few different protocols for AP. I know for me the hands did not get better on minocin alone.You are on the protocol a short time though. Are you on 3x aweek or ev day..and how much? That can be altered according to each person.There is no one size fits all with ap. When I added the flagyl, the hands and feet did very well. The docs are prescribing as low as 250 mg per day of flagyl.I took 500mg a day but that just may be the little edge you need. If you need any articles about the use of flagyl and minocin together I have 2 I can share with you. Just email me. Marge > Hello, > > I have been on antibiotic therapy for 9 months and love it, I feel > like I got a life again. Just had new hand/wrist x-rays taken and it > seems the progression has stopped and there are no changes compared to > the ones 15 months ago. Although I do not show destruction in the > wrists yet (other than some intra-carpal cysts) that is still the > place that bothers me. I still cannot put any weight on my outstreched > hands (such as to lift myself up from the floor or a chair, etc) this > is particularly disturbing since I am a chiropractor and need my > wrists. Any thought or experience as to whether that may change in the > future? Everything else seems stable (fingers and other joints) and > having reached a plateau where I am actually considering cutting down > the AB... > Any thoughts or experience? > By the way, I have been taking Florastor which does not need to be > refrigerated and have no GI problems at all. To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 , Hi! I am new to this group as well and thought this would be a good way to introduce myself. I have a son who is 5 1/2 who has apraxia. He had fluid in his ears pretty much since he was born. It took the doctors until he was 2 to put tubes in. Our ENT is wonderful and stressed how important it is to keep the fluid out of his ears. Its the equivalent of hearing under water. The tubes stayed in for about a year and as soon as they fell out, his ears filled right back up with fluid. He is on his second set of tubes now. The fluid could be the cause for the speech delay. Most kids seem to change overnight once they get tubes. If only all problems were such an easy fix! I have a question about the diagnosis of apraxia. We were told had apraxia when he was around 3 by his special ed preschool teacher. He had been in an early intervention program since he was 15 months. Normally does a doctor diagnose this or are a teacher/speech therapist normally the one's who do. He has all the characteristics of it, so its obvious he has it, but was just wondering how others found out about apraxia. Sent from my BlackBerry wireless handheld. abcwoodcock@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 My son was in the same situation, only they told us to wait & see if the fluid left on its own..It didn't. He didn't get tubes until he was 26 months old. He is now 47 mo and has the vocab of a 3 yr old. I would suggest (very strongly) that you find a SLP that knows apraxia and also have a PT and OT eval done at the same time. We didn't get the PT or OT and then later we ended up with PT and OT. We have been in both school and Private therapy. I have seen the most improvement since doubling up the school and private therapy. It is a very long road ahead. Also, they will tell you that they can't diagnose apraxia until age 3, but you could strongly suggest that they treat it as such before 3. _____ From: [mailto: ] On Behalf Of Sent: Wednesday, February 21, 2007 2:35 PM Subject: [ ] New to the group... Hi all, I am new to the group and wanted to introduce myself. My son is a late talker. He is 23 m/o and says 2 words, 'uh oh' and 'dada' very infrequently. Last month, his doctor said he should be saying at least 20 words by now and beginning to string words together. So he referred us to an audiologist who said he has a lot of fluid built up behind his eardrums. He scheduled him for surgery to drain the fluid and put tubes in his ears on March 1st. Is this very common? I've talked to a few people who've said they went through the same thing with their children. Does anyone here have this same problem? If so, how quickly did their language pick up after the surgery? We're thinking of getting him into speech therapy after the surgery to help him along. Has anyone here taken their young child to speech therapy? Did it help and what sort of things did they do? Sorry for all the questions and thanks in advance for any answers! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 hello i am getting ready to go though the tubs with my son he 4 years old he been haveing problems with his ears his hole life and its takeing the doctor 4 years to get tub in his ears and his doctor is all so talking about takeing his tosils and adnoise out all on the same day tub in addnoise out and tosil out at age 2 1/2 to age 3 of age we took him took a doctor and the doctor told us since my son wasnt talking at that he has apraxia april / mark jr Woodcock <abcwoodcock@...> wrote: , Hi! I am new to this group as well and thought this would be a good way to introduce myself. I have a son who is 5 1/2 who has apraxia. He had fluid in his ears pretty much since he was born. It took the doctors until he was 2 to put tubes in. Our ENT is wonderful and stressed how important it is to keep the fluid out of his ears. Its the equivalent of hearing under water. The tubes stayed in for about a year and as soon as they fell out, his ears filled right back up with fluid. He is on his second set of tubes now. The fluid could be the cause for the speech delay. Most kids seem to change overnight once they get tubes. If only all problems were such an easy fix! I have a question about the diagnosis of apraxia. We were told had apraxia when he was around 3 by his special ed preschool teacher. He had been in an early intervention program since he was 15 months. Normally does a doctor diagnose this or are a teacher/speech therapist normally the one's who do. He has all the characteristics of it, so its obvious he has it, but was just wondering how others found out about apraxia. Sent from my BlackBerry wireless handheld. abcwoodcock@... img scr=*http://i2.photobucket.com --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 CST is the Child Study Team. They school's system of figuring out what's going on. They run their own tests, educational, physcological, ect. But like I said, they were wrong. > > > > Hi, My name is Kaylene. My son Nick is 6 1/2 years old and has > > recently been diagnosed with Aspergers and Bi-polar. We had a lot > of > > issues with Kindergarten, which lead to me stamping my feet and > > throwing a fit. CST got involved because the teacher and > principal > > basically said that we were bad parents, we needed to discipline > him > > better at home, he's a bad kid... ARG. CST eval says OCD, > explosive > > dissorder, ODD... blah blah blah. We went to a neuro pyhcologist > who > > said Aspergers, the school dissagreed. They sent us to a > > physciatrist (a complete QUACK!!) who said aspergers, shool still > > dissagreed. > > > > After 5 MONTHS!! I finally got in with a very reputible child > > physciatrist last friday and she sat with us for 2 1/2 hours. She > > confirmed AS and said Bi-polar (which I have so I wasn't too > > surprised) > > > > She started him on Depakote. He's on his 3rd day and he's > BOUNCING > > OFF THE WALLS. Anyone know if this is a " call the doctor " side > > effect? We go back next week anyway so I thought I'd wait. > > > > My question is for all you seasoned folks out there. I finally > have > > a diagnosis.. now what? They did pull him out of main stream and > he > > will start a special school in Sept. But what else should I start > > doing? Counceling? Therapy? I have no clue what to do now. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Ooooo! It always makes me made when a school thinks they know more than a doctor. How horrible that you had to go to so many just get them to listen. Find an advocate to help you deal with them. Anything you want, you need to put it in writing and ask for their response in writing. Save everything. If he does not already have an IEP, then write and ask for one. They are telling you no b/c they do not want to pay for services and they do not want to do anything but the norm. This is NOT the free appropriate education you are due. As for the depakote. I would call the pdoc. and let him know. I do not know if it is a side effect or if he just needs to have the dose increase. Glad to hear you have found a wonderful pdoc. that will work with you. Oh, and make sure the 'special school' they are putting him in is not a psycho ed center. That is NOT the place that an aspie kids needs to be in. Yes, he does have behavior issues but this is still not the place for him. Go to the s Law web site and learn your rights. It is overwhelming but very useful. The people in this group are great also. Good luck. ( ) New to the group... Hi, My name is Kaylene. My son Nick is 6 1/2 years old and has recently been diagnosed with Aspergers and Bi-polar. We had a lot of issues with Kindergarten, which lead to me stamping my feet and throwing a fit. CST got involved because the teacher and principal basically said that we were bad parents, we needed to discipline him better at home, he's a bad kid... ARG. CST eval says OCD, explosive dissorder, ODD... blah blah blah. We went to a neuro pyhcologist who said Aspergers, the school dissagreed. They sent us to a physciatrist (a complete QUACK!!) who said aspergers, shool still dissagreed. After 5 MONTHS!! I finally got in with a very reputible child physciatrist last friday and she sat with us for 2 1/2 hours. She confirmed AS and said Bi-polar (which I have so I wasn't too surprised)She started him on Depakote. He's on his 3rd day and he's BOUNCING OFF THE WALLS. Anyone know if this is a "call the doctor" side effect? We go back next week anyway so I thought I'd wait.My question is for all you seasoned folks out there. I finally have a diagnosis.. now what? They did pull him out of main stream and he will start a special school in Sept. But what else should I start doing? Counceling? Therapy? I have no clue what to do now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 He does have an IEP. I called and left a message for the dr. about the depakote. As for the school, he is starting a school here (NJ) called Calais in Sept. I really fought with the CST chick about schools. Since I'm new at this, I assumed he needed to be in an Autistic school. She said no, a behavior school. She took me to one autistic school to appease me and I had to admit that it wasn't for him. He is extremely high functioning and supper bright. Those kids weren't. I'm still not sure we made the right decision. Any advise would be helpful. The major problem we have is that he is violent. Extremely aggressive. A lot of schools wont take him. > > Ooooo! It always makes me made when a school thinks they know more than a doctor. How horrible that you had to go to so many just get them to listen. Find an advocate to help you deal with them. Anything you want, you need to put it in writing and ask for their response in writing. Save everything. If he does not already have an IEP, then write and ask for one. They are telling you no b/c they do not want to pay for services and they do not want to do anything but the norm. This is NOT the free appropriate education you are due. > As for the depakote. I would call the pdoc. and let him know. I do not know if it is a side effect or if he just needs to have the dose increase. Glad to hear you have found a wonderful pdoc. that will work with you. > Oh, and make sure the 'special school' they are putting him in is not a psycho ed center. That is NOT the place that an aspie kids needs to be in. Yes, he does have behavior issues but this is still not the place for him. > Go to the s Law web site and learn your rights. It is overwhelming but very useful. The people in this group are great also. > Good luck. > > > ( ) New to the group... > > > Hi, My name is Kaylene. My son Nick is 6 1/2 years old and has > recently been diagnosed with Aspergers and Bi-polar. We had a lot of > issues with Kindergarten, which lead to me stamping my feet and > throwing a fit. CST got involved because the teacher and principal > basically said that we were bad parents, we needed to discipline him > better at home, he's a bad kid... ARG. CST eval says OCD, explosive > dissorder, ODD... blah blah blah. We went to a neuro pyhcologist who > said Aspergers, the school dissagreed. They sent us to a > physciatrist (a complete QUACK!!) who said aspergers, shool still > dissagreed. > > After 5 MONTHS!! I finally got in with a very reputible child > physciatrist last friday and she sat with us for 2 1/2 hours. She > confirmed AS and said Bi-polar (which I have so I wasn't too > surprised) > > She started him on Depakote. He's on his 3rd day and he's BOUNCING > OFF THE WALLS. Anyone know if this is a " call the doctor " side > effect? We go back next week anyway so I thought I'd wait. > > My question is for all you seasoned folks out there. I finally have > a diagnosis.. now what? They did pull him out of main stream and he > will start a special school in Sept. But what else should I start > doing? Counceling? Therapy? I have no clue what to do now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 OK. I can see that you did not think he needed to be in an 'autistic' school. I certainly understand that he is aggressive and even violent. How about putting some safe-guards in his IEP. For example we have our son in smaller classes with 2 teachers. It is written in his IEP that the teacher is not to assume that he "got" the instruction and that she must then walk over to him, get his attention and then give him the directions or direct him to do it. These guys live in their own minds. We have trouble with this all the time. Like when he is re-telling about an event it will take a wild turn. We have to ask him to think about what he is saying and tell us what part really happened and what part was in his mind. Sometimes hard to do. OK, back to the IEP. Most of our kids have sensory issues. I would also take him to have sensory processing evaluated. Do not ask the school. Especially if they don't want to go what is right by you. Get the report and then give it to the school so that they will have the proof that he needs certain accommodations. My son can't be touched (unless he initiates it) or he will/could blow. It is a sensory issues. We let the school/teachers know this. He does NOT change classes when the bell rings and the halls are crowded. He changes either before or after the bell. He even starts off the school year doing this with an aid. He does not have a locker. They must supply books to keep at home and a set of books in each class. He only carries the essentials with him. There is also little to NO homework. He needs to de-compress when he gets home. He has 'held' it in all day and does not need the added stress of HW. All work in class is for mastery only. Like your son he is extremely bright. If they tell him to do something that he already knows he will shut down b/c it is stupid. This is in the IEP also. I hope this helps. I don't know what to tell you about the behavioral school he is slated to attend. Our kids pick up on behavior and don't need to be around other behavior problems. They also usually have sensory issues that will cause huge problems. My advice would be to get him back into the regular school with the proper supports. (safe person/place to blow off steam, etc.) If his regular school is not a good fit b/c the admin. does not want to help you then look at other public schools in your county. If another is more accommodating and you switch him, then the county will have to provide transportation to that school just like they do the one he is slated for. My son is only going for a few hours (we are going to add classes as he adjusts) and the bus brings him home in the middle of the day. He is the only one on the bus and he loves it. He does not have to talk to anyone. Sorry this is long. Hope it helps. ( ) New to the group...> > > Hi, My name is Kaylene. My son Nick is 6 1/2 years old and has > recently been diagnosed with Aspergers and Bi-polar. We had a lot of > issues with Kindergarten, which lead to me stamping my feet and > throwing a fit. CST got involved because the teacher and principal > basically said that we were bad parents, we needed to discipline him > better at home, he's a bad kid... ARG. CST eval says OCD, explosive > dissorder, ODD... blah blah blah. We went to a neuro pyhcologist who > said Aspergers, the school dissagreed. They sent us to a > physciatrist (a complete QUACK!!) who said aspergers, shool still > dissagreed. > > After 5 MONTHS!! I finally got in with a very reputible child > physciatrist last friday and she sat with us for 2 1/2 hours. She > confirmed AS and said Bi-polar (which I have so I wasn't too > surprised)> > She started him on Depakote. He's on his 3rd day and he's BOUNCING > OFF THE WALLS. Anyone know if this is a "call the doctor" side > effect? We go back next week anyway so I thought I'd wait.> > My question is for all you seasoned folks out there. I finally have > a diagnosis.. now what? They did pull him out of main stream and he > will start a special school in Sept. But what else should I start > doing? Counceling? Therapy? I have no clue what to do now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Thank you so much. That was VERY informative! I was planning on calling his CST councelor today, and this gave me some other things to talk about. > > > > Ooooo! It always makes me made when a school thinks they know more > than a doctor. How horrible that you had to go to so many just get > them to listen. Find an advocate to help you deal with them. > Anything you want, you need to put it in writing and ask for their > response in writing. Save everything. If he does not already have > an IEP, then write and ask for one. They are telling you no b/c they > do not want to pay for services and they do not want to do anything > but the norm. This is NOT the free appropriate education you are due. > > As for the depakote. I would call the pdoc. and let him know. I > do not know if it is a side effect or if he just needs to have the > dose increase. Glad to hear you have found a wonderful pdoc. that > will work with you. > > Oh, and make sure the 'special school' they are putting him in is > not a psycho ed center. That is NOT the place that an aspie kids > needs to be in. Yes, he does have behavior issues but this is still > not the place for him. > > Go to the s Law web site and learn your rights. It is > overwhelming but very useful. The people in this group are great > also. > > Good luck. > > > > > > ( ) New to the group... > > > > > > Hi, My name is Kaylene. My son Nick is 6 1/2 years old and has > > recently been diagnosed with Aspergers and Bi-polar. We had a lot > of > > issues with Kindergarten, which lead to me stamping my feet and > > throwing a fit. CST got involved because the teacher and > principal > > basically said that we were bad parents, we needed to discipline > him > > better at home, he's a bad kid... ARG. CST eval says OCD, > explosive > > dissorder, ODD... blah blah blah. We went to a neuro pyhcologist > who > > said Aspergers, the school dissagreed. They sent us to a > > physciatrist (a complete QUACK!!) who said aspergers, shool still > > dissagreed. > > > > After 5 MONTHS!! I finally got in with a very reputible child > > physciatrist last friday and she sat with us for 2 1/2 hours. She > > confirmed AS and said Bi-polar (which I have so I wasn't too > > surprised) > > > > She started him on Depakote. He's on his 3rd day and he's > BOUNCING > > OFF THE WALLS. Anyone know if this is a " call the doctor " side > > effect? We go back next week anyway so I thought I'd wait. > > > > My question is for all you seasoned folks out there. I finally > have > > a diagnosis.. now what? They did pull him out of main stream and > he > > will start a special school in Sept. But what else should I start > > doing? Counceling? Therapy? I have no clue what to do now. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Hi Group! We just started with Dr. G. a few weeks ago. Our son showed high (very high) Igg for Epstein, HHV-6, CMV, I and II. We are still overwhelmed by this. Dr. G. Prescribed Famvir and we have been on it for three weeks now and we have not noticed any changes. Dr. G wants us to keep using this famvir and in a couple of days use Paxil. I have been reading about this medication and is really freaking me out! Does anyone has anything good to say about this medication? My little one is 5 and for the last 2 years we have treated his " autism " he never had used this kind of meds. Any info will be greatly appreciated! thanks Lorna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Hi, welcome! Oh gosh, go back and read through past posts, and you'll find others dealing with same/similar! I hate that incident happened, we know how our kids want to fit in, have friends. You mentioned a sleepover at a friend's house. Is this a new friend or one he's known for years? Just wondering if he's had much of a social life in past years. Middle school is so hard anyway for kids. My Aspie son, who also has OCD, is now 21. His OCD began in 6th grade. He never had any social life, friends to hang out with outside school, as he grew up. Had some friends, or those who were nice, while at school, just no one called him at home. Things improved some later in high school and then since high school (yay!) Being a single mom with 3 sons, I wish I could offer you some solid advice on how to handle your son's stealing and sneaking, but at that age having them listen to anything I said was difficult. Except, luckily, my Aspie son was never a behavior problem. Consequences and setting limits (which they may defy) are all I can think of and I know you're already doing that. Is there anyone he's met at this school that he's friendly with and you want to encourage the friendship? Just wondering if you can have him socialize more, in school and out, with *that* person, where he may stay out of trouble, change some behaviors...so he won't be trying to " fit in " with the wrong ones. > > Hi, > The frustration has set in, I needed to talk with others that are in the same situation. My son was diagnosed with ADHD in 1st grade, though medication too care of his attention problems, there was still many issues that we were dealing with. After 2 years of therapy, we were finally referred to a child psychologist, where he was diagnosed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Had another thought. Have any behaviors started, or gotten worse, since he began any medication or had an increase in one? > > Hi, > The frustration has set in, I needed to talk with others that are in the same situation. My son was diagnosed with ADHD in 1st grade, though medication too care of his attention problems, there was still many issues that we were dealing with. After 2 years of therapy, we were finally referred to a child psychologist, where he was diagnosed with Aspergers. He is now being treated for depression also, and have found it to be the most challenging year yet. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 I don't know why this one showed up before the longer reply I did before this " another thought " one!! Don't see the earlier one. Maybe it'll pop up later! > > > > Hi, > > The frustration has set in, I needed to talk with others that are in the same situation. My son was diagnosed with ADHD in 1st grade, though medication too care of his attention problems, there was still many issues that we were dealing with. After 2 years of therapy, we were finally referred to a child psychologist, where he was diagnosed with Aspergers. He is now being treated for depression also, and have found it to be the most challenging year yet. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Thank you. I try to stay positive, though there are frustrating days, I love my boys and want to try anything to make things easier both of them (my other son doesn't have Aspergers, but has ADHD). I can tell this group is going to be beneficial. In many ways. > > > > > > Hi, > > > The frustration has set in, I needed to talk with others that are in the same > >situation. My son was diagnosed with ADHD in 1st grade, though medication too > >care of his attention problems, there was still many issues that we were dealing > >with. After 2 years of therapy, we were finally referred to a child > >psychologist, where he was diagnosed > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 Hello to the Group, This group is very understanding and nonjudmental. I hear some of the things you're talking about. My son is 7, diagnosed ADHD at kindergarten, but nothing was done on the schools end. And I was a neophyte so I didn't know about IEPetc. He was put on Ritalin, but I always knew there was something more there. Then I found this group. I researched AS because my ADvocate said he may be. I had a child psych. meet with him, and in all his years of experience he definately fits into PDD-NOS. He prescribed Abilify. We have been on it 3 days, but what a wonder drug!!! We also had issues with stealing. He would steal anything that would fit into his pocket that belonged to someone else, even the teacher!! Luckily none of that this year has surfaced. He doesn't have any friends, and prefers to sit all day playing with his fingers until the last bell rings for school out. I can't relate to wanting to fit in so much that your son would grab a girls breast, because my son doesn't even care if he has friends or not. I don't know if I helped, but at least know that I listened to your story and think positive thoughts about you and your son. Cathleen From: csjohnson70 <csjohnson70@...> Sent: Fri, October 8, 2010 6:49:06 PMSubject: ( ) New to the group... Hi,The frustration has set in, I needed to talk with others that are in the same situation. My son was diagnosed with ADHD in 1st grade, though medication too care of his attention problems, there was still many issues that we were dealing with. After 2 years of therapy, we were finally referred to a child psychologist, where he was diagnosed with Aspergers. He is now being treated for depression also, and have found it to be the most challenging year yet. This is his first year of 7th grade, in a new school. I thought things were going okay, until I found out some 8th grade boys were daring him to grab a girls chest. He is so determined to fit in, he did it and a call the principal's office later followed. There was an incident in confirmation where he talked inappropriately also. Has anyone else ever gone through this? Of course, along with this are the constant reminders, he is very sneaky, taken toys from a friends house during a sleepover, which I took him to return immediately, sneaking junk foot and and hiding wrappers under the furniture. We have tried almost everything to take care of these issues, even going as far as scheduling an appt with a police officer, to talk about the severity of what he was doing. The steeling has gotten better, but things have been difficult. I'm sorry to be rambling, but if anyone else has gone through any of these problems, I would love to have any advice or feedback. I want nothing more than to be a good parent, but the stress is taking its toll. Do you have any ideas? Anything would be wonderful. Thanks you for listening. Quote Link to comment Share on other sites More sharing options...
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